Published in:
Open Access
01-09-2014 | Poster presentation
Update on the juvenile systemic sclerosis inception cohort http://www.juvenile-scleroderma.com
Authors:
Ivan Foeldvari, Angela Wierk, Tadej Avcin, Juergen Brunner, Rolando Cimaz, Tillmann Kallnich, Maria Katsikas, Maria Teresa Terreri, Mikhail Kostic, Dana Nemcova, Flavio Sztajnbok, Kirsten Minden, Monika Moll
Published in:
Pediatric Rheumatology
|
Special Issue 1/2014
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Excerpt
Juvenile systemic sclerosis (jSSc) is an orphan autoimmune disease. Currently only retrospective data is existing regarding the organ involvement and evolvement of the disease. Our project is the first project, where in a prospective manner and with a protocol regarding standardized assessment of the organ systems and quality of life in early jSSc patients are assessed. …