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Published in: BMC Geriatrics 1/2022

Open Access 01-12-2022 | Care | Study protocol

Known in the nursing home: development and evaluation of a digital person-centered artistic photo-activity intervention to promote social interaction between residents with dementia, and their formal and informal carers

Authors: Josephine Rose Orejana Tan, Petra Boersma, Teake P. Ettema, Laurence Aëgerter, Robbert Gobbens, Max L. Stek, Rose-Marie Dröes

Published in: BMC Geriatrics | Issue 1/2022

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Abstract

Background

To address the lack of social interaction and meaningful activities for persons with dementia (PWD) in nursing homes an artistic Photo-Activity was designed. The present study aims to develop a digital version of the Photo-Activity and to investigate its implementation and impact on nursing home residents with advanced dementia, and their (in)formal carers.

Methods

First, within a user-participatory design, a digital-app version of the Photo-Activity will be developed and pilot-tested, in co-creation with (in)formal carers and PWD.
Next, the feasibility and effectiveness of the Photo-Activity versus a control activity will be explored in a randomized controlled trial with nursing home residents (N=90), and their (in)formal carers. Residents will be offered the Photo-Activity or the control activity by (in)formal carers during one month. Measurements will be conducted by independent assessors at baseline (T0), after one month (T1) and at follow up, two weeks after T1 (T2). Qualitative and quantitative methods will be used to investigate the effects of the intervention on mood, social interaction and quality of life of the PWD, sense of competence of informal carers, empathy and personal attitude of the formal carers, and quality of the relationship between the PWD, and their (in)formal carers. In addition, a process evaluation will be carried out by means of semi-structured interviews with the participating residents and (in)formal carers.
Finally, an implementation package based on the process evaluation will be developed, allowing the scaling up of the intervention to other care institutions.

Discussion

Results of the trial will be available for dissemination by Spring 2023. The digital Photo-Activity is expected to promote meaningful connections between the resident with dementia, and their (in)formal carers through the facilitation of person-centered conversations.

Trial registration

Netherlands Trial Register: NL9219; registered (21 January 2021); NTR (trialregister.nl)
Literature
1.
go back to reference Fazio S, Pace D, Flinner J, Kallmyer B. The fundamentals of person-centered care for individuals with dementia. The Gerontologist. 2018;58(suppl_1):S10–S9.PubMedCrossRef Fazio S, Pace D, Flinner J, Kallmyer B. The fundamentals of person-centered care for individuals with dementia. The Gerontologist. 2018;58(suppl_1):S10–S9.PubMedCrossRef
2.
go back to reference Kitwood T. Toward a theory of dementia care: ethics and interaction. J Clin Ethics. 1998;9(1):23.PubMed Kitwood T. Toward a theory of dementia care: ethics and interaction. J Clin Ethics. 1998;9(1):23.PubMed
3.
go back to reference Kitwood T, Bredin K. Towards a theory of dementia care: personhood and well-being. Ageing Soc. 1992;12(3):269–87.PubMedCrossRef Kitwood T, Bredin K. Towards a theory of dementia care: personhood and well-being. Ageing Soc. 1992;12(3):269–87.PubMedCrossRef
4.
go back to reference Kitwood TM. Dementia reconsidered : the person comes first. Buckingham: Open University Press; 1997. Kitwood TM. Dementia reconsidered : the person comes first. Buckingham: Open University Press; 1997.
5.
go back to reference Brooker D. What is person-centred care in dementia? Rev Clin Gerontol. 2003;13(3):215–22.CrossRef Brooker D. What is person-centred care in dementia? Rev Clin Gerontol. 2003;13(3):215–22.CrossRef
6.
go back to reference Rogers CR. On becoming a person: a therapist’s view of psychotherapy: Constable London; 1961. Rogers CR. On becoming a person: a therapist’s view of psychotherapy: Constable London; 1961.
7.
go back to reference Kitwood T. The technical, the personal, and the framing of dementia. Soc Behav. 1988;3(2):161–79. Kitwood T. The technical, the personal, and the framing of dementia. Soc Behav. 1988;3(2):161–79.
8.
go back to reference Feil N. The Validation breakthrough: Simple techniques for communicating with people with “Alzheimer’s-type dementia”, vol. xxvii. Baltimore: Health Professions Press; 1993. p. 320–xxvii. Feil N. The Validation breakthrough: Simple techniques for communicating with people with “Alzheimer’s-type dementia”, vol. xxvii. Baltimore: Health Professions Press; 1993. p. 320–xxvii.
