Skip to main content
Top
Published in: BMC Public Health 1/2024

Open Access 01-12-2024 | Mood Disorders | Research

Racial and ethnic disparities in access to community-based perinatal mental health programs: results from a cross-sectional survey

Authors: Slawa Rokicki, Mitu Patel, Patricia D. Suplee, Robyn D’Oria

Published in: BMC Public Health | Issue 1/2024

Login to get access

Abstract

Background

Perinatal mental health is a major public health problem that disproportionately affects people from racial and ethnic minority groups. Community-based perinatal mental health programs, such as peer support groups, are essential tools for the prevention and treatment of perinatal depression. Yet, little is known about racial and ethnic disparities in accessibility and utilization of community-based perinatal mental health programs.

Methods

We conducted a cross-sectional study using an online survey with program administrators representing perinatal mental health community-based services and support programs throughout New Jersey. Descriptive analysis and mapping software was used to analyze the data.

Results

Thirty-three program administrators completed the survey. Results showed substantial racial and ethnic disparities in availability and utilization of community-based programs. In the majority of programs, Black, Hispanic, and Asian individuals made up less than 10% of total annual participants and less than 10% of facilitators. There were also geographic disparities in program accessibility and language availability across counties. Program administrators identified mental health stigma, lack of support from family, fear of disclosure of mental health challenges, social determinants, lack of language-concordant options in programs, and limited awareness of programs in the community as significant barriers to participation of racial and ethnic minorities. Strategies to address barriers included adding language options, improving program outreach, and increasing diversity of facilitators.

