Skip to main content
Top
Published in: BMC Primary Care 1/2020

Open Access 01-12-2020 | Care | Research article

Disconnected relationships between primary care and community-based health and social services and system navigation for older adults: a qualitative descriptive study

Authors: Ruta Valaitis, Laura Cleghorn, Jenny Ploeg, Cathy Risdon, Derelie Mangin, Lisa Dolovich, Gina Agarwal, Doug Oliver, Jessica Gaber, Harjit Chung

Published in: BMC Primary Care | Issue 1/2020

Login to get access

Abstract

Background

There are gaps in knowledge and understanding about the relationships between primary care and community-based health and social services in the context of healthy aging at home and system navigation. This study examined provider perspectives on: a) older adults’ health and social needs; b) barriers to accessing services; c) the nature of relationships between primary care and health and social services; and d) ways to facilitate primary care and health and social services navigation to optimize older adults’ health.

Methods

Four focus groups were conducted involving providers (n = 21) in: urban primary care clinics and health and social services organizations serving older adults in Hamilton, Ontario, Canada. Purposive sampling was employed to recruit community health and social services managers, directors or supervisors and primary health care providers in a Family Health Team via email.

Results

Health and social services needs were exacerbated for community-dwelling older adults with multiple chronic conditions. Strong family/caregiver social support and advocacy was often lacking. Access barriers for older adults included: financial challenges; lack of accessible transportation; wait times and eligibility criteria; and lack of programs to address older adults’ needs. Having multiple providers meant that assessments among providers and older adults resulted in contradictory care pathways. Primary care and health and social services linkages were deficient and complicated by poor communication with patients and health literacy barriers. Primary care had stronger links with other health services than with community-based health and social services; primary care providers were frustrated by the complex nature of health and social services navigation; and care coordination was problematic. Health and social services referred older adults to primary care for medical needs and gathered patient information to gauge program eligibility, but not without challenges.

