Skip to main content
Top
Published in: Journal of Cancer Education 1/2014

01-03-2014

Testing the Feasibility of a DVD-Based Intervention to Promote Preparedness for Mammography in Women with Intellectual Disabilities

Authors: Nechama W. Greenwood, Claire Tienwey Wang, Deborah Bowen, Joanne Wilkinson

Published in: Journal of Cancer Education | Issue 1/2014

Login to get access

Abstract

Women with intellectual disabilities (ID, formerly mental retardation) have a similar breast cancer incidence as the general population, but they have higher breast cancer mortality and lower rates of regular screening mammography. We conducted a feasibility study evaluating acceptability, demand, and limited efficacy of a health education DVD about mammography for women with ID. The DVD was developed in order to address disability-specific barriers to mammography identified in prior studies, such as anxiety related to navigating the logistics of obtaining a mammogram. The DVD was found to be acceptable and feasible, and led to a moderate increase in mammography preparedness in this population. Study results suggest that this DVD-based intervention is an appropriate candidate for further study measuring efficacy and effectiveness in increasing regular mammography in women with ID, a disparity population.
Literature
1.
go back to reference Krahn GL, Hammond L, Turner A (2006) A cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev 12(2):70–80CrossRefPubMed Krahn GL, Hammond L, Turner A (2006) A cascade of disparities: health and health care access for people with intellectual disabilities. Ment Retard Dev Disabil Res Rev 12(2):70–80CrossRefPubMed
2.
go back to reference Ouellette-Kuntz H (2005) Understanding health disparities and inequities faced by individuals with intellectual disabilities. J Appl Res Intellect Disabil 18(2):113–121CrossRef Ouellette-Kuntz H (2005) Understanding health disparities and inequities faced by individuals with intellectual disabilities. J Appl Res Intellect Disabil 18(2):113–121CrossRef
3.
go back to reference Jobling A (2001) Beyond sex and cooking: health education for individuals with intellectual disability. Ment Retard 39(4):310–321CrossRefPubMed Jobling A (2001) Beyond sex and cooking: health education for individuals with intellectual disability. Ment Retard 39(4):310–321CrossRefPubMed
5.
go back to reference Patja K, Eero P, Iivanainen M (2001) Cancer incidence among people with intellectual disability. J Intellect Disabil Res 45(Pt 4):300–7CrossRefPubMed Patja K, Eero P, Iivanainen M (2001) Cancer incidence among people with intellectual disability. J Intellect Disabil Res 45(Pt 4):300–7CrossRefPubMed
6.
go back to reference Sullivan SG, Glasson EJ, Hussain R, Petterson BA, Slack-Smith LM, Montgomery PD, Bittles AH (2003) Breast cancer and the uptake of mammography screening services by women with intellectual disabilities. Prev Med 37(5):507–512CrossRefPubMed Sullivan SG, Glasson EJ, Hussain R, Petterson BA, Slack-Smith LM, Montgomery PD, Bittles AH (2003) Breast cancer and the uptake of mammography screening services by women with intellectual disabilities. Prev Med 37(5):507–512CrossRefPubMed
7.
go back to reference Wilkinson JE, Lauer E, Fruend KM, Rosen AK (2011) Determinants of mammography in women with intellectual disabilities. J Am Board Fam Med 24(6):693–703PubMedCentralCrossRefPubMed Wilkinson JE, Lauer E, Fruend KM, Rosen AK (2011) Determinants of mammography in women with intellectual disabilities. J Am Board Fam Med 24(6):693–703PubMedCentralCrossRefPubMed
8.
go back to reference Wilkinson JE, Deis C, Bowen DJ, Bokhour BG (2011) It's easier said than done: perspectives on mammography from women with intellectual disabilities. Ann Fam Med 9(2):142–147PubMedCentralCrossRefPubMed Wilkinson JE, Deis C, Bowen DJ, Bokhour BG (2011) It's easier said than done: perspectives on mammography from women with intellectual disabilities. Ann Fam Med 9(2):142–147PubMedCentralCrossRefPubMed
9.
