Issue Special Issue 1/2016
Social/Economic Costs and Health-Related Quality of Life in Patients with Rare Diseases in Europe
Content (11 Articles)
Social/economic costs and health-related quality of life in patients with rare diseases in Europe
Julio López-Bastida, Juan Oliva-Moreno, Renata Linertová, Pedro Serrano-Aguilar
Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe
Karine Chevreul, Morgane Michel, Karen Berg Brigham, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, Márta Péntek, Johann Matthias Graf von der Schulenburg, Panos Kanavos, Ulf Persson, Giovani Fattore
Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe
Marianna Cavazza, Yllka Kodra, Patrizio Armeni, Marta De Santis, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, Márta Péntek, Johann Matthias Graf von der Schulenburg, Panos Kanavos, Karine Chevreul, Ulf Persson, Giovanni Fattore
Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe
Aris Angelis, Panos Kanavos, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, Valentin Brodszky, Johann Matthias Graf von der Schulenburg, Karine Chevreul, Ulf Persson, Giovanni Fattore
Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe
Karine Chevreul, Coralie Gandré, Karen Berg Brigham, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, László Gulácsi, Johann Matthias Graf von der Schulenburg, Panos Kanavos, Ulf Persson, Giovani Fattore
Social/economic costs and quality of life in patients with haemophilia in Europe
Marianna Cavazza, Yllka Kodra, Patrizio Armeni, Marta De Santis, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, László Gulácsi, Johann Matthias Graf von der Schulenburg, Panos Kanavos, Karine Chevreul, Ulf Persson, Giovanni Fattore
Social/economic costs and health-related quality of life in patients with histiocytosis in Europe
Georgi Iskrov, Itziar Astigarraga, Rumen Stefanov, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Arrigo Schieppati, Domenica Taruscio, Márta Péntek, Johann Matthias Graf von der Schulenburg, Panos Kanavos, Karine Chevreul, Ulf Persson, Giovanni Fattore
Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe
A. Kuhlmann, T. Schmidt, M. Treskova, J. López-Bastida, R. Linertová, J. Oliva-Moreno, P. Serrano-Aguilar, M. Posada-de-la-Paz, P. Kanavos, D. Taruscio, A. Schieppati, G. Iskrov, M. Péntek, C. Delgado, J. M. von der Schulenburg, U. Persson, K. Chevreul, G. Fattore
Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe
Márta Péntek, László Gulácsi, Valentin Brodszky, Petra Baji, Imre Boncz, Gábor Pogány, Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Domenica Taruscio, Georgi Iskrov, Arrigo Schieppati, Johann Matthias Graf von der Schulenburg, Panos Kanavos, Karine Chevreul, Ulf Persson, Giovanni Fattore
Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe
Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Manuel Posada-de-la-Paz, Pedro Serrano-Aguilar, Panos Kanavos, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, Petra Baji, Claudia Delgado, Johann Matthias Graf von der Schulenburg, Ulf Persson, Karine Chevreul, Giovanni Fattore
Social/economic costs and health-related quality of life in patients with scleroderma in Europe
Julio López-Bastida, Renata Linertová, Juan Oliva-Moreno, Pedro Serrano-Aguilar, Manuel Posada-de-la-Paz, Panos Kanavos, Domenica Taruscio, Arrigo Schieppati, Georgi Iskrov, Márta Péntek, Claudia Delgado, Johann Mathias von der Schulenburg, Ulf Persson, Karine Chevreul, Giovanni Fattore