Conclusions

This study provides new evidence on racial and ethnic disparities in access to community-based perinatal mental health programs. Efforts to build the resources and capacities of community-based programs to identify equity gaps, increase diversity of staff, and address barriers to participation is critical to reducing racial and ethnic inequities in perinatal mental health.
Appendix
Available only for authorised users
Literature
1.
go back to reference Bauman BL. Vital signs: Postpartum depressive symptoms and provider discussions about Perinatal Depression — United States, 2018. MMWR Morb Mortal Wkly Rep. 2020;69. Bauman BL. Vital signs: Postpartum depressive symptoms and provider discussions about Perinatal Depression — United States, 2018. MMWR Morb Mortal Wkly Rep. 2020;69.
2.
go back to reference Getahun D, Oyelese Y, Peltier M, Yeh M, Chiu VY, Takhar H, et al. Trends in Postpartum Depression by Race/Ethnicity and pre-pregnancy body Mass Index. Am J Obstet Gynecol. 2023;228:S122–3.CrossRef Getahun D, Oyelese Y, Peltier M, Yeh M, Chiu VY, Takhar H, et al. Trends in Postpartum Depression by Race/Ethnicity and pre-pregnancy body Mass Index. Am J Obstet Gynecol. 2023;228:S122–3.CrossRef
3.
go back to reference Trost S, Beauregard J, Chandra G, Njie F, Berry J, Harvey A, et al. Pregnancy-related deaths: data from Maternal Mortality Review Committees in 36 US States, 2017–2019| CDC. Atlanta, Georgia: Center for Disease Control and Prevention, US Department of Health and Human Services; 2022. Trost S, Beauregard J, Chandra G, Njie F, Berry J, Harvey A, et al. Pregnancy-related deaths: data from Maternal Mortality Review Committees in 36 US States, 2017–2019| CDC. Atlanta, Georgia: Center for Disease Control and Prevention, US Department of Health and Human Services; 2022.
4.
go back to reference Ganann R, Sword W, Thabane L, Newbold B, Black M. Predictors of Postpartum Depression Among Immigrant Women in the Year After Childbirth. J Womens Health. 2002. 2016;25:155–65. Ganann R, Sword W, Thabane L, Newbold B, Black M. Predictors of Postpartum Depression Among Immigrant Women in the Year After Childbirth. J Womens Health. 2002. 2016;25:155–65.
5.
go back to reference Matthews K, Morgan I, Davis K, Estriplet T, Perez S, Crear-Perry JA. Pathways to Equitable and Antiracist Maternal Mental Health Care: insights from Black women stakeholders. Health Aff (Millwood). 2021;40:1597–604.CrossRefPubMed Matthews K, Morgan I, Davis K, Estriplet T, Perez S, Crear-Perry JA. Pathways to Equitable and Antiracist Maternal Mental Health Care: insights from Black women stakeholders. Health Aff (Millwood). 2021;40:1597–604.CrossRefPubMed
6.
go back to reference Rokicki S, McConnell M. Racial and Socioeconomic Disparities in Preconception Health Risk Factors and Access to Care. J Womens Health. 2024;Forthcoming. Rokicki S, McConnell M. Racial and Socioeconomic Disparities in Preconception Health Risk Factors and Access to Care. J Womens Health. 2024;Forthcoming.
7.
go back to reference Sidebottom A, Vacquier M, LaRusso E, Erickson D, Hardeman R. Perinatal depression screening practices in a large health system: identifying current state and assessing opportunities to provide more equitable care. Arch Womens Ment Health. 2021;24:133–44.CrossRefPubMed Sidebottom A, Vacquier M, LaRusso E, Erickson D, Hardeman R. Perinatal depression screening practices in a large health system: identifying current state and assessing opportunities to provide more equitable care. Arch Womens Ment Health. 2021;24:133–44.CrossRefPubMed
8.
go back to reference Cannon C, Nasrallah HA. A focus on postpartum depression among African American women: a literature review. Ann Clin Psychiatry off J Am Acad Clin Psychiatr. 2019;31:138–43. Cannon C, Nasrallah HA. A focus on postpartum depression among African American women: a literature review. Ann Clin Psychiatry off J Am Acad Clin Psychiatr. 2019;31:138–43.
10.
go back to reference Bodnar-Deren S, Benn EKT, Balbierz A, Howell EA. Stigma and Postpartum Depression Treatment Acceptability among Black and White women in the first six-months Postpartum. Matern Child Health J. 2017;21:1457–68.CrossRefPubMed Bodnar-Deren S, Benn EKT, Balbierz A, Howell EA. Stigma and Postpartum Depression Treatment Acceptability among Black and White women in the first six-months Postpartum. Matern Child Health J. 2017;21:1457–68.CrossRefPubMed
11.
go back to reference Iturralde E, Hsiao CA, Nkemere L, Kubo A, Sterling SA, Flanagan T, et al. Engagement in perinatal depression treatment: a qualitative study of barriers across and within racial/ethnic groups. BMC Pregnancy Childbirth. 2021;21:512.CrossRefPubMedPubMedCentral Iturralde E, Hsiao CA, Nkemere L, Kubo A, Sterling SA, Flanagan T, et al. Engagement in perinatal depression treatment: a qualitative study of barriers across and within racial/ethnic groups. BMC Pregnancy Childbirth. 2021;21:512.CrossRefPubMedPubMedCentral
12.
go back to reference Nadeem E, Lange JM, Miranda J. Perceived need for care among low-income immigrant and U.S.-Born Black and Latina women with Depression. J Womens Health. 2009;18:369–75.CrossRef Nadeem E, Lange JM, Miranda J. Perceived need for care among low-income immigrant and U.S.-Born Black and Latina women with Depression. J Womens Health. 2009;18:369–75.CrossRef