go back to reference Rimmer JH, Braddock D (2002) Health promotion for people with physical, cognitive and sensory disabilities: an emerging national priority. Am J Health Promot 16:220–224CrossRefPubMed Rimmer JH, Braddock D (2002) Health promotion for people with physical, cognitive and sensory disabilities: an emerging national priority. Am J Health Promot 16:220–224CrossRefPubMed
10.
go back to reference Taylor CV, Zyzanski SJ, Panaite V, Council L (2010) Nursing perspectives on cancer screening in adults with intellectual and other developmental disabilities. Intellect Dev Disabil 28(4):271–277CrossRef Taylor CV, Zyzanski SJ, Panaite V, Council L (2010) Nursing perspectives on cancer screening in adults with intellectual and other developmental disabilities. Intellect Dev Disabil 28(4):271–277CrossRef
11.
go back to reference Barr JK, Giannotti TE, Van Hoof TJ, Mongoven J, Curry M (2008) Understanding barriers to participation in mammography by women with disabilities. Am J Health Promot 22(6):381–385CrossRefPubMed Barr JK, Giannotti TE, Van Hoof TJ, Mongoven J, Curry M (2008) Understanding barriers to participation in mammography by women with disabilities. Am J Health Promot 22(6):381–385CrossRefPubMed
12.
go back to reference Sullivan SG, Slack-Smith LM, Hussain R (2004) Understanding the use of breast cancer screening services by women with intellectual disabilities. Soz Praventivmed 49(6):398–405CrossRefPubMed Sullivan SG, Slack-Smith LM, Hussain R (2004) Understanding the use of breast cancer screening services by women with intellectual disabilities. Soz Praventivmed 49(6):398–405CrossRefPubMed
13.
go back to reference Wilkinson JE, Dreyfus D, Cerreto M, Bokhour BG (2012) Educational needs of family physicians who care for people with intellectual disabilities. Intellect Dev Disabil 50(3):243–250PubMedCentralCrossRefPubMed Wilkinson JE, Dreyfus D, Cerreto M, Bokhour BG (2012) Educational needs of family physicians who care for people with intellectual disabilities. Intellect Dev Disabil 50(3):243–250PubMedCentralCrossRefPubMed
14.
go back to reference Davies N, Duff M (2001) Breast cancer screening for older women with intellectual disabilities living in community group homes. J Intellect Disabil Res 45:253–57CrossRefPubMed Davies N, Duff M (2001) Breast cancer screening for older women with intellectual disabilities living in community group homes. J Intellect Disabil Res 45:253–57CrossRefPubMed
15.
go back to reference Lennox NG, Beange H, Edwards NS (2000) The health needs of people with intellectual disability. Med J Aust 173:328–30PubMed Lennox NG, Beange H, Edwards NS (2000) The health needs of people with intellectual disability. Med J Aust 173:328–30PubMed
16.
go back to reference Scheepers M et al (2005) Reducing health disparity in people with intellectual disabilities: a report from the health issues special interest research group of the International Association for the Scientific Study of Intellectual Disability. J Policy Pract Intellect Disabil 2(3–4):249–255CrossRef Scheepers M et al (2005) Reducing health disparity in people with intellectual disabilities: a report from the health issues special interest research group of the International Association for the Scientific Study of Intellectual Disability. J Policy Pract Intellect Disabil 2(3–4):249–255CrossRef
17.
go back to reference Koh HK, Oppenheimer SC, Massin-Short SB, Emmons KM, Geller AC, Viswanath K (2010) Translating research evidence into practice to reduce health disparities: a social determinants approach. Am J Publ Health 100(S1):S72–S80CrossRef Koh HK, Oppenheimer SC, Massin-Short SB, Emmons KM, Geller AC, Viswanath K (2010) Translating research evidence into practice to reduce health disparities: a social determinants approach. Am J Publ Health 100(S1):S72–S80CrossRef
18.
go back to reference Beange H, Lennox N, Parmenter TR (1999) Health targets for people with an intellectual disability. J Intellect Dev Disabil 24(4):283–297CrossRef Beange H, Lennox N, Parmenter TR (1999) Health targets for people with an intellectual disability. J Intellect Dev Disabil 24(4):283–297CrossRef
