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Published in: BMC Geriatrics 1/2022

Open Access 01-12-2022 | Care | Research

What matters most in acute care: an interview study with older people living with frailty

Authors: James David van Oppen, Timothy John Coats, Simon Paul Conroy, Jagruti Lalseta, Kay Phelps, Emma Regen, Peter Riley, Jose Maria Valderas, Nicola Mackintosh

Published in: BMC Geriatrics | Issue 1/2022

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Abstract

Background

Healthcare outcome goals are central to person-centred acute care, however evidence among older people is scarce. Older people who are living with frailty have distinct requirements for healthcare delivery and have distinct risk for adverse outcomes from healthcare. There is insufficient evidence for whether those living with frailty also have distinct healthcare outcome goals. This study explored the nature of acute care outcome goals in people living with frailty.

Methods

Healthcare outcome goals were explored using semi-structured patient interviews. Participants aged over 65 with Clinical Frailty Score 5-8 (mild to very severe frailty) were recruited during their first 72 hours in a UK hospital. Purposive, maximum variation sampling was guided by lay partners from a Patient and Public Involvement Forum specialising in ageing-related research. Qualitative analysis used a blended approach based on framework and constant comparative methodologies for the identification of themes. Findings were validated through triangulation with participant, lay partner, and technical expert review.

Results

The 22 participants were aged 71 to 98 and had mild to very severe frailty. One quarter were living with dementia. Most participants had reflected on their situation and considered their outcome goals. Theme categories (and corresponding sub-categories) were ‘Autonomy’ (information, control, and security) and ‘Functioning’ (physical, psychosocial, and relief). A novel ‘security’ theme was identified, whereby participants sought to feel safe in their usual living place and with their health problems. Those living with milder frailty were concerned to maintain ability to support loved ones, while those living with most severe frailty were concerned about burdening others.