14.
go back to reference Pao C, Guintivano J, Santos H, Meltzer-Brody S. Postpartum depression and social support in a racially and ethnically diverse population of women. Arch Womens Ment Health. 2019;22:105–14.CrossRefPubMed Pao C, Guintivano J, Santos H, Meltzer-Brody S. Postpartum depression and social support in a racially and ethnically diverse population of women. Arch Womens Ment Health. 2019;22:105–14.CrossRefPubMed
15.
go back to reference Razurel C, Kaiser B, Sellenet C, Epiney M. Relation between perceived stress, Social Support, and coping strategies and maternal Well-Being: a review of the literature. Women Health. 2013;53:74–99.CrossRefPubMed Razurel C, Kaiser B, Sellenet C, Epiney M. Relation between perceived stress, Social Support, and coping strategies and maternal Well-Being: a review of the literature. Women Health. 2013;53:74–99.CrossRefPubMed
16.
go back to reference Reid KM, Taylor MG. Social support, stress, and maternal postpartum depression: a comparison of supportive relationships. Soc Sci Res. 2015;54:246–62.CrossRefPubMed Reid KM, Taylor MG. Social support, stress, and maternal postpartum depression: a comparison of supportive relationships. Soc Sci Res. 2015;54:246–62.CrossRefPubMed
17.
go back to reference De Sousa Machado T, Chur-Hansen A, Due C. First-time mothers’ perceptions of social support: recommendations for best practice. Health Psychol Open. 2020;7:2055102919898611.CrossRefPubMedPubMedCentral De Sousa Machado T, Chur-Hansen A, Due C. First-time mothers’ perceptions of social support: recommendations for best practice. Health Psychol Open. 2020;7:2055102919898611.CrossRefPubMedPubMedCentral
18.
go back to reference O’Neill P, Cycon A, Friedman L. Seeking social support and postpartum depression: a pilot retrospective study of perceived changes. Midwifery. 2019;71:56–62.CrossRefPubMed O’Neill P, Cycon A, Friedman L. Seeking social support and postpartum depression: a pilot retrospective study of perceived changes. Midwifery. 2019;71:56–62.CrossRefPubMed
19.
go back to reference Recto P, Champion JD. Social Support and Perinatal Depression: the perspectives of Mexican-American adolescent mothers. Issues Ment Health Nurs. 2020;41:932–9.CrossRefPubMed Recto P, Champion JD. Social Support and Perinatal Depression: the perspectives of Mexican-American adolescent mothers. Issues Ment Health Nurs. 2020;41:932–9.CrossRefPubMed
20.
go back to reference Rice C, Ingram E, O’Mahen H. A qualitative study of the impact of peer support on women’s mental health treatment experiences during the perinatal period. BMC Pregnancy Childbirth. 2022;22:689.CrossRefPubMedPubMedCentral Rice C, Ingram E, O’Mahen H. A qualitative study of the impact of peer support on women’s mental health treatment experiences during the perinatal period. BMC Pregnancy Childbirth. 2022;22:689.CrossRefPubMedPubMedCentral
21.
go back to reference Fang Q, Lin L, Chen Q, Yuan Y, Wang S, Zhang Y, et al. Effect of peer support intervention on perinatal depression: a meta-analysis. Gen Hosp Psychiatry. 2022;74:78–87.CrossRefPubMed Fang Q, Lin L, Chen Q, Yuan Y, Wang S, Zhang Y, et al. Effect of peer support intervention on perinatal depression: a meta-analysis. Gen Hosp Psychiatry. 2022;74:78–87.CrossRefPubMed
22.
go back to reference Duffecy J, Grekin R, Hinkel H, Gallivan N, Nelson G, O’Hara MW. A Group-based online intervention to prevent Postpartum Depression (Sunnyside): Feasibility Randomized Controlled Trial. JMIR Ment Health. 2019;6:e10778.CrossRefPubMedPubMedCentral Duffecy J, Grekin R, Hinkel H, Gallivan N, Nelson G, O’Hara MW. A Group-based online intervention to prevent Postpartum Depression (Sunnyside): Feasibility Randomized Controlled Trial. JMIR Ment Health. 2019;6:e10778.CrossRefPubMedPubMedCentral
23.
go back to reference DeAndrea DC, Anthony JC. Online peer support for mental health problems in the United States: 2004–2010. Psychol Med. 2013;43:2277–88. DeAndrea DC, Anthony JC. Online peer support for mental health problems in the United States: 2004–2010. Psychol Med. 2013;43:2277–88.
24.
go back to reference Gold KJ, Normandin MM, Boggs ME. Are participants in face-to-face and internet support groups the same? Comparison of demographics and depression levels among women bereaved by stillbirth. Arch Womens Ment Health. 2016;19:1073–8.CrossRefPubMed Gold KJ, Normandin MM, Boggs ME. Are participants in face-to-face and internet support groups the same? Comparison of demographics and depression levels among women bereaved by stillbirth. Arch Womens Ment Health. 2016;19:1073–8.CrossRefPubMed
25.
go back to reference Chan AL, Guo N, Popat R, Robakis T, Blumenfeld YY, Main E, et al. Racial and ethnic disparities in Hospital-Based Care Associated with Postpartum Depression. J Racial Ethn Health Disparities. 2021;8:220–9.CrossRefPubMed Chan AL, Guo N, Popat R, Robakis T, Blumenfeld YY, Main E, et al. Racial and ethnic disparities in Hospital-Based Care Associated with Postpartum Depression. J Racial Ethn Health Disparities. 2021;8:220–9.CrossRefPubMed
