Issue 1/2008
Content (115 Articles)
The burden of multiple sclerosis: A community health survey
C Allyson Jones, Sheri L Pohar, Sharon Warren, Karen VL Turpin, Kenneth G Warren
Cross-cultural adaptation of the Child Perceptions Questionnaire 11–14 (CPQ11–14) for the Brazilian Portuguese language
Daniela Goursand, Saul M Paiva, Patrícia M Zarzar, Maria L Ramos-Jorge, Gianfilippo M Cornacchia, Isabela A Pordeus, Paul J Allison
Development and validation of the WEll-being and Satisfaction of CAREgivers of Children with Diabetes Questionnaire (WE-CARE)
Joseph C Cappelleri, Robert A Gerber, Teresa Quattrin, Rosemarie Deutschmann, Xuemei Luo, Robert Arbuckle, Linda Abetz
Emotional and rational disease acceptance in patients with depression and alcohol addiction
Arndt Büssing, Peter F Matthiessen, Götz Mundle
Development and validation of the Brazilian version of the Attitudes to Aging Questionnaire (AAQ): An example of merging classical psychometric theory and the Rasch measurement model
Eduardo Chachamovich, Marcelo P Fleck, Clarissa M Trentini, Ken Laidlaw, Mick J Power
Measuring the impact of health problems among adults with limited mobility in Thailand: further validation of the Perceived Impact of Problem Profile
RoseAnne Misajon, Julie F Pallant, Lenore Manderson, Siriporn Chirawatkul
Measurement properties of the Brazilian version of the Pediatric Quality of Life Inventory (PedsQL™) cancer module scale
Ana C Scarpelli, Saul M Paiva, Isabela A Pordeus, Maria L Ramos-Jorge, James W Varni, Paul J Allison
Disability and quality of life in patients with fibromyalgia
Jeanine A Verbunt, Dia HFM Pernot, Rob JEM Smeets
Validation of a French language version of the Early Childhood Oral Health Impact Scale (ECOHIS)
Shanshan Li, Jacques Veronneau, Paul J Allison
Patient-reported benefit of ReSTOR® multi-focal intraocular lenses after cataract surgery: Results of Principal Component Analysis on clinical trial data
Gilles Berdeaux, Muriel Viala, Aude Roborel de Climens, Benoit Arnould
Comparing the SF-12 and SF-36 health status questionnaires in patients with and without obesity
Christina C Wee, Roger B Davis, Mary Beth Hamel
Reliability and validity of the Gastrointestinal Symptom Rating Scale (GSRS) and Quality of Life in Reflux and Dyspepsia (QOLRAD) questionnaire in dyspepsia: A six-country study
Károly R Kulich, Ahmed Madisch, Franco Pacini, Jose M Piqué, Jaroslaw Regula, Christo J Van Rensburg, László Újszászy, Jonas Carlsson, Katarina Halling, Ingela K Wiklund
Impact of chronic Immune Thrombocytopenic Purpura (ITP) on health-related quality of life: a conceptual model starting with the patient perspective
Susan D Mathias, Sue K Gao, Kimberly L Miller, David Cella, Claire Snyder, Ralph Turner, Albert Wu, James B Bussel, James N George, Robert McMillan, Diane Kholos Wysocki, Janet L Nichol
A randomised comparison of a four- and a five-point scale version of the Norwegian Function Assessment Scale
Nina Østerås, Pål Gulbrandsen, Andrew Garratt, Jūratë Šaltytë Benth, Fredrik A Dahl, Bård Natvig, Søren Brage
