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Published in: Community Mental Health Journal 1/2013

01-02-2013 | Original Paper

The Impact of Self-Stigma and Mutual Help Programs on the Quality of Life of People with Serious Mental Illnesses

Authors: Patrick W. Corrigan, Kristin A. Sokol, Nicolas Rüsch

Published in: Community Mental Health Journal | Issue 1/2013

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Abstract

Mutual help programs (MHPs) are informal services developed and operated by people with serious mental illnesses for peers with these illnesses. We expect MHPs to have positive effects on quality of life and inverse associations with self-stigma. We hypothesize group identification and social support to be key ingredients that lead to MHPs benefits and hence to also be significant correlates. Eighty-five people with serious mental illness reported current and past MHP experience and completed self-report measures of quality of life, self-stigma, group identification, and social support. Self-stigma was shown to be a significant and large correlate of quality of life. Satisfaction with current and past MHP participation was also associated with quality of life. Group identification and satisfaction with one’s support network were significantly and largely associated with MHP satisfaction. MHPs are a specific example of the broader category of consumer operated services which also include drop-in centers and education-for-advocacy programs. Findings about group identification will inform ongoing development of MHPs and consumer operated services, as well as evaluation of these programs.
Literature
go back to reference Blake, R. L., & McKay, D. A. (1986). A single-item measure of social supports as a predictor of morbidity. The Journal of Family Practice, 22(1), 82–84.PubMed Blake, R. L., & McKay, D. A. (1986). A single-item measure of social supports as a predictor of morbidity. The Journal of Family Practice, 22(1), 82–84.PubMed
go back to reference Campbell, J. (2005). The historical and philosophical development of peer-run support programs. In S. Clay, B. Schell, P. W. Corrigan, & R. O. Ralph (Eds.), On our own, together: Peer programs for people with mental illness (pp. 213–238). Nashville, TN: Vanderbilt University Press. Campbell, J. (2005). The historical and philosophical development of peer-run support programs. In S. Clay, B. Schell, P. W. Corrigan, & R. O. Ralph (Eds.), On our own, together: Peer programs for people with mental illness (pp. 213–238). Nashville, TN: Vanderbilt University Press.
go back to reference Clay, S., Schell, B., Corrigan, P. W., & Ralph, R. (2005). On our own, together: Peer programs for people with mental illness. Nashville: Vanderbilt University Press. Clay, S., Schell, B., Corrigan, P. W., & Ralph, R. (2005). On our own, together: Peer programs for people with mental illness. Nashville: Vanderbilt University Press.
go back to reference Correll, J., & Park, B. (2005). A Model of the ingroup as a social resource. Personality and Social Psychology Review, 9, 341–359.PubMedCrossRef Correll, J., & Park, B. (2005). A Model of the ingroup as a social resource. Personality and Social Psychology Review, 9, 341–359.PubMedCrossRef
go back to reference Corrigan, P. W. (Ed.). (2005). On the stigma of mental illness: Practical strategies for research and social change (p. 343). Washington DC: American Psychological Association Press. Corrigan, P. W. (Ed.). (2005). On the stigma of mental illness: Practical strategies for research and social change (p. 343). Washington DC: American Psychological Association Press.
