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Published in:

01-06-2016

A Web-Based Platform for Educating Researchers About Bioethics and Biobanking

Authors: Ivana Sehovic, Clement K. Gwede, Cathy D. Meade, Stephen Sodeke, Rebecca Pentz, Gwendolyn P. Quinn

Published in: Journal of Cancer Education | Issue 2/2016

Abstract

Participation in biobanking among individuals with familial risk for hereditary cancer (IFRs) and underserved/minority populations is vital for biobanking research. To address gaps in researcher knowledge regarding ethical concerns of these populations, we developed a web-based curriculum. Based on formative research and expert panel assessments, a curriculum and website was developed in an integrative, systematic manner. Researchers were recruited to evaluate the curriculum. Public health graduate students were recruited to pilot test the curriculum. All 14 researchers agreed the curriculum was easy to understand, adequately addressed the domains, and contained appropriate post-test questions. The majority evaluated the dialgoue animations as interesting and valuable. Twenty-two graduate students completed the curriculum, and 77 % improved their overall test score. A web-based curriculum is an acceptable and effective way to provide information to researchers about vulnerable populations’ biobanking concerns. Future goals are to incorporate the curriculum with larger organizations.

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Title: A Web-Based Platform for Educating Researchers About Bioethics and Biobanking
Authors: Ivana Sehovic
Clement K. Gwede
Cathy D. Meade
Stephen Sodeke
Rebecca Pentz
Gwendolyn P. Quinn
Publication date: 01-06-2016
Publisher: Springer US
Published in: Journal of Cancer Education / Issue 2/2016
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI: https://doi.org/10.1007/s13187-015-0812-5

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