Conclusions

Results point to strategies to strengthen primary care and health and social services system navigation for older adults including: using a person-focused approach; employing effective primary care and health and social services communication strategies; applying effective system navigation; building trust between primary care and health and social services providers; advocating for improved program access; and adapting services/programs to address access barriers and meet older adults’ needs.
Appendix
Available only for authorised users
Literature
1.
go back to reference Beard JR, Officer A, de Carvalho IA, Sadana R, Pot AM, Michel J-P, et al. The world report on ageing and health: a policy framework for healthy ageing. Lancet. 2016;387(10033):2145–54.PubMedCrossRef Beard JR, Officer A, de Carvalho IA, Sadana R, Pot AM, Michel J-P, et al. The world report on ageing and health: a policy framework for healthy ageing. Lancet. 2016;387(10033):2145–54.PubMedCrossRef
2.
go back to reference Mossabir R, Morris R, Kennedy A, Blickem C, Rogers A. A scoping review to understand the effectiveness of linking schemes from healthcare providers to community resources to improve the health and well-being of people with long-term conditions. Health Soc Care Community. 2015;23(5):467–84.PubMedCrossRef Mossabir R, Morris R, Kennedy A, Blickem C, Rogers A. A scoping review to understand the effectiveness of linking schemes from healthcare providers to community resources to improve the health and well-being of people with long-term conditions. Health Soc Care Community. 2015;23(5):467–84.PubMedCrossRef
3.
go back to reference Osborn R, Moulds D, Squires D, Doty MM, Anderson C. International survey of older adults finds shortcomings in access, coordination, and patient-centered care. Health Aff. 2014;33(12):2247–55.CrossRef Osborn R, Moulds D, Squires D, Doty MM, Anderson C. International survey of older adults finds shortcomings in access, coordination, and patient-centered care. Health Aff. 2014;33(12):2247–55.CrossRef
4.
go back to reference Ploeg J, Matthew-Maich N, Fraser K, Dufour S, McAiney C, Kaasalainen S, et al. Managing multiple chronic conditions in the community: a Canadian qualitative study of the experiences of older adults, family caregivers and healthcare providers. BMC Geriatr. 2017;17(1):40.PubMedPubMedCentralCrossRef Ploeg J, Matthew-Maich N, Fraser K, Dufour S, McAiney C, Kaasalainen S, et al. Managing multiple chronic conditions in the community: a Canadian qualitative study of the experiences of older adults, family caregivers and healthcare providers. BMC Geriatr. 2017;17(1):40.PubMedPubMedCentralCrossRef
5.
go back to reference Sturmberg JP, Botelho RJ, Kissling B. Integrated multimorbidity management in primary care: why, what, how, and how to? J Comorbidity. 2016;6(2):114.CrossRef Sturmberg JP, Botelho RJ, Kissling B. Integrated multimorbidity management in primary care: why, what, how, and how to? J Comorbidity. 2016;6(2):114.CrossRef
6.
go back to reference Strain LA, Blandford AA. Community-based services for the taking but few takers: reasons for nonuse. J Appl Gerontol. 2002;21(2):220–35.CrossRef Strain LA, Blandford AA. Community-based services for the taking but few takers: reasons for nonuse. J Appl Gerontol. 2002;21(2):220–35.CrossRef
7.
go back to reference Shier G, Ginsburg M, Howell J, Volland P, Golden R. Strong social support services, such as transportation and help for caregivers, can lead to lower health care use and costs. Health Aff. 2013;32(3):544–51.CrossRef Shier G, Ginsburg M, Howell J, Volland P, Golden R. Strong social support services, such as transportation and help for caregivers, can lead to lower health care use and costs. Health Aff. 2013;32(3):544–51.CrossRef
8.
go back to reference Valaitis R, Carter N, Lam A, Nicholl J, Feather J, Cleghorn L. Implementation and maintenance of patient navigation programs linking primary care with community-based health and social services: a scoping literature review. BMC Health Serv Res. 2017;17:116.PubMedPubMedCentralCrossRef Valaitis R, Carter N, Lam A, Nicholl J, Feather J, Cleghorn L. Implementation and maintenance of patient navigation programs linking primary care with community-based health and social services: a scoping literature review. BMC Health Serv Res. 2017;17:116.PubMedPubMedCentralCrossRef
9.
go back to reference Bickerdike L, Booth A, Wilson PM, Farley K, Wright K. Social prescribing: less rhetoric and more reality. A systematic review of the evidence. BMJ Open. 2017;7(4):e013384.PubMedPubMedCentralCrossRef Bickerdike L, Booth A, Wilson PM, Farley K, Wright K. Social prescribing: less rhetoric and more reality. A systematic review of the evidence. BMJ Open. 2017;7(4):e013384.PubMedPubMedCentralCrossRef
10.
