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Health and Quality of Life Outcomes

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Open Access 01-12-2009 | Research

Turkish version of impact on family scale: a study of reliability and validity

Authors: Nilgun Bek, I Engin Simsek, Suat Erel, Yavuz Yakut, Fatma Uygur

Published in: Health and Quality of Life Outcomes | Issue 1/2009

Abstract

Background

Although there is a considerably high prevalence of developmental disorders in Turkey there are not many assessment tools related to evaluating the impact of these children on their family. The aim of this study was to determine the validity and reliability of the Turkish version of the Impact on Family Scale (IPFAM), a health related quality of life measurement to be utilized in clinical trials, health care services, research and evaluation.

Methods

Caregivers of 85 children with developmental disabilities answered the questionnaire and 65 of them answered it twice with a one week interval. The reliability of the measurement was assessed by Cronbach's alpha coefficient, and with intraclass correlation coefficient (ICC) for test-retest reliability. Construct validity was assessed by calculating the correlation between total impact score of IPFAM, WeeFIM and the physiotherapists' evaluation via Visual Analogue Scale (VAS) to determine the child's disability.

Results

Test-retest reliability was found to be ICC = 0.953 for total impact, 0.843 for financial support, 0.940 for general impact, 0.871 for disruption of social relations and 0.787 for coping. Internal consistency was tested using Cronbach's alpha and was found to be 0.902 for total impact of IPFAM. For construct validity the correlation between total impact score of IPFAM and WeeFIM was r = -0,532 (p < 0.001) and the correlation between total impact score of IPFAM and the physiotherapist's evaluation was r = 0.519 (p < 0.001).

Conclusion

The Turkish version of IPFAM was found to be a reliable and valid instrument for assessing the impact of developmental disorders of the child on the family.

Ruperto N, Ravelli A, Pistorio A, Malattia C, Cavuto S, Gado-West L, Tortorelli A, Landgraf JM, Singh G, Martini A, Paediatric Rheumatology International Trials Organisation: Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clin Exp Rheumatol 2001,19(4 Suppl 23):S1–9.PubMed

Kolk AM, Schipper JL, Hanewald GJ, Casari EF, Fantino AG: The Impact-on-Family Scale: a test of invariance across culture. J Pediatr Psychol 2000, 25: 323–329. 10.1093/jpepsy/25.5.323CrossRefPubMed

Stein RE, Riessman CK: The development of an impact-on-family scale: preliminary findings. Med Care 1980, 18: 465–472. 10.1097/00005650-198004000-00010CrossRefPubMed

Messer SC, Angold A, Costello EJ, Burns BJ: The child and adolescent burden assessment (CABA): measuring the family impact of emotional and behavioral problems. Int J Methods Psychiatr Res 1996, 6: 261–284. Publisher Full Text 10.1002/(SICI)1234-988X(199612)6:4%3C261::AID-MPR169%3E3.3.CO;2-3CrossRef

Angold A, Costello EJ: The child and adolescent psychiatric assessment (CAPA). J Am Acad Child Adolesc Psychiatry 2000, 39: 39–48. 10.1097/00004583-200001000-00015CrossRefPubMed

Angold A, Messer SC, Stangl D, Farmer EMZ, Costello EJ, Burns BJ: Perceived parental burden and service use for child and adolescent psychiatric disorders. Am J Public Health 1998, 88: 75–80. 10.2105/AJPH.88.1.75CrossRefPubMed

Riley AW, Chan KS, Prasad S, Poole L: A global measure of child health-related quality of life: reliability and validity of the Child Health and Illness Profile – Child Edition (CHIP-CE) global score. J Med Econ 2007, 10: 91–106.CrossRef

Stein RE, Jessop DJ: The impact on family scale revisited: further psychometric data. J Dev Behav Pediatr 2003, 24: 9–16. 10.1097/00004703-200312000-00008CrossRefPubMed

Ozdogan H, Ruperto N, Kasapcopur O, Bakkaloglu A, Arisoy N, Ozen S, Ugurlu U, Unsal E, Melikoglu M, Paediatric Rheumatology International Trials Organisation: The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001,19(4 Suppl 23):S158-S162.PubMed

10.

Erkin G, Aybay C, Kurt M, Keles I, Cakci A, Ozel S: The assessment of functional status in Turkish children with cerebral palsy (a preliminary study). Child Care Health Dev 2005, 31: 719–725. 10.1111/j.1365-2214.2005.00565.xCrossRefPubMed

11.

Aybay C, Erkin G, Elhan AH, Sirzai H, Ozel S: ADL assessment of nondisabled Turkish children with the WeeFIM instrument. Am J Phys Med Rehabil 2007, 86: 176–182. 10.1097/PHM.0b013e31802b8f8dCrossRefPubMed

12.