9.
go back to reference Dröes RM. In beweging: over psychosociale hulpverlening aan demente ouderen: een theoretische en empirische studie naar de mogelijkheden en effecten van psychosociale hulpverlening, in het bijzonder psychomotorische therapie, aan ouderen die lijden aan een seniele dementie van het Alzheimer-type (SDAT). Amsterdam: Academic thesis, Vrije Universiteit; 1991. Dröes RM. In beweging: over psychosociale hulpverlening aan demente ouderen: een theoretische en empirische studie naar de mogelijkheden en effecten van psychosociale hulpverlening, in het bijzonder psychomotorische therapie, aan ouderen die lijden aan een seniele dementie van het Alzheimer-type (SDAT). Amsterdam: Academic thesis, Vrije Universiteit; 1991.
10.
go back to reference Dröes RM, van der Roest HG, van Mierlo L, Meiland FJM. Memory problems in dementia: adaptation and coping strategies and psychosocial treatments. Expert Rev Neurother. 2011;11(12):1769–82.PubMedCrossRef Dröes RM, van der Roest HG, van Mierlo L, Meiland FJM. Memory problems in dementia: adaptation and coping strategies and psychosocial treatments. Expert Rev Neurother. 2011;11(12):1769–82.PubMedCrossRef
11.
go back to reference Finnema E, Dröes RM, Ribbe M, Van Tilburg W. A review of psychosocial models in psychogeriatrics: implications for care and research. Alzheimer Dis Assoc Disord. 2000;14(2):68–80.PubMedCrossRef Finnema E, Dröes RM, Ribbe M, Van Tilburg W. A review of psychosocial models in psychogeriatrics: implications for care and research. Alzheimer Dis Assoc Disord. 2000;14(2):68–80.PubMedCrossRef
12.
go back to reference Brooker D, Evans S, Evans S, Bray J, Saibene FL, Scorolli C, et al. Evaluation of the implementation of the Meeting Centres Support Program in Italy, Poland, and the UK; exploration of the effects on people with dementia. Int J Geriatr Psychiatry. 2018;33(7):883–92.PubMedCrossRef Brooker D, Evans S, Evans S, Bray J, Saibene FL, Scorolli C, et al. Evaluation of the implementation of the Meeting Centres Support Program in Italy, Poland, and the UK; exploration of the effects on people with dementia. Int J Geriatr Psychiatry. 2018;33(7):883–92.PubMedCrossRef
13.
go back to reference Dröes RM, Breebaart E, Ettema TP, van Tilburg W, Mellenbergh GJ. Effect of integrated family support versus day care only on behavior and mood of patients with dementia. Int Psychogeriatr. 2000;12(1):99–115.PubMedCrossRef Dröes RM, Breebaart E, Ettema TP, van Tilburg W, Mellenbergh GJ. Effect of integrated family support versus day care only on behavior and mood of patients with dementia. Int Psychogeriatr. 2000;12(1):99–115.PubMedCrossRef
14.
go back to reference Dröes RM, van Rijn A, Rus E, Dacier S, Meiland F. Utilization, effect, and benefit of the individualized meeting centers support program for people with dementia and caregivers. Clin Interv Aging. 2019;14:1527. Dröes RM, van Rijn A, Rus E, Dacier S, Meiland F. Utilization, effect, and benefit of the individualized meeting centers support program for people with dementia and caregivers. Clin Interv Aging. 2019;14:1527.
15.
go back to reference Finnema E, Dröes RM, Ribbe M, Van Tilburg W. The effects of emotion-oriented approaches in the care for persons suffering from dementia: a review of the literature. Int J Geriatr Psychiatry. 2000;15(2):141–61.PubMedCrossRef Finnema E, Dröes RM, Ribbe M, Van Tilburg W. The effects of emotion-oriented approaches in the care for persons suffering from dementia: a review of the literature. Int J Geriatr Psychiatry. 2000;15(2):141–61.PubMedCrossRef
16.
go back to reference Verdult R. Dement worden: een kindertijd in beeld. Belevingsgerichte begeleiding van dementerende ouderen Nijkerk, The Netherlands: Intro. 1993. Verdult R. Dement worden: een kindertijd in beeld. Belevingsgerichte begeleiding van dementerende ouderen Nijkerk, The Netherlands: Intro. 1993.
