Skip to main content
Top
Published in: International Urogynecology Journal 9/2010

01-09-2010 | Original Article

Treatment decision-making and information-seeking preferences in women with pelvic floor disorders

Authors: Vivian W. Sung, Christina A. Raker, Deborah L. Myers, Melissa A. Clark

Published in: International Urogynecology Journal | Issue 9/2010

Login to get access

Abstract

Introduction and hypothesis

The Autonomy Preference Index (API) and Control Preferences Scale (CPS) measure information-seeking and decision-making preferences. Our objective was to validate these scales in women with pelvic floor disorders (PFDs) and identify variables associated with decision-making preferences.

Methods

Women seeking care for PFDs completed the API and the CPS. Psychometric properties were determined. Multivariable analyses were used to identify correlates of information-seeking and decision-making preferences.

Results

One hundred ten women were recruited. Both scales demonstrated good psychometric properties (intraclass correlation coefficient = 0.5 to 0.7; Cronbach’s alpha = 0.8 for the API, and r = −0.3 between the API and CPS). Based on scores, women had strong preferences to be well informed, but were more neutral in their decision-making preferences. In multivariable analyses, higher education levels were associated with a stronger desire for seeking medical information.

Conclusions

Women seeking care for PFDs vary in their preferences for participating in treatment decisions.
Appendix
Available only for authorised users
Literature
1.
go back to reference Improving the 21st Century Healthcare System. Crossing the Quality Chasm: A New Healthcare System for the 21st Century (2001). National Academy Press, Washington, DC Improving the 21st Century Healthcare System. Crossing the Quality Chasm: A New Healthcare System for the 21st Century (2001). National Academy Press, Washington, DC
2.
go back to reference Sheridan SL, Harris RP, Woolf SH (2004) Shared decision making about screening and chemoprevention. A suggested approach from the U.S. preventive services task force. Am J Prev Med 26:56–66CrossRefPubMed Sheridan SL, Harris RP, Woolf SH (2004) Shared decision making about screening and chemoprevention. A suggested approach from the U.S. preventive services task force. Am J Prev Med 26:56–66CrossRefPubMed
3.
go back to reference Hexzen-Klemens I, Lapinska E (1984) Doctor–patient interaction, patients’ health behavior and effects of treatment. Soc Sci Med 19:9–18CrossRef Hexzen-Klemens I, Lapinska E (1984) Doctor–patient interaction, patients’ health behavior and effects of treatment. Soc Sci Med 19:9–18CrossRef
4.
go back to reference Kaplan SH, Greenfield S, Ware JE Jr (1989) Assessing the effects of physician–patient interactions on the outcomes of chronic disease. Med Care 27:S110–S127CrossRefPubMed Kaplan SH, Greenfield S, Ware JE Jr (1989) Assessing the effects of physician–patient interactions on the outcomes of chronic disease. Med Care 27:S110–S127CrossRefPubMed
5.
go back to reference Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N et al (2002) Systematic review of involving patients in the planning and development of health care. BMJ 325:1263CrossRefPubMed Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N et al (2002) Systematic review of involving patients in the planning and development of health care. BMJ 325:1263CrossRefPubMed
6.
go back to reference ACOG Committee Opinion #320 (2005) Partnering with patients to improve safety. Obstet Gynecol 106:1123–1125 ACOG Committee Opinion #320 (2005) Partnering with patients to improve safety. Obstet Gynecol 106:1123–1125
7.
go back to reference ACOG Committee Opinion No. 395 (2008) Surgery and patient choice. Obstet Gynecol 111:243–247 ACOG Committee Opinion No. 395 (2008) Surgery and patient choice. Obstet Gynecol 111:243–247
8.
go back to reference Elkadry EA, Kenton KS, Fitzgerald KS, Shott S, Brubaker L (2003) Patient-selected goals: a new perspective on surgical outcome. Am J Obstet Gynecol 189(6):1551–1557CrossRefPubMed Elkadry EA, Kenton KS, Fitzgerald KS, Shott S, Brubaker L (2003) Patient-selected goals: a new perspective on surgical outcome. Am J Obstet Gynecol 189(6):1551–1557CrossRefPubMed
9.