go back to reference Denton M, Ploeg J, Tindale J, Hutchison B, Brazil K, Akhtar-Danesh N, et al. Where would you turn for help? Older adults' awareness of community services. Canadian J Aging/La Revue canadienne du vieillissement. 2008;27(4):359–70.CrossRef Denton M, Ploeg J, Tindale J, Hutchison B, Brazil K, Akhtar-Danesh N, et al. Where would you turn for help? Older adults' awareness of community services. Canadian J Aging/La Revue canadienne du vieillissement. 2008;27(4):359–70.CrossRef
11.
go back to reference Ploeg J, Denton M, Tindale J, Hutchison B, Brazil K, Akhtar-Danesh N, et al. Older adults’ awareness of community health and support services for dementia care. Canadian J Aging/La Revue canadienne du vieillissement. 2009;28(04):359–70.CrossRef Ploeg J, Denton M, Tindale J, Hutchison B, Brazil K, Akhtar-Danesh N, et al. Older adults’ awareness of community health and support services for dementia care. Canadian J Aging/La Revue canadienne du vieillissement. 2009;28(04):359–70.CrossRef
12.
go back to reference Chappell N, McDonald L, Stones M. Aging in contemporary Canada. 2nd ed. Toronto: Pearson-Prentice Hall; 2008. Chappell N, McDonald L, Stones M. Aging in contemporary Canada. 2nd ed. Toronto: Pearson-Prentice Hall; 2008.
14.
go back to reference Commission on the Reform of Ontario’s Public Services. Public services for Ontarians: a path to sustainability and excellence. In: Queen’s printer for Ontario; 2012. Commission on the Reform of Ontario’s Public Services. Public services for Ontarians: a path to sustainability and excellence. In: Queen’s printer for Ontario; 2012.
15.
go back to reference Champlain LHIN. Integrated health service plan 2013–2016. In: Towards a person-centred health care system; 2012. Champlain LHIN. Integrated health service plan 2013–2016. In: Towards a person-centred health care system; 2012.
16.
go back to reference Health Quality Ontario. Key observations 2014–15 quality improvement plans: primary care. In: Queen’s printer for Ontario; 2014. Health Quality Ontario. Key observations 2014–15 quality improvement plans: primary care. In: Queen’s printer for Ontario; 2014.
17.
go back to reference McGinnis P, Davis MM, DeSordi M, Thomas M. Integrating primary care practices and community-based resources to manage obesity; 2014. McGinnis P, Davis MM, DeSordi M, Thomas M. Integrating primary care practices and community-based resources to manage obesity; 2014.
18.
go back to reference Birrell D, Heenan D. Implementing the transforming your care agenda in Northern Ireland within integrated structures. J Integr Care. 2012;20(6):359–66.CrossRef Birrell D, Heenan D. Implementing the transforming your care agenda in Northern Ireland within integrated structures. J Integr Care. 2012;20(6):359–66.CrossRef
20.
go back to reference Ontario Ministry of Health and Long-Term Care. Ontario’s action plan for health care. In: Better patient care through better value from our health care dollars. Toronto: Queen’s Printer for Ontario; 2012. Ontario Ministry of Health and Long-Term Care. Ontario’s action plan for health care. In: Better patient care through better value from our health care dollars. Toronto: Queen’s Printer for Ontario; 2012.
21.
go back to reference Sandelowski M. Focus on research methods: whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–40.PubMedCrossRef Sandelowski M. Focus on research methods: whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–40.PubMedCrossRef
22.
go back to reference Rosser WW, Colwill JM, Kasperski J, Wilson L. Progress of Ontario’s family health team model: a patient-centered medical home. Ann Fam Med. 2011;9(2):165–71.PubMedPubMedCentralCrossRef Rosser WW, Colwill JM, Kasperski J, Wilson L. Progress of Ontario’s family health team model: a patient-centered medical home. Ann Fam Med. 2011;9(2):165–71.PubMedPubMedCentralCrossRef
23.
go back to reference Dolovich L, Oliver D, Lamarche L, Agarwal G, Carr T, Chan D, et al. A protocol for a pragmatic randomized controlled trial using the health teams advancing patient experience: strengthening quality (health TAPESTRY) platform approach to promote person-focused primary healthcare for older adults. Implement Sci. 2016;11:49.PubMedPubMedCentralCrossRef Dolovich L, Oliver D, Lamarche L, Agarwal G, Carr T, Chan D, et al. A protocol for a pragmatic randomized controlled trial using the health teams advancing patient experience: strengthening quality (health TAPESTRY) platform approach to promote person-focused primary healthcare for older adults. Implement Sci. 2016;11:49.PubMedPubMedCentralCrossRef
24.
go back to reference Taylor SJ, Pinnock H, Epiphaniou E, Pearce G, Parke HL, Schwappach A, et al. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS–practical systematic review of self-management support for long-term conditions; 2014. Taylor SJ, Pinnock H, Epiphaniou E, Pearce G, Parke HL, Schwappach A, et al. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS–practical systematic review of self-management support for long-term conditions; 2014.