17.
go back to reference Van der Kooij C. Gewoon lief zijn?: Het maieutisch zorgconcept en het invoeren van geintegreerde belevingsgerichte zorg op psychogeriatrische verpleeghuisafdelingen; 2003. Van der Kooij C. Gewoon lief zijn?: Het maieutisch zorgconcept en het invoeren van geintegreerde belevingsgerichte zorg op psychogeriatrische verpleeghuisafdelingen; 2003.
18.
go back to reference Dröes R, editor Emotion-oriented care for persons with Alzheimer disease. 6th International Conference on Alzheimer's Disease and Related Disorders, Amsterdam; 1998. Dröes R, editor Emotion-oriented care for persons with Alzheimer disease. 6th International Conference on Alzheimer's Disease and Related Disorders, Amsterdam; 1998.
19.
go back to reference Chenoweth L, King MT, Jeon Y-H, Brodaty H, Stein-Parbury J, Norman R, et al. Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial. Lancet Neurol. 2009;8(4):317–25.PubMedCrossRef Chenoweth L, King MT, Jeon Y-H, Brodaty H, Stein-Parbury J, Norman R, et al. Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial. Lancet Neurol. 2009;8(4):317–25.PubMedCrossRef
20.
go back to reference Dröes RM, Meiland F, Schmitz M, van Tilburg W. Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. Int J Geriatr Psychiatry. 2004;19(7):673–84.PubMedCrossRef Dröes RM, Meiland F, Schmitz M, van Tilburg W. Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: results from a multi-centre implementation study. Int J Geriatr Psychiatry. 2004;19(7):673–84.PubMedCrossRef
21.
go back to reference Hendriks IH, van Vliet D, Gerritsen DL, Dröes RM. Nature and dementia: development of a person-centered approach. Int Psychogeriatr. 2016;28(9):1455–70.PubMedCrossRef Hendriks IH, van Vliet D, Gerritsen DL, Dröes RM. Nature and dementia: development of a person-centered approach. Int Psychogeriatr. 2016;28(9):1455–70.PubMedCrossRef
22.
go back to reference Brooker DJ, Argyle E, Scally AJ, Clancy D. The enriched opportunities programme for people with dementia: a cluster-randomised controlled trial in 10 extra care housing schemes. Aging Ment Health. 2011;15(8):1008–17.PubMedCrossRef Brooker DJ, Argyle E, Scally AJ, Clancy D. The enriched opportunities programme for people with dementia: a cluster-randomised controlled trial in 10 extra care housing schemes. Aging Ment Health. 2011;15(8):1008–17.PubMedCrossRef
23.
go back to reference Brooker DJ, Latham I, Evans SC, Jacobson N, Perry W, Bray J, et al. FITS into practice: translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes. Aging Ment Health. 2016;20(7):709–18.PubMedCrossRef Brooker DJ, Latham I, Evans SC, Jacobson N, Perry W, Bray J, et al. FITS into practice: translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes. Aging Ment Health. 2016;20(7):709–18.PubMedCrossRef
24.
go back to reference Brooker D. Dementia care mapping: a review of the research literature. The Gerontologist. 2005;45(suppl_1):11–8.PubMedCrossRef Brooker D. Dementia care mapping: a review of the research literature. The Gerontologist. 2005;45(suppl_1):11–8.PubMedCrossRef
25.
go back to reference Dekker NL, Pols J. Aspirations of home making in the nursing home. Ways of home making in care for later life. Berlin: Springer; 2020. p. 183–201.CrossRef Dekker NL, Pols J. Aspirations of home making in the nursing home. Ways of home making in care for later life. Berlin: Springer; 2020. p. 183–201.CrossRef
26.
27.
go back to reference Bramble M, Moyle W, McAllister M. Seeking connection: family care experiences following long-term dementia care placement. J Clin Nurs. 2009;18(22):3118–25.PubMedCrossRef Bramble M, Moyle W, McAllister M. Seeking connection: family care experiences following long-term dementia care placement. J Clin Nurs. 2009;18(22):3118–25.PubMedCrossRef
28.
go back to reference Kellett UM. Transition in care: family carers′ experience of nursing home placement. J Adv Nurs. 1999;29(6):1474–81.PubMedCrossRef Kellett UM. Transition in care: family carers′ experience of nursing home placement. J Adv Nurs. 1999;29(6):1474–81.PubMedCrossRef
29.
