Issue 3/2014
Special Section: Pediatric Quality of Life
Content (29 Articles)
Measuring pediatric patient-reported outcomes: good progress but a long way to go
I-Chan Huang, Dennis A. Revicki, Carolyn E. Schwartz
Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions
Nora Fayed, Olaf Kraus de Camargo, Inam Elahi, Ankita Dubey, Ricardo M. Fernandes, Amy Houtrow, Eyal Cohen
A review of patient-reported outcomes for children and adolescents with obesity
Bani Ahuja, Anne F. Klassen, Randi Satz, Nikita Malhotra, Elena Tsangaris, Matthew Ventresca, Nora Fayed
Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model
Samantha J. Anthony, Enid Selkirk, Lillian Sung, Robert J. Klaassen, David Dix, Katrin Scheinemann, Anne F. Klassen
The European KIDSCREEN approach to measure quality of life and well-being in children: development, current application, and future advances
Ulrike Ravens-Sieberer, Michael Herdman, Janine Devine, Christiane Otto, Monika Bullinger, Matthias Rose, Fionna Klasen
Longitudinal construct validity of the Health Utilities Indices Mark 2 and Mark 3 in hip fracture
C. Allyson Jones, Sheri L. Pohar, David H. Feeny, Ken Eng
Development and validation of the functional assessment of chronic illness therapy treatment satisfaction (FACIT TS) measures
John D. Peipert, Jennifer L. Beaumont, Rita Bode, Dave Cella, Sofia F. Garcia, Elizabeth A. Hahn
International development of an EORTC questionnaire for assessing health-related quality of life in chronic myeloid leukemia patients: the EORTC QLQ-CML24
Fabio Efficace, Michele Baccarani, Massimo Breccia, Susanne Saussele, Gregory Abel, Giovanni Caocci, Francois Guilhot, Kim Cocks, Adel Naeem, Mirjam Sprangers, Simone Oerlemans, Weichu Chie, Fausto Castagnetti, Felice Bombaci, Giora Sharf, Annarita Cardoni, Lucien Noens, Stephan Pallua, Marzia Salvucci, Ourania Nicolatou-Galitis, Gianantonio Rosti, Franco Mandelli
Development of a measure of asthma-specific quality of life among adults
Nicole K. Eberhart, Cathy D. Sherbourne, Maria Orlando Edelen, Brian D. Stucky, Nancy L. Sin, Marielena Lara
The EORTC QLQ-C15-PAL questionnaire: validation study for Spanish bone metastases patients
Juan Ignacio Arraras, Fernando Arias de la Vega, Gemma Asin, Mikel Rico, Uxue Zarandona, Clara Eito, Koldo Cambra, Marta Barrondo, Marta Errasti, Juan Verdún, Jose Rivadeneira, Miguel Angel Dominguez
The Spanish version of the Warwick-Edinburgh Mental Well-Being Scale (WEMWBS) is valid for use in the general population
Pere Castellví, Carlos G. Forero, Miquel Codony, Gemma Vilagut, Pilar Brugulat, Antonia Medina, Andrea Gabilondo, Anna Mompart, Joan Colom, Ricard Tresserras, Montse Ferrer, Sarah Stewart-Brown, Jordi Alonso
Preliminary reliability and validity of Persian version of the Family Dermatology Life Quality Index (FDLQI)
H. Safizadeh, N. Nakhaee, S. Shamsi-meymandi, N. Pourdamghan, M. K. A. Basra
Psychometric evaluation of the hepatitis C virus patient-reported outcomes (HCV-PRO) instrument: validity, responsiveness, and identification of the minimally important difference in a phase 2 clinical trial
Roger T. Anderson, Robert W. Baran, Pennifer Erickson, Dennis A. Revicki, Birgitta Dietz, Katherine Gooch
Qualitative development of the ‘Questionnaire on Pain caused by Spasticity (QPS),’ a pediatric patient‐reported outcome for spasticity‐related pain in cerebral palsy
Thorin L. Geister, Manjari Quintanar-Solares, Mona Martin, Stephan Aufhammer, Friedrich Asmus
Equivalence and measurement properties of an electronic version of the Psoriasis Symptom Inventory
Donald M. Bushnell, Mona L. Martin, Michael Scanlon, TeChieh Chen, Dina Chau, Hema N. Viswanathan
Validity and reliability of the Chinese version of the Short Form of Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q-SF)
Yun-Tse Lee, Shen-Ing Liu, Hui-Chun Huang, Fang-Ju Sun, Chiu-Ron Huang, Albert Yeung
Psychometric properties of the Dutch Short Musculoskeletal Function Assessment (SMFA) questionnaire in patients with a fracture of the upper or lower extremity
M. A. C. Van Son, B. L. Den Oudsten, J. A. Roukema, T. Gosens, M. H. J. Verhofstad, J. De Vries
Validity, reliability and discriminative capacity of an electronic quality of life instrument (Pelican) for childhood asthma in the Netherlands
S. van Bragt, L. van den Bemt, B. Thoonen, J. Jacobs, P. Merkus, T. Schermer
Quality of life for parents of children with influenza-like illness: development and validation of Care-ILI-QoL
Maria Yui Kwan Chow, Angela Morrow, Leon Heron, Jiehui Kevin Yin, Robert Booy, Julie Leask
Validation of the Rhinoplasty Outcomes Evaluation (ROE) questionnaire adapted to Brazilian Portuguese
Suemy Cioffi Izu, Eduardo Macoto Kosugi, Alessandra Stanquini Lopes, Karen Vitols Brandão, Leonardo Bomediano Garcia Sousa, Vinícius Magalhães Suguri, Luis Carlos Gregório
Understanding social forces involved in diabetes outcomes: a systems science approach to quality-of-life research
David W. Lounsbury, Gary B. Hirsch, Chawntel Vega, Carolyn E. Schwartz
Reporting of health-related quality of life (HRQOL) data in oncology trials: a comparison of the European Organization for Research and Treatment of Cancer Quality of Life (EORTC QLQ-C30) and the Functional Assessment of Cancer Therapy-General (FACT-G)
Adam B. Smith, Kim Cocks, David Parry, Matthew Taylor
Assessing the performance of the EQ-VAS in the NHS PROMs programme
Yan Feng, David Parkin, Nancy J. Devlin
Demographic and clinical characteristics associated with quality of life in patients with chronic obstructive pulmonary disease
Signe Berit Bentsen, Christine Miaskowski, Tone Rustøen
Quality of life of glaucoma patients in China: sociodemographic, clinical, and psychological correlates—a cross-sectional study
Chuandi Zhou, Shaohong Qian, Peixia Wu, Chen Qiu
Health-risk behaviors and quality of life among young men
Michelle Dey, Gerhard Gmel, Joseph Studer, Meichun Mohler-Kuo
The impact of severe preeclampsia on maternal quality of life
Christina Stern, Eva-Maria Trapp, Eva Mautner, Maria Deutsch, Uwe Lang, Mila Cervar-Zivkovic
Change in quality of life and predictors of change among patients with multiple sclerosis: a prospective cohort study
Darija Kisic Tepavcevic, Tatjana Pekmezovic, Nebojsa Stojsavljevic, Jelena Kostic, Irena Dujmovic Basuroski, Sarlota Mesaros, Jelena Drulovic
The mediating role of disability and social support in the association between low vision and depressive symptoms in older adults
Gertrudis I. J. M. Kempen, Adelita V. Ranchor, Ton Ambergen, G. A. Rixt Zijlstra