Conclusions

Outcome goals for acute care among older participants living with frailty were influenced by the insecurity of their situation and fear of deterioration. Patients may be supported to feel safe and in control through appropriate information provision and functional support.
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Literature
1.
go back to reference Morley C, Unwin M, Peterson GM, Stankovich J, Kinsman L. Emergency department crowding: A systematic review of causes, consequences and solutions. PloS one. 2018;13(8):e0203316-e.CrossRef Morley C, Unwin M, Peterson GM, Stankovich J, Kinsman L. Emergency department crowding: A systematic review of causes, consequences and solutions. PloS one. 2018;13(8):e0203316-e.CrossRef
2.
go back to reference Singler K, Christ M, Sieber C, Gosch M, Heppner HJ. Geriatrische Patienten in Notaufnahme und Intensivmedizin. Der Internist. 2011;52(8):934–8.CrossRef Singler K, Christ M, Sieber C, Gosch M, Heppner HJ. Geriatrische Patienten in Notaufnahme und Intensivmedizin. Der Internist. 2011;52(8):934–8.CrossRef
3.
go back to reference Keeble E, Roberts HC, Williams CD, Van Oppen J, Conroy SP. Outcomes of hospital admissions among frail older people: a 2-year cohort study. Br J Gen Pract. 2019;69(685):e555–e60.CrossRef Keeble E, Roberts HC, Williams CD, Van Oppen J, Conroy SP. Outcomes of hospital admissions among frail older people: a 2-year cohort study. Br J Gen Pract. 2019;69(685):e555–e60.CrossRef
4.
go back to reference Considine J, Berry D, Rasmussen B, Hutchinson AM, Rawson H, Jordan P, et al. Impact of emergency department length of stay on anxiety and comfort in older people. International Emergency Nursing. 2021;56:100974.CrossRef Considine J, Berry D, Rasmussen B, Hutchinson AM, Rawson H, Jordan P, et al. Impact of emergency department length of stay on anxiety and comfort in older people. International Emergency Nursing. 2021;56:100974.CrossRef
5.
go back to reference Fletcher AE, Price GM, Ng ESW, Stirling SL, Bulpitt CJ, Breeze E, et al. Population-based multidimensional assessment of older people in UK general practice: a cluster-randomised factorial trial. Lancet. 364:9446, 1667–77. Fletcher AE, Price GM, Ng ESW, Stirling SL, Bulpitt CJ, Breeze E, et al. Population-based multidimensional assessment of older people in UK general practice: a cluster-randomised factorial trial. Lancet. 364:9446, 1667–77.
6.
go back to reference Rockwood K, Mitnitski A. Frailty Defined by Deficit Accumulation and Geriatric Medicine Defined by Frailty. Clin Geriatric Med. 2011;27(1):17–26.CrossRef Rockwood K, Mitnitski A. Frailty Defined by Deficit Accumulation and Geriatric Medicine Defined by Frailty. Clin Geriatric Med. 2011;27(1):17–26.CrossRef
7.
go back to reference Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB, McDowell I, et al. A global clinical measure of fitness and frailty in elderly people. CMAJ. 2005;173(5):489–95.CrossRef Rockwood K, Song X, MacKnight C, Bergman H, Hogan DB, McDowell I, et al. A global clinical measure of fitness and frailty in elderly people. CMAJ. 2005;173(5):489–95.CrossRef
8.
go back to reference Elliott A, Taub N, Banerjee J, Aijaz F, Jones W, Teece L, et al. Does the Clinical Frailty Scale at Triage Predict Outcomes From Emergency Care for Older People? Ann Emerg Med. 2020. Elliott A, Taub N, Banerjee J, Aijaz F, Jones W, Teece L, et al. Does the Clinical Frailty Scale at Triage Predict Outcomes From Emergency Care for Older People? Ann Emerg Med. 2020.
9.
go back to reference Elliott A, Phelps K, Regen E, Conroy SP. Identifying frailty in the Emergency Department—feasibility study. Age and Ageing. 2017;46(5):840–5.CrossRef Elliott A, Phelps K, Regen E, Conroy SP. Identifying frailty in the Emergency Department—feasibility study. Age and Ageing. 2017;46(5):840–5.CrossRef
10.
go back to reference Conroy S, Carpenter C, Banerjee J. Silver Book II. London, UK. Brit Geriatrics Soc. 2021. Conroy S, Carpenter C, Banerjee J. Silver Book II. London, UK. Brit Geriatrics Soc. 2021.
11.