go back to reference Sury L, Burns K, Brodaty H. Moving in: adjustment of people living with dementia going into a nursing home and their families. Int Psychogeriatr. 2013;25(6):867–76.PubMedCrossRef Sury L, Burns K, Brodaty H. Moving in: adjustment of people living with dementia going into a nursing home and their families. Int Psychogeriatr. 2013;25(6):867–76.PubMedCrossRef
30.
go back to reference Family caregiving in an aging society: Policy perspectives. Kane RA, Penrod JD, editors. Thousand Oaks: Sage Publications, Inc; 1995. xiii, 202-xiii, p. Family caregiving in an aging society: Policy perspectives. Kane RA, Penrod JD, editors. Thousand Oaks: Sage Publications, Inc; 1995. xiii, 202-xiii, p.
31.
go back to reference Gallego-Alberto L, Smaling HJA, Francke AL, van de Brug T, van der Steen JT, Joling KJ. The relationship between guilt feelings, conflicts with staff and satisfaction with care in relatives of nursing home residents with dementia: a longitudinal analysis. Dementia. 2021;14713012211024015. Gallego-Alberto L, Smaling HJA, Francke AL, van de Brug T, van der Steen JT, Joling KJ. The relationship between guilt feelings, conflicts with staff and satisfaction with care in relatives of nursing home residents with dementia: a longitudinal analysis. Dementia. 2021;14713012211024015.
32.
go back to reference Dröes RM, Boelens-Van Der Knoop EC, Bos J, Meihuizen L, Ettema TP, Gerritsen DL, et al. Quality of life in dementia in perspective: An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia. 2006;5(4):533–58. Dröes RM, Boelens-Van Der Knoop EC, Bos J, Meihuizen L, Ettema TP, Gerritsen DL, et al. Quality of life in dementia in perspective: An explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia. 2006;5(4):533–58.
33.
go back to reference Gerritsen DL, Ettema TP, Boelens E, Bos J, Hoogeveen F, De Lange J, et al. Quality of life in dementia: do professional caregivers focus on the significant domains? Am J Alzheimers Dis Other Dement. 2007;22(3):176–83.CrossRef Gerritsen DL, Ettema TP, Boelens E, Bos J, Hoogeveen F, De Lange J, et al. Quality of life in dementia: do professional caregivers focus on the significant domains? Am J Alzheimers Dis Other Dement. 2007;22(3):176–83.CrossRef
34.
go back to reference Clark PG. Quality of life, values, and teamwork in geriatric care: Do we communicate what we mean? The Gerontologist. 1995;35(3):402–11.PubMedCrossRef Clark PG. Quality of life, values, and teamwork in geriatric care: Do we communicate what we mean? The Gerontologist. 1995;35(3):402–11.PubMedCrossRef
35.
go back to reference Theijsmeijer S, de Boo GM, Dröes RM. A pilot study into person-centred use of photo’s in the communication with people with dementia. Tijdschr Gerontol Geriatr. 2018;49(4):147–55.PubMedCrossRef Theijsmeijer S, de Boo GM, Dröes RM. A pilot study into person-centred use of photo’s in the communication with people with dementia. Tijdschr Gerontol Geriatr. 2018;49(4):147–55.PubMedCrossRef
36.
go back to reference Tyack C, Camic PM, Heron MJ, Hulbert S. Viewing art on a tablet computer: a well-being intervention for people with dementia and their caregivers. J Appl Gerontol. 2017;36(7):864–94.PubMedCrossRef Tyack C, Camic PM, Heron MJ, Hulbert S. Viewing art on a tablet computer: a well-being intervention for people with dementia and their caregivers. J Appl Gerontol. 2017;36(7):864–94.PubMedCrossRef
37.
go back to reference Tyack C, Camic PM. Touchscreen interventions and the well-being of people with dementia and caregivers: a systematic review. Int Psychogeriatr. 2017;29(8):1261–80.PubMedCrossRef Tyack C, Camic PM. Touchscreen interventions and the well-being of people with dementia and caregivers: a systematic review. Int Psychogeriatr. 2017;29(8):1261–80.PubMedCrossRef
38.
go back to reference Rhoads L. Museums, meaning making, and memories: The need for museum programs for people with dementia and their caregivers. Curator Museum J. 2009;52(3):229–40.CrossRef Rhoads L. Museums, meaning making, and memories: The need for museum programs for people with dementia and their caregivers. Curator Museum J. 2009;52(3):229–40.CrossRef
39.
