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Open Access 01-08-2020 | Amyotrophic Lateral Sclerosis | Letter to the Editors

Riluzole prescribing, uptake and treatment discontinuation in people with amyotrophic lateral sclerosis in Scotland

Authors: Kiran Jayaprakash, Stella A. Glasmacher, Bernard Pang, Emily Beswick, Arpan R. Mehta, Rachel Dakin, Judith Newton, Siddharthan Chandran, Suvankar Pal, the CARE-MND Consortium

Published in: Journal of Neurology | Issue 8/2020

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Dear Sirs, …

Bensimon G, Lacomblez L, Meininger V (1994) A controlled trial of riluzole in amyotrophic lateral sclerosis. N Engl J Med 330(9):585–591. https://doi.org/10.1056/nejm199403033300901 CrossRefPubMed

Zoccolella S, Beghi E, Palagano G, Fraddosio A, Guerra V, Samarelli V, Lepore V, Simone IL, Lamberti P, Serlenga L, Logroscino G (2007) Riluzole and amyotrophic lateral sclerosis survival: a population-based study in southern Italy. Eur J Neurol 14(3):262–268. https://doi.org/10.1111/j.1468-1331.2006.01575.x CrossRefPubMed

Bensimon G, Doble A (2004) The tolerability of riluzole in the treatment of patients with amyotrophic lateral sclerosis. Expert Opin Drug Saf 3(6):525–534CrossRefPubMed

NICE (2001) Guidance on the use of riluzole (Rilutek) for the treatment of motor neurone disease. 20. National Institute for Health and Care Excellence. URL: www.nice.org.uk/guidance/ta20

Leighton D, Newton J, Colville S, Bethell A, Craig G, Cunningham L, Flett M, Fraser D, Hatrick J, Lennox H, Marshall L, McAleer D, McEleney A, Millar K, Silver A, Stephenson L, Stewart S, Storey D, Stott G, Thornton C, Webber C, Gordon H, Melchiorre G, Sherlock L, Beswick E, Buchanan D, Abrahams S, Bateman A, Preston J, Duncan C, Davenport R, Gorrie G, Morrison I, Swingler R, Chandran S, Pal S (2019) Clinical audit research and evaluation of motor neuron disease (CARE-MND): a national electronic platform for prospective, longitudinal monitoring of MND in Scotland. Amyotroph Lateral Scler Front Degener 20(3–4):242–250. https://doi.org/10.1080/21678421.2019.1582673 CrossRef

Brooks BR, Miller RG, Swash M, Munsat TL (2000) El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis. Amyotroph Lateral Scler Motor Neuron Disord 1(5):293–299CrossRef

Morrison KE, Krishna U, Worku DA (2017) Overview and audit against Motor Neurone Disease (MND) Association guidelines of a MND consultant’s practice over the last 3 years at the [Hospital]. Res Medica 24(1):65–74. https://doi.org/10.2218/resmedica.v24i1.1563 CrossRef

Centre HaSCI (2014) Use of NICE-appraised medicines in the NHS in England—2012, experimental statistics.

Nygren I, Antonova K, Mattsson P, Askmark H (2005) The ALS/MND prevalence in Sweden estimated by riluzole sales statistics. Acta Neurol Scand 111(3):180–184. https://doi.org/10.1111/j.1600-0404.2005.00384.x CrossRefPubMed

10.

Talman P, Duong T, Vucic S, Mathers S, Venkatesh S, Henderson R, Rowe D, Schultz D, Edis R, Needham M, Macdonnell R, McCombe P, Birks C, Kiernan M (2016) Identification and outcomes of clinical phenotypes in amyotrophic lateral sclerosis/motor neuron disease: Australian National Motor Neuron Disease observational cohort. BMJ open 6(9):e012054. https://doi.org/10.1136/bmjopen-2016-012054 CrossRefPubMedPubMedCentral

11.

Bellingham MC (2011) A review of the neural mechanisms of action and clinical efficiency of riluzole in treating amyotrophic lateral sclerosis: what have we learned in the last decade? CNS Neurosci Ther 17(1):4–31. https://doi.org/10.1111/j.1755-5949.2009.00116.x CrossRefPubMedPubMedCentral

Title: Riluzole prescribing, uptake and treatment discontinuation in people with amyotrophic lateral sclerosis in Scotland
Authors: Kiran Jayaprakash
Stella A. Glasmacher
Bernard Pang
Emily Beswick
Arpan R. Mehta
Rachel Dakin
Judith Newton
Siddharthan Chandran
Suvankar Pal
the CARE-MND Consortium
Publication date: 01-08-2020
Publisher: Springer Berlin Heidelberg
Keyword: Amyotrophic Lateral Sclerosis
Published in: Journal of Neurology / Issue 8/2020
Print ISSN: 0340-5354
Electronic ISSN: 1432-1459
DOI: https://doi.org/10.1007/s00415-020-09919-9

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Riluzole prescribing, uptake and treatment discontinuation in people with amyotrophic lateral sclerosis in Scotland

Excerpt

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Excerpt

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