go back to reference Hullfish KL, Bovbjerg VE, Steers WD (2004) Patient-centered goals for pelvic floor dysfunction surgery: long-term follow-up. Am J Obstet Gynecol 191(1):201–205CrossRefPubMed Hullfish KL, Bovbjerg VE, Steers WD (2004) Patient-centered goals for pelvic floor dysfunction surgery: long-term follow-up. Am J Obstet Gynecol 191(1):201–205CrossRefPubMed
10.
go back to reference Kiesler DJ, Auerbach SM (2006) Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions. Patient Educ Couns 61:319–341CrossRefPubMed Kiesler DJ, Auerbach SM (2006) Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions. Patient Educ Couns 61:319–341CrossRefPubMed
11.
go back to reference Charles C, Gafni A, Whelan T (1999) Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 49:651–661CrossRefPubMed Charles C, Gafni A, Whelan T (1999) Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 49:651–661CrossRefPubMed
12.
go back to reference Deber RB (1994) Physicians in health care management: 7. The patient-physician partnership: changing roles and the desire for information. Cmaj 151:171–176PubMed Deber RB (1994) Physicians in health care management: 7. The patient-physician partnership: changing roles and the desire for information. Cmaj 151:171–176PubMed
13.
go back to reference Levy SM, Herberman RB, Lee JK, Lippman ME, D’Angelo T (1989) Breast conservation versus mastectomy: distress sequelae as a function of choice. J Clin Oncol 7:367–375PubMed Levy SM, Herberman RB, Lee JK, Lippman ME, D’Angelo T (1989) Breast conservation versus mastectomy: distress sequelae as a function of choice. J Clin Oncol 7:367–375PubMed
14.
go back to reference Ende J, Kazis L, Ash A, Moskowitz MA (1989) Measuring patients’ desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 4:23–30CrossRefPubMed Ende J, Kazis L, Ash A, Moskowitz MA (1989) Measuring patients’ desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 4:23–30CrossRefPubMed
15.
go back to reference Schneider A, Wensing M, Quinzler R, Bieber C, Szecsenyi J (2007) Higher preference for participation in treatment decisions is associated with lower medication adherence in asthma patients. Patient Educ Couns 67:57–62CrossRefPubMed Schneider A, Wensing M, Quinzler R, Bieber C, Szecsenyi J (2007) Higher preference for participation in treatment decisions is associated with lower medication adherence in asthma patients. Patient Educ Couns 67:57–62CrossRefPubMed
16.
go back to reference Spies CD, Schulz CM, Weiss-Gerlach E, Neuner B, Neumann T, von Dossow V et al (2006) Preferences for shared decision making in chronic pain patients compared with patients during a premedication visit. Acta Anaesthesiol Scand 50:1019–1026CrossRefPubMed Spies CD, Schulz CM, Weiss-Gerlach E, Neuner B, Neumann T, von Dossow V et al (2006) Preferences for shared decision making in chronic pain patients compared with patients during a premedication visit. Acta Anaesthesiol Scand 50:1019–1026CrossRefPubMed
17.
go back to reference Degner LF, Sloan JA, Venkatesh P (1997) The control preferences scale. Can J Nurs Res 29:21–43PubMed Degner LF, Sloan JA, Venkatesh P (1997) The control preferences scale. Can J Nurs Res 29:21–43PubMed
18.
go back to reference Beaver K, Luker KA, Owens RG, Leinster SJ, Degner LF, Sloan JA (1996) Treatment decision making in women newly diagnosed with breast cancer. Cancer Nurs 19:8–19CrossRefPubMed Beaver K, Luker KA, Owens RG, Leinster SJ, Degner LF, Sloan JA (1996) Treatment decision making in women newly diagnosed with breast cancer. Cancer Nurs 19:8–19CrossRefPubMed
19.
go back to reference Kremer H, Ironson G, Schneiderman N, Hautzinger M (2007) “It’s my body”: does patient involvement in decision making reduce decisional conflict? Med Decis Making 27:522–532CrossRefPubMed Kremer H, Ironson G, Schneiderman N, Hautzinger M (2007) “It’s my body”: does patient involvement in decision making reduce decisional conflict? Med Decis Making 27:522–532CrossRefPubMed
20.
go back to reference Chapple H, Shah S, Caress AL, Kay EJ (2003) Exploring dental patients’ preferred roles in treatment decision-making—a novel approach. Br Dent J 194:321–327, discussion 317CrossRefPubMed Chapple H, Shah S, Caress AL, Kay EJ (2003) Exploring dental patients’ preferred roles in treatment decision-making—a novel approach. Br Dent J 194:321–327, discussion 317CrossRefPubMed
21.