25.
go back to reference Kuluski K, Gill A, Naganathan G, Upshur R, Jaakkimainen RL, Wodchis WP. A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers. BMC Fam Pract. 2013;14(1):133.PubMedPubMedCentralCrossRef Kuluski K, Gill A, Naganathan G, Upshur R, Jaakkimainen RL, Wodchis WP. A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers. BMC Fam Pract. 2013;14(1):133.PubMedPubMedCentralCrossRef
26.
go back to reference Edwards ST, Dorr DA, Landon BE. Can personalized care planning improve primary care? Jama. 2017;318(1):25–6.PubMedCrossRef Edwards ST, Dorr DA, Landon BE. Can personalized care planning improve primary care? Jama. 2017;318(1):25–6.PubMedCrossRef
27.
go back to reference Ford JA, Turley R, Porter T, Shakespeare T, Wong G, Jones AP, et al. Access to primary care for socio-economically disadvantaged older people in rural areas: a qualitative study. PLoS One. 2018;13(3):e0193952.PubMedPubMedCentralCrossRef Ford JA, Turley R, Porter T, Shakespeare T, Wong G, Jones AP, et al. Access to primary care for socio-economically disadvantaged older people in rural areas: a qualitative study. PLoS One. 2018;13(3):e0193952.PubMedPubMedCentralCrossRef
28.
go back to reference World Health Organization. World report on ageing and health. Geneva: World Health Organization; 2015. p. 246. World Health Organization. World report on ageing and health. Geneva: World Health Organization; 2015. p. 246.
29.
go back to reference Conference Board of Canada. Managing mobility. Transportation in an aging society. In: Ottawa conference board of Canada; 2016. p. 47. Conference Board of Canada. Managing mobility. Transportation in an aging society. In: Ottawa conference board of Canada; 2016. p. 47.
30.
go back to reference Beauchamp A, Batterham RW, Dodson S, Astbury B, Elsworth GR, McPhee C, et al. Systematic development and implementation of interventions to OPtimise health literacy and access (Ophelia). BMC Public Health. 2017;17(1):230.PubMedPubMedCentralCrossRef Beauchamp A, Batterham RW, Dodson S, Astbury B, Elsworth GR, McPhee C, et al. Systematic development and implementation of interventions to OPtimise health literacy and access (Ophelia). BMC Public Health. 2017;17(1):230.PubMedPubMedCentralCrossRef
31.
go back to reference Grembowski D, Schaefer J, Johnson KE, Fischer H, Moore SL, Tai-Seale M, et al. A conceptual model of the role of complexity in the care of patients with multiple chronic conditions. Med Care. 2014;52:S7–S14.PubMedCrossRef Grembowski D, Schaefer J, Johnson KE, Fischer H, Moore SL, Tai-Seale M, et al. A conceptual model of the role of complexity in the care of patients with multiple chronic conditions. Med Care. 2014;52:S7–S14.PubMedCrossRef
32.
go back to reference White JM, Cornish F, Kerr S. Front-line perspectives on ‘joined-up’working relationships: a qualitative study of social prescribing in the west of Scotland. Health Soc Care Community. 2015;25(1):194–203. https://doi.org/10.1111/hsc.12290. Epub 2015 Oct 12. White JM, Cornish F, Kerr S. Front-line perspectives on ‘joined-up’working relationships: a qualitative study of social prescribing in the west of Scotland. Health Soc Care Community. 2015;25(1):194–203. https://​doi.​org/​10.​1111/​hsc.​12290. Epub 2015 Oct 12.
33.
go back to reference Ackermann RT. Description of an integrated framework for building linkages among primary care clinics and community organizations for the prevention of type 2 diabetes: emerging themes from the CC-link study. Chronic lllness. 2010;6(2):89–100.CrossRef Ackermann RT. Description of an integrated framework for building linkages among primary care clinics and community organizations for the prevention of type 2 diabetes: emerging themes from the CC-link study. Chronic lllness. 2010;6(2):89–100.CrossRef
34.
go back to reference Ploeg J, Denton M, Hutchison B, McAiney C, Moore A, Brazil K, et al. Primary health care Providers' perspectives: facilitating older Patients' access to community support services. Canadian J Aging/La Revue canadienne du vieillissement. 2016;35(4):499–512.CrossRef Ploeg J, Denton M, Hutchison B, McAiney C, Moore A, Brazil K, et al. Primary health care Providers' perspectives: facilitating older Patients' access to community support services. Canadian J Aging/La Revue canadienne du vieillissement. 2016;35(4):499–512.CrossRef
35.
go back to reference D'Amour D, Goulet L, Labadie J-F, San Martín-Rodriguez L, Pineault R. A model and typology of collaboration between professionals in healthcare organizations. BMC Health Serv Res. 2008;8(1):188.PubMedPubMedCentralCrossRef D'Amour D, Goulet L, Labadie J-F, San Martín-Rodriguez L, Pineault R. A model and typology of collaboration between professionals in healthcare organizations. BMC Health Serv Res. 2008;8(1):188.PubMedPubMedCentralCrossRef
37.