go back to reference Rosenberg F. The MoMA Alzheimer’s Project: Programming and resources for making art accessible to people with Alzheimer’s disease and their caregivers. Arts Health. 2009;1(1):93–7.CrossRef Rosenberg F. The MoMA Alzheimer’s Project: Programming and resources for making art accessible to people with Alzheimer’s disease and their caregivers. Arts Health. 2009;1(1):93–7.CrossRef
40.
go back to reference Young R, Camic PM, Tischler V. The impact of community-based arts and health interventions on cognition in people with dementia: a systematic literature review. Aging Ment Health. 2016;20(4):337–51.PubMedCrossRef Young R, Camic PM, Tischler V. The impact of community-based arts and health interventions on cognition in people with dementia: a systematic literature review. Aging Ment Health. 2016;20(4):337–51.PubMedCrossRef
41.
go back to reference Astell AJ, Ellis MP, Alm N, Dye R, Gowans G. Stimulating people with dementia to reminisce using personal and generic photographs. Int J Comput Healthc. 2010;1(2):177–98.CrossRef Astell AJ, Ellis MP, Alm N, Dye R, Gowans G. Stimulating people with dementia to reminisce using personal and generic photographs. Int J Comput Healthc. 2010;1(2):177–98.CrossRef
42.
go back to reference Hoel V, Feunou CM, Wolf-Ostermann K. Technology-driven solutions to prompt conversation, aid communication and support interaction for people with dementia and their caregivers: a systematic literature review. BMC Geriatr. 2021;21(1):157.PubMedPubMedCentralCrossRef Hoel V, Feunou CM, Wolf-Ostermann K. Technology-driven solutions to prompt conversation, aid communication and support interaction for people with dementia and their caregivers: a systematic literature review. BMC Geriatr. 2021;21(1):157.PubMedPubMedCentralCrossRef
43.
go back to reference Ekström A, Ferm U, Samuelsson C. Digital communication support and Alzheimer’s disease. Dementia. 2017;16(6):711–31.PubMedCrossRef Ekström A, Ferm U, Samuelsson C. Digital communication support and Alzheimer’s disease. Dementia. 2017;16(6):711–31.PubMedCrossRef
44.
go back to reference Samuelsson C, Ekström A. Digital communication support in interaction involving people with dementia. Logoped Phoniatr Vocol. 2019;44(1):41–50.PubMedCrossRef Samuelsson C, Ekström A. Digital communication support in interaction involving people with dementia. Logoped Phoniatr Vocol. 2019;44(1):41–50.PubMedCrossRef
45.
go back to reference Dassa A. “Opening our time capsule”—creating an individualized music and other memory cues database to promote communication between spouses and people with dementia during visits to a nursing home. Front Med. 2018;5(215). Dassa A. “Opening our time capsule”—creating an individualized music and other memory cues database to promote communication between spouses and people with dementia during visits to a nursing home. Front Med. 2018;5(215).
46.
go back to reference Gilson A, Dodds D, Kaur A, Potteiger M, Ford Ii JH. Using computer tablets to improve moods for older adults with dementia and interactions with their caregivers: pilot intervention study. JMIR Form Res. 2019;3(3):e14530.PubMedPubMedCentralCrossRef Gilson A, Dodds D, Kaur A, Potteiger M, Ford Ii JH. Using computer tablets to improve moods for older adults with dementia and interactions with their caregivers: pilot intervention study. JMIR Form Res. 2019;3(3):e14530.PubMedPubMedCentralCrossRef
47.
go back to reference McAllister M, Dayton J, Oprescu F, Katsikitis M, Jones CM. Memory keeper: a prototype digital application to improve engagement with people with dementia in long-term care (innovative practice). Dementia. 2017;19(4):1287–98.PubMedCrossRef McAllister M, Dayton J, Oprescu F, Katsikitis M, Jones CM. Memory keeper: a prototype digital application to improve engagement with people with dementia in long-term care (innovative practice). Dementia. 2017;19(4):1287–98.PubMedCrossRef
48.