go back to reference Barber MD, Walters MD, Bump RC (2005) Short forms of two condition-specific quality-of-life questionnaires for women with pelvic floor disorders (PFDI-20 and PFIQ-7). Am J Obstet Gynecol 193:103–113CrossRefPubMed Barber MD, Walters MD, Bump RC (2005) Short forms of two condition-specific quality-of-life questionnaires for women with pelvic floor disorders (PFDI-20 and PFIQ-7). Am J Obstet Gynecol 193:103–113CrossRefPubMed
22.
go back to reference Cohen J (1988) Statistical power analysis for the behavioral sciences, 2nd edn. Lawrence Erlbaum Associations, Inc., NJ Cohen J (1988) Statistical power analysis for the behavioral sciences, 2nd edn. Lawrence Erlbaum Associations, Inc., NJ
23.
go back to reference Walter SD, Eliasziw M, Donner A (1998) Sample size and optimal designs for reliability studies. Stat Med 17:101–110CrossRefPubMed Walter SD, Eliasziw M, Donner A (1998) Sample size and optimal designs for reliability studies. Stat Med 17:101–110CrossRefPubMed
24.
go back to reference Bump RC, Mattiasson A, Bo K, Brubaker LP, DeLancey JO, Klarskov P et al (1996) The standardization of terminology of female pelvic organ prolapse and pelvic floor dysfunction. Am J Obstet Gynecol 175:10–17CrossRefPubMed Bump RC, Mattiasson A, Bo K, Brubaker LP, DeLancey JO, Klarskov P et al (1996) The standardization of terminology of female pelvic organ prolapse and pelvic floor dysfunction. Am J Obstet Gynecol 175:10–17CrossRefPubMed
25.
go back to reference Levinson W, Kao A, Kuby A, Thisted RA (2005) Not all patients want to participate in decision making. A national study of public preferences. J Gen Intern Med 20:531–535CrossRefPubMed Levinson W, Kao A, Kuby A, Thisted RA (2005) Not all patients want to participate in decision making. A national study of public preferences. J Gen Intern Med 20:531–535CrossRefPubMed
26.
go back to reference Street RL Jr, Millay B (2001) Analyzing patient participation in medical encounters. Health Commun 13:61–73CrossRefPubMed Street RL Jr, Millay B (2001) Analyzing patient participation in medical encounters. Health Commun 13:61–73CrossRefPubMed
27.
go back to reference Hack TF, Degner LF, Dyck DG (1994) Relationship between preferences for decisional control and illness information among women with breast cancer: a quantitative and qualitative analysis. Soc Sci Med 39:279–289CrossRefPubMed Hack TF, Degner LF, Dyck DG (1994) Relationship between preferences for decisional control and illness information among women with breast cancer: a quantitative and qualitative analysis. Soc Sci Med 39:279–289CrossRefPubMed
28.
go back to reference O’Donnell M, Hunskaar S (2007) Preferences for involvement in treatment decision-making among Norwegian women with urinary incontinence. Acta Obstet Gynecol Scand 86:1370–1376CrossRefPubMed O’Donnell M, Hunskaar S (2007) Preferences for involvement in treatment decision-making among Norwegian women with urinary incontinence. Acta Obstet Gynecol Scand 86:1370–1376CrossRefPubMed
29.
go back to reference O’Donnell M, Hunskaar S (2007) Preferences for involvement in treatment decision-making generally and in hormone replacement and urinary incontinence treatment decision-making specifically. Patient Educ Couns 68:243–251CrossRefPubMed O’Donnell M, Hunskaar S (2007) Preferences for involvement in treatment decision-making generally and in hormone replacement and urinary incontinence treatment decision-making specifically. Patient Educ Couns 68:243–251CrossRefPubMed
30.
go back to reference O’Donnell M, Monz B, Hunskaar S (2007) General preferences for involvement in treatment decision making among European women with urinary incontinence. Soc Sci Med 64:1914–1924CrossRef O’Donnell M, Monz B, Hunskaar S (2007) General preferences for involvement in treatment decision making among European women with urinary incontinence. Soc Sci Med 64:1914–1924CrossRef
Metadata
Title
Treatment decision-making and information-seeking preferences in women with pelvic floor disorders
Authors
Vivian W. Sung
Christina A. Raker
Deborah L. Myers
Melissa A. Clark
Publication date
01-09-2010
Publisher
Springer-Verlag
Published in
International Urogynecology Journal / Issue 9/2010
Print ISSN: 0937-3462
Electronic ISSN: 1433-3023
DOI
https://doi.org/10.1007/s00192-010-1155-8

Other articles of this Issue 9/2010

International Urogynecology Journal 9/2010 Go to the issue