go back to reference Corrigan, P. W. (2006). Impact of consumer-operated services on empowerment and recovery of people with psychiatric disabilities. Psychiatric Services, 15(10), 1493–1496.CrossRef Corrigan, P. W. (2006). Impact of consumer-operated services on empowerment and recovery of people with psychiatric disabilities. Psychiatric Services, 15(10), 1493–1496.CrossRef
go back to reference Corrigan, P. W., & Phelan, S. (2004). Social support and recovery in people with serious mental illness. Community Mental Health Journal, 40(6), 513–523.PubMedCrossRef Corrigan, P. W., & Phelan, S. (2004). Social support and recovery in people with serious mental illness. Community Mental Health Journal, 40(6), 513–523.PubMedCrossRef
go back to reference Corrigan, P. W., & Watson, A. (2005). Findings from the national comorbidity survey on the frequency of violent behavior in individuals with psychiatric disorders. Psychiatry Research, 136, 153–162.PubMedCrossRef Corrigan, P. W., & Watson, A. (2005). Findings from the national comorbidity survey on the frequency of violent behavior in individuals with psychiatric disorders. Psychiatry Research, 136, 153–162.PubMedCrossRef
go back to reference Corrigan, P. W., Faber, D., Rashid, F., & Leary, M. (1999). The construct validity of empowerment among consumers of mental health services. Schizophrenia Research, 38, 77–84.PubMedCrossRef Corrigan, P. W., Faber, D., Rashid, F., & Leary, M. (1999). The construct validity of empowerment among consumers of mental health services. Schizophrenia Research, 38, 77–84.PubMedCrossRef
go back to reference Corrigan, P. W., Slopen, N., Gracia, G., Phelan, S., Keogh, C., & Keck, L. (2005). Some recovery processes in mutual-help groups for persons with mental illness; II; qualitative analysis of participant interviews. Community Mental Health Journal, 41(6), 721–735.PubMedCrossRef Corrigan, P. W., Slopen, N., Gracia, G., Phelan, S., Keogh, C., & Keck, L. (2005). Some recovery processes in mutual-help groups for persons with mental illness; II; qualitative analysis of participant interviews. Community Mental Health Journal, 41(6), 721–735.PubMedCrossRef
go back to reference Corrigan, P. W., Watson, A. C., & Barr, L. (2006). Understanding the self-stigma of mental illness. Journal of Social and Clinical Psychology, 25(8), 875–884.CrossRef Corrigan, P. W., Watson, A. C., & Barr, L. (2006). Understanding the self-stigma of mental illness. Journal of Social and Clinical Psychology, 25(8), 875–884.CrossRef
go back to reference Corrigan, P. W., Morris, S., Larson, J., Rafacz, J., Wassel, A., Michaels, P., et al. (2010). Self-stigma and coming out about one’s mental illness. Journal of Community Psychology, 38(3), 259–275.CrossRef Corrigan, P. W., Morris, S., Larson, J., Rafacz, J., Wassel, A., Michaels, P., et al. (2010). Self-stigma and coming out about one’s mental illness. Journal of Community Psychology, 38(3), 259–275.CrossRef
go back to reference El-Badri, S., & Mellsop, G. (2007). Stigma and quality of life as experienced by people with mental illness. Australasian Psychiatry, 15(3), 195–200.PubMedCrossRef El-Badri, S., & Mellsop, G. (2007). Stigma and quality of life as experienced by people with mental illness. Australasian Psychiatry, 15(3), 195–200.PubMedCrossRef
go back to reference Glasford, D., Dovidio, J., & Pratto, F. (2009). I continue to feel so good about us: In-group identification and the use of social identity–enhancing strategies to reduce intragroup dissonance. Personality and Social Psychology Bulletin, 35, 415–427.PubMedCrossRef Glasford, D., Dovidio, J., & Pratto, F. (2009). I continue to feel so good about us: In-group identification and the use of social identity–enhancing strategies to reduce intragroup dissonance. Personality and Social Psychology Bulletin, 35, 415–427.PubMedCrossRef
go back to reference Hatzidimitriadou, E. (2002). Political ideology, helping mechanisms and empowerment of mental health self-help/mutual aid groups. Journal of Community & Applied Social Psychology, 12(4), 271–285.CrossRef Hatzidimitriadou, E. (2002). Political ideology, helping mechanisms and empowerment of mental health self-help/mutual aid groups. Journal of Community & Applied Social Psychology, 12(4), 271–285.CrossRef
go back to reference Hendryx, M., Green, C. A., & Perrin, N. A. (2009). Social support, activities, and recovery from serious mental illness: STARS study findings. The Journal of Behavioral Health Services & Research, 36(3), 320–329.CrossRef Hendryx, M., Green, C. A., & Perrin, N. A. (2009). Social support, activities, and recovery from serious mental illness: STARS study findings. The Journal of Behavioral Health Services & Research, 36(3), 320–329.CrossRef
go back to reference Hsiung, P., Pan, A., Liu, S., Chen, S., Peng, S., & Chung, L. (2010). Mastery and stigma in predicting the subjective quality of life of patients with schizophrenia in Taiwan. Journal of Nervous and Mental Disease, 198(7), 494–500.PubMedCrossRef Hsiung, P., Pan, A., Liu, S., Chen, S., Peng, S., & Chung, L. (2010). Mastery and stigma in predicting the subjective quality of life of patients with schizophrenia in Taiwan. Journal of Nervous and Mental Disease, 198(7), 494–500.PubMedCrossRef
go back to reference Jetten, J., Spears, R., & Manstead, A. (2001). Similarity as a source of differentiation: The role of group identification. European Journal of Social Psychology, 31(6), 621–640.CrossRef Jetten, J., Spears, R., & Manstead, A. (2001). Similarity as a source of differentiation: The role of group identification. European Journal of Social Psychology, 31(6), 621–640.CrossRef
go back to reference Jetten, J., Schmitt, M., Branscombe, N., & McKimmie, B. (2005). Suppressing the negative effect of devaluation on group identification: The role of intergroup differentiation and intragroup respect. Journal of Experimental Social Psychology, 41(2), 208–215.CrossRef Jetten, J., Schmitt, M., Branscombe, N., & McKimmie, B. (2005). Suppressing the negative effect of devaluation on group identification: The role of intergroup differentiation and intragroup respect. Journal of Experimental Social Psychology, 41(2), 208–215.CrossRef
go back to reference Johnsen, M., Teague, G., & McDonel Herr, E. (2005). Common Ingredients as a fidelity measure for peer-run programs. In S. Clay, B. Schell, P. W. Corrigan, & R. O. Ralph (Eds.), On our own, together: Peer programs for people with mental illness (pp. 213–238). Nashville, TN: Vanderbilt University Press. Johnsen, M., Teague, G., & McDonel Herr, E. (2005). Common Ingredients as a fidelity measure for peer-run programs. In S. Clay, B. Schell, P. W. Corrigan, & R. O. Ralph (Eds.), On our own, together: Peer programs for people with mental illness (pp. 213–238). Nashville, TN: Vanderbilt University Press.
