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Published in: BMC Health Services Research 1/2015

Open Access 01-06-2015 | Study protocol

An institutional ethnography of chronic pain management in family medicine (COPE) study protocol

Authors: Fiona Webster, Onil Bhattacharyya, Aileen Davis, Rick Glazier, Joel Katz, Paul Krueger, Ross Upshur, Albert Yee, Lynn Wilson

Published in: BMC Health Services Research | Issue 1/2015

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Abstract

Background

Patients with chronic conditions and multiple comorbidities represent a growing challenge for health care globally. Improved coordination of care is considered essential for providing more effective and cost-efficient care for these patients with complex needs. Osteoarthritis is one of the most common and debilitating chronic conditions, is the most frequent cause of chronic pain yet osteoarthritis care is often poorly-coordinated. Primary care is usually the first contact for patients requiring relief from chronic pain. Our previous work suggests discordance between the policy goals of improving patient care and the experience of osteoarthritis patients. We plan to investigate the empirical context of the primary care setting by focusing on primary physicians’ conceptualizations and performance of their work in treating complex patients with chronic pain. This will allow for an exploration of how primary health care is – or could be – integrated with other services that play an important role in health care delivery.

Methods

Our study is an Institutional Ethnography of pain management in family medicine, to be carried out in three phases over 3 years from 2014/15 to 2018. Over the first year we will undertake approximately 80 key informant interviews with primary care physicians, other health care providers, policymakers and clinical experts. In the second year we will focus on mobilizing our networks from year one to assist in the collection of key texts which shape the current context of care. These texts will be analyzed by the research team. In the final year of the study we will focus on synthesizing our findings in order to map the social relations informing care. As is standard and optimal in qualitative research, analysis will be concurrent with data collection.

