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Published in: BMC Musculoskeletal Disorders 1/2022

01-12-2022 | Telemedicine | Research

“So, you must understand that that group changed everything”: perspectives on a telehealth group intervention for individuals with chronic pain

Authors: Dawn Ernstzen, Janet Keet, Kerry-Ann Louw, Jocelyn Park-Ross, Lorien Pask, Cameron Reardon, Maia Zway, Romy Parker

Published in: BMC Musculoskeletal Disorders | Issue 1/2022

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Abstract

Background

The Patient Education Empowerment Programme (PEEP) is an interdisciplinary group intervention for people living with chronic pain. As a result of the COVID-19 pandemic, lockdown and restrictions on in-person group-based health care delivery in South Africa, PEEP was modified to a telehealth electronic format (ePEEP) and offered to patients on a waiting list at two interdisciplinary chronic pain clinics in Cape Town, South Africa. The purpose of this study was to explore the feasibility and acceptability of ePEEP through the perspectives of individuals with chronic pain who participated in ePEEP. 

Methods

A qualitative, exploratory descriptive study was conducted. One month after completion of the 6-week ePEEP programme, individuals who participated, were recruited for the study. Data were collected through semi-structured interviews. Data analysis followed an iterative process of inductive content analysis. 

Results

Six individuals, all women, consented and participated in the study. Three main themes emerged from the data. Theme one focussed on how ePEEP initiated a journey of personal development and discovery within the participants. In theme two, participants reflected on the importance and value of building peer and therapeutic relationships as part of ePEEP. In theme 3, participants shared that the online learning environment had features which influenced learning about pain in different ways.

