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Open Access 01-12-2009 | Review

Progress along developmental tracks for electronic health records implementation in the United States

Author: David W Hollar

Published in: Health Research Policy and Systems | Issue 1/2009

Abstract

The development and implementation of electronic health records (EHR) have occurred slowly in the United States. To date, these approaches have, for the most part, followed four developmental tracks: (a) Enhancement of immunization registries and linkage with other health records to produce Child Health Profiles (CHP), (b) Regional Health Information Organization (RHIO) demonstration projects to link together patient medical records, (c) Insurance company projects linked to ICD-9 codes and patient records for cost-benefit assessments, and (d) Consortia of EHR developers collaborating to model systems requirements and standards for data linkage. Until recently, these separate efforts have been conducted in the very silos that they had intended to eliminate, and there is still considerable debate concerning health professionals access to as well as commitment to using EHR if these systems are provided. This paper will describe these four developmental tracks, patient rights and the legal environment for EHR, international comparisons, and future projections for EHR expansion across health networks in the United States.

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Murray CJL, Kulkarni SC, Michaud C, Tomijima N, Bulzacchelli MT, Iandiorio TJ, Ezzati M: Eight Americas: Investigating mortality disparities across races, counties, and race-counties in the United States. PLoS Med. 2006, 3: e260-10.1371/journal.pmed.0030260.CrossRefPubMedPubMedCentral

Kohn LT, Corrigan JM, Donaldson MS, Eds: To err is human: building a safer health system. 2000, Washington, DC, Institute of Medicine/National Academies Press, [http://www.nap.edu]

Smedley BD, Stith AY, Nelson AR, Eds: Unequal treatment: Confronting racial and ethnic disparities in health care. 2003, Washington, DC, Institute of Medicine/National Academies Press, [http://www.nap.edu]

IOM Committee on Quality of Health Care in America: Crossing the quality chasm: A new health system for the 21^st century. 2001, Washington, DC, Institute of Medicine/National Academies Press, [http://www.nap.edu]

Davis K, Schoen C, Schoenbaum SC, Doty MM, Holmgren AL, Kriss JL, Shea KK: Mirror, mirror on the wall: an international update on the comparative performance of American health care. 2007, New York, The Commonwealth Fund, [http://www.commonwealthfund.org]

Yasnoff WA, Humphreys BL, Overhage JM, Detmer DE, Brennan PF, Morris RW, Middleton B, Bates DW, Fanning JP: A consensus action agenda for achieving the National Health Information Infrastructure. J Am Med Inform Assoc. 2004, 11: 332-338. 10.1197/jamia.M1616.CrossRefPubMedPubMedCentral

Ford EW, Menachemi N, Phillips MT: Predicting the adoption of electronic health records by physicians: when will health care be paperless?. J Am Med Inform Assoc. 2004, 13: 106-112. 10.1197/jamia.M1913.CrossRef

American Recovery and Reinvestment Plan of 2009. Congressional Record – U.S. House of Representatives, H1307–H1516. 2009, [http://www.gpoaccess.gov/crecord/index.html]

Hinman AR, Eichwald J, Linzer D, Saarlas KN: Integrating child health information systems. Am J Public Health. 2005, 95: 1923-1927. 10.2105/AJPH.2004.051466.CrossRefPubMedPubMedCentral

10.

Linzer DS, Lloyd-Puryear MA, Mann M, Kogan MD: Evolution of a child health profile initiative. J Public Health Manag Practice. 2004, November (Suppl): S16-S23. [http://www.jphmp.org]CrossRef

11.

McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, Perrin JM, Shonkoff JP, Strickland B: A new definition of children with special health care needs. Pediatrics. 1998, 102: 137-139. 10.1542/peds.102.1.137.CrossRefPubMed

12.

van Dyck PC, Kogan MD, McPherson MG, Weissman GR, Newacheck PW: Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med. 2004, 158: 884-890. 10.1001/archpedi.158.9.884.CrossRefPubMed

13.