go back to reference Ellis G, Whitehead M, O'Neill D, Robinson D, Langhorne P. Comprehensive geriatric assessment for older adults admitted to hospital. Cochrane Database Syst Rev. 2011;6(7):CD006211. Ellis G, Whitehead M, O'Neill D, Robinson D, Langhorne P. Comprehensive geriatric assessment for older adults admitted to hospital. Cochrane Database Syst Rev. 2011;6(7):CD006211.
12.
go back to reference Institute for Healthcare Improvement. Age-Friendly Health Systems: Guide to Using the 4Ms in the Care of Older Adults. 2020. Institute for Healthcare Improvement. Age-Friendly Health Systems: Guide to Using the 4Ms in the Care of Older Adults. 2020.
13.
go back to reference Naik AD, Dindo LN, Van Liew JR, Hundt NE, Vo L, Hernandez-Bigos K, et al. Development of a clinically feasible process for identifying individual health priorities. J Am Geriatr Soc. 2018;66(10):1872–9.CrossRef Naik AD, Dindo LN, Van Liew JR, Hundt NE, Vo L, Hernandez-Bigos K, et al. Development of a clinically feasible process for identifying individual health priorities. J Am Geriatr Soc. 2018;66(10):1872–9.CrossRef
14.
go back to reference van Oppen JD, Valderas JM, Mackintosh NJ, Conroy SP. Patient-reported outcome and experience measures in geriatric emergency medicine. Z Gerontol Geriatr. 2020. van Oppen JD, Valderas JM, Mackintosh NJ, Conroy SP. Patient-reported outcome and experience measures in geriatric emergency medicine. Z Gerontol Geriatr. 2020.
15.
go back to reference van Oppen JD, Keillor L, Mitchell A, Coats TJ, Conroy SP. What older people want from emergency care: a systematic review. Emerg Med J. 2019;36(12):754–61.PubMed van Oppen JD, Keillor L, Mitchell A, Coats TJ, Conroy SP. What older people want from emergency care: a systematic review. Emerg Med J. 2019;36(12):754–61.PubMed
16.
go back to reference Melady D. Geriatric emergency medicine: Research priorities to respond to "The Silver Boom". CJEM. 2018;20(3):327–8.CrossRef Melady D. Geriatric emergency medicine: Research priorities to respond to "The Silver Boom". CJEM. 2018;20(3):327–8.CrossRef
17.
go back to reference van Munster BC, Boot GG, Festen SF, de Rooij SE. Goals and outcomes of hospitalised older people: does the current hospital care match the needs of older people? Intern Med J. 2021. van Munster BC, Boot GG, Festen SF, de Rooij SE. Goals and outcomes of hospitalised older people: does the current hospital care match the needs of older people? Intern Med J. 2021.
18.
go back to reference Cluley V, Martin G, Radnor Z, Banerjee J. Frailty as biographical disruption. Sociol Health Illn 2021;n/a(n/a). Cluley V, Martin G, Radnor Z, Banerjee J. Frailty as biographical disruption. Sociol Health Illn 2021;n/a(n/a).
19.
go back to reference Fusch P, Ness L. Are We There Yet? Data Saturation in Qualitative Research. Qual Rep. 2015;20(9):1408–16. Fusch P, Ness L. Are We There Yet? Data Saturation in Qualitative Research. Qual Rep. 2015;20(9):1408–16.
20.
go back to reference Hennink MM, Kaiser BN, Marconi VC. Code Saturation Versus Meaning Saturation: How Many Interviews Are Enough? Qual Health Res. 2016;27(4):591–608.CrossRef Hennink MM, Kaiser BN, Marconi VC. Code Saturation Versus Meaning Saturation: How Many Interviews Are Enough? Qual Health Res. 2016;27(4):591–608.CrossRef
21.
go back to reference Bengtsson M. How to plan and perform a qualitative study using content analysis. Nursing Plus Open. 2016;2:8–14.CrossRef Bengtsson M. How to plan and perform a qualitative study using content analysis. Nursing Plus Open. 2016;2:8–14.CrossRef
22.
go back to reference QSR International Pty Ltd. NVivo. 11 ed2015. QSR International Pty Ltd. NVivo. 11 ed2015.
23.
go back to reference Merriam SB, Tisdell EJ. Qualitative Research : A Guide to Design and Implementation. Newark, UNITED STATES: John Wiley & Sons, Incorporated; 2015. Merriam SB, Tisdell EJ. Qualitative Research : A Guide to Design and Implementation. Newark, UNITED STATES: John Wiley & Sons, Incorporated; 2015.
24.
go back to reference Glaser BG. The Constant Comparative Method of Qualitative Analysis. Social Problems. 1965;12(4):436–45.CrossRef Glaser BG. The Constant Comparative Method of Qualitative Analysis. Social Problems. 1965;12(4):436–45.CrossRef
