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Journal of Community Health
Published in: Journal of Community Health 1/2012

01-02-2012 | Original Paper

Reported Benefits of Participation in a Research Study

Authors: Anabella G. Castillo, Lina Jandorf, Linda D. Thélémaque, Sheba King, Katherine Duhamel

Published in: Journal of Community Health | Issue 1/2012

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Abstract

Racial and ethnic minorities are significantly underrepresented in clinical research trials. Several socio-cultural and systemic barriers, ranging from discrimination by the health care system, medical mistrust, to low physician referral rates and lack of knowledge of research studies have been identified as impacting participation. One hundred and fifteen participants were culturally matched and were interviewed followed by up to an additional four interviews over a 12 month period. Responses were analyzed to understand the perceived benefits to participating in a prospective, randomized, longitudinal clinical research trial about screening colonoscopy. Over two-thirds (64.4%) of participants reported “knowledge, awareness, and/or information about colonoscopy and general health” as being the greatest benefit they received. Desire to undergo the screening and the pride of completing the study was ranked second and third, respectively. Understanding the reasons that participants choose to participate in research studies will ultimately assist researchers close the gap in minority representation, allowing for greater generalizability of research findings.
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Metadata
Title
Reported Benefits of Participation in a Research Study
Authors
Anabella G. Castillo
Lina Jandorf
Linda D. Thélémaque
Sheba King
Katherine Duhamel
Publication date
01-02-2012
Publisher
Springer US
Published in
Journal of Community Health / Issue 1/2012
Print ISSN: 0094-5145
Electronic ISSN: 1573-3610
DOI
https://doi.org/10.1007/s10900-011-9416-0

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