Skip to main content
Top
Published in: BMC Medical Research Methodology 1/2020

Open Access 01-12-2020 | Technical advance

Using online technologies to improve diversity and inclusion in cognitive interviews with young people

Authors: Ushma D. Upadhyay, Heather Lipkovich

Published in: BMC Medical Research Methodology | Issue 1/2020

Login to get access

Abstract

Background

We aimed to assess the feasibility of using multiple technologies to recruit and conduct cognitive interviews among young people across the United States to test items measuring sexual and reproductive empowerment. We sought to understand whether these methods could achieve a diverse sample of participants. With more researchers turning to approaches that maintain social distancing in the context of COVID-19, it has become more pressing to refine these remote research methods.

Methods

We used several online sites to recruit for and conduct cognitive testing of survey items. To recruit potential participants we advertised the study on the free online bulletin board, Craigslist, and the free online social network, Reddit. Interested participants completed an online Qualtrics screening form. To maximize diversity, we purposefully selected individuals to invite for participation. We used the video meeting platform, Zoom, to conduct the cognitive interviews. The interviewer opened a document with the items to be tested, shared the screen with the participant, and gave them control of the mouse and keyboard. After the participant self-administered the survey, the interviewer asked about interpretation and comprehension. After completion of the interviews we sent participants a follow-up survey about their impressions of the research methods and technologies used. We describe the processes, the advantages and disadvantages, and offer recommendations for researchers.

Results

We recruited and interviewed 30 young people from a range of regions, gender identities, sexual orientations, ages, education, and experiences with sexual activity. These methods allowed us to recruit a purposefully selected diverse sample in terms of race/ethnicity and region. It also may have offered potential participants a feeling of safety and anonymity leading to greater participation from gay, lesbian, and transgender people who would not have agreed to participate in-person. Conducting the interviews using video chat may also have facilitated the inclusion of individuals who would not volunteer for in-person meetings. Disadvantages of video interviewing included participant challenges to finding a private space for the interview and problems with electronic devices.