Discussion

Our study will allow us to identify how the work of coordinating care across multiple settings is accomplished, in practice as well as discursively and textually. Ultimately, we will identify links between everyday experience of care for patients with chronic pain, and broader discourses related to health care system inefficiencies, integration and patient-centred care. An expected outcome of this study will be the development of new, or augmentation of existing, models of care, that are based in the local realities of primary care practice.
Literature
1.
go back to reference Schoen C, Osborn R, Squires D, Doty M, Pierson R, Applebaum S. New 2011 survey of patients with complex care needs in eleven countries finds that care is often poorly coordinated. Health Aff (Millwood). 2011;30(12):2437–48.CrossRef Schoen C, Osborn R, Squires D, Doty M, Pierson R, Applebaum S. New 2011 survey of patients with complex care needs in eleven countries finds that care is often poorly coordinated. Health Aff (Millwood). 2011;30(12):2437–48.CrossRef
2.
go back to reference Drummond D. Commission on the reform of Ontario’s Public Services. 2012. Drummond D. Commission on the reform of Ontario’s Public Services. 2012.
3.
go back to reference Kuluski K, Gill A, Naganathan G, Upshur R, Jaakkimainen RL, Wodchis WP. A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers. BMC Fam Pract. 2013;14(1):133.CrossRefPubMedPubMedCentral Kuluski K, Gill A, Naganathan G, Upshur R, Jaakkimainen RL, Wodchis WP. A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers. BMC Fam Pract. 2013;14(1):133.CrossRefPubMedPubMedCentral
4.
go back to reference Schoen C, Osborn R, How S, Doty M, Peugh J. In Chronic condition: experiences of patients with complex care needs, in eight countries. Health Aff (Millwood). 2009;28(1):w1–16.CrossRef Schoen C, Osborn R, How S, Doty M, Peugh J. In Chronic condition: experiences of patients with complex care needs, in eight countries. Health Aff (Millwood). 2009;28(1):w1–16.CrossRef
5.
go back to reference Conklin A, Nolte E, Vrijhoef H. Approaches to chronic disease management evaluation in use in Europe: a review of current methods and performance measures. Int J Technol Assess Health Care. 2013;29(1):61–70.CrossRefPubMed Conklin A, Nolte E, Vrijhoef H. Approaches to chronic disease management evaluation in use in Europe: a review of current methods and performance measures. Int J Technol Assess Health Care. 2013;29(1):61–70.CrossRefPubMed
7.
go back to reference Rankin JM, Campbell ML. Managing to nurse: inside Canada’s health care reform. Toronto: University of Toronto Press; 2006. Rankin JM, Campbell ML. Managing to nurse: inside Canada’s health care reform. Toronto: University of Toronto Press; 2006.
8.
go back to reference Crinson I. Putting patients first: the continuity of the consumerist discourse in health policy, from the radical right to New Labour. Crit Soc Policy. 1998;18:227.CrossRef Crinson I. Putting patients first: the continuity of the consumerist discourse in health policy, from the radical right to New Labour. Crit Soc Policy. 1998;18:227.CrossRef
9.
go back to reference Malone RE. Policy as product: morality and metaphor in health policy discourse. Hastings Cent Rep. 1999;29(3):16.CrossRefPubMed Malone RE. Policy as product: morality and metaphor in health policy discourse. Hastings Cent Rep. 1999;29(3):16.CrossRefPubMed
10.
go back to reference Griffiths L. Making connections: studies of the social organization of healthcare. Sociol Health Ill. 2003;25:155–71.CrossRef Griffiths L. Making connections: studies of the social organization of healthcare. Sociol Health Ill. 2003;25:155–71.CrossRef
11.
go back to reference Birtwhistle R, Morkem R, Peat G, Williamson T, Green ME, Kahn S, et al. Prevalence and management of osteoarthritis in primary care: an epidemiologic cohort study from the Canadian Primary Care Sentinel Surveillance Network. CMAJO 2015; 3(3):E270-E275. Birtwhistle R, Morkem R, Peat G, Williamson T, Green ME, Kahn S, et al. Prevalence and management of osteoarthritis in primary care: an epidemiologic cohort study from the Canadian Primary Care Sentinel Surveillance Network. CMAJO 2015; 3(3):E270-E275.