25.
go back to reference Glaser BG, Strauss A. The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine; 1967. Glaser BG, Strauss A. The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine; 1967.
26.
go back to reference Glaser BG, Holton JA. Staying Open: The use of theoretical codes in grounded theory. Grounded Theory. Review. 2005;5(1). Glaser BG, Holton JA. Staying Open: The use of theoretical codes in grounded theory. Grounded Theory. Review. 2005;5(1).
27.
go back to reference Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.CrossRef Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–57.CrossRef
28.
go back to reference Preston L, van Oppen J, Conroy S, Ablard S, Buckley Woods H, Mason S. Improving outcomes for older people in the emergency department: a review of reviews. Emerg Med J. 2020. Preston L, van Oppen J, Conroy S, Ablard S, Buckley Woods H, Mason S. Improving outcomes for older people in the emergency department: a review of reviews. Emerg Med J. 2020.
29.
go back to reference Olde Rikkert MGM, van der Wees PJ, Schoon Y, Westert GP. Using Patient Reported Outcomes Measures to Promote Integrated Care. Int J Integr Care. 2018;18(2):8.CrossRef Olde Rikkert MGM, van der Wees PJ, Schoon Y, Westert GP. Using Patient Reported Outcomes Measures to Promote Integrated Care. Int J Integr Care. 2018;18(2):8.CrossRef
30.
go back to reference Heeß A, Meyer AM, Becker I, Noetzel N, Verleysdonk J, Rarek M, et al. The prognostic fingerprint of quality of life in older inpatients : Relationship to geriatric syndromes' and resources' profile. Z Gerontol Geriatr. 2021. Heeß A, Meyer AM, Becker I, Noetzel N, Verleysdonk J, Rarek M, et al. The prognostic fingerprint of quality of life in older inpatients : Relationship to geriatric syndromes' and resources' profile. Z Gerontol Geriatr. 2021.
31.
go back to reference Søvde BE, Sandvoll AM, Natvik E, Drageset J. In the borderland of the body: How home-dwelling older people experience frailty. Scand J Caring Sci 2021;n/a(n/a). Søvde BE, Sandvoll AM, Natvik E, Drageset J. In the borderland of the body: How home-dwelling older people experience frailty. Scand J Caring Sci 2021;n/a(n/a).
32.
go back to reference Wolff JL, Boyd CM. A Look at Person-Centered and Family-Centered Care Among Older Adults: Results from a National Survey. J Gen Intern Med. 2015;30(10):1497–504.CrossRef Wolff JL, Boyd CM. A Look at Person-Centered and Family-Centered Care Among Older Adults: Results from a National Survey. J Gen Intern Med. 2015;30(10):1497–504.CrossRef
33.
go back to reference Woo J. The Myth of Filial Piety as a Pillar for Care of Older Adults among Chinese Populations. Adv Geriatric Med Res. 2020;2(2):e200012. Woo J. The Myth of Filial Piety as a Pillar for Care of Older Adults among Chinese Populations. Adv Geriatric Med Res. 2020;2(2):e200012.
34.
go back to reference Akpan A, Roberts C, Bandeen-Roche K, Batty B, Bausewein C, Bell D, et al. Standard set of health outcome measures for older persons. BMC Geriatr. 2018;18(1):36.CrossRef Akpan A, Roberts C, Bandeen-Roche K, Batty B, Bausewein C, Bell D, et al. Standard set of health outcome measures for older persons. BMC Geriatr. 2018;18(1):36.CrossRef
35.
go back to reference Conroy SP, Bardsley M, Smith P, Neuburger J, Keeble E, Arora S, et al. Comprehensive geriatric assessment for frail older people in acute hospitals: the HoW-CGA mixed-methods study. Health Serv Deliv Res. 2019;7:15.CrossRef Conroy SP, Bardsley M, Smith P, Neuburger J, Keeble E, Arora S, et al. Comprehensive geriatric assessment for frail older people in acute hospitals: the HoW-CGA mixed-methods study. Health Serv Deliv Res. 2019;7:15.CrossRef
36.
go back to reference Llanwarne N, Newbould J, Burt J, Campbell JL, Roland M. Wasting the doctor's time? A video-elicitation interview study with patients in primary care. Soc Sci Med. 2017;176:113–22.CrossRef Llanwarne N, Newbould J, Burt J, Campbell JL, Roland M. Wasting the doctor's time? A video-elicitation interview study with patients in primary care. Soc Sci Med. 2017;176:113–22.CrossRef