Conclusions

Online technologies can be used to achieve a diverse sample of research participants, contributing to research findings that better respond to young people’s unique identities and situations.
Literature
1.
go back to reference Willis GB. Cognitive interviewing : a tool for improving questionnaire design. Thousand Oaks: Sage Publications; 2005. xii. p. 335.CrossRef Willis GB. Cognitive interviewing : a tool for improving questionnaire design. Thousand Oaks: Sage Publications; 2005. xii. p. 335.CrossRef
2.
go back to reference Garcia AA. Cognitive interviews to test and refine questionnaires. Public Health Nurs. 2011;28(5):444–50.PubMed Garcia AA. Cognitive interviews to test and refine questionnaires. Public Health Nurs. 2011;28(5):444–50.PubMed
3.
go back to reference Willis GB. Cognitive interviewing: a “how to” guide. Baltimore: Research Triangle Institute; 1999. Willis GB. Cognitive interviewing: a “how to” guide. Baltimore: Research Triangle Institute; 1999.
4.
go back to reference DeMuro CJ, Lewis SA, DiBenedetti DB, Price MA, Fehnel SE. Successful implementation of cognitive interviews in special populations. Expert Rev Pharmacoecon Outcomes Res. 2012;12(2):181–7.CrossRef DeMuro CJ, Lewis SA, DiBenedetti DB, Price MA, Fehnel SE. Successful implementation of cognitive interviews in special populations. Expert Rev Pharmacoecon Outcomes Res. 2012;12(2):181–7.CrossRef
5.
go back to reference Wynn L, Foster AM, Trussell J. Would you say you had unprotected sex if … ? Sexual health language in emails to a reproductive health website. Cult Health Sex. 2010;12(5):499–514.CrossRef Wynn L, Foster AM, Trussell J. Would you say you had unprotected sex if … ? Sexual health language in emails to a reproductive health website. Cult Health Sex. 2010;12(5):499–514.CrossRef
6.
go back to reference Gilliam M, Gay F, Hernandez M. 74: the language of sexuality in a cohort of young African American males: Bustdowns, clucks and hypes. J Adolesc Health. 2006;38(2):152.CrossRef Gilliam M, Gay F, Hernandez M. 74: the language of sexuality in a cohort of young African American males: Bustdowns, clucks and hypes. J Adolesc Health. 2006;38(2):152.CrossRef
7.
go back to reference Cecchino NJ, Morgan SE. Use of urban adolescent natural language to access sexual health information and education. J Consum Health Internet. 2009;13(1):31–41.CrossRef Cecchino NJ, Morgan SE. Use of urban adolescent natural language to access sexual health information and education. J Consum Health Internet. 2009;13(1):31–41.CrossRef
8.
go back to reference Frost DM, Meyer IH. Measuring community connectedness among diverse sexual minority populations. J Sex Res. 2012;49(1):36–49.CrossRef Frost DM, Meyer IH. Measuring community connectedness among diverse sexual minority populations. J Sex Res. 2012;49(1):36–49.CrossRef
9.
go back to reference Willis GB, Miller K. Cross-cultural cognitive interviewing: seeking comparability and enhancing understanding. Field Methods. 2011;23(4):331–41.CrossRef Willis GB, Miller K. Cross-cultural cognitive interviewing: seeking comparability and enhancing understanding. Field Methods. 2011;23(4):331–41.CrossRef
10.
go back to reference Beatty PC, Willis GB. Research synthesis: the practice of cognitive interviewing. Public Opin Q. 2007;71(2):287–311.CrossRef Beatty PC, Willis GB. Research synthesis: the practice of cognitive interviewing. Public Opin Q. 2007;71(2):287–311.CrossRef
11.
go back to reference Mason S, Berger B, Ferrans CE, Sultzman V, Fendrich M. Developing a measure of stigma by association with African American adolescents whose mothers have HIV. Res Soc Work Pract. 2010;20(1):65–73.CrossRef Mason S, Berger B, Ferrans CE, Sultzman V, Fendrich M. Developing a measure of stigma by association with African American adolescents whose mothers have HIV. Res Soc Work Pract. 2010;20(1):65–73.CrossRef
12.
go back to reference Klassen AF, Grant C, Barr R, Brill H, Kraus de Camargo O, Ronen GM, Samaan MC, Mondal T, Cano SJ, Schlatman A, Tsangaris E, Athale U, Wickert N, Gorter JW. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev. 2015;41(4):547–58.CrossRef Klassen AF, Grant C, Barr R, Brill H, Kraus de Camargo O, Ronen GM, Samaan MC, Mondal T, Cano SJ, Schlatman A, Tsangaris E, Athale U, Wickert N, Gorter JW. Development and validation of a generic scale for use in transition programmes to measure self-management skills in adolescents with chronic health conditions: the TRANSITION-Q. Child Care Health Dev. 2015;41(4):547–58.CrossRef
13.
go back to reference Irwin DE, Varni JW, Yeatts K, DeWalt DA. Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study. Health Qual Life Outcomes. 2009;7(1):3.CrossRef Irwin DE, Varni JW, Yeatts K, DeWalt DA. Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study. Health Qual Life Outcomes. 2009;7(1):3.CrossRef
14.
go back to reference Napoles-Springer AM, Santoyo-Olsson J, O'Brien H, Stewart AL. Using cognitive interviews to develop surveys in diverse populations. Med Care. 2006;44(11 Suppl 3):S21–30.CrossRef Napoles-Springer AM, Santoyo-Olsson J, O'Brien H, Stewart AL. Using cognitive interviews to develop surveys in diverse populations. Med Care. 2006;44(11 Suppl 3):S21–30.CrossRef
16.
go back to reference Deakin H, Wakefield K. Skype interviewing: reflections of two PhD researchers. Qual Res J. 2014;14(5):603–16. Deakin H, Wakefield K. Skype interviewing: reflections of two PhD researchers. Qual Res J. 2014;14(5):603–16.
17.
go back to reference Lo Iacono V, Symonds P, Brown DHK. Skype as a tool for qualitative research interviews. Sociol Res Online. 2016;21(2):103–17.CrossRef Lo Iacono V, Symonds P, Brown DHK. Skype as a tool for qualitative research interviews. Sociol Res Online. 2016;21(2):103–17.CrossRef