19.
go back to reference Greenwald P, Cullen JW (1984) The scientific approach to cancer control. CA Cancer J Clin 34:328–332CrossRefPubMed Greenwald P, Cullen JW (1984) The scientific approach to cancer control. CA Cancer J Clin 34:328–332CrossRefPubMed
21.
go back to reference McCarthy M (2002) Going through the menopause: perceptions and experiences of women with intellectual disabilities. J Intellect Dev Disabil 27(4):281–295CrossRef McCarthy M (2002) Going through the menopause: perceptions and experiences of women with intellectual disabilities. J Intellect Dev Disabil 27(4):281–295CrossRef
22.
go back to reference Mechling LC, Gast DL, Gustafson MR (2009) Use of video modeling to teach extinguishing of cooking related fires to individuals with moderate intellectual disabilities. Educ Train Dev Disabil 44(1):67–79 Mechling LC, Gast DL, Gustafson MR (2009) Use of video modeling to teach extinguishing of cooking related fires to individuals with moderate intellectual disabilities. Educ Train Dev Disabil 44(1):67–79
23.
go back to reference Wang CT, Greenwood N, White LF, Wilkinson J (2013) Measuring preparedness for mammography in women with intellectual disabilities: a validation study of the Mammography Preparedness Measure. J Intellect Dis Res [under review] Wang CT, Greenwood N, White LF, Wilkinson J (2013) Measuring preparedness for mammography in women with intellectual disabilities: a validation study of the Mammography Preparedness Measure. J Intellect Dis Res [under review]
24.
go back to reference Parish SL, Rose RA, Luken K, Swaine JG, O’Hare L (2012) Cancer screening knowledge changes: results from a randomized control trial of women with developmental disabilities. Res Soc Work Pract 22(1):43–53CrossRef Parish SL, Rose RA, Luken K, Swaine JG, O’Hare L (2012) Cancer screening knowledge changes: results from a randomized control trial of women with developmental disabilities. Res Soc Work Pract 22(1):43–53CrossRef
25.
go back to reference Lunsky, Straiko YA, Armstrong SC (2002) Women be healthy: a curriculum for women with mental retardation/developmental disabilities. Revised by SM Havercamp, C. Kluttz-Hile, & Dickens, P. North Carolina Office on Disability and Health, Chapel Hill Lunsky, Straiko YA, Armstrong SC (2002) Women be healthy: a curriculum for women with mental retardation/developmental disabilities. Revised by SM Havercamp, C. Kluttz-Hile, & Dickens, P. North Carolina Office on Disability and Health, Chapel Hill
26.
go back to reference Swaine JG, Parish SL, Luken K, Dickens P (2012) Feasibility & Acceptability of Women Be Healthy 2: An Intervention to Improve Cancer Screenings. Lurie Institute for Disability Policy, Waltham Swaine JG, Parish SL, Luken K, Dickens P (2012) Feasibility & Acceptability of Women Be Healthy 2: An Intervention to Improve Cancer Screenings. Lurie Institute for Disability Policy, Waltham
Metadata
Title
Testing the Feasibility of a DVD-Based Intervention to Promote Preparedness for Mammography in Women with Intellectual Disabilities
Authors
Nechama W. Greenwood
Claire Tienwey Wang
Deborah Bowen
Joanne Wilkinson
Publication date
01-03-2014
Publisher
Springer US
Published in
Journal of Cancer Education / Issue 1/2014
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-013-0554-1

Other articles of this Issue 1/2014

Journal of Cancer Education 1/2014 Go to the issue
Webinar | 19-02-2024 | 17:30 (CET)

Keynote webinar | Spotlight on antibody–drug conjugates in cancer

Antibody–drug conjugates (ADCs) are novel agents that have shown promise across multiple tumor types. Explore the current landscape of ADCs in breast and lung cancer with our experts, and gain insights into the mechanism of action, key clinical trials data, existing challenges, and future directions.

Dr. Véronique Diéras
Prof. Fabrice Barlesi
Developed by: Springer Medicine