Skip to main content
Top
Published in: Health and Quality of Life Outcomes 1/2004

Open Access 01-12-2004 | Research

Validity, reliability and responsiveness of the "Schedule for the Evaluation of Individual Quality of Life – Direct Weighting" (SEIQoL-DW) in congenital heart disease

Authors: Philip Moons, Kristel Marquet, Werner Budts, Sabina De Geest

Published in: Health and Quality of Life Outcomes | Issue 1/2004

Login to get access

Abstract

Background

The 'Schedule for the Evaluation of Individual Quality of Life – Direct Weighting' (SEIQoL-DW) is an instrument developed to measure individual quality of life. Although this instrument has been used in numerous studies, data on validity and reliability are sparse. This study aimed to examine aspects of validity, reliability and responsiveness of the SEIQoL-DW on data obtained in adults with congenital heart disease, by using the new standards of psychological testing.

Methods

We evaluated validity evidence based on test content, internal structure, and relations to other variables, as well as the stability and responsiveness of the SEIQoL-DW. Evidence was provided by both theoretical considerations and empirical data. Empirical data were acquired from two studies. Firstly, using a cross-sectional study design, we included 629 patients with congenital heart disease. Secondly, 130 of the 629 initially included patients readministered the questionnaires approximately one year after the first data collection. In addition to the SEIQoL-DW, linear analog scales were used to assess overall quality of life and perceived health.

Results

We found that the SEIQoL-DW is not a valid measure of quality of life, but rather assesses determinants that contribute to individuals' quality of life. The SEIQoL-DW consistently proved to be valid and reliable to assess those determinants. However, responsiveness in patients with congenital heart disease may be problematic.

