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Open Access 01-11-2012 | Meeting abstract

Rare family days: a family empowerment programme

Authors: Ane Lind, Lene Jensen, Birthe B Holm

Published in: Orphanet Journal of Rare Diseases | Special Issue 2/2012

Excerpt

Having a seriously ill child is intrusive for the entire family. Still, knowledge about how to manage family life for these families is limited, especially when the diagnosis is rare. To offer tools to cope with their situation, Rare Disorders Denmark (RDD) developed Rare Family Days (RFD). …

Title: Rare family days: a family empowerment programme
Authors: Ane Lind
Lene Jensen
Birthe B Holm
Publication date: 01-11-2012
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 2/2012
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-7-S2-A34

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Rare family days: a family empowerment programme

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