go back to reference Isaacs S, Valaitis R, Newbold KB, Black M, Sargeant J. Competence trust among providers as fundamental to a culturally competent primary healthcare system for immigrant families. Prim Health Care Res Dev. 2013;14(1):80–9.PubMedCrossRef Isaacs S, Valaitis R, Newbold KB, Black M, Sargeant J. Competence trust among providers as fundamental to a culturally competent primary healthcare system for immigrant families. Prim Health Care Res Dev. 2013;14(1):80–9.PubMedCrossRef
38.
go back to reference Robert Wood Johnson Foundation. Health Care's blind side: the overlooked connection between social needs and good health. Summary of findings from a survey of america’s physicians. Princeton: Robert Wood Johnson Foundation; 2011. p. 10. Robert Wood Johnson Foundation. Health Care's blind side: the overlooked connection between social needs and good health. Summary of findings from a survey of america’s physicians. Princeton: Robert Wood Johnson Foundation; 2011. p. 10.
39.
go back to reference Ploeg J, Denton M, Hutchison B, McAiney C, Moore A, Brazil K, et al. Primary care physicians’ perspectives on facilitating older patients’ access to community support services: qualitative case study. Can Fam Physician. 2017;63(1):e31–42.PubMedPubMedCentral Ploeg J, Denton M, Hutchison B, McAiney C, Moore A, Brazil K, et al. Primary care physicians’ perspectives on facilitating older patients’ access to community support services: qualitative case study. Can Fam Physician. 2017;63(1):e31–42.PubMedPubMedCentral
40.
go back to reference Osborn R, Moulds D, Schneider EC, Doty MM, Squires D, Sarnak DO. Primary care physicians in ten countries report challenges caring for patients with complex health needs. Health Aff. 2015;34(12):2104–12.CrossRef Osborn R, Moulds D, Schneider EC, Doty MM, Squires D, Sarnak DO. Primary care physicians in ten countries report challenges caring for patients with complex health needs. Health Aff. 2015;34(12):2104–12.CrossRef
41.
go back to reference Lafortune C, Huson K, Santi S, Stolee P. Community-based primary health care for older adults: a qualitative study of the perceptions of clients, caregivers and health care providers. BMC Geriatr. 2015;15(1):57.PubMedPubMedCentralCrossRef Lafortune C, Huson K, Santi S, Stolee P. Community-based primary health care for older adults: a qualitative study of the perceptions of clients, caregivers and health care providers. BMC Geriatr. 2015;15(1):57.PubMedPubMedCentralCrossRef
42.
go back to reference Isaacs S, Valaitis R, Newbold KB, Black M, Sargeant J. Brokering for the primary healthcare needs of recent immigrant families in Atlantic, Canada. Prim Health Care Res Dev. 2013;14(1):63–79.PubMedCrossRef Isaacs S, Valaitis R, Newbold KB, Black M, Sargeant J. Brokering for the primary healthcare needs of recent immigrant families in Atlantic, Canada. Prim Health Care Res Dev. 2013;14(1):63–79.PubMedCrossRef
43.
go back to reference Carter N, Valaitis RK, Lam A, Feather J, Nicholl J, Cleghorn L. Navigation delivery models and roles of navigators in primary care: a scoping literature review. BMC Health Serv Res. 2018;18(1):96.PubMedPubMedCentralCrossRef Carter N, Valaitis RK, Lam A, Feather J, Nicholl J, Cleghorn L. Navigation delivery models and roles of navigators in primary care: a scoping literature review. BMC Health Serv Res. 2018;18(1):96.PubMedPubMedCentralCrossRef
44.
go back to reference The Change Foundation Panorama Panel. Health system navigators: band-aid or cure? A primer with reflections from the change foundations panorama panel. Toronto: The Change Foundation; 2013. p. 18. The Change Foundation Panorama Panel. Health system navigators: band-aid or cure? A primer with reflections from the change foundations panorama panel. Toronto: The Change Foundation; 2013. p. 18.
45.
go back to reference May CR, Eton DT, Boehmer K, Gallacher K, Hunt K, MacDonald S, et al. Rethinking the patient: using burden of treatment theory to understand the changing dynamics of illness. BMC Health Serv Res. 2014;14(1):281.PubMedPubMedCentralCrossRef May CR, Eton DT, Boehmer K, Gallacher K, Hunt K, MacDonald S, et al. Rethinking the patient: using burden of treatment theory to understand the changing dynamics of illness. BMC Health Serv Res. 2014;14(1):281.PubMedPubMedCentralCrossRef
46.
Metadata
Title
Disconnected relationships between primary care and community-based health and social services and system navigation for older adults: a qualitative descriptive study
Authors
Ruta Valaitis
Laura Cleghorn
Jenny Ploeg
Cathy Risdon
Derelie Mangin
Lisa Dolovich
Gina Agarwal
Doug Oliver
Jessica Gaber
Harjit Chung
Publication date
01-12-2020
Publisher
BioMed Central
Keyword
Care
Published in
BMC Primary Care / Issue 1/2020
Electronic ISSN: 2731-4553
DOI
https://doi.org/10.1186/s12875-020-01143-8

Other articles of this Issue 1/2020

BMC Primary Care 1/2020 Go to the issue