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Published in: Journal of Cancer Survivorship 4/2017

01-08-2017

The right to be forgotten: a change in access to insurance and loans after childhood cancer?

Authors: Agnès Dumas, Rodrigue Allodji, Brice Fresneau, Dominique Valteau-Couanet, Chiraz El-Fayech, Hélène Pacquement, Anne Laprie, Tan Dat Nguyen, Pierre-Yves Bondiau, Ibrahima Diallo, Catherine Guibout, Carole Rubino, Nadia Haddy, Odile Oberlin, Gilles Vassal, Florent de Vathaire

Published in: Journal of Cancer Survivorship | Issue 4/2017

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Abstract

Purpose

Access to insurance for a loan or a mortgage is an important issue for childhood cancer survivors. The aim of this study was to describe difficulties experienced by adult survivors.

Methods

A total of 1920 survivors treated before the age of 18 in five French cancer centers responded to a questionnaire in 2010. Survivors who had tried to obtain a loan were asked if they had experienced difficulties, which were defined as experiencing rejection, higher premiums, or exclusions. The questionnaire investigated health problems related to the circulatory, respiratory, digestive, urinary, endocrine, hormonal, and nervous systems. Second tumors, diabetes mellitus, cardiac disease, and stroke were ascertained from a physician’s report or medical records. Multivariable analyses were conducted to identify the characteristics of survivors reporting difficulties.

Results

Difficulties were experienced by 10.4% of those who had tried to obtain a small loan (n = 787) and by 30.1% of those who had tried to obtain a home loan (n = 909). Disclosure of childhood cancer to the insurer and amputation surgery were negatively associated with insurance accessibility, even when controlling for age, gender, education, health-related unemployment, familial situation, and severe or life-threatening conditions such as cardiovascular diseases, second cancers, or diabetes.

Conclusion

This study showed that the financial burden of cancer can extend decades after diagnosis.

Implications for Cancer Survivors

Thanks to a 2016 law, French cancer survivors no longer have to disclose their cancer to insurers after a fixed number of years. This law will probably lessen the socioeconomic burden of cancer.
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Metadata
Title
The right to be forgotten: a change in access to insurance and loans after childhood cancer?
Authors
Agnès Dumas
Rodrigue Allodji
Brice Fresneau
Dominique Valteau-Couanet
Chiraz El-Fayech
Hélène Pacquement
Anne Laprie
Tan Dat Nguyen
Pierre-Yves Bondiau
Ibrahima Diallo
Catherine Guibout
Carole Rubino
Nadia Haddy
Odile Oberlin
Gilles Vassal
Florent de Vathaire
Publication date
01-08-2017
Publisher
Springer US
Published in
Journal of Cancer Survivorship / Issue 4/2017
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI
https://doi.org/10.1007/s11764-017-0600-9

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