Comparing a disease-specific and a generic health-related quality of life instrument in subjects with asthma from the general population
Milo A Puhan, Jean-Michel Gaspoz, Pierre-Olivier Bridevaux, Christian Schindler, Ursula Ackermann-Liebrich, Thierry Rochat, Margaret W Gerbase
The Dutch version of the knee injury and osteoarthritis outcome score: A validation study
Ingrid B de Groot, Marein M Favejee, Max Reijman, Jan AN Verhaar, Caroline B Terwee
A Korean version of the Oral Impacts on Daily Performances (OIDP) scale in elderly populations: Validity, reliability and prevalence
Se-Hwan Jung, Jae-In Ryu, Georgios Tsakos, Aubrey Sheiham
Development of a parent version of the Manchester-Minneapolis quality of life survey for use by parents and carers of UK children: MMQL-UK (PF)
Hayley A Hutchings, Penney Upton, Wai-Yee Cheung, Alison Maddocks, Christine Eiser, John G Williams, Ian T Russell, Sonia Jackson, Meriel EM Jenney
Beyond satisfaction: Using the Dynamics of Care assessment to better understand patients' experiences in care
Bruce Rapkin, Elisa Weiss, Rosy Chhabra, Laura Ryniker, Shilpa Patel, Jason Carness, Roberto Adsuar, Wendy Kahalas, Carol DeLaMarter, Ira Feldman, Judy DeLorenzo, Ellen Tanner
Quality of life in children three and nine months after discharge from a paediatric intensive care unit: a prospective cohort study
Hendrika Knoester, Madelon B Bronner, Albert P Bos, Martha A Grootenhuis
Some psychometric properties of the Chinese version of the Modified Dental Anxiety Scale with cross validation
Siyang Yuan, Ruth Freeman, Satu Lahti, Ffion Lloyd-Williams, Gerry Humphris
Validation of an Estonian version of the Parkinson's Disease Questionnaire (PDQ-39)
Ülle Krikmann, Pille Taba, Taavi Lai, Toomas Asser
Predictors of quality of life: A quantitative investigation of the stress-coping model in children with asthma
Yvette Peeters, Sandra N Boersma, Hendrik M Koopman
Evaluation of quality of life and description of the sociodemographic state in adolescent and young adult patients with phenylketonuria (PKU)
Eva Simon, Martin Schwarz, Judith Roos, Nico Dragano, Max Geraedts, Johannes Siegrist, Gudrun Kamp, Udo Wendel
Voice restoration following total laryngectomy by tracheoesophageal prosthesis: Effect on patients' quality of life and voice handicap in Jordan
Abdelrahim Y Attieh, Jeff Searl, Nada H Shahaltough, Mahmoud M Wreikat, Donna S Lundy
Validation of an individualised quality of life measure in older day hospital patients
Miles D Witham, Roberta L Fulton, Lucy Wilson, Carolyn A Leslie, Marion ET McMurdo
Development and validation of an Eating Disorders Symptom Impact Scale (EDSIS) for carers of people with eating disorders
Ana R Sepulveda, Jenna Whitney, Matthew Hankins, Janet Treasure
Prevalence of and factors influencing posttraumatic stress disorder among mothers of children under five in Kabul, Afghanistan, after decades of armed conflicts
Kaoruko Seino, Takehito Takano, Taufiq Mashal, Shafiqullah Hemat, Keiko Nakamura
Do quality of life, participation and environment of older adults differ according to level of activity?