12.
go back to reference Boyd CM, Fortin M. The future of multimorbidity research: how should understanding of multimorbidity inform health system design? Public Health Rev. 2010;32(2):451–74. Boyd CM, Fortin M. The future of multimorbidity research: how should understanding of multimorbidity inform health system design? Public Health Rev. 2010;32(2):451–74.
13.
go back to reference Gijsen R, Hoeymans N, Schellevis FG, Ruwaard D, Satariano WA, van den Bos GA. Causes and consequences of comorbidity: a review. J Clin Epidemiology. 2001;54:661–74.CrossRef Gijsen R, Hoeymans N, Schellevis FG, Ruwaard D, Satariano WA, van den Bos GA. Causes and consequences of comorbidity: a review. J Clin Epidemiology. 2001;54:661–74.CrossRef
14.
go back to reference Cornon-Huntley JC, Foley DJ, Guralnik JM. Co-morbidity analysis: a strategy for understanding mortality, disability and use of health care facilities of older people. Int J Epidemiology. 1991;20:S8–17. Cornon-Huntley JC, Foley DJ, Guralnik JM. Co-morbidity analysis: a strategy for understanding mortality, disability and use of health care facilities of older people. Int J Epidemiology. 1991;20:S8–17.
15.
go back to reference Huibers L, Koetsenruijter J, Grol R, Giesen P, Wensing M. Follow-up after telephone consultations at out-of-hours primary care. J Am Board Fam Med. 2013;26(4):373–9.CrossRefPubMed Huibers L, Koetsenruijter J, Grol R, Giesen P, Wensing M. Follow-up after telephone consultations at out-of-hours primary care. J Am Board Fam Med. 2013;26(4):373–9.CrossRefPubMed
16.
go back to reference Schoen C, Osborn R, Squires D, Doty M, Pierson R, Applbaum S. New 2011 Survey Of Patients With Complex Care Needs In Eleven Countries Finds That Care Is Often Poorly Coordinated. Health Affair. 2011; 30(12):2437-2448.CrossRef Schoen C, Osborn R, Squires D, Doty M, Pierson R, Applbaum S. New 2011 Survey Of Patients With Complex Care Needs In Eleven Countries Finds That Care Is Often Poorly Coordinated. Health Affair. 2011; 30(12):2437-2448.CrossRef
17.
go back to reference MacLean CH. Quality indicators for the management of osteoarthritis in vulnerable elders. Ann Intern Med. 2001;135(8 Pt 2):711–21.CrossRefPubMed MacLean CH. Quality indicators for the management of osteoarthritis in vulnerable elders. Ann Intern Med. 2001;135(8 Pt 2):711–21.CrossRefPubMed
18.
go back to reference Murray CJL, Lopez AD. The Global Burden of Disease: a comprehensive assessment of the mortality and disability from diseases, injuries and risk factors in 1990 and projected to 2020. Boston: Harvard School of Public Health on behalf of the World Health Organization and the World Bank; 1996. Murray CJL, Lopez AD. The Global Burden of Disease: a comprehensive assessment of the mortality and disability from diseases, injuries and risk factors in 1990 and projected to 2020. Boston: Harvard School of Public Health on behalf of the World Health Organization and the World Bank; 1996.
19.
go back to reference PHAC. Life with Arthritis in Canada A personal and public health challenge. Ottawa: Public Health Agency of Canada; 2010. PHAC. Life with Arthritis in Canada A personal and public health challenge. Ottawa: Public Health Agency of Canada; 2010.
20.
go back to reference Zhang W, Moskowitz RW, Nuki G, Abramson S, Altman RD, Arden N, et al. OARSI recommendations for the management of hip and knee osteoarthritis, Part II: OARSI evidence-based, expert consensus guidelines. Osteoarthritis Cartilage. 2008;16(2):137–62.CrossRefPubMed Zhang W, Moskowitz RW, Nuki G, Abramson S, Altman RD, Arden N, et al. OARSI recommendations for the management of hip and knee osteoarthritis, Part II: OARSI evidence-based, expert consensus guidelines. Osteoarthritis Cartilage. 2008;16(2):137–62.CrossRefPubMed
21.
go back to reference Sharma L, Kapoor D, Issa S. Epidemiology of osteoarthritis: an update. Curr Opin Rheumatol. 2006;18(2):147–56.CrossRefPubMed Sharma L, Kapoor D, Issa S. Epidemiology of osteoarthritis: an update. Curr Opin Rheumatol. 2006;18(2):147–56.CrossRefPubMed