Conclusion

Based on theoretical and empirical considerations, the SEIQoL-DW cannot be considered as a quality of life instrument. Nonetheless, it is a valid and reliable instrument to explore determinants for patients' quality of life.
Literature
1.
go back to reference Hickey A, O'Boyle CA, McGee H, Joyce CRB: The schedule for the evaluation of individual quality of life. Individual quality of life: approaches to conceptualisation and assessment (Edited by: JoyceCRB, O'BoyleCA and McGeeH). Amsterdam, Harwood academic publishers 1999, 119–133. Hickey A, O'Boyle CA, McGee H, Joyce CRB: The schedule for the evaluation of individual quality of life. Individual quality of life: approaches to conceptualisation and assessment (Edited by: JoyceCRB, O'BoyleCA and McGeeH). Amsterdam, Harwood academic publishers 1999, 119–133.
2.
go back to reference Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W: A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ 1996, 313: 29–33.PubMedCentralPubMedCrossRef Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W: A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ 1996, 313: 29–33.PubMedCentralPubMedCrossRef
3.
go back to reference Hyland ME: A reformulation of quality of life for medical science. Individual quality of life: approaches to conceptualisation and assessment (Edited by: JoyceCRB, O'BoyleCA and McGeeH). Amsterdam, Harwood academic publishers 1999, 41–49. Hyland ME: A reformulation of quality of life for medical science. Individual quality of life: approaches to conceptualisation and assessment (Edited by: JoyceCRB, O'BoyleCA and McGeeH). Amsterdam, Harwood academic publishers 1999, 41–49.
4.
go back to reference O'Boyle CA, McGee H, Hickey A, O'Malley K, Joyce CR: Individual quality of life in patients undergoing hip replacement. Lancet 1992, 339: 1088–1091. 10.1016/0140-6736(92)90673-QPubMedCrossRef O'Boyle CA, McGee H, Hickey A, O'Malley K, Joyce CR: Individual quality of life in patients undergoing hip replacement. Lancet 1992, 339: 1088–1091. 10.1016/0140-6736(92)90673-QPubMedCrossRef
5.
go back to reference Browne JP, O'Boyle CA, McGee HM, McDonald NJ, Joyce CRB: Development of a direct weighting procedure for quality of life domains. Qual Life Res 1997, 6: 301–309. 10.1023/A:1018423124390PubMedCrossRef Browne JP, O'Boyle CA, McGee HM, McDonald NJ, Joyce CRB: Development of a direct weighting procedure for quality of life domains. Qual Life Res 1997, 6: 301–309. 10.1023/A:1018423124390PubMedCrossRef
6.
go back to reference O'Boyle CA, McGee H, Hickey A, Joyce CRB, Browne J, O'Malley K, Hiltbrunner B: The schedule for evaluation of individual quality of life. User manual. Dublin, Department of Psychology, Royal College of Surgeons in Ireland 1993. O'Boyle CA, McGee H, Hickey A, Joyce CRB, Browne J, O'Malley K, Hiltbrunner B: The schedule for evaluation of individual quality of life. User manual. Dublin, Department of Psychology, Royal College of Surgeons in Ireland 1993.
7.
go back to reference Macduff C: Respondent-generated quality of life measures: useful tools for nursing or more fool's gold? J Adv Nurs 2000, 32: 375–382. 10.1046/j.1365-2648.2000.01486.xPubMedCrossRef Macduff C: Respondent-generated quality of life measures: useful tools for nursing or more fool's gold? J Adv Nurs 2000, 32: 375–382. 10.1046/j.1365-2648.2000.01486.xPubMedCrossRef
8.
go back to reference Joyce CRB, Hickey A, McGee HM, O'Boyle CA: A theory-based method for the evaluation of individual quality of life: The SEIQoL. Qual Life Res 2003, 12: 275–280. 10.1023/A:1023273117040PubMedCrossRef Joyce CRB, Hickey A, McGee HM, O'Boyle CA: A theory-based method for the evaluation of individual quality of life: The SEIQoL. Qual Life Res 2003, 12: 275–280. 10.1023/A:1023273117040PubMedCrossRef
9.
go back to reference Ferrans CE: Development of a conceptual model of quality of life. Sch Inq Nurs Pract 1996, 10: 293–304.PubMed Ferrans CE: Development of a conceptual model of quality of life. Sch Inq Nurs Pract 1996, 10: 293–304.PubMed
10.
go back to reference Meeberg GA: Quality of life: a concept analysis. J Adv Nurs 1993, 18: 32–38. 10.1046/j.1365-2648.1993.18010032.xPubMedCrossRef Meeberg GA: Quality of life: a concept analysis. J Adv Nurs 1993, 18: 32–38. 10.1046/j.1365-2648.1993.18010032.xPubMedCrossRef
11.
12.
go back to reference Haas BK: A multidisciplinary concept analysis of quality of life. West J Nurs Res 1999, 21: 728–742. 10.1177/01939459922044153PubMedCrossRef Haas BK: A multidisciplinary concept analysis of quality of life. West J Nurs Res 1999, 21: 728–742. 10.1177/01939459922044153PubMedCrossRef
13.
go back to reference Haas BK: Clarification and integration of similar quality of life concepts. Image J Nurs Sch 1999, 31: 215–220.PubMedCrossRef Haas BK: Clarification and integration of similar quality of life concepts. Image J Nurs Sch 1999, 31: 215–220.PubMedCrossRef
14.
15.
go back to reference Association American Educational Research, Association American Psychological, Education National Council on Measurement in: Standards for educational and psychological testing Washington DC 1999. Association American Educational Research, Association American Psychological, Education National Council on Measurement in: Standards for educational and psychological testing Washington DC 1999.
16.
go back to reference Gill TM, Feinstein AR: A critical appraisal of the quality of quality-of-life measurements. JAMA 1994, 272: 619–626. 10.1001/jama.272.8.619PubMedCrossRef Gill TM, Feinstein AR: A critical appraisal of the quality of quality-of-life measurements. JAMA 1994, 272: 619–626. 10.1001/jama.272.8.619PubMedCrossRef
18.
go back to reference Ferrans CE: Conceptualizations of quality of life in cardiovascular research. Prog Cardiovasc Nurs 1992, 7: 2–6.PubMed Ferrans CE: Conceptualizations of quality of life in cardiovascular research. Prog Cardiovasc Nurs 1992, 7: 2–6.PubMed
19.
20.
go back to reference Jacobsen PB, Weitzner MA: Evaluation of palliative endpoints in oncology clinical trials. Cancer Control 1999, 6: 471–477.PubMed Jacobsen PB, Weitzner MA: Evaluation of palliative endpoints in oncology clinical trials. Cancer Control 1999, 6: 471–477.PubMed
21.
go back to reference Michael M, Tannock IF: Measuring health-related quality of life in clinical trials that evaluate the role of chemotherapy in cancer treatment. CMAJ 1998, 158: 1727–1734.PubMedCentralPubMed Michael M, Tannock IF: Measuring health-related quality of life in clinical trials that evaluate the role of chemotherapy in cancer treatment. CMAJ 1998, 158: 1727–1734.PubMedCentralPubMed
22.
go back to reference Badia X, Monserrat S, Roset M, Herdman M: Feasibility, validity and test-retest reliability of scaling methods for health states: the visual analogue scale and the time trade-off. Qual Life Res 1999, 8: 303–310. 10.1023/A:1008952423122PubMedCrossRef Badia X, Monserrat S, Roset M, Herdman M: Feasibility, validity and test-retest reliability of scaling methods for health states: the visual analogue scale and the time trade-off. Qual Life Res 1999, 8: 303–310. 10.1023/A:1008952423122PubMedCrossRef
23.
go back to reference Bayle B, Kemoun G, Migaud H, Thevenon A: Comparison of two modes of administration of a personalized quality of life scale in a longitudinal study of total hip arthroplasty. Joint Bone Spine 2000, 67: 101–106.PubMed Bayle B, Kemoun G, Migaud H, Thevenon A: Comparison of two modes of administration of a personalized quality of life scale in a longitudinal study of total hip arthroplasty. Joint Bone Spine 2000, 67: 101–106.PubMed
24.
go back to reference Jenkinson C: Health status measurement and outcome. Research and Development in Clinical Nursing Practice (Edited by: RoeB and WebbC). London, Whurr 1998, 170–189.CrossRef Jenkinson C: Health status measurement and outcome. Research and Development in Clinical Nursing Practice (Edited by: RoeB and WebbC). London, Whurr 1998, 170–189.CrossRef
Metadata
Title
Validity, reliability and responsiveness of the "Schedule for the Evaluation of Individual Quality of Life – Direct Weighting" (SEIQoL-DW) in congenital heart disease
Authors
Philip Moons
Kristel Marquet
Werner Budts
Sabina De Geest
Publication date
01-12-2004
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2004
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/1477-7525-2-27

Other articles of this Issue 1/2004

Health and Quality of Life Outcomes 1/2004 Go to the issue