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Annals of Hematology
Published in: Annals of Hematology 8/2023

10-05-2023 | Thalassemia | Letter to the Editor

Establishment of the Abu Dhabi Emirate Thalassemia Longitudinal Cohort (AD-TLC): leveraging the power of observation

Authors: Khaled M. Musallam, Wesam Ahmed, Mozah Obaid Almarshoodi, Omar Trad, Naser Al Zein, Shamyla Siddique, Nastaran Shekary, Sulaima Daboul, Shahrukh Hashmi

Published in: Annals of Hematology | Issue 8/2023

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Excerpt

Dear Editor, …
Literature
1.
2.
Musallam KM, Bou-Fakhredin R, Cappellini MD, Taher AT (2021) 2021 update on clinical trials in beta-thalassemia. Am J Hematol 96:1518–1531CrossRefPubMed
3.
Kwiatkowski JL, Kim HY, Thompson AA, Quinn CT, Mueller BU, Odame I, Giardina PJ, Vichinsky EP, Boudreaux JM, Cohen AR, Porter JB, Coates T, Olivieri NF, Neufeld EJ, Thalassemia Clinical Research N (2012) Chelation use and iron burden in North American and British thalassemia patients: a report from the Thalassemia Longitudinal Cohort. Blood 119:2746–2753CrossRef
4.
Trachtenberg F, Vichinsky E, Haines D, Pakbaz Z, Mednick L, Sobota A, Kwiatkowski J, Thompson AA, Porter J, Coates T, Giardina PJ, Olivieri N, Yamashita R, Neufeld EJ, Thalassemia Clinical Research N (2011) Iron chelation adherence to deferoxamine and deferasirox in thalassemia. Am J Hematol 86:433–436CrossRef
5.
Forni GL, Gianesin B, Musallam KM, Longo F, Rosso R, Lisi R, Gamberini MR, Pinto VM, Graziadei G, Vitucci A, Bonetti F, Musto P, Piga A, Cappellini MD, Borgna-Pignatti C, Webthal P (2023) Overall and complication-free survival in a large cohort of patients with beta-thalassemia major followed over 50 years. Am J Hematol 98:381–387CrossRefPubMed
6.
Musallam KM, Vitrano A, Meloni A, Pollina SA, Karimi M, El-Beshlawy A, Hajipour M, Di Marco V, Ansari SH, Filosa A, Ricchi P, Ceci A, Daar S, Vlachaki E, Singer ST, Naserullah ZA, Pepe A, Scondotto S, Dardanoni G, Bonifazi F, Sankaran VG, Vichinsky E, Taher AT, Maggio A, International Working Group on T (2022) Risk of mortality from anemia and iron overload in nontransfusion-dependent beta-thalassemia. Am J Hematol 97:E78–E80
7.
Musallam KM, Vitrano A, Meloni A, Addario Pollina S, Di Marco V, Hussain Ansari S, Filosa A, Ricchi P, Ceci A, Daar S, Vlachaki E, Singer ST, Naserullah ZA, Pepe A, Scondotto S, Dardanoni G, Karimi M, El-Beshlawy A, Hajipour M, Bonifazi F, Vichinsky E, Taher AT, Sankaran VG, Maggio A, International Working Group on T (2022) Primary HBB gene mutation severity and long-term outcomes in a global cohort of beta-thalassaemia. Br J Haematol 196:414–423CrossRef
8.
Musallam KM, Cappellini MD, Daar S, Taher AT (2022) Morbidity-free survival and hemoglobin level in non-transfusion-dependent beta-thalassemia: a 10-year cohort study. Ann Hematol 101:203–204CrossRefPubMed
Metadata
Title
Establishment of the Abu Dhabi Emirate Thalassemia Longitudinal Cohort (AD-TLC): leveraging the power of observation
Authors
Khaled M. Musallam
Wesam Ahmed
Mozah Obaid Almarshoodi
Omar Trad
Naser Al Zein
Shamyla Siddique
Nastaran Shekary
Sulaima Daboul
Shahrukh Hashmi
Publication date
10-05-2023
Publisher
Springer Berlin Heidelberg
Keyword
Thalassemia
Published in
Annals of Hematology / Issue 8/2023
Print ISSN: 0939-5555
Electronic ISSN: 1432-0584
DOI
https://doi.org/10.1007/s00277-023-05252-z

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