22.
go back to reference Felson DT. An update on the pathogenesis and epidemiology of osteoarthritis. Radiol Clin North Am. 2004;42(1):1–9. v.CrossRefPubMed Felson DT. An update on the pathogenesis and epidemiology of osteoarthritis. Radiol Clin North Am. 2004;42(1):1–9. v.CrossRefPubMed
23.
go back to reference Reeves S, Goldman J, Gilbert J, Tepper J, Silver I, Suter E, et al. A scoping review to improve conceptual clarity of interprofessional interventions. J Interprof Care. 2011;25(3):167–74. Reeves S, Goldman J, Gilbert J, Tepper J, Silver I, Suter E, et al. A scoping review to improve conceptual clarity of interprofessional interventions. J Interprof Care. 2011;25(3):167–74.
25.
go back to reference Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001;20:64–78.CrossRef Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001;20:64–78.CrossRef
27.
go back to reference Grumback K. Chronic illness, comorbidities, and the need for medical generalism. Ann Fam Med. 2003;1(1):4–7.CrossRef Grumback K. Chronic illness, comorbidities, and the need for medical generalism. Ann Fam Med. 2003;1(1):4–7.CrossRef
28.
go back to reference Fitzgerald A, de Coster C, McMillan S, Naden R, Armstrong F, Barber A, et al. Relative urgency for referral from primary care to rheumatologists: the priority referral score. Arthritis Care Res (Hoboken). 2011;63(2):231–9. Fitzgerald A, de Coster C, McMillan S, Naden R, Armstrong F, Barber A, et al. Relative urgency for referral from primary care to rheumatologists: the priority referral score. Arthritis Care Res (Hoboken). 2011;63(2):231–9.
29.
go back to reference Gagnon AM, Kahan M, Srivastava A. Opioid use and abuse: is there a problem? Clin J Pain. 2007;23(8):661–2.CrossRefPubMed Gagnon AM, Kahan M, Srivastava A. Opioid use and abuse: is there a problem? Clin J Pain. 2007;23(8):661–2.CrossRefPubMed
30.
go back to reference Kahan M, Mailis-Gagnon A, Wilson L, Srivastava A, National Opioid Use Guideline Group. Canadian guideline for safe and effective use of opioids for chronic noncancer pain: clinical summary for family physicians. Part 1: general population. Can Fam Physician. 2011;57(11):1257–66.PubMedPubMedCentral Kahan M, Mailis-Gagnon A, Wilson L, Srivastava A, National Opioid Use Guideline Group. Canadian guideline for safe and effective use of opioids for chronic noncancer pain: clinical summary for family physicians. Part 1: general population. Can Fam Physician. 2011;57(11):1257–66.PubMedPubMedCentral
31.
go back to reference Kahan M, Wilson L, Mailis-Gagnon A, Srivastava A, National Opioid Use Guideline Group. Canadian guideline for safe and effective use of opioids for chronic noncancer pain: clinical summary for family physicians. Part 2: special populations. Can Fam Physician. 2011;57(11):1269–76.PubMedPubMedCentral Kahan M, Wilson L, Mailis-Gagnon A, Srivastava A, National Opioid Use Guideline Group. Canadian guideline for safe and effective use of opioids for chronic noncancer pain: clinical summary for family physicians. Part 2: special populations. Can Fam Physician. 2011;57(11):1269–76.PubMedPubMedCentral
32.
go back to reference Sia C, Tonniges TF, Osterhus E, Taba S. History of the medical home concept. Pediatrics. 2004;113(5 Suppl):1473–8.PubMed Sia C, Tonniges TF, Osterhus E, Taba S. History of the medical home concept. Pediatrics. 2004;113(5 Suppl):1473–8.PubMed
33.
go back to reference McCormack B, Kitson A, Harvey G, Rycroft-Malone J, Titchen A, Seers K. Getting evidence into practice: the meaning of context. J Adv Nurs. 2002;38:94–104.CrossRefPubMed McCormack B, Kitson A, Harvey G, Rycroft-Malone J, Titchen A, Seers K. Getting evidence into practice: the meaning of context. J Adv Nurs. 2002;38:94–104.CrossRefPubMed
34.
go back to reference Abelson J. Understanding the role of contextual influences on local health-care decision making; case study results from Ontario, Canada. Soc Sci Med. 2001;53:777–93.CrossRefPubMed Abelson J. Understanding the role of contextual influences on local health-care decision making; case study results from Ontario, Canada. Soc Sci Med. 2001;53:777–93.CrossRefPubMed