Schmidt S, Bullinger M: Current issues in cross-cultural quality of life instrument development. Arch Phys Med Rehabil 2003,84(4 Suppl 2):S29–34. 10.1053/apmr.2003.50244CrossRefPubMed

13.

Guillemin F, Bombardier C, Beaton D: Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993, 46: 1417–1432. 10.1016/0895-4356(93)90142-NCrossRefPubMed

14.

Beaton DE, Bombardier C, Guillemin F, Ferraz MB: Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 2000, 25: 3186–3191. 10.1097/00007632-200012150-00014CrossRefPubMed

15.

Stein REK, Jessop DJ: Tables documenting the psychometric properties of a measure of the impact of chronic illness on a family. In (PACTS Papers/AECOM). Bronx, NY: Albert Einstein College of Medicine; 1985.

16.

Msall ME, DiGaudio K, Duffy LC, LaForest S, Braun S, Granger CV: Normative sample of an instrument for tracking functional independence in children. Clin Pediatr (Phila) 1994, 33: 431–438.CrossRef

17.

Wong SSN, Wong VCN: Functional independence measure for children: A comparison of Chinese and Japanese children. Neurorehabil and Neural Repair 2007, 21: 91–96. 10.1177/1545968306290225CrossRef

18.

Cronbach LJ: Coefficient alpha and the internal structure of the tests. Psychometrica 1951, 16: 296–337.

19.

Sieberer UR, Morfeld M, Stein REK, Jessop DJ, Bullinger M, Thyen U: Testung und validierung der deutschen version der " Impact on Family Scale" bei Familien mit behinderten Kindern. Psychother Psychosom Med Psychol 2001, 51: 384–393. 10.1055/s-2001-16899CrossRef

20.

Walker DK, Stein RE, Perrin EC, Jessop DJ: Assessing psychosocial adjustment of children with chronic illnesses: a review of the technical properties of PARS III. J Dev Behav Pediatr 1990,11(3):116–121. 10.1097/00004703-199006000-00004CrossRefPubMed

21.

Rajmil L, Serra-Sutton V, Alonso J, Starfield B, Riley AE, Vazquez JR: The Spanish version of the child health and illness profile-adolescent edition (CHIP-AE). Qual Life Res 2003, 12: 303–313. 10.1023/A:1023220912211CrossRefPubMed

22.

Epstein JN, Erkanlý A, Conners CK, Klaric J, Costello JE, Angold A: Relations between Continuous Performance Test performance measures and ADHD behaviors. J Abnorm Child Psychol 2003, 31: 543–554. 10.1023/A:1025405216339CrossRefPubMed

23.

Bartko J: The intraclass correlation coefficient as a measure of reliability. Psychol Report 1966, 19: 3–11.CrossRef

24.

Feise RJ, Michael Menke J: Functional Rating Index: a new valid and reliable instrument to measure the magnitude of clinical change in spinal conditions. Spine 2001, 26: 78–87. 10.1097/00007632-200101010-00015CrossRefPubMed

25.

Alonso J, Urzola D, Serra-Sutton V, Tebe C, Starfield B, Riley AW, Rajmil L: Validity of the health profile-types of the Spanish Child Health and Illness Profile-Adolescent Edition (CHIP-AE). Value Health 2007, 11: 440–449. 10.1111/j.1524-4733.2007.00290.xCrossRefPubMed

26.

Williams AR, Piamjariyakul U, Williams PD, Bruggeman SK, Cabanela RL: Validity of the revised Impact on Family (IOF) scale. J Pediatr 2006, 149: 257–261. 10.1016/j.jpeds.2006.04.003CrossRefPubMed

27.

Anastasi A: Evolving concepts of test validation. Ann Rev Psychol 1986, 37: 1–15. 10.1146/annurev.ps.37.020186.000245CrossRef

28.

Yakut Y, Yakut E, Bayar K, Uygur F: Reliability and validity of the Turkish version short-form McGill pain questionnaire in patients with rheumatoid arthritis. Clin Rheumatol 2007, 26: 1083–1087. 10.1007/s10067-006-0452-6CrossRefPubMed

29.

Jessop JD, Stein RE: Providing comprehensive health care to children with chronic illness. Pediatrics 1994, 93: 602–607.PubMed

30.

Stein RE, Jessop JD: Long-term mental health effects of a pediatric home care program. Pediatrics 1991, 88: 490–496.PubMed

Title: Turkish version of impact on family scale: a study of reliability and validity
Authors: Nilgun Bek
I Engin Simsek
Suat Erel
Yavuz Yakut
Fatma Uygur
Publication date: 01-12-2009
Publisher: BioMed Central
Published in: Health and Quality of Life Outcomes / Issue 1/2009
Electronic ISSN: 1477-7525
DOI: https://doi.org/10.1186/1477-7525-7-4

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Turkish version of impact on family scale: a study of reliability and validity

Abstract

Background

Methods

Results

Conclusion

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Abstract

Background

Methods

Results

Conclusion

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