Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress
Clinical Collections
Advances in Alzheimer’s

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.
ADVANCED SEARCH
Log in
Top
BMC Medical Informatics and Decision Making
Published in: BMC Medical Informatics and Decision Making 1/2012

Open Access 01-12-2012 | Correspondence

Web-based information for pregnant women and new mothers with type 1 diabetes- a description of the development process

Authors: Karolina Linden, Marie Berg, Carina Sparud-Lundin

Published in: BMC Medical Informatics and Decision Making | Issue 1/2012

Login to get access

Abstract

Background

This paper describes the process of developing specifically designed web-based maternity information for women with type 1 diabetes.

Methods

A participatory design was used and the information was evaluated in seven stages by researchers, professional experts and users. All steps of the development process were noted in an online logbook.

Results

The information developed gradually and its contents were reviewed by nurse-midwives, nurses and physicians specializing in different key areas including diabetes care, paediatrics, obstetrics and breastfeeding, a clinical dietician and mothers with type 1 diabetes. The draft was reviewed in regard to its cultural suitability and the information material was adjusted to meet quality criterions. Finally, the text was adapted for a lay audience.

Conclusions

Using participatory design required time and resources, however; it proved a functional way of producing appropriate information for the target group.
Appendix
Available only for authorised users
Literature
1.
Berg M, Sparud-Lundin C: Experiences of professional support during pregnancy and childbirth - a qualitative study of women with type 1 diabetes. BMC Pregnancy Childbirth. 2009, 9: 27-10.1186/1471-2393-9-27.CrossRefPubMedPubMedCentral
2.
3.
Evers IM, De Valk HW, Visser GHA: Risk of complications of pregnancy in women with type 1 diabetes: nationwide prospective study in the netherlands. Br Med J. 2004, 328 (7445): 915-918. 10.1136/bmj.38043.583160.EE.CrossRef
4.
Kapoor N, Sankaran S, Hyer S, Shehata H: Diabetes in pregnancy: a review of current evidence. Curr Opin Obstet Gynecol. 2007, 19 (6): 586-590. 10.1097/GCO.0b013e3282f20aad.CrossRefPubMed
5.
Bell R, Glinianaia S, Tennant P, Bilous R, Rankin J: Peri-conception hyperglycaemia and nephropathy are associated with risk of congenital anomaly in women with pre-existing diabetes: a population-based cohort study. Diabetologia. 2012, 55 (4): 936-947. 10.1007/s00125-012-2455-y.CrossRef
6.
Macintosh MCM, Fleming KM, Bailey JA, Doyle P, Modder J, Acolet D, Golightly S, Miller A: Perinatal mortality and congenital anomalies in babies of women with type 1 or type 2 diabetes in England, Wales, and Northern Ireland: population based study. Br Med J. 2006, 333 (7560): 177-180. 10.1136/bmj.38856.692986.AE.CrossRef
7.
Handisurya A, Bancher-Todesca D, Schober E, Klein K, Tobler K, Schneider B, Pollak A, Husslein P, Luger A, Kautzky-Willer A: Risk factor profile and pregnancy outcome in women with type 1 and type 2 diabetes mellitus. J Womens Health. 2011, 20 (2): 263-271. 10.1089/jwh.2010.2033.CrossRef
8.
Hawdon JM: Babies born after diabetes in pregnancy: what are the short- and long-term risks and how can we minimise them?. Best Practice & Research Clinical Obstetrics & Gynaecology. 2011, 25 (1): 91-104. 10.1016/j.bpobgyn.2010.10.005.CrossRef
9.
Berg M, Honkasalo ML: Pregnancy and diabetes - a hermeneutic phenomenological study of women's experiences. J Psychosom Obstet Gynaecol. 2000, 21 (1): 39-48. 10.3109/01674820009075607.CrossRefPubMed
10.
Sparud-Lundin C, Berg M: Extraordinary exposed in early motherhood - a qualitative study exploring experiences of mothers with type 1 diabetes. BMC Womens Health. 2011, 11: 10-10.1186/1472-6874-11-10.CrossRefPubMedPubMedCentral
11.
Nelson AM: Transition to motherhood. J Obstet Gynecol Neonatal Nurs. 2003, 32 (4): 465-477. 10.1177/0884217503255199.CrossRefPubMed
12.
House JS: Work stress and social support. Reading. 1981, Mass: Addison-Wesley
13.
Sparud-Lundin C, Ranerup A, Berg M: Internet use, needs and expectations of web-based information and communication in childbearing women with type 1 diabetes. BMC Med Inform Decis Mak. 2011, 11 (1): 49-10.1186/1472-6947-11-49.CrossRefPubMedPubMedCentral
14.
Kaufman N: Internet and information technology use in treatment of diabetes. Int J Clin Pract Suppl. 2010, 166: 41-46.CrossRefPubMed
15.