36.
go back to reference Flottemesch TJ, Anderson LH, Solberg LI, Fontaine P, Asche SE. Patient-centered medical home cost reductions limited to complex patients. Am J Manag Care. 2012;18(11):677–86.PubMed Flottemesch TJ, Anderson LH, Solberg LI, Fontaine P, Asche SE. Patient-centered medical home cost reductions limited to complex patients. Am J Manag Care. 2012;18(11):677–86.PubMed
38.
go back to reference Boult CV, Boult LB, Morishita L, Dowd B, Kane RL, Urdangarin CF. A randomized clinical trial of outpatient geriatric evaluation and management. J Am Geriatr Soc. 2001;49(4):251–9.CrossRef Boult CV, Boult LB, Morishita L, Dowd B, Kane RL, Urdangarin CF. A randomized clinical trial of outpatient geriatric evaluation and management. J Am Geriatr Soc. 2001;49(4):251–9.CrossRef
39.
go back to reference Boult C, Reider L, Frey K, Leff B, Boyd CM, Wolff JL, et al. Early effects of “guided care” on the quality of health care for multimorbid older persons. J Gerontol. 2008;63A(3):321–7. Boult C, Reider L, Frey K, Leff B, Boyd CM, Wolff JL, et al. Early effects of “guided care” on the quality of health care for multimorbid older persons. J Gerontol. 2008;63A(3):321–7.
40.
go back to reference Cohen HJ, Feussner JR, Weinberger M, Carnes M, Hamdy RC, Hsieh F, et al. A controlled trial of inpatient and outpatient geriatric evaluation and management. N Engl J Med. 2002;346(12):905–12. Cohen HJ, Feussner JR, Weinberger M, Carnes M, Hamdy RC, Hsieh F, et al. A controlled trial of inpatient and outpatient geriatric evaluation and management. N Engl J Med. 2002;346(12):905–12.
41.
go back to reference Counsell SR, Callahan CM, Clark DO, Tu W, Buttar AB, Stump TE, et al. Geriatric care management for low-income seniors. JAMA. 2007;298(22):2623–33. Counsell SR, Callahan CM, Clark DO, Tu W, Buttar AB, Stump TE, et al. Geriatric care management for low-income seniors. JAMA. 2007;298(22):2623–33.
42.
go back to reference Dorr DA, Wilcox AB, Brunker CP, Burdon RE, Donnelly SM. The effect of technology- supported, multidisease care management on the mortality and hospitalization of seniors. J Am Geriatr Soc. 2008;56(12):2195–202.CrossRefPubMed Dorr DA, Wilcox AB, Brunker CP, Burdon RE, Donnelly SM. The effect of technology- supported, multidisease care management on the mortality and hospitalization of seniors. J Am Geriatr Soc. 2008;56(12):2195–202.CrossRefPubMed
43.
go back to reference Gagnon AJ, Schein C, McVey L, Bergman H. Randomized controlled trial of nurse case management of frail older people. J Am Geriatr Soc. 1999;47(9):1118–24.CrossRefPubMed Gagnon AJ, Schein C, McVey L, Bergman H. Randomized controlled trial of nurse case management of frail older people. J Am Geriatr Soc. 1999;47(9):1118–24.CrossRefPubMed
44.
go back to reference Schraeder C, Shelton P, Sager M. The effects of a collaborative model of primary care on the mortality and Hospital use of Community-Dwelling older adults. J Gerontol A Biol Sci Med Sci. 2001;56(2):M106–12.CrossRefPubMed Schraeder C, Shelton P, Sager M. The effects of a collaborative model of primary care on the mortality and Hospital use of Community-Dwelling older adults. J Gerontol A Biol Sci Med Sci. 2001;56(2):M106–12.CrossRefPubMed
45.
go back to reference Sledge WH, Brown KE, Levine JM, Fiellen DA, Chawarski M, White WD, et al. A randomized trial of primary intensive care to reduce hospital admissions in patients with high utilization of inpatient services. Dis Manag. 2006;9(6):328–38. Sledge WH, Brown KE, Levine JM, Fiellen DA, Chawarski M, White WD, et al. A randomized trial of primary intensive care to reduce hospital admissions in patients with high utilization of inpatient services. Dis Manag. 2006;9(6):328–38.
46.
go back to reference Diamond T. Making Gray gold: narratives of nursing home care. Chicago: University of Chicago Press; 1992.CrossRef Diamond T. Making Gray gold: narratives of nursing home care. Chicago: University of Chicago Press; 1992.CrossRef
47.