go back to reference Lam, J., & Rosenheck, R. (1999). Social support and service use among homeless persons with serious mental illness. International Journal of Social Psychiatry, 45(1), 13–28.PubMedCrossRef Lam, J., & Rosenheck, R. (1999). Social support and service use among homeless persons with serious mental illness. International Journal of Social Psychiatry, 45(1), 13–28.PubMedCrossRef
go back to reference Lehman, A. (1988). A quality of life interview for the chronically mentally ill. Evaluation and Program Planning, 11(1), 51–62.CrossRef Lehman, A. (1988). A quality of life interview for the chronically mentally ill. Evaluation and Program Planning, 11(1), 51–62.CrossRef
go back to reference Lehman, A. (1999). A review of instruments for measuring quality of life outcomes in mental health. In N. E. Miller & K. M. Magruder (Eds.), Cost-effectivenes s of psychotherapy: A guide for practitioners, researchers, and policymakers (pp. 174–181). New York, NY, US: Oxford University Press. Lehman, A. (1999). A review of instruments for measuring quality of life outcomes in mental health. In N. E. Miller & K. M. Magruder (Eds.), Cost-effectivenes s of psychotherapy: A guide for practitioners, researchers, and policymakers (pp. 174–181). New York, NY, US: Oxford University Press.
go back to reference Lundberg, B., Hansson, L., Wentz, E., & Björkman, T. (2009). Are stigma experiences among persons with mental illness, related to perceptions of self-esteem, empowerment and sense of coherence? Journal of Psychiatric and Mental Health Nursing, 16(6), 516–522.PubMedCrossRef Lundberg, B., Hansson, L., Wentz, E., & Björkman, T. (2009). Are stigma experiences among persons with mental illness, related to perceptions of self-esteem, empowerment and sense of coherence? Journal of Psychiatric and Mental Health Nursing, 16(6), 516–522.PubMedCrossRef
go back to reference Maton, K. (1989). Community settings as buffers of life stress? Highly supportive churches, mutual help groups, and senior centers. American Journal of Community Psychology, 17(2), 203–232.CrossRef Maton, K. (1989). Community settings as buffers of life stress? Highly supportive churches, mutual help groups, and senior centers. American Journal of Community Psychology, 17(2), 203–232.CrossRef
go back to reference McCorkle, B., Rogers, E., Dunn, E., Lyass, A., & Wan, Y. (2008). Increasing social support for individuals with serious mental illness: Evaluating the compeer model of intentional friendship. Community Mental Health Journal, 44(5), 359–366.PubMedCrossRef McCorkle, B., Rogers, E., Dunn, E., Lyass, A., & Wan, Y. (2008). Increasing social support for individuals with serious mental illness: Evaluating the compeer model of intentional friendship. Community Mental Health Journal, 44(5), 359–366.PubMedCrossRef
go back to reference Mok, B. (2004). Individual self-help group participation and empowerment in Hong Kong. Journal of Sociology & Social Welfare, 31(3), 153–168. Mok, B. (2004). Individual self-help group participation and empowerment in Hong Kong. Journal of Sociology & Social Welfare, 31(3), 153–168.