Conclusion

ePEEP was found to be acceptable, feasible and valuable for the participants. ePEEP facilitated self-discovery, empowerment, relationship building and transformation in the participants, through experiential learning. Although barriers and facilitators to learning were present, both enhanced the learning experience. The positive reception of this telehealth initiative indicates potential for enhanced access to chronic pain management services in the South African setting.
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Literature
1.
go back to reference Eccleston C, Blyth FM, Dear BF, Fisher EA, Keefe FJ, Lynch ME, Palermo TM, Reid MC, Williams ACC. Managing patients with chronic pain during the COVID-19 outbreak: considerations for the rapid introduction of remotely supported (eHealth) pain management services. Pain. 2020;161(5):889–93.CrossRef Eccleston C, Blyth FM, Dear BF, Fisher EA, Keefe FJ, Lynch ME, Palermo TM, Reid MC, Williams ACC. Managing patients with chronic pain during the COVID-19 outbreak: considerations for the rapid introduction of remotely supported (eHealth) pain management services. Pain. 2020;161(5):889–93.CrossRef
2.
go back to reference Dassieu L, Pagé MG, Lacasse A, Laflamme M, Perron V, Janelle-Montcalm A, Hudspith M, Moor G, Sutton K, Thompson JM, et al. Chronic pain experience and health inequities during the COVID-19 pandemic in Canada: qualitative findings from the chronic pain & COVID-19 pan-Canadian study. Int J Equity Health. 2021;20(1):147.CrossRef Dassieu L, Pagé MG, Lacasse A, Laflamme M, Perron V, Janelle-Montcalm A, Hudspith M, Moor G, Sutton K, Thompson JM, et al. Chronic pain experience and health inequities during the COVID-19 pandemic in Canada: qualitative findings from the chronic pain & COVID-19 pan-Canadian study. Int J Equity Health. 2021;20(1):147.CrossRef
3.
go back to reference Fallon N, Brown C, Twiddy H, Brian E, Frank B, Nurmikko T, Stancak A. Adverse effects of COVID-19-related lockdown on pain, physical activity and psychological well-being in people with chronic pain. Br J Pain. 2021;15(3):357–68.CrossRef Fallon N, Brown C, Twiddy H, Brian E, Frank B, Nurmikko T, Stancak A. Adverse effects of COVID-19-related lockdown on pain, physical activity and psychological well-being in people with chronic pain. Br J Pain. 2021;15(3):357–68.CrossRef
4.
go back to reference Javed S, Hung J, Huh BK. Impact of COVID-19 on chronic pain patients: a pain physician’s perspective. Pain Manag. 2020;10(5):275–7.CrossRef Javed S, Hung J, Huh BK. Impact of COVID-19 on chronic pain patients: a pain physician’s perspective. Pain Manag. 2020;10(5):275–7.CrossRef
5.
go back to reference Dueñas M, Ojeda B, Salazar A, Mico JA, Failde I. A review of chronic pain impact on patients, their social environment and the health care system. J Pain Res. 2016;9:457–67.CrossRef Dueñas M, Ojeda B, Salazar A, Mico JA, Failde I. A review of chronic pain impact on patients, their social environment and the health care system. J Pain Res. 2016;9:457–67.CrossRef
6.
go back to reference Scascighini L, Toma V, Dober-Spielmann S, Sprott H. Multidisciplinary treatment for chronic pain: a systematic review of interventions and outcomes. Rheumatology (Oxford). 2008;47(5):670–8.CrossRef Scascighini L, Toma V, Dober-Spielmann S, Sprott H. Multidisciplinary treatment for chronic pain: a systematic review of interventions and outcomes. Rheumatology (Oxford). 2008;47(5):670–8.CrossRef
7.
go back to reference Kamerman PR, Bradshaw D, Laubscher R, Pillay-van Wyk V, Gray GE, Mitchell D, Chetty S. Almost 1 in 5 South African adults have chronic pain: a prevalence study conducted in a large nationally representative sample. Pain. 2020;161(7):1629–35.CrossRef Kamerman PR, Bradshaw D, Laubscher R, Pillay-van Wyk V, Gray GE, Mitchell D, Chetty S. Almost 1 in 5 South African adults have chronic pain: a prevalence study conducted in a large nationally representative sample. Pain. 2020;161(7):1629–35.CrossRef
8.