Mühlhauser I, Berger M: Evidence-based patient information in diabetes. Diabet Med. 2000, 17 (12): 823-829. 10.1046/j.1464-5491.2000.00383.x.CrossRefPubMed
16.
Dixon-Woods M: Writing wrongs? an analysis of published discourses about the use of patient information leaflets. Soc Sci Med. 2001, 52 (9): 1417-1432. 10.1016/S0277-9536(00)00247-1.CrossRefPubMed
17.
Garner M, Ning Z, Francis J: A framework for the evaluation of patient information leaflets. Health Expect. 2012, 15 (3): 283-294. 10.1111/j.1369-7625.2011.00665.x.CrossRefPubMed
18.
Gregory J: Scandinavian approaches to participatory design. Int J Eng Educ. 2003, 19 (1 SPEC): 62-74.
19.
Spinuzzi C: The methodology of participatory design. Tech Commun. 2005, 52 (2): 163-174.
20.
21.
Jensen DM, Damm P, Moelsted-Pedersen L, Ovesen P, Westergaard JG, Moeller M, Beck-Nielsen H: Outcomes in type 1 diabetic pregnancies:a nationwide, population-based study. Diabetes Care. 2004, 27 (12): 2819-2823. 10.2337/diacare.27.12.2819.CrossRefPubMed
22.
Rankin D, Heller S, Lawton J: Understanding information and education gaps among people with type 1 diabetes: a qualitative investigation. Patient Educ Couns. 2011, 83 (1): 87-91. 10.1016/j.pec.2010.04.026.CrossRefPubMed
23.
Chuang CH, Velott DL, Weisman CS: Exploring knowledge and attitudes related to pregnancy and preconception health in women with chronic medical conditions. Matern Child Health J. 2010, 14 (5): 713-719. 10.1007/s10995-009-0518-6.CrossRefPubMedPubMedCentral
24.
Cartwright A, Wallymahmed M, Macfarlane I, Casson I: What do women with diabetes know about pregnancy and contraception?. Practl Diabetes Int. 2009, 26 (6): 238-242. 10.1002/pdi.1383.CrossRef
25.
Doak CC, Doak LG, Root JH: Teaching Patients with Low Literacy Skills. 1996, USA: Lippincot Company, 2
26.
27.
Stvilia B, Mon L, Yi YJ: A model for online consumer health information quality. J Am Soc Inf Sci Technol. 2009, 60 (9): 1781-1791. 10.1002/asi.21115.CrossRef
28.
Bunge M, Mühlhauser I, Steckelberg A: What constitutes evidence-based patient information? overview of discussed criteria. Patient Educ Couns. 2010, 78 (3): 316-328. 10.1016/j.pec.2009.10.029.CrossRefPubMed
29.
Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD: Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database Syst Rev. 2006, 3:
30.
Coulter A: Evidence based patient information. Br Med J. 1998, 317 (7153): 225-226. 10.1136/bmj.317.7153.225.CrossRef
31.
Tutty L, O'Connor G: Patient information leaflets: some pertinent guidelines. Radiography. 1999, 5 (1): 11-14. 10.1016/S1078-8174(99)90003-2.CrossRef
32.
Robins D, Holmes J, Stansbury M: Consumer health information on the web: the relationship of visual design and perceptions of credibility. J Am Soc Inf Sci Technol. 2010, 61 (1): 13-29. 10.1002/asi.21224.CrossRef
33.
Grime J, Dudley B: Developing written information on osteoarthritis for patients: facilitating user involvement by exposure to qualitative research. Health Expect. in press
34.
Helitzer D, Hollis C, Cotner J, Oestreicher N: Health literacy demands of written health information materials: an assessment of cervical cancer prevention materials. Cancer Control. 2009, 16 (1): 70-78.PubMed
Metadata
Title
Web-based information for pregnant women and new mothers with type 1 diabetes- a description of the development process
Authors
Karolina Linden
Marie Berg
Carina Sparud-Lundin
Publication date
01-12-2012
Publisher
BioMed Central
Published in
BMC Medical Informatics and Decision Making / Issue 1/2012
Electronic ISSN: 1472-6947
DOI
https://doi.org/10.1186/1472-6947-12-134

Other articles of this Issue 1/2012

BMC Medical Informatics and Decision Making 1/2012 Go to the issue

Research article

Comparing virtual consults to traditional consults using an electronic health record: an observational case–control study

Technical advance

Developing open source, self-contained disease surveillance software applications for use in resource-limited settings

Research article

Integration of a nationally procured electronic health record system into user work practices

Research article

Implementation of automated reporting of estimated glomerular filtration rate among Veterans Affairs laboratories: a retrospective study

Research article

Computational challenges and human factors influencing the design and use of clinical research participant eligibility pre-screening tools

Research article

Tool, weapon, or white elephant? A realist analysis of the five phases of a twenty-year programme of occupational health information system implementation in the health sector