Mélanie Levasseur, Johanne Desrosiers, Denise St-Cyr Tribble
The Reflux Disease Questionnaire: a measure for assessment of treatment response in clinical trials
Michael Shaw, John Dent, Timothy Beebe, Ola Junghard, Ingela Wiklund, Tore Lind, Folke Johnsson
Validation of the nausea and vomiting of pregnancy specific health related quality of life questionnaire
Anaïs Lacasse, Anick Bérard
Characterizing the burden of premature ejaculation from a patient and partner perspective: a multi-country qualitative analysis
Dennis Revicki, Kellee Howard, Jennifer Hanlon, Sally Mannix, Alison Greene, Margaret Rothman
Quality of Life as reported by school children and their parents: a cross-sectional survey
Thomas Jozefiak, Bo Larsson, Lars Wichstrøm, Fritz Mattejat, Ulrike Ravens-Sieberer
The Pediatric Quality of Life Inventory™ (PedsQL™) family impact module: reliability and validity of the Brazilian version
Ana C Scarpelli, Saul M Paiva, Isabela A Pordeus, James W Varni, Cláudia M Viegas, Paul J Allison
Associations between disease severity, coping and dimensions of health-related quality of life in patients admitted for elective coronary angiography – a cross sectional study
Bjørg Ulvik, Ottar Nygård, Berit R Hanestad, Tore Wentzel-Larsen, Astrid K Wahl
Development and validation of a Greek language version of the Manchester Foot Pain and Disability Index
Patricia Kaoulla, Nicoletta Frescos, Hylton B Menz
Comparison of the self-administered and interviewer-administered modes of the child-OIDP
Georgios Tsakos, Eduardo Bernabé, Kevin O'Brien, Aubrey Sheiham, Cesar de Oliveira
Validation of the Korean version of the pediatric quality of life inventory™ 4.0 (PedsQL™) generic core scales in school children and adolescents using the rasch model
Seung Hee Kook, James W Varni
Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity
Irene J Higginson, Wei Gao
Reliability and construct validity of the Participation in Life Activities Scale for children and adolescents with asthma: an instrument evaluation study
Eileen K Kintner, Alla Sikorskii
A systematic review of mobility instruments and their measurement properties for older acute medical patients
Natalie A de Morton, David J Berlowitz, Jennifer L Keating
Enhancing quality of life in older adults: A comparison of muscular strength and power training
Jeffrey A Katula, W Jack Rejeski, Anthony P Marsh
The minimal important difference of the hospital anxiety and depression scale in patients with chronic obstructive pulmonary disease
Milo A Puhan, Martin Frey, Stefan Büchi, Holger J Schünemann
Cross-diagnostic validity of the Nottingham health profile index of distress (NHPD)
Christine Wann-Hansson, Rosemarie Klevsgård, Peter Hagell
Development of the Knee Quality of Life (KQoL-26) 26-item questionnaire: data quality, reliability, validity and responsiveness
Andrew M Garratt, Stephen Brealey, Michael Robling, Chris Atwell, Ian Russell, William Gillespie, David King
Patterns of health-related quality of life and patterns associated with health risks among Rhode Island adults
Yongwen Jiang, Jana Earl Hesser
Satisfaction of inpatients with acute coronary syndrome in Bulgaria
Milka Ganova-Iolovska, Krassimir Kalinov, Max Geraedts
Do estimates of cost-utility based on the EQ-5D differ from those based on the mapping of utility scores?
Garry R Barton, Tracey H Sach, Claire Jenkinson, Anthony J Avery, Michael Doherty, Kenneth R Muir
Thai SF-36 health survey: tests of data quality, scaling assumptions, reliability and validity in healthy men and women
Lynette L-Y Lim, Sam-ang Seubsman, Adrian Sleigh
Gastrointestinal (GI)-Specific patient reported outcomes instruments differentiate between renal transplant patients with or without GI symptoms: results from a South American cohort
Gerardo Machnicki, Jacqueline Pefaur, Luis Gaite, Ana M Linchenco, Clemente Raimondi, Ruben Schiavelli, Alcira Otero, Mary Kay Margolis
Social aspects of living with rheumatoid arthritis: a qualitative descriptive study in Soweto, South Africa – a low resource context
Marguerite Schneider, Esther Manabile, Mohammed Tikly
Magnitude and meaningfulness of change in SF-36 scores in four types of orthopedic surgery
Lucy Busija, Richard H Osborne, Anna Nilsdotter, Rachelle Buchbinder, Ewa M Roos
Indoors illumination and seasonal changes in mood and behavior are associated with the health-related quality of life
Sharon Grimaldi, Timo Partonen, Samuli I Saarni, Arpo Aromaa, Jouko Lönnqvist
Simple imputation methods were inadequate for missing not at random (MNAR) quality of life data
Shona Fielding, Peter M Fayers, Alison McDonald, Gladys McPherson, Marion K Campbell
The Cervical Dystonia Impact Profile (CDIP-58): Can a Rasch developed patient reported outcome measure satisfy traditional psychometric criteria?