go back to reference Laird EA, Ryan A, McCauley C, Bond RB, Mulvenna MD, Curran KJ, et al. Using mobile technology to provide personalized reminiscence for people living with dementia and their carers: appraisal of outcomes from a quasi-experimental study. JMIR Ment Health. 2018;5(3):e57.PubMedPubMedCentralCrossRef Laird EA, Ryan A, McCauley C, Bond RB, Mulvenna MD, Curran KJ, et al. Using mobile technology to provide personalized reminiscence for people living with dementia and their carers: appraisal of outcomes from a quasi-experimental study. JMIR Ment Health. 2018;5(3):e57.PubMedPubMedCentralCrossRef
49.
go back to reference Dröes RM, Chattat R, Diaz A, Gove D, Graff M, Murphy K, et al. Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging Ment Health. 2017;21(1):4–17.PubMedCrossRef Dröes RM, Chattat R, Diaz A, Gove D, Graff M, Murphy K, et al. Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging Ment Health. 2017;21(1):4–17.PubMedCrossRef
50.
go back to reference Verbeek H, Gerritsen DL, Backhaus R, de Boer BS, Koopmans RT, Hamers JP. Allowing visitors back in the nursing home during the COVID-19 crisis: a Dutch national study into first experiences and impact on well-being. J Am Med Dir Assoc. 2020;21(7):900–4.PubMedPubMedCentralCrossRef Verbeek H, Gerritsen DL, Backhaus R, de Boer BS, Koopmans RT, Hamers JP. Allowing visitors back in the nursing home during the COVID-19 crisis: a Dutch national study into first experiences and impact on well-being. J Am Med Dir Assoc. 2020;21(7):900–4.PubMedPubMedCentralCrossRef
51.
go back to reference Van der Roest HG, Prins M, van der Velden C, Steinmetz S, Stolte E, van Tilburg TG, et al. The impact of COVID-19 measures on well-being of older long-term care facility residents in the Netherlands. J Am Med Dir Assoc. 2020;21(11):1569–70.PubMedPubMedCentralCrossRef Van der Roest HG, Prins M, van der Velden C, Steinmetz S, Stolte E, van Tilburg TG, et al. The impact of COVID-19 measures on well-being of older long-term care facility residents in the Netherlands. J Am Med Dir Assoc. 2020;21(11):1569–70.PubMedPubMedCentralCrossRef
52.
go back to reference Beerens HC, de Boer B, Zwakhalen SM, Tan FE, Ruwaard D, Hamers JP, et al. The association between aspects of daily life and quality of life of people with dementia living in long-term care facilities: a momentary assessment study. Int Psychogeriatr. 2016;28(8):1323–31.PubMedCrossRef Beerens HC, de Boer B, Zwakhalen SM, Tan FE, Ruwaard D, Hamers JP, et al. The association between aspects of daily life and quality of life of people with dementia living in long-term care facilities: a momentary assessment study. Int Psychogeriatr. 2016;28(8):1323–31.PubMedCrossRef
53.
go back to reference Migchelbrink F. De kern van participatief actieonderzoek. Amsterdam: Uitgeverij SWP; 2016. Migchelbrink F. De kern van participatief actieonderzoek. Amsterdam: Uitgeverij SWP; 2016.
54.
go back to reference Reisberg B, Ferris SH, de Leon MJ, Crook T. The global deterioration scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139(9):1136–9.PubMedCrossRef Reisberg B, Ferris SH, de Leon MJ, Crook T. The global deterioration scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139(9):1136–9.PubMedCrossRef
55.
go back to reference Baker R, Dowling Z, Wareing LA, Dawson J, Assey J. Snoezelen: Its long-term and short-term effects on older people with dementia. Br J Occup Ther. 1997;60(5):213–8.CrossRef Baker R, Dowling Z, Wareing LA, Dawson J, Assey J. Snoezelen: Its long-term and short-term effects on older people with dementia. Br J Occup Ther. 1997;60(5):213–8.CrossRef
56.
go back to reference Baker R, Dowling Z. INTERACT. A new measure of response to multi-sensory environments. Research publication. Research and development support unit, Poole Hospital, Dorset. 1995. Baker R, Dowling Z. INTERACT. A new measure of response to multi-sensory environments. Research publication. Research and development support unit, Poole Hospital, Dorset. 1995.
57.
go back to reference Baker R, Bell J, Dowling Z. Interact and Interact Short: a user guide. Bournemouth: Dorset HealthCare NHS Trust; 1997. Baker R, Bell J, Dowling Z. Interact and Interact Short: a user guide. Bournemouth: Dorset HealthCare NHS Trust; 1997.