go back to reference Parker R, Burgess S, Dubaniewicz A, Gouws L, Krone J, Madden V, Nortje C, Parsons C. Patient satisfaction with a pilot chronic pain management programme in Cape Town. South Africa S Afr J Physiother. 2009;65(1):35–40. Parker R, Burgess S, Dubaniewicz A, Gouws L, Krone J, Madden V, Nortje C, Parsons C. Patient satisfaction with a pilot chronic pain management programme in Cape Town. South Africa S Afr J Physiother. 2009;65(1):35–40.
9.
go back to reference Sharpe L, Jones E, Ashton-James CE, Nicholas MK, Refshauge K. Necessary components of psychological treatment in pain management programs: A Delphi study. Eur J Pain. 2020;24(6):1160–8.CrossRef Sharpe L, Jones E, Ashton-James CE, Nicholas MK, Refshauge K. Necessary components of psychological treatment in pain management programs: A Delphi study. Eur J Pain. 2020;24(6):1160–8.CrossRef
10.
go back to reference Wilson IR. Management of chronic pain through pain management programmes. Br Med Bull. 2017;124(1):55–64.PubMed Wilson IR. Management of chronic pain through pain management programmes. Br Med Bull. 2017;124(1):55–64.PubMed
11.
go back to reference Adamse C, Dekker-Van Weering MG, van Etten-Jamaludin FS, Stuiver MM. The effectiveness of exercise-based telemedicine on pain, physical activity and quality of life in the treatment of chronic pain: A systematic review. J Telemed Telecare. 2018;24(8):511–26.CrossRef Adamse C, Dekker-Van Weering MG, van Etten-Jamaludin FS, Stuiver MM. The effectiveness of exercise-based telemedicine on pain, physical activity and quality of life in the treatment of chronic pain: A systematic review. J Telemed Telecare. 2018;24(8):511–26.CrossRef
12.
go back to reference Buhrman M, Gordh T, Andersson G. Internet interventions for chronic pain including headache: A systematic review. Internet Interv. 2016;4:17–34.CrossRef Buhrman M, Gordh T, Andersson G. Internet interventions for chronic pain including headache: A systematic review. Internet Interv. 2016;4:17–34.CrossRef
13.
go back to reference Scriven H, Doherty DP, Ward EC. Evaluation of a multisite telehealth group model for persistent pain management for rural/remote participants. Rural Remote Health. 2019;19(1):4710.PubMed Scriven H, Doherty DP, Ward EC. Evaluation of a multisite telehealth group model for persistent pain management for rural/remote participants. Rural Remote Health. 2019;19(1):4710.PubMed
14.
go back to reference Fernandes LG, Devan H, Kamper SJ, Williams CM, Saragiotto BT. Enablers and barriers of people with chronic musculoskeletal pain for engaging in telehealth interventions: protocol for a qualitative systematic review and meta-synthesis. Syst Rev. 2020;9(1):122.CrossRef Fernandes LG, Devan H, Kamper SJ, Williams CM, Saragiotto BT. Enablers and barriers of people with chronic musculoskeletal pain for engaging in telehealth interventions: protocol for a qualitative systematic review and meta-synthesis. Syst Rev. 2020;9(1):122.CrossRef
15.
go back to reference Tauben DJ, Langford DJ, Sturgeon JA, Rundell SD, Towle C, Bockman C, Nicholas M. Optimizing telehealth pain care after COVID-19. Pain. 2020;161(11):2437–45.CrossRef Tauben DJ, Langford DJ, Sturgeon JA, Rundell SD, Towle C, Bockman C, Nicholas M. Optimizing telehealth pain care after COVID-19. Pain. 2020;161(11):2437–45.CrossRef
16.
go back to reference Korstjens I, Moser A. Series: Practical guidance to qualitative research. Part 2: Context, research questions and designs. Eur J Gen Pract. 2017;23(1):274–9.CrossRef Korstjens I, Moser A. Series: Practical guidance to qualitative research. Part 2: Context, research questions and designs. Eur J Gen Pract. 2017;23(1):274–9.CrossRef
17.
go back to reference Moser A, Korstjens I. Series: Practical guidance to qualitative research. Part 3: Sampling, data collection and analysis. Eur J Gen Pract. 2018;24(1):9–18.CrossRef Moser A, Korstjens I. Series: Practical guidance to qualitative research. Part 3: Sampling, data collection and analysis. Eur J Gen Pract. 2018;24(1):9–18.CrossRef
18.
go back to reference Kruse CS, Krowski N, Rodriguez B, Tran L, Vela J, Brooks M. Telehealth and patient satisfaction: a systematic review and narrative analysis. BMJ Open. 2017;7(8):e016242.CrossRef Kruse CS, Krowski N, Rodriguez B, Tran L, Vela J, Brooks M. Telehealth and patient satisfaction: a systematic review and narrative analysis. BMJ Open. 2017;7(8):e016242.CrossRef