Stefan J Cano, Thomas T Warner, Alan J Thompson, Kailash P Bhatia, Ray Fitzpatrick, Jeremy C Hobart
Initial validation of the Argentinean Spanish version of the PedsQL™ 4.0 Generic Core Scales in children and adolescents with chronic diseases: acceptability and comprehensibility in low-income settings
Mariana Roizen, Susana Rodríguez, Gabriela Bauer, Gabriela Medin, Silvina Bevilacqua, James W Varni, Veronica Dussel
Quality of life among adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting stress
Lamia P Barakat, Chavis A Patterson, Lauren C Daniel, Carlton Dampier
Integration of immigrants into a new culture is related to poor sleep quality
Ursula Voss, Inka Tuin
Conceptual adequacy of the neuropathic pain symptom inventory in six countries
Bruce Crawford, Didier Bouhassira, Audrey Wong, Ellen Dukes
The de Morton Mobility Index (DEMMI): An essential health index for an ageing world
Natalie A de Morton, Megan Davidson, Jennifer L Keating
Comparison of the discriminative ability of a generic and a condition-specific OHRQoL measure in adolescents with and without normative need for orthodontic treatment
Eduardo Bernabé, Cesar M de Oliveira, Aubrey Sheiham
Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses
Stephen P McKenna, Julie Ratcliffe, David M Meads, John E Brazier
Predictors of health-related quality of life in patients with colorectal cancer
Kathleen J Yost, Elizabeth A Hahn, Alan M Zaslavsky, John Z Ayanian, Dee W West
Effects of glatiramer acetate on fatigue and days of absence from work in first-time treated relapsing-remitting multiple sclerosis
Tjalf Ziemssen, Josef Hoffman, Rainer Apfel, Simone Kern
Child-OIDP index in Brazil: Cross-cultural adaptation and validation
Rodolfo AL Castro, Maria IS Cortes, Anna T Leão, Margareth C Portela, Ivete PR Souza, Georgios Tsakos, Wagner Marcenes, Aubrey Sheiham
Identification of symptom domains in ulcerative colitis that occur frequently during flares and are responsive to changes in disease activity
Joel C Joyce, Akbar K Waljee, Tahira Khan, Patricia A Wren, Maneesh Dave, Ellen M Zimmermann, Sijian Wang, Ji Zhu, Peter DR Higgins
Life satisfaction in patients with long-term non-malignant pain – relating LiSat-11 to the Multidimensional Pain Inventory (MPI)
Annika J Silvemark, Håkan Källmén, Kamilla Portala, Carl Molander
A comparison of EQ-5D index scores using the UK, US, and Japan preference weights in a Thai sample with type 2 diabetes
Phantipa Sakthong, Rungpetch Charoenvisuthiwongs, Rossamalin Shabunthom
Improvement of quality of life, anxiety and depression after surgery in patients with stress urinary incontinence: Results of a longitudinal short-term follow-up
Petra C Innerkofler, Verena Guenther, Peter Rehder, Martin Kopp, Dominic P Nguyen-Van-Tam, Johannes M Giesinger, Bernhard Holzner
Utility values for symptomatic non-severe hypoglycaemia elicited from persons with and without diabetes in Canada and the United Kingdom
Adrian R Levy, Torsten LU Christensen, Jeffrey A Johnson
Patient satisfaction with primary care: an observational study comparing anthroposophic and conventional care
Barbara M Esch, Florica Marian, André Busato, Peter Heusser
Adalimumab improves health-related quality of life in patients with moderate to severe plaque psoriasis compared with the United States general population norms: Results from a randomized, controlled Phase III study
Dennis A Revicki, Alan Menter, Steven Feldman, Miriam Kimel, Neesha Harnam, Mary K Willian
Exploring disability from the perspective of adults living with HIV/AIDS: Development of a conceptual framework
Kelly K O'Brien, Ahmed M Bayoumi, Carol Strike, Nancy L Young, Aileen M Davis
Body mass index and health related quality of life in elementary school children: a pilot study
Lei Zhang, Peter J Fos, William D Johnson, Vafa Kamali, Reagan G Cox, Miguel A Zuniga, Theresa Kittle
Development and validation of a French patient-based health-related quality of life instrument in kidney transplant: the ReTransQoL
Stéphanie Gentile, Elisabeth Jouve, Bertrand Dussol, Valerie Moal, Yvon Berland, Roland Sambuc
The relationship between anxiety, coping strategies and characteristics of patients with diabetes
Tarik Tuncay, Ilgen Musabak, Deniz Engin Gok, Mustafa Kutlu
Patient experiences with oily skin: The qualitative development of content for two new patient reported outcome questionnaires
Robert Arbuckle, Mark J Atkinson, Marci Clark, Linda Abetz, Jan Lohs, Ilka Kuhagen, Jane Harness, Zoe Draelos, Diane Thiboutot, Ulrike Blume-Peytavi, Kati Copley-Merriman
Understanding the role of discriminative instruments in HRQoL research: can Ferguson's Delta help?
