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BMC Public Health
Published in: BMC Public Health 1/2019

Open Access 01-12-2019 | Stroke | Research article

Supporting carers of stroke survivors to reduce carer burden: development of the Preparing is Caring intervention using Intervention Mapping

Authors: Jessica F. Hall, Thomas F. Crocker, David J. Clarke, Anne Forster

Published in: BMC Public Health | Issue 1/2019

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Abstract

Background

Burden is well documented among carers of stroke survivors, yet current evidence is insufficient to determine if any strategies reduce this negative outcome. Existing interventions for carers of stroke survivors typically involve supporting carers according to their individual needs through face-to-face interactions and provision of information including workbooks or educational guides. To date, no interventions have been developed using a method which systematically incorporates evidence, behaviour change theories, and stakeholder involvement to change the behaviours of carers and relevant individuals who support carers. This study aimed to develop a programme plan for a theory and evidence-based intervention to reduce burden in carers of stroke survivors.

Methods

Informed by evidence from two systematic reviews and 33 qualitative interviews, the first four stages of Intervention Mapping were used to guide the intervention development process: 1) needs assessment; 2) identifying outcomes and objectives; 3) selecting theoretical methods and practical applications; and 4) creating a programme plan. Structured and facilitated involvement from stakeholders, including carers, researchers, and professionals from health and community services was integral to the intervention development process. Stakeholders helped to prioritise the focus of the intervention, develop the goals, outcomes and objectives for the programme, and generate and refine intervention ideas.

Results

Stakeholders prioritised the need for carers to feel prepared before and during the transition from hospital to home as key to reducing burden. The proposed intervention ‘Preparing is Caring’ targets this need and involves providing and signposting carers to relevant information and support for practical and emotional needs. This is to be delivered before, during, and immediately after the stroke survivor’s transition from hospital to home by a person taking on a single point of contact role. It is comprised of multiple theory-based components including: training packages for information and support providers working with carers and wider staff teams, plus elements to support carers to feel prepared.

Conclusions

We have developed a comprehensive programme plan for a multiple-component, theory and evidence informed behaviour change intervention aimed at preparing carers before and during the transition from hospital to home. Future work is required to refine, implement and evaluate the Preparing is Caring intervention.
Appendix
Available only for authorised users
Footnotes
1
This doctoral research was conducted using the third and most current edition of the guidance available when the research commenced in 2014 [29]. During the intervention development process, a fourth edition of the guidance was introduced by Bartholomew Elderedge et al. [30]. The research continued based on the third edition; however the authors were mindful of any new material in the recent edition which could have a substantial impact on the research and content of this manuscript.
 
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Metadata
Title
Supporting carers of stroke survivors to reduce carer burden: development of the Preparing is Caring intervention using Intervention Mapping
Authors
Jessica F. Hall
Thomas F. Crocker
David J. Clarke
Anne Forster
Publication date
01-12-2019
Publisher
BioMed Central
Keyword
Stroke
Published in
BMC Public Health / Issue 1/2019
Electronic ISSN: 1471-2458
DOI
https://doi.org/10.1186/s12889-019-7615-2

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