19.
go back to reference LeRouge CM, Garfield MJ, Hevner AR. Patient perspectives of telemedicine quality. Patient Prefer Adherence. 2015;9:25–40.PubMed LeRouge CM, Garfield MJ, Hevner AR. Patient perspectives of telemedicine quality. Patient Prefer Adherence. 2015;9:25–40.PubMed
21.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.CrossRef
22.
go back to reference Frambach JM, van der Vleuten CP, Durning SJ. AM last page. Quality criteria in qualitative and quantitative research. Acad Med. 2013;88(4):552.PubMed Frambach JM, van der Vleuten CP, Durning SJ. AM last page. Quality criteria in qualitative and quantitative research. Acad Med. 2013;88(4):552.PubMed
23.
go back to reference Barello S, Triberti S, Graffigna G, Libreri C, Serino S, Hibbard J, Riva G. eHealth for Patient Engagement: A Systematic Review. Front Psychol. 2016;6:2013.CrossRef Barello S, Triberti S, Graffigna G, Libreri C, Serino S, Hibbard J, Riva G. eHealth for Patient Engagement: A Systematic Review. Front Psychol. 2016;6:2013.CrossRef
24.
go back to reference Smith J, Faux SG, Gardner T, Hobbs MJ, James MA, Joubert AE, Kladnitski N, Newby JM, Schultz R, Shiner CT, et al. Reboot Online: A Randomized Controlled Trial Comparing an Online Multidisciplinary Pain Management Program with Usual Care for Chronic Pain. Pain Med. 2019;20(12):2385–96.CrossRef Smith J, Faux SG, Gardner T, Hobbs MJ, James MA, Joubert AE, Kladnitski N, Newby JM, Schultz R, Shiner CT, et al. Reboot Online: A Randomized Controlled Trial Comparing an Online Multidisciplinary Pain Management Program with Usual Care for Chronic Pain. Pain Med. 2019;20(12):2385–96.CrossRef
25.
go back to reference Pester BD, Crouch TB, Christon L, Rodes J, Wedin S, Kilpatrick R, Pester MS, Borckardt J, Barth K. Gender differences in multidisciplinary pain rehabilitation: The mediating role of pain acceptance. J Contextual Behav Sci. 2022;23:117–24.CrossRef Pester BD, Crouch TB, Christon L, Rodes J, Wedin S, Kilpatrick R, Pester MS, Borckardt J, Barth K. Gender differences in multidisciplinary pain rehabilitation: The mediating role of pain acceptance. J Contextual Behav Sci. 2022;23:117–24.CrossRef
26.
go back to reference Devan H, Hale L, Hempel D, Saipe B, Perry MA. What Works and Does Not Work in a Self-Management Intervention for People With Chronic Pain? Qualitative Systematic Review and Meta-Synthesis. Phys Ther. 2018;98(5):381–97.CrossRef Devan H, Hale L, Hempel D, Saipe B, Perry MA. What Works and Does Not Work in a Self-Management Intervention for People With Chronic Pain? Qualitative Systematic Review and Meta-Synthesis. Phys Ther. 2018;98(5):381–97.CrossRef
27.
go back to reference Birnie KA, Killackey T, Stinson J, Noel M, Lorenzetti DL, Marianayagam J, Jordan I, Jordan E, Neville A, Pavlova M, et al. Best practices for virtual care to support youth with chronic pain and their families: a rapid systematic review to inform health care and policy during COVID-19 and beyond. Pain Rep. 2021;6(2):e935–e935.CrossRef Birnie KA, Killackey T, Stinson J, Noel M, Lorenzetti DL, Marianayagam J, Jordan I, Jordan E, Neville A, Pavlova M, et al. Best practices for virtual care to support youth with chronic pain and their families: a rapid systematic review to inform health care and policy during COVID-19 and beyond. Pain Rep. 2021;6(2):e935–e935.CrossRef
28.
go back to reference Chifamba N. A scoping review on the challenges of Telemedicine implementation the Southern Africa. 2018. Chifamba N. A scoping review on the challenges of Telemedicine implementation the Southern Africa. 2018.
Metadata
Title
“So, you must understand that that group changed everything”: perspectives on a telehealth group intervention for individuals with chronic pain
Authors
Dawn Ernstzen
Janet Keet
Kerry-Ann Louw
Jocelyn Park-Ross
Lorien Pask
Cameron Reardon
Maia Zway
Romy Parker
Publication date
01-12-2022
Publisher
BioMed Central
Keyword
Telemedicine
Published in
BMC Musculoskeletal Disorders / Issue 1/2022
Electronic ISSN: 1471-2474
DOI
https://doi.org/10.1186/s12891-022-05467-7

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