Kathleen W Wyrwich
Discrimination and reliability: equal partners? Understanding the role of discriminative instruments in HRQoL research: can Ferguson's Delta help? A response
Matthew Hankins
Health state utilities for non small cell lung cancer
Beenish Nafees, Megan Stafford, Sonia Gavriel, Shkun Bhalla, Jessamy Watkins
Sense of coherence as a resource in relation to health-related quality of life among mentally intact nursing home residents – a questionnaire study
Jorunn Drageset, Harald A Nygaard, Geir Egil Eide, Margareth Bondevik, Monica W Nortvedt, Gerd Karin Natvig
Validity and internal consistency of a Hausa version of the Ibadan knee/hip osteoarthritis outcome measure
Adesola C Odole, Aderonke O Akinpelu
Evaluating the reliability, validity and minimally important difference of the Taiwanese version of the diabetes quality of life (DQOL) measurement
I-Chan Huang, Jung-Hua Liu, Albert W Wu, Ming-Yen Wu, Walter Leite, Chyng-Chuang Hwang
Outcomes of adding second hypoglycemic drug after metformin monotherapy failure among type 2 diabetes in Hungary
György Jermendy, Diana Erdesz, Laszlo Nagy, Don Yin, Hemant Phatak, Sudeep Karve, Samuel Engel, Rajesh Balkrishnan
Reflections on changeability versus stability of health-related quality of life: distinguishing between its environmental and genetic components
Mirjam AG Sprangers, Carolyn E Schwartz
Is global quality of life reduced before fracture in patients with low-energy wrist or hip fracture? A comparison with matched controls
Gudrun Rohde, Glenn Haugeberg, Anne Marit Mengshoel, Torbjorn Moum, Astrid K Wahl
Quality of life among parents of children with heart disease
Mostafa A Arafa, Salah R Zaher, Amira A El-Dowaty, Dalia E Moneeb
Onset and persistence of person-perceived participation restriction in older adults: a 3-year follow-up study in the general population
Ross Wilkie, Elaine Thomas, Sara Mottram, George Peat, Peter Croft
Prevalence of stress, anxiety and depression in with Alzheimer caregivers
Maria Ferrara, Elisa Langiano, Tommasina Di Brango, Luigi Di Cioccio, Claudia Bauco, Elisabetta De Vito
Correspondence between EQ-5D health state classifications and EQ VAS scores
David K Whynes
The longitudinal link between visual acuity and health-related quality of life in patients with diabetic retinopathy
Louis S Matza, Matthew D Rousculp, Karen Malley, Kristina S Boye, Alan Oglesby
Health-related quality of life assessment in Indonesian childhood acute lymphoblastic leukemia
Mei N Sitaresmi, Saskia Mostert, Chad M Gundy, Sutaryo, Anjo JP Veerman
Logistic feasibility of health related quality of life measurement in clinical practice: results of a prospective study in a large population of chronic liver patients
Jolie J Gutteling, Jan JV Busschbach, Robert A de Man, Anne-Sophie E Darlington
Health predicting factors in a general population over an eight-year period in subjects with and without chronic musculoskeletal pain
Susann Arvidsson, Barbro Arvidsson, Bengt Fridlund, Stefan Bergman
The responsiveness of the uterine fibroid symptom and health-related quality of life questionnaire (UFS-QOL)
Gale Harding, Karin S Coyne, Christine L Thompson, James B Spies
Fatigue characteristics in multiple sclerosis: the North American Research Committee on Multiple Sclerosis (NARCOMS) survey
Olympia Hadjimichael, Timothy Vollmer, MerriKay Oleen-Burkey