Huang ZJ, Kogan MD, Yu SM, Strickland B: Delayed or forgone care among children with special health care needs: an analysis of the 2001 National Survey of Children with Special Health Care Needs. Ambul Pediatr. 2005, 5: 60-67. 10.1367/A04-073R.1.CrossRefPubMed

14.

U.S. Department of Health and Human Services: Healthy People 2010. Washington, DC. 2000, [http://www.healthypeople.gov]

15.

Arias E: United States life tables, 2000. National Vital Statistics Reports. 2002, 51: 1-38. [http://www.cdc.gov/nchs/products/nvsr.htm]PubMed

16.

Sutton PD, Matthews TJ: Trends in characteristics of births by state: United States, 1990, 1995, and 2000–2002. National Vital Statistics Reports. 2004, 52: 1-152. [http://www.cdc.gov/nchs/products/nvsr.htm]PubMed

17.

Waisbren SE, Albers S, Amato S, Ampola M, Brewster TG, Demmer L, Eaton RB, Greenstein R, Korson M, Larson C, Marsden D, Msall M, Naylor EW, Pueschel S, Seashore M, Shih VE, Levy HL: Effect of expanded newborn screening for biochemical genetic disorders on child outcomes and parental stress. JAMA. 2003, 290: 2564-2572. 10.1001/jama.290.19.2564.CrossRefPubMed

18.

Desposito F, Lloyd-Puryear M, Tonniges TF, Rhein F, Mann M: Survey of pediatrician practices in retrieving statewide authorized newborn screening results. Pediatrics. 2001, 108: 1-8. 10.1542/peds.108.2.e22.CrossRef

19.

American Academy of Pediatrics Newborn Screening Task Force: Serving the family from birth to the medical home – Newborn Screening: A blueprint for the future, a call for a national agenda on state newborn screening programs. Pediatrics. 2000, 106: 389-427.

20.

Hollar D, Copeland MA, Lozzio C, Lainhart R, Wilson B, Blake T, Fleshood L: Tennessee Child Health Profile (TN-CHP): An integrated data warehouse serving children with special health care needs. Proceedings of the 132nd Annual Meeting of the American Public Health Association: 6–10. 2004, [http://apha.confex.com/apha/132am/techprogram/paper_90928.htm]November ; Washington, DC

21.

March of Dimes: Maternal, infant, and child health in the United States, 2003. Washington, DC. 2003, [http://www.marchofdimes.com]

22.

Swanson R: Protecting Michigan's children using the Michigan Childhood Immunization Registry (MCIR). Proceedings of All Kids Count: Developing Child Health Information Systems to meet Medical Care and Public Health Needs: 3–4. 2003, Atlanta, GA, Public Health Informatics Institute, [http://www.phii.org/oldsite/Files-AKC/VisionConfproceedings_30mar2004.pdf]December

23.

Schulze A, Lindner M, Kohlmuller D, Olgemoller K, Mayatepek E, Hoffmann GF: Expanded newborn screening for inborn errors of metabolism by electrospray ionization-Tandem Mass Spectrometry: results, outcome, and implications. Pediatrics. 2003, 111: 1399-1406. 10.1542/peds.111.6.1399.CrossRefPubMed

24.

Green NS, Dolan SM, Murray TH: Newborn screening: Complexities in universal genetic testing. Am J Public Health. 2006, 96: 1955-1959. 10.2105/AJPH.2005.070300.CrossRefPubMedPubMedCentral

25.

Public Health Informatics Institute: Rhode Island: Confidentiality, the challenge of time, growth and change – Factors triggering reassessment for integrated information systems. Connections: Creating a road map – Sharing knowledge about integrating child health information systems. Decatur, GA. 2004, 209-230. [http://www.phii.org/resources]

26.

Fehrenbach SN, Kelly JCR, Vu C: Integration of child health information systems: Current state and local health department efforts. J Public Health Manag Pract. 2004, S30-S35. Suppl

27.

Hinman AR, Atkinson D, Diehn TN, Eichwald J, Heberer J, Hoyle T, King P, Kossack RE, Williams DC, Zimmerman A: Principles and core functions of integrated child health information systems. J Public Health Manag Practice. 2004, S52-S56. Suppl

28.