go back to reference Mowbray, C., Bybee, D., Hollingsworth, L., Goodkind, S., & Oyserman, D. (2005). Living arrangements and social support: Effects on the well-being of mothers with mental illness. Social Work Research, 29, 41–55.CrossRef Mowbray, C., Bybee, D., Hollingsworth, L., Goodkind, S., & Oyserman, D. (2005). Living arrangements and social support: Effects on the well-being of mothers with mental illness. Social Work Research, 29, 41–55.CrossRef
go back to reference Mueller, B., Nordt, C., Lauber, C., Rueesch, P., Meyer, P. C., & Roessler, W. (2006). Social support modifies perceived stigmatization in the first years of mental illness: a longitudinal approach. Social Science and Medicine, 62(1), 39–49.PubMedCrossRef Mueller, B., Nordt, C., Lauber, C., Rueesch, P., Meyer, P. C., & Roessler, W. (2006). Social support modifies perceived stigmatization in the first years of mental illness: a longitudinal approach. Social Science and Medicine, 62(1), 39–49.PubMedCrossRef
go back to reference Price, M. A., Hill, C. D., Williams, V. S., Morlock, R. J., Leeuwenkamp, O., & Patterson, T. L. (2008). Measures of functional status and quality of life in schizophrenia. Current Psychiatry Reviews, 4(1), 28–38.CrossRef Price, M. A., Hill, C. D., Williams, V. S., Morlock, R. J., Leeuwenkamp, O., & Patterson, T. L. (2008). Measures of functional status and quality of life in schizophrenia. Current Psychiatry Reviews, 4(1), 28–38.CrossRef
go back to reference Ritsher, J. B., & Phelan, J. C. (2004). Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Research, 129(3), 257–265.PubMedCrossRef Ritsher, J. B., & Phelan, J. C. (2004). Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Research, 129(3), 257–265.PubMedCrossRef
go back to reference Ritsher, J., Otilingam, P., & Grajalesa, M. (2003). Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatry Research, 121(1), 31–49.PubMedCrossRef Ritsher, J., Otilingam, P., & Grajalesa, M. (2003). Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatry Research, 121(1), 31–49.PubMedCrossRef
go back to reference Rogers, E. S., Chamberlin, J., Ellison, M., & Crean, T. (1997). A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services, 48, 1042–1047.PubMed Rogers, E. S., Chamberlin, J., Ellison, M., & Crean, T. (1997). A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services, 48, 1042–1047.PubMed
go back to reference Rogers, E. S., Anthony, W., & Lyass, A. (2004). The nature and dimensions of social support among individuals with severe mental illnesses. Community Mental Health Journal, 40(5), 437–450.PubMedCrossRef Rogers, E. S., Anthony, W., & Lyass, A. (2004). The nature and dimensions of social support among individuals with severe mental illnesses. Community Mental Health Journal, 40(5), 437–450.PubMedCrossRef
go back to reference Rogers, E. S., Ralph, R. O., & Salzer, M. S. (2010). Validating the empowerment scale with a multisite sample of consumers of mental health services. Psychiatric Services, 61(9), 933–936.PubMedCrossRef Rogers, E. S., Ralph, R. O., & Salzer, M. S. (2010). Validating the empowerment scale with a multisite sample of consumers of mental health services. Psychiatric Services, 61(9), 933–936.PubMedCrossRef
go back to reference Rüsch, N., Lieb, K., Bohus, M., & Corrigan, P. W. (2006). Self-stigma, empowerment and perceived legitimacy of discrimination among women with mental illness. Psychiatric Services, 57(3), 399–402.PubMedCrossRef Rüsch, N., Lieb, K., Bohus, M., & Corrigan, P. W. (2006). Self-stigma, empowerment and perceived legitimacy of discrimination among women with mental illness. Psychiatric Services, 57(3), 399–402.PubMedCrossRef
go back to reference Rüsch, N., Corrigan, P. W., Powell, K., Rajah, A. O., Wilkniss, S., & Batia, K. (2009a). A stress-coping model of mental illness stigma: II. Emotional stress responses, coping behavior and outcome. Schizophrenia Research, 110(1–3), 65–71.PubMedCrossRef Rüsch, N., Corrigan, P. W., Powell, K., Rajah, A. O., Wilkniss, S., & Batia, K. (2009a). A stress-coping model of mental illness stigma: II. Emotional stress responses, coping behavior and outcome. Schizophrenia Research, 110(1–3), 65–71.PubMedCrossRef
go back to reference Rüsch, N., Corrigan, P. W., Wassell, A., Michaels, P., Olschewski, M., Wilkniss, S., et al. (2009b). Ingroup perception and responses to stigma among persons with mental illness. Acta Psychiatrica Scandinavica, 120(4), 320–328.PubMedCrossRef Rüsch, N., Corrigan, P. W., Wassell, A., Michaels, P., Olschewski, M., Wilkniss, S., et al. (2009b). Ingroup perception and responses to stigma among persons with mental illness. Acta Psychiatrica Scandinavica, 120(4), 320–328.PubMedCrossRef
go back to reference Sarason, B. R., Sarason, I., & Pierce, G. (Eds.). (1990). Social support: An interactional view. Oxford, England: Wiley. Sarason, B. R., Sarason, I., & Pierce, G. (Eds.). (1990). Social support: An interactional view. Oxford, England: Wiley.