18.
go back to reference Archibald MM, Ambagtsheer RC, Casey MG, Lawless M. Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. Int J Qual Methods. 2019;18:1609406919874596.CrossRef Archibald MM, Ambagtsheer RC, Casey MG, Lawless M. Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. Int J Qual Methods. 2019;18:1609406919874596.CrossRef
19.
go back to reference Sedgwick M, Spiers J. The Use of Videoconferencing as a Medium for the Qualitative Interview. Int J Qual Methods. 2009;8(1):1–11. Sedgwick M, Spiers J. The Use of Videoconferencing as a Medium for the Qualitative Interview. Int J Qual Methods. 2009;8(1):1–11.
20.
go back to reference Hammond N. Researching men who pay for sex: using online methods for recruiting and interviewing. Methodological Innov. 2018;11(1):2059799118768408.CrossRef Hammond N. Researching men who pay for sex: using online methods for recruiting and interviewing. Methodological Innov. 2018;11(1):2059799118768408.CrossRef
21.
go back to reference Upadhyay UD, Danza P, Neilands TB, Gipson JD, Brindis CD, Hindin MJ, Foster DG, Dworkin SL. Development and Validation of the Sexual and Reproductive Empowerment (SRE) Scale for Adolescents and Young Adults. J Adolesc Health. 2020; in Press. Upadhyay UD, Danza P, Neilands TB, Gipson JD, Brindis CD, Hindin MJ, Foster DG, Dworkin SL. Development and Validation of the Sexual and Reproductive Empowerment (SRE) Scale for Adolescents and Young Adults. J Adolesc Health. 2020; in Press.
22.
go back to reference Lindberg LD, Maddow-Zimet I, Boonstra H. Changes in Adolescents' receipt of sex education, 2006–2013. J Adolesc Health. 2016;58(6):621–7.CrossRef Lindberg LD, Maddow-Zimet I, Boonstra H. Changes in Adolescents' receipt of sex education, 2006–2013. J Adolesc Health. 2016;58(6):621–7.CrossRef
23.
go back to reference Liu C, Cox RB Jr, Washburn IJ, Croff JM, Crethar HC. The effects of requiring parental consent for research on Adolescents' risk behaviors: a meta-analysis. J Adolesc Health. 2017;61(1):45–52.CrossRef Liu C, Cox RB Jr, Washburn IJ, Croff JM, Crethar HC. The effects of requiring parental consent for research on Adolescents' risk behaviors: a meta-analysis. J Adolesc Health. 2017;61(1):45–52.CrossRef
24.
go back to reference Dworkin J, Hessel H, Gliske K, Rudi JH. A comparison of three online recruitment strategies for engaging parents. Fam Relat. 2016;65(4):550–61.CrossRef Dworkin J, Hessel H, Gliske K, Rudi JH. A comparison of three online recruitment strategies for engaging parents. Fam Relat. 2016;65(4):550–61.CrossRef
25.
go back to reference Holt A. Using the telephone for narrative interviewing: a research note. Qual Res. 2010;10(1):113–21.CrossRef Holt A. Using the telephone for narrative interviewing: a research note. Qual Res. 2010;10(1):113–21.CrossRef
26.
go back to reference Ramo DE, Prochaska JJ. Broad Reach and Targeted Recruitment Using Facebook for an Online Survey of Young Adult Substance Use. J Med Internet Res. 2012;14(1):e28. Ramo DE, Prochaska JJ. Broad Reach and Targeted Recruitment Using Facebook for an Online Survey of Young Adult Substance Use. J Med Internet Res. 2012;14(1):e28.
27.
go back to reference Upadhyay UD, Jovel IJ, McCuaig KD, Cartwright AF. Using Google ads to recruit and retain a cohort considering abortion in the United States. Contraception: X. 2020;2:100017.CrossRef Upadhyay UD, Jovel IJ, McCuaig KD, Cartwright AF. Using Google ads to recruit and retain a cohort considering abortion in the United States. Contraception: X. 2020;2:100017.CrossRef
28.
go back to reference Loxton D, Powers J, Anderson AE, Townsend N, Harris ML, Tuckerman R, Pease S, Mishra G, Byles J. Online and offline recruitment of young women for a longitudinal health survey: findings from the Australian longitudinal study on Women’s health 1989-95 cohort. J Med Internet Res. 2015;17(5):e109.CrossRef Loxton D, Powers J, Anderson AE, Townsend N, Harris ML, Tuckerman R, Pease S, Mishra G, Byles J. Online and offline recruitment of young women for a longitudinal health survey: findings from the Australian longitudinal study on Women’s health 1989-95 cohort. J Med Internet Res. 2015;17(5):e109.CrossRef
29.
go back to reference Johnson KJ, Mueller NL, Williams K, Gutmann DH. Evaluation of participant recruitment methods to a rare disease online registry. Am J Med Genet A. 2014;164(7):1686–94.CrossRef Johnson KJ, Mueller NL, Williams K, Gutmann DH. Evaluation of participant recruitment methods to a rare disease online registry. Am J Med Genet A. 2014;164(7):1686–94.CrossRef
30.
go back to reference Berg BL. Qualitative research methods for the social sciences. Essex: Pearson; 2004. Berg BL. Qualitative research methods for the social sciences. Essex: Pearson; 2004.
31.
go back to reference Flick U. Designing qualitative research. Thousand Oaks: SAGE Publications; 2007.CrossRef Flick U. Designing qualitative research. Thousand Oaks: SAGE Publications; 2007.CrossRef
32.
go back to reference Ryan C. Language Use in the United States: 2011. 2013. Report No.: ACS-22. Ryan C. Language Use in the United States: 2011. 2013. Report No.: ACS-22.
Metadata
Title
Using online technologies to improve diversity and inclusion in cognitive interviews with young people
Authors
Ushma D. Upadhyay
Heather Lipkovich
Publication date
01-12-2020
Publisher
BioMed Central
Published in
BMC Medical Research Methodology / Issue 1/2020
Electronic ISSN: 1471-2288
DOI
https://doi.org/10.1186/s12874-020-01024-9

Other articles of this Issue 1/2020

BMC Medical Research Methodology 1/2020 Go to the issue