26.
go back to reference NJSHAD. New Jersey Department of Health’s State Health Assessment Data. Query Results for New Jersey PRAMS Data - Postpartum Depression, 2019. Trenton, NJ: New Jersey Department of Health; 2022. NJSHAD. New Jersey Department of Health’s State Health Assessment Data. Query Results for New Jersey PRAMS Data - Postpartum Depression, 2019. Trenton, NJ: New Jersey Department of Health; 2022.
27.
go back to reference Dalsania AK, Fastiggi MJ, Kahlam A, Shah R, Patel K, Shiau S, et al. The Relationship between Social Determinants of Health and racial disparities in COVID-19 mortality. J Racial Ethn Health Disparities. 2022;9:288–95.CrossRefPubMed Dalsania AK, Fastiggi MJ, Kahlam A, Shah R, Patel K, Shiau S, et al. The Relationship between Social Determinants of Health and racial disparities in COVID-19 mortality. J Racial Ethn Health Disparities. 2022;9:288–95.CrossRefPubMed
28.
go back to reference Ajayi KV, Page R, Montour T, Garney WR, Wachira E, Adeyemi L. We are suffering. Nothing is changing.’ Black mother’s experiences, communication, and support in the neonatal intensive care unit in the United States: a qualitative study. Ethn Health. 2024;29:77–99.CrossRefPubMed Ajayi KV, Page R, Montour T, Garney WR, Wachira E, Adeyemi L. We are suffering. Nothing is changing.’ Black mother’s experiences, communication, and support in the neonatal intensive care unit in the United States: a qualitative study. Ethn Health. 2024;29:77–99.CrossRefPubMed
29.
go back to reference Alegría M, Roter DL, Valentine A, Chen C, Li X, Lin J, et al. Patient–clinician ethnic concordance and communication in mental health intake visits. Patient Educ Couns. 2013;93:188–96.CrossRefPubMedPubMedCentral Alegría M, Roter DL, Valentine A, Chen C, Li X, Lin J, et al. Patient–clinician ethnic concordance and communication in mental health intake visits. Patient Educ Couns. 2013;93:188–96.CrossRefPubMedPubMedCentral
30.
go back to reference Alegría M, Zhen-Duan J, O’Malley IS, DiMarzio K. A New Agenda for Optimizing Investments in Community Mental Health and reducing disparities. Am J Psychiatry. 2022;179:402–16.CrossRefPubMedPubMedCentral Alegría M, Zhen-Duan J, O’Malley IS, DiMarzio K. A New Agenda for Optimizing Investments in Community Mental Health and reducing disparities. Am J Psychiatry. 2022;179:402–16.CrossRefPubMedPubMedCentral
32.
go back to reference Byatt N, Biebel K, Lundquist RS, Simas TAM, Debordes-Jackson G, Allison J, et al. Patient, provider, and system-level barriers and facilitators to addressing perinatal depression. J Reprod Infant Psychol. 2012;30:436–49.CrossRef Byatt N, Biebel K, Lundquist RS, Simas TAM, Debordes-Jackson G, Allison J, et al. Patient, provider, and system-level barriers and facilitators to addressing perinatal depression. J Reprod Infant Psychol. 2012;30:436–49.CrossRef
33.
go back to reference Knowles M, Crowley AP, Vasan A, Kangovi S. Community Health Worker Integration with and Effectiveness in Health Care and Public Health in the United States. Annu Rev Public Health. 2023;44:363–81.CrossRefPubMed Knowles M, Crowley AP, Vasan A, Kangovi S. Community Health Worker Integration with and Effectiveness in Health Care and Public Health in the United States. Annu Rev Public Health. 2023;44:363–81.CrossRefPubMed
34.
go back to reference Burkett CA. Obstructed use: reconceptualizing the Mental Health (Help-Seeking) experiences of Black americans. J Black Psychol. 2017;43:813–35.CrossRef Burkett CA. Obstructed use: reconceptualizing the Mental Health (Help-Seeking) experiences of Black americans. J Black Psychol. 2017;43:813–35.CrossRef
35.
go back to reference Ramella L, Schaefer AJ, Rokicki S, Adachi J, Thompson AB, Byatt N, et al. A national survey on adaptations by perinatal psychiatry access programs to promote perinatal mental healthcare equity. Gen Hosp Psychiatry. 2022;76:49–54.CrossRefPubMed Ramella L, Schaefer AJ, Rokicki S, Adachi J, Thompson AB, Byatt N, et al. A national survey on adaptations by perinatal psychiatry access programs to promote perinatal mental healthcare equity. Gen Hosp Psychiatry. 2022;76:49–54.CrossRefPubMed
36.
go back to reference Rokicki, S., Steenland, M. W., Geiger, C. K., Gourevitch, R. A., Chen, L., Martin, M. W., & Cohen, J. L. (2022). Trends in postpartum mental health care before and during COVID‐19. Health Services Research, 57(6), 1342-1347.CrossRefPubMedPubMedCentral Rokicki, S., Steenland, M. W., Geiger, C. K., Gourevitch, R. A., Chen, L., Martin, M. W., & Cohen, J. L. (2022). Trends in postpartum mental health care before and during COVID‐19. Health Services Research, 57(6), 1342-1347.CrossRefPubMedPubMedCentral
Metadata
Title
Racial and ethnic disparities in access to community-based perinatal mental health programs: results from a cross-sectional survey
Authors
Slawa Rokicki
Mitu Patel
Patricia D. Suplee
Robyn D’Oria
Publication date
01-12-2024
Publisher
BioMed Central
Published in
BMC Public Health / Issue 1/2024
Electronic ISSN: 1471-2458
DOI
https://doi.org/10.1186/s12889-024-18517-7

Other articles of this Issue 1/2024

BMC Public Health 1/2024 Go to the issue