37.
go back to reference van Oppen JD. Testing and validation of a Patient-Reported Outcome Measure for Older People with frailty and Acute Care needs (PROM-OPAC). Protocolsio. 2021. van Oppen JD. Testing and validation of a Patient-Reported Outcome Measure for Older People with frailty and Acute Care needs (PROM-OPAC). Protocolsio. 2021.
38.
go back to reference Sablerolles RSG, Lafeber M, van Kempen JAL, van de Loo BPA, Boersma E, Rietdijk WJR, et al. Association between Clinical Frailty Scale score and hospital mortality in adult patients with COVID-19 (COMET): an international, multicentre, retrospective, observational cohort study. Lancet Healthy Longevity. 2021;2(3):e163–e70.CrossRef Sablerolles RSG, Lafeber M, van Kempen JAL, van de Loo BPA, Boersma E, Rietdijk WJR, et al. Association between Clinical Frailty Scale score and hospital mortality in adult patients with COVID-19 (COMET): an international, multicentre, retrospective, observational cohort study. Lancet Healthy Longevity. 2021;2(3):e163–e70.CrossRef
39.
go back to reference Hansen TK, Jensen AL, Damsgaard EM, Rubak TMM, Jensen MEJ, Gregersen M. Involving frail older patients in identifying outcome measures for transitional care—a feasibility study. Res Involv Engagem. 2021;7(1):36.CrossRef Hansen TK, Jensen AL, Damsgaard EM, Rubak TMM, Jensen MEJ, Gregersen M. Involving frail older patients in identifying outcome measures for transitional care—a feasibility study. Res Involv Engagem. 2021;7(1):36.CrossRef
40.
go back to reference Hagerty SF, Burke RC, Isbell LM, Barasz K, Smulowitz P. Patient Perceptions of Diagnostic Certainty at Discharge and Patient Satisfaction in the ED. Academic Emergency Medicine. 2021;n/a(n/a). Hagerty SF, Burke RC, Isbell LM, Barasz K, Smulowitz P. Patient Perceptions of Diagnostic Certainty at Discharge and Patient Satisfaction in the ED. Academic Emergency Medicine. 2021;n/a(n/a).
41.
go back to reference Elwyn G, Frosch D, Thomson R, Joseph-Williams N, Lloyd A, Kinnersley P, et al. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361–7.CrossRef Elwyn G, Frosch D, Thomson R, Joseph-Williams N, Lloyd A, Kinnersley P, et al. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361–7.CrossRef
42.
go back to reference Chewning B, Bylund CL, Shah B, Arora NK, Gueguen JA, Makoul G. Patient preferences for shared decisions: A systematic review. Patient Educ Counseling. 2012;86(1):9–18.CrossRef Chewning B, Bylund CL, Shah B, Arora NK, Gueguen JA, Makoul G. Patient preferences for shared decisions: A systematic review. Patient Educ Counseling. 2012;86(1):9–18.CrossRef
43.
go back to reference Hunter C, Chew-Graham C, Langer S, Stenhoff A, Drinkwater J, Guthrie E, et al. A qualitative study of patient choices in using emergency health care for long-term conditions: The importance of candidacy and recursivity. Patient Education and Counseling. 2013;93(2):335–41.CrossRef Hunter C, Chew-Graham C, Langer S, Stenhoff A, Drinkwater J, Guthrie E, et al. A qualitative study of patient choices in using emergency health care for long-term conditions: The importance of candidacy and recursivity. Patient Education and Counseling. 2013;93(2):335–41.CrossRef
44.
go back to reference Dixon-Woods M, Cavers D, Agarwal S, Annandale E, Arthur A, Harvey J, et al. Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BMC Med Res Methodol. 2006;6(1):35.CrossRef Dixon-Woods M, Cavers D, Agarwal S, Annandale E, Arthur A, Harvey J, et al. Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BMC Med Res Methodol. 2006;6(1):35.CrossRef
Metadata
Title
What matters most in acute care: an interview study with older people living with frailty
Authors
James David van Oppen
Timothy John Coats
Simon Paul Conroy
Jagruti Lalseta
Kay Phelps
Emma Regen
Peter Riley
Jose Maria Valderas
Nicola Mackintosh
Publication date
01-12-2022
Publisher
BioMed Central
Keyword
Care
Published in
BMC Geriatrics / Issue 1/2022
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-022-02798-x

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