go back to reference Schutt, R. K., & Rogers, E. S. (2009). Empowerment and peer support: Structure and process of self-help in a consumer-run center for individuals with mental illness. Journal of Community Psychology, 37(6), 697–710.CrossRef Schutt, R. K., & Rogers, E. S. (2009). Empowerment and peer support: Structure and process of self-help in a consumer-run center for individuals with mental illness. Journal of Community Psychology, 37(6), 697–710.CrossRef
go back to reference Sheehan, D. V., Lecrubier, Y., Sheehan, K. H., Amorim, P., Janavs, J., Weiller, E., et al. (1998). The mini-international neuropsychiatric interview (M.I.N.I.): The development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. Journal of Clinical Psychiatry, 59, 22–33.PubMed Sheehan, D. V., Lecrubier, Y., Sheehan, K. H., Amorim, P., Janavs, J., Weiller, E., et al. (1998). The mini-international neuropsychiatric interview (M.I.N.I.): The development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD-10. Journal of Clinical Psychiatry, 59, 22–33.PubMed
go back to reference Skantze, K., Malm, U., Dencker, S. J., May, P. R. A., & Corrigan, P. W. (1992). Comparisons of quality of life to standard of living in schizophrenic outpatients. British Journal of Psychiatry, 161, 797–801.PubMedCrossRef Skantze, K., Malm, U., Dencker, S. J., May, P. R. A., & Corrigan, P. W. (1992). Comparisons of quality of life to standard of living in schizophrenic outpatients. British Journal of Psychiatry, 161, 797–801.PubMedCrossRef
go back to reference Staring, A. B. P., Van der Gaag, M., Van den Berge, M., Duivenvoorden, H. J., & Mulder, C. L. (2009). Stigma moderates the associations of insight with depressed mood, low self-esteem, and low quality of life in patients with schizophrenia spectrum disorders. Schizophrenia Research, 115(2–3), 363–369.PubMedCrossRef Staring, A. B. P., Van der Gaag, M., Van den Berge, M., Duivenvoorden, H. J., & Mulder, C. L. (2009). Stigma moderates the associations of insight with depressed mood, low self-esteem, and low quality of life in patients with schizophrenia spectrum disorders. Schizophrenia Research, 115(2–3), 363–369.PubMedCrossRef
go back to reference Tyler, T. R. (2001). Cooperation in organizations. In M. A. Hogg & D. J. Terry (Eds.), Social identity processes in organizational contexts (pp. 149–166). Philadelphia: Psychology Press. Tyler, T. R. (2001). Cooperation in organizations. In M. A. Hogg & D. J. Terry (Eds.), Social identity processes in organizational contexts (pp. 149–166). Philadelphia: Psychology Press.
go back to reference Watson, A., Corrigan, P. W., Larson, J., & Sells, M. (2007). Self-stigma in people with mental illness. Schizophrenia Bulletin, 36(6), 1312–1318. Watson, A., Corrigan, P. W., Larson, J., & Sells, M. (2007). Self-stigma in people with mental illness. Schizophrenia Bulletin, 36(6), 1312–1318.
go back to reference Wilkinson, G. S., & Robertson, G. J. (2006). Wide range achievement test-4 professional manual. Lutz, FL: Psychological Assessment Resources, Inc. Wilkinson, G. S., & Robertson, G. J. (2006). Wide range achievement test-4 professional manual. Lutz, FL: Psychological Assessment Resources, Inc.
Metadata
Title
The Impact of Self-Stigma and Mutual Help Programs on the Quality of Life of People with Serious Mental Illnesses
Authors
Patrick W. Corrigan
Kristin A. Sokol
Nicolas Rüsch
Publication date
01-02-2013
Publisher
Springer US
Published in
Community Mental Health Journal / Issue 1/2013
Print ISSN: 0010-3853
Electronic ISSN: 1573-2789
DOI
https://doi.org/10.1007/s10597-011-9445-2

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