58.
go back to reference van Weert JC. Multi-sensory stimulation in 24-hour dementia care. Academic thesis. Utrecht: Utrecht University; 2004. van Weert JC. Multi-sensory stimulation in 24-hour dementia care. Academic thesis. Utrecht: Utrecht University; 2004.
59.
go back to reference Brooke JSUS. A quick and dirty usability scale. Usability Eval Ind. 1995;189. Brooke JSUS. A quick and dirty usability scale. Usability Eval Ind. 1995;189.
60.
go back to reference Lutomski JE, Baars MA, Schalk BW, Boter H, Buurman BM, den Elzen WP, et al. The development of the Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS): a large-scale data sharing initiative. PLoS One. 2013;8(12):e81673.PubMedPubMedCentralCrossRef Lutomski JE, Baars MA, Schalk BW, Boter H, Buurman BM, den Elzen WP, et al. The development of the Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS): a large-scale data sharing initiative. PLoS One. 2013;8(12):e81673.PubMedPubMedCentralCrossRef
61.
go back to reference Ettema TP, Dröes RM, De Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. Int J Geriatr Psychiatry. 2007;22(6):549–56.PubMedCrossRef Ettema TP, Dröes RM, De Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. Int J Geriatr Psychiatry. 2007;22(6):549–56.PubMedCrossRef
62.
go back to reference Ettema TP, Dröes RM, de Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument––validation. Int J Geriatr Psychiatry. 2007;22(5):424–30.PubMedCrossRef Ettema TP, Dröes RM, de Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument––validation. Int J Geriatr Psychiatry. 2007;22(5):424–30.PubMedCrossRef
64.
go back to reference Hendriks I, Meiland FJ, Gerritsen DL, Dröes RM. Evaluation of the ‘Unforgettable’art programme by people with dementia and their care-givers. Ageing Soc. 2021;41(2):294–312.CrossRef Hendriks I, Meiland FJ, Gerritsen DL, Dröes RM. Evaluation of the ‘Unforgettable’art programme by people with dementia and their care-givers. Ageing Soc. 2021;41(2):294–312.CrossRef
65.
go back to reference Livingston L, Fiterman Persin G, Del Signore D. Art in the moment: evaluating a therapeutic wellness program for people with dementia and their care partners. J Museum Educ. 2016;41(2):100–9.CrossRef Livingston L, Fiterman Persin G, Del Signore D. Art in the moment: evaluating a therapeutic wellness program for people with dementia and their care partners. J Museum Educ. 2016;41(2):100–9.CrossRef
66.
go back to reference Temple RO, Stern RA, Latham J, Ruffolo JS, Arruda JE, Tremont G. Assessment of mood state in dementia by use of the visual analog mood scales (VAMS). Am J Geriatr Psychiatry. 2004;12(5):527–30.PubMedCrossRef Temple RO, Stern RA, Latham J, Ruffolo JS, Arruda JE, Tremont G. Assessment of mood state in dementia by use of the visual analog mood scales (VAMS). Am J Geriatr Psychiatry. 2004;12(5):527–30.PubMedCrossRef
67.
go back to reference Kaufer DI, Cummings JL, Ketchel P, Smith V, MacMillan A, Shelley T, et al. Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. J Neuropsychiatr Clin Neurosci. 2000;12(2):233–9.CrossRef Kaufer DI, Cummings JL, Ketchel P, Smith V, MacMillan A, Shelley T, et al. Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. J Neuropsychiatr Clin Neurosci. 2000;12(2):233–9.CrossRef
68.
go back to reference De Jonghe J, Kat MG, Kalisvaart C, Boelaarts L. Neuropsychiatric inventory questionnaire (NPI-Q): a validity study of the Dutch form. Tijdschr Gerontol Geriatr. 2003;34(2):74–7.PubMed De Jonghe J, Kat MG, Kalisvaart C, Boelaarts L. Neuropsychiatric inventory questionnaire (NPI-Q): a validity study of the Dutch form. Tijdschr Gerontol Geriatr. 2003;34(2):74–7.PubMed
69.
go back to reference Lintern T, Woods B, Phair L. Before and after training: a case study of intervention. J Dement Care. 2000;8:15–7. Lintern T, Woods B, Phair L. Before and after training: a case study of intervention. J Dement Care. 2000;8:15–7.