Levy HL, Sepe SJ, Shih VE, Vawter GF, Klein JO: Sepsis due to Escherichia coli in neonates with galactosemia. N Eng J Med. 1977, 297: 823-825. [http://content.nejm.org/]CrossRef

29.

Greenberg CR, Dilling LA, Thompson R, Ford JD, Seargeant LE, Haworth JC: Newborn screening for galactosemia: a new method used in Manitoba. Pediatrics. 1989, 84: 331-335.PubMed

30.

Burton BK: Inborn errors of metabolism in infancy: a guide to diagnosis. Pediatrics. 1998, 102: e69-10.1542/peds.102.6.e69.CrossRefPubMed

31.

D'Alessandro DM, Dosa NP: Empowering children and families with information technology. Arch Pediatr Adolesc Med. 2001, 155: 1131-1136.CrossRefPubMed

32.

Sia C, Tonniges TF, Osterhus E, Taba S: History of the medical home concept. Pediatrics. 2004, 113: 1473-1478.PubMed

33.

Strickland B, McPherson M, Weissman G, van Dyck P, Huang ZJ, Newacheck P: Access to the medical home: results of the National Survey of Children with Special Health Care Needs. Pediatrics. 2004, 113: 1485-1492.PubMed

34.

Cooley WC, McAllister JW: Building medical homes: Improvement strategies in primary care for children with special health care needs. Pediatrics. 2004, 113: 1499-1506.PubMed

35.

Hastings TM: Family perspectives on integrated child health information systems. J Public Health Manag Practice. 2004, November (Suppl): S24-S29. [http://www.jphmp.org]CrossRef

36.

Gurian EA, Kinnamon DD, Henry JJ, Waisbren SE: Expanded newborn screening for biochemical disorders: the effect of a false-positive result. Pediatrics. 2006, 117: 915-1921. 10.1542/peds.2005-2294.CrossRef

37.

Tarini BA, Christakis DA, Welch HG: State newborn screening in the tandem mass spectrometry era: More tests, more false-positive results. Pediatrics. 2006, 118: 448-456. 10.1542/peds.2005-2026.CrossRefPubMed

38.

Hollar D, Lozzio C, Lemak R, Eubanks RL, Evans M: Key elements in partnership and infrastructure development for electronic child health profiles: a description of two parallel, complementary projects. Proceedings of the 133rd Annual Meeting of the American Public Health Association, 9–14. 2005, [http://apha.confex.com/apha/133am/techprogram/paper_110913.htm]December ; Philadelphia

39.

Wild EL, Fehrenbach SN: Assessing organizational readiness and capacity for developing an integrated child health information system. J Public Health Manag Pract. 2004, S48-S51. [http://www.jphmp.org]Suppl

40.

Wild EL, Hastings TM, Gubernick R, Ross DA, Fehrenbach SN: Key elements for successful integrated health information systems: Lessons from the states. J Public Health Manag Practice. 2004, November (Suppl): S36-S47. [http://www.jphmp.org]CrossRef

41.

Slagle TA: Perinatal information systems for quality improvement: Visions for today. Pediatrics. 1999, 103: 266-277.PubMed

42.

Handler A, Grason H, Ruderman M, Issel M, Turnock B: Assessing capacity and measuring performance in maternal and child health. Mat Child Health J. 2002, 6: 115-126. 10.1023/A:1015468308649.CrossRef

43.

Beal AC, Co JPT, Dougherty D, Jorsling T, Kam J, Perrin J, Palmer RH: Quality measures for children's health care. Pediatrics. 2004, 113: 199-209.PubMed

44.

Johnson KB: Barriers that impede the adoption of pediatric information technology. Arch Pediatr Adolesc Med. 2001, 155: 1374-1379.CrossRefPubMed

45.

Biondich PG, Grannis SJ: The Indiana Network for Patient Care: an integrated clinical information system informed by over thirty years of experience. J Public Health Manag Pract. 2004, S81-S86. Suppl

46.