go back to reference Webster F. The social organization of acute stroke care: an institutional ethnography. University of Toronto: Unpublished dissertation; 2009. Webster F. The social organization of acute stroke care: an institutional ethnography. University of Toronto: Unpublished dissertation; 2009.
48.
go back to reference Smith D. The everyday world as problematic: a feminist sociology. Toronto, Ontario, Canada: University of Toronto Press; 1987. Smith D. The everyday world as problematic: a feminist sociology. Toronto, Ontario, Canada: University of Toronto Press; 1987.
49.
go back to reference Smith DE. Writing the social: Critique, theory and investigations. Toronto, Ontario, Canada: University of Toronto Press; 1999. Smith DE. Writing the social: Critique, theory and investigations. Toronto, Ontario, Canada: University of Toronto Press; 1999.
50.
go back to reference Smith D. Institutional ethnography. In: May T, editor. Qualitative research in action. London: Sage; 2002. p. 17–52. Smith D. Institutional ethnography. In: May T, editor. Qualitative research in action. London: Sage; 2002. p. 17–52.
51.
go back to reference Smith D. Making sense of what people do: a sociological perspective. J Occup Sci. 2003;10:64–7.CrossRef Smith D. Making sense of what people do: a sociological perspective. J Occup Sci. 2003;10:64–7.CrossRef
52.
go back to reference Smith D. Ideology, science and social relations: a reinterpretation of Marx’s epistemology. Eur J Soc Theory. 2004;7:445–62.CrossRef Smith D. Ideology, science and social relations: a reinterpretation of Marx’s epistemology. Eur J Soc Theory. 2004;7:445–62.CrossRef
53.
go back to reference Smith D. Institutional ethnography: a sociology for people. Toronto: AltaMira Press; 2005. Smith D. Institutional ethnography: a sociology for people. Toronto: AltaMira Press; 2005.
54.
go back to reference Smith D, editor. Institutional ethnography as practice. Lanham, MD: Rowman & Littlefield; 2006. Smith D, editor. Institutional ethnography as practice. Lanham, MD: Rowman & Littlefield; 2006.
55.
go back to reference Campbell M, Gregor F. Mapping social relations: a primer in doing institutional ethnography. Ontario: Garamond Press; 2002. Campbell M, Gregor F. Mapping social relations: a primer in doing institutional ethnography. Ontario: Garamond Press; 2002.
56.
go back to reference Eakin JM, Mykhalovskiy E. Reframing the evaluation of qualitative health research: reflections on a review of appraisal guidelines in the health sciences. J Eval Clin Pract. 2003;9(2):187–94.CrossRefPubMed Eakin JM, Mykhalovskiy E. Reframing the evaluation of qualitative health research: reflections on a review of appraisal guidelines in the health sciences. J Eval Clin Pract. 2003;9(2):187–94.CrossRefPubMed
57.
go back to reference Hutchison B, Glazier R. Ontario’s Primary Care Reforms have transformed the local care landscape but a plan is needed for ongoing improvement. Health Aff (Millwood). 2013;32(4):695–703.CrossRef Hutchison B, Glazier R. Ontario’s Primary Care Reforms have transformed the local care landscape but a plan is needed for ongoing improvement. Health Aff (Millwood). 2013;32(4):695–703.CrossRef
58.
go back to reference Patton MQ. Qualitative evaluation and research method. Newbury: Sage; 1990. Patton MQ. Qualitative evaluation and research method. Newbury: Sage; 1990.
59.
go back to reference DeVault ML, McCoy L. Institutional ethnography: using interviews to investigate ruling relations. In: Smith DE, editor. Institutional ethnography as practice. Lanham: Rowman & Littlefield; 2006. p. 15–44. DeVault ML, McCoy L. Institutional ethnography: using interviews to investigate ruling relations. In: Smith DE, editor. Institutional ethnography as practice. Lanham: Rowman & Littlefield; 2006. p. 15–44.
Metadata
Title
An institutional ethnography of chronic pain management in family medicine (COPE) study protocol
Authors
Fiona Webster
Onil Bhattacharyya
Aileen Davis
Rick Glazier
Joel Katz
Paul Krueger
Ross Upshur
Albert Yee
Lynn Wilson
Publication date
01-06-2015
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2015
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-015-1078-7

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