70.
go back to reference Lintern TC. Quality in dementia care: evaluating staff attitudes and behaviour. Bangor: Bangor University (United Kingdom); 2001. Lintern TC. Quality in dementia care: evaluating staff attitudes and behaviour. Bangor: Bangor University (United Kingdom); 2001.
71.
go back to reference Macdonald AJD, Woods RT. Attitudes to dementia and dementia care held by nursing staff in U.K. “non-EMI” care homes: what difference do they make? Int Psychogeriatr. 2005;17(3):383–91.PubMedCrossRef Macdonald AJD, Woods RT. Attitudes to dementia and dementia care held by nursing staff in U.K. “non-EMI” care homes: what difference do they make? Int Psychogeriatr. 2005;17(3):383–91.PubMedCrossRef
72.
go back to reference Davis MH. Measuring individual differences in empathy: Evidence for a multidimensional approach. J Pers Soc Psychol. 1983;44(1):113.CrossRef Davis MH. Measuring individual differences in empathy: Evidence for a multidimensional approach. J Pers Soc Psychol. 1983;44(1):113.CrossRef
73.
go back to reference De Corte K, Buysse A, Verhofstadt LL, Roeyers H, Ponnet K, Davis MH. Measuring empathic tendencies: Reliability and validity of the Dutch version of the Interpersonal Reactivity Index. Psychol Belgica. 2007;47(4):235–60.CrossRef De Corte K, Buysse A, Verhofstadt LL, Roeyers H, Ponnet K, Davis MH. Measuring empathic tendencies: Reliability and validity of the Dutch version of the Interpersonal Reactivity Index. Psychol Belgica. 2007;47(4):235–60.CrossRef
74.
go back to reference Lewis JR. The system usability scale: past, present, and future. Int J Human Comput Interact. 2018;34(7):577–90.CrossRef Lewis JR. The system usability scale: past, present, and future. Int J Human Comput Interact. 2018;34(7):577–90.CrossRef
75.
go back to reference Vernooij-Dassen M, Felling A, Brummelkamp E, Dautzenberg M, Van den Bosch G, Grol R. A short sense of competence questionnaire (SSCQ): measuring the caregiver’s sense of competence. J Am Geriatr Soc. 1999;47(256):7. Vernooij-Dassen M, Felling A, Brummelkamp E, Dautzenberg M, Van den Bosch G, Grol R. A short sense of competence questionnaire (SSCQ): measuring the caregiver’s sense of competence. J Am Geriatr Soc. 1999;47(256):7.
76.
go back to reference Vernooij-Dassen MJ, Felling AJ, Brummelkamp E, Dauzenberg MG, van den Bos GA, Grol R. Assessment of caregiver's competence in dealing with the burden of caregiving for a dementia patient: a Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. J Am Geriatr Soc. 1999;47(2):256–7.PubMedCrossRef Vernooij-Dassen MJ, Felling AJ, Brummelkamp E, Dauzenberg MG, van den Bos GA, Grol R. Assessment of caregiver's competence in dealing with the burden of caregiving for a dementia patient: a Short Sense of Competence Questionnaire (SSCQ) suitable for clinical practice. J Am Geriatr Soc. 1999;47(2):256–7.PubMedCrossRef
77.
go back to reference Moore GF, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions. BMJ. 2015;350. Moore GF, Audrey S, Barker M, Bond L, Bonell C, Hardeman W, et al. Process evaluation of complex interventions. BMJ. 2015;350.
79.
go back to reference Van Weert JC, Van Dulmen AM, Spreeuwenberg PM, Ribbe MW, Bensing JM. Behavioral and mood effects of snoezelen integrated into 24-hour dementia care. J Am Geriatr Soc. 2005;53(1):24–33.PubMedCrossRef Van Weert JC, Van Dulmen AM, Spreeuwenberg PM, Ribbe MW, Bensing JM. Behavioral and mood effects of snoezelen integrated into 24-hour dementia care. J Am Geriatr Soc. 2005;53(1):24–33.PubMedCrossRef
84.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef
Metadata
Title
Known in the nursing home: development and evaluation of a digital person-centered artistic photo-activity intervention to promote social interaction between residents with dementia, and their formal and informal carers
Authors
Josephine Rose Orejana Tan
Petra Boersma
Teake P. Ettema
Laurence Aëgerter
Robbert Gobbens
Max L. Stek
Rose-Marie Dröes
Publication date
01-12-2022
Publisher
BioMed Central
Published in
BMC Geriatrics / Issue 1/2022
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-021-02632-w

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