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Published in: Journal of Genetic Counseling 4/2016

01-08-2016 | Commentary

The Greatest Priority for Genetic Counseling: Effectively Meeting Our Clients’ Needs 2014 NSGC Natalie Weissberger Paul National Achievement Award

Author: Barbara Bowles Biesecker

Published in: Journal of Genetic Counseling | Issue 4/2016

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Abstract

Receipt of the 2014 Natalie Weissberger Paul (NWP) National Achievement Award was a highlight of my career. Thank you to all who nominated me for this prestigious NSGC recognition. I am humbled to join past NWP award winners many of whom are admired mentors, treasured colleagues and friends. I would like to express what a privilege it is to honor Natalie Weissberger Paul for whom this award is named. Twenty-nine years ago I co-edited a volume of the Birth Defects Original Article Series with Natalie summarizing a conference co-funded by the March of Dimes and NSGC (Biesecker et al., 1987). Natalie demonstrated her devotion to children with special needs through her work at the March of Dimes. As such I believe she would concur with the focus of my remarks on the partners in our work: our clients.
Literature
go back to reference Bernhardt, B., Biesecker, B., & Mastromarino, C. (2000). Goals, benefits and outcomes of genetic counseling: client and genetic counselor assessment. American Journal of Medical Genetics, 94, 189–97.CrossRefPubMed Bernhardt, B., Biesecker, B., & Mastromarino, C. (2000). Goals, benefits and outcomes of genetic counseling: client and genetic counselor assessment. American Journal of Medical Genetics, 94, 189–97.CrossRefPubMed
go back to reference Biesecker, B. B., Magyari, P. A., & Paul, N. W. (Eds.). (1987). Birth defects: original article series: strategies in genetic counseling: religious, cultural, and ethnic influences on the counseling process (6th ed., Vol. 23). White Plains, NY: March of Dimes Birth Defect Foundation. Biesecker, B. B., Magyari, P. A., & Paul, N. W. (Eds.). (1987). Birth defects: original article series: strategies in genetic counseling: religious, cultural, and ethnic influences on the counseling process (6th ed., Vol. 23). White Plains, NY: March of Dimes Birth Defect Foundation.
go back to reference Elwyn, G., Lloyd, A., May, C., van der Weijden, T., Stiggelbout, A., Edwards, A., Frosch, D. L., Rapley, T., Barr, P., Walsh, T., Grande, S. W., Montori, V., & Epstein, R. (2014). Collaborative deliberation: a model for patient care. Patient Education and Counseling, 97(2), 158–64.CrossRefPubMed Elwyn, G., Lloyd, A., May, C., van der Weijden, T., Stiggelbout, A., Edwards, A., Frosch, D. L., Rapley, T., Barr, P., Walsh, T., Grande, S. W., Montori, V., & Epstein, R. (2014). Collaborative deliberation: a model for patient care. Patient Education and Counseling, 97(2), 158–64.CrossRefPubMed
go back to reference Guan, Y. (2015). Disclosing Alzheimer's genomic risk to family accompanied cognitively impaired patients. PhD Dissertation, The Johns Hopkins University (in press). Guan, Y. (2015). Disclosing Alzheimer's genomic risk to family accompanied cognitively impaired patients. PhD Dissertation, The Johns Hopkins University (in press).
go back to reference Kessler, S. (1979). The genetic counselor as psychotherapist. Birth Defects Original Articles Series, 15(2), 187–200. Kessler, S. (1979). The genetic counselor as psychotherapist. Birth Defects Original Articles Series, 15(2), 187–200.
go back to reference Resta, R., Biesecker, B., Bennett, R., Blum, S., Estabrooks Hahn, S., Strecker, M., & Williams, J. (2006). A new definition of genetic counseling: the national society of genetic counselors’ task force report. Journal of Genetic Counseling, 15(2), 77–83.CrossRefPubMed Resta, R., Biesecker, B., Bennett, R., Blum, S., Estabrooks Hahn, S., Strecker, M., & Williams, J. (2006). A new definition of genetic counseling: the national society of genetic counselors’ task force report. Journal of Genetic Counseling, 15(2), 77–83.CrossRefPubMed
go back to reference Roter, D., Ellington, L., Erby, L. H., Larson, S., & Dudley, W. (2006). The genetic counseling video project (GCVP): models of practice. American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 142C(4), 209–20.CrossRef Roter, D., Ellington, L., Erby, L. H., Larson, S., & Dudley, W. (2006). The genetic counseling video project (GCVP): models of practice. American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 142C(4), 209–20.CrossRef
go back to reference Roter, D. L., Erby, L. H., Larson, S., & Ellington, L. (2007). Assessing oral literacy demand in genetic counseling dialogue: preliminary test of a conceptual framework. Social Science & Medicine, 65(7), 1442–57.CrossRef Roter, D. L., Erby, L. H., Larson, S., & Ellington, L. (2007). Assessing oral literacy demand in genetic counseling dialogue: preliminary test of a conceptual framework. Social Science & Medicine, 65(7), 1442–57.CrossRef
go back to reference Roter, D. L., Erby, L., Larson, S., & Ellington, L. (2009). Oral literacy demand of prenatal genetic counseling dialogue: predictors of learning. Patient Education and Counseling, 75(3), 392–7.CrossRefPubMed Roter, D. L., Erby, L., Larson, S., & Ellington, L. (2009). Oral literacy demand of prenatal genetic counseling dialogue: predictors of learning. Patient Education and Counseling, 75(3), 392–7.CrossRefPubMed
go back to reference Veach, P. M., Bartels, D. M., & Leroy, B. S. (2007). Coming full circle: a reciprocal-engagement model of genetic counseling practice. Journal of Genetic Counseling, 16(6), 713–28.CrossRefPubMed Veach, P. M., Bartels, D. M., & Leroy, B. S. (2007). Coming full circle: a reciprocal-engagement model of genetic counseling practice. Journal of Genetic Counseling, 16(6), 713–28.CrossRefPubMed
Metadata
Title
The Greatest Priority for Genetic Counseling: Effectively Meeting Our Clients’ Needs 2014 NSGC Natalie Weissberger Paul National Achievement Award
Author
Barbara Bowles Biesecker
Publication date
01-08-2016
Publisher
Springer US
Published in
Journal of Genetic Counseling / Issue 4/2016
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-016-9962-9

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