Validation of two complementary oral-health related quality of life indicators (OIDP and OSS 0-10 ) in two qualitatively distinct samples of the Spanish population
J Montero, M Bravo, A Albaladejo
Impact of a child with congenital anomalies on parents (ICCAP) questionnaire; a psychometric analysis
Petra Mazer, Saskia J Gischler, Hans M Koot, Dick Tibboel, Monique van Dijk, Hugo J Duivenvoorden
Effect of dexamethasone on quality of life in children with acute lymphoblastic leukaemia: a prospective observational study
Machteld AG de Vries, Raphaële RL van Litsenburg, Jaap Huisman, Martha A Grootenhuis, A Birgitta Versluys, Gert Jan L Kaspers, Reinoud JBJ Gemke
Pictorial Representation of Illness and Self Measure Revised II (PRISM-RII) – a novel method to assess perceived burden of illness in diabetes patients
Sandor Klis, Ad JJM Vingerhoets, Maartje de Wit, Noortje Zandbelt, Frank J Snoek
Impact of schizophrenia and schizophrenia treatment-related adverse events on quality of life: direct utility elicitation
Andrew Briggs, Diane Wild, Michael Lees, Matthew Reaney, Serdar Dursun, David Parry, Jayanti Mukherjee
The assessment of health-related quality of life in relation to the body mass index value in the urban population of Belgrade
Nadja Vasiljevic, Sonja Ralevic, Jelena Marinkovic, Nikola Kocev, Milos Maksimovic, Gorica Sbutega Milosevic, Jelena Tomic
An exploratory study to evaluate the utility of an adapted Mother Generated Index (MGI) in assessment of postpartum quality of life in India
Jitender Nagpal, Rinku Sen Gupta Dhar, Swati Sinha, Vijaylakshmi Bhargava, Aarti Sachdeva, Abhishek Bhartia
The reliability and validity of the SF-8 with a conflict-affected population in northern Uganda
Bayard Roberts, John Browne, Kaducu Felix Ocaka, Thomas Oyok, Egbert Sondorp
Psychometric properties of the Child Health Assessment Questionnaire (CHAQ) applied to children and adolescents with cerebral palsy
Nívea MO Morales, Carolina AR Funayama, Viviane O Rangel, Ana Cláudia Frontarolli, Renata RH Araújo, Rogério MC Pinto, Carlos HA Rezende, Carlos HM Silva
Fatness and fitness: how do they influence health-related quality of life in type 2 diabetes mellitus?
Wendy L Bennett, Pamela Ouyang, Albert W Wu, Bethany B Barone, Kerry J Stewart
How do medical students value health on the EQ-5D? Evaluation of hypothetical health states compared to the general population
Maria-Theresa Barbist, Daniela Renn, Bianca Noisternig, Gerhard Rumpold, Stefan Höfer
Change in patient concerns following total knee arthroplasty described with the International Classification of Functioning, Disability and Health: a repeated measures design
Ravi Rastogi, Bert M Chesworth, Aileen M Davis
Evaluation of the reliability and validity of the Medical Outcomes Study sleep scale in patients with painful diabetic peripheral neuropathy during an international clinical trial
Muriel Viala-Danten, Susan Martin, Isabelle Guillemin, Ron D Hays
Struggles, strengths, and strategies: an ethnographic study exploring the experiences of adolescents living with an ostomy
David B Nicholas, Sylvia R Swan, Ted J Gerstle, Theresa Allan, Anne Marie Griffiths
What determines subjective health status in patients with chronic obstructive pulmonary disease: importance of symptoms in subjective health status of COPD patients
Signe Berit Bentsen, Anne Hildur Henriksen, Tore Wentzel-Larsen, Berit Rokne Hanestad, Astrid Klopstad Wahl