McDonald CJ, Overhage JM, Barnes M, Schadow G, Blevins L, Dexter PR, Mamlin B: The Indiana Network for Patient Care: a working local health information infrastructure. Health Affairs. 2005, 24 (5): 1214-1220. 10.1377/hlthaff.24.5.1214.CrossRefPubMed

47.

Goetz MD, Frisse ME: Technical discussion: state and regional demonstrations in health information technology. Nashville, TN, Vanderbilt Center for Better Health. 2004, [http://www.volunteer-ehealth.org]

48.

Annie E, Casey Foundation: Kids Count Data Book. Baltimore, MD. 2004, [http://www.aecf.org]

49.

Sankaran V: The Consolidated Health Informatics Initiative and the Functioning and Disability Domains. Proceedings of the Interagency Committee on Disability Research State of the Art Conference: New Federal Applications of the ICF: 10–11. 2007, [http://www.icdr.us/ICF07/materials.html]July; Washington, DC

50.

Consolidated Health Informatics. [http://www.hhs.gov/healthit/chi.html]

51.

Giving more than a nod to the wave of the future. Manag Care. 2005, 14 (6): 39-45.

52.

Leatherman S, Berwick D, Iles D, Lewin LS, Davidoff F, Nolan T, Bisognano M: The business case for quality: Case studies and an analysis. Health Affairs. 2003, 22: 17-30. 10.1377/hlthaff.22.2.17.CrossRefPubMed

53.

Well A: Next steps for Tennessee: A conversation with Gov. Phil Bredesen. Health Affairs. 2007, 26: w456-w462. 10.1377/hlthaff.26.4.w456.CrossRef

54.

Missouri, Tennessee Medicaid changes endangering health. The Nation's Health. 2007, 37: 10-[http://www.apha.org/publications/tnh/archives/2007/]

55.

Robert Wood Johnson Foundation: Comparing federal government surveys that count uninsured people in America. Princeton, NJ. 2007, [http://www.rwjf.org]

56.

Congressional Budget Office: How many people lack health insurance and for how long? Economic and budget issue brief. Washington, DC. 2003, [http://www.cbo.gov]

57.

Governor's Communications Office: Bredesen appoints members to ehealth advisory council. Nashville, TN. 2006, [http://centerstone.org]

58.

Robert Wood Johnson Foundation: Health information technology in the United States: Where we stand, 2008. 2008, Princeton, NJ: Robert Wood Johnson Foundation, [http://www.rwjf.org]

59.

Krieger N: Stormy weather: Race, gene expression, and the science of health disparities. Am J Public Health. 2005, 95: 2155-2160. 10.2105/AJPH.2005.067108.CrossRefPubMedPubMedCentral

60.

World Health Organization: The International Classification of Diseases, 9^th edition (ICD-9). Geneva. 2000, [http://www.who.int]

61.

Pack T: Insurers set to put patient files on the web: records to follow patients if job, insurer changed. 2006, Nashville, TN, The Tennessean, [http://www.tennessean.com]

62.

Apse KA, Biesecker BB, Giardiello FM, Fuller BP, Bernhardt BA: Perceptions of genetic discrimination among at-risk relatives of colorectal cancer patients. Genetics in Medicine. 2004, 6: 510-516. 10.1097/01.GIM.0000144013.96456.6C.PubMed

63.

Burke W, Zimmern RL: Ensuring the appropriate use of genetic tests. Nature Reviews Genetics. 2004, 5: 955-959. 10.1038/nrg1495.CrossRefPubMed

64.

Genetics and Public Policy Center: Prenatal genetic testing technology: Science, policy, and ethics – Testimony of Kathy Hudson, PhD, Director, Genetics and Public Policy Center before the United States Senate Committee on Commerce, Science, and Transportation, Subcommittee on Science, Technology, and Space, 17 November 2004. 2004, Washington, DC, Johns Hopkins University Berman Bioethics Institute, [http://www.dnapolicy.org]

65.

Genetics and Public Policy Center: U.S. public opinion on uses of genetic information and genetic discrimination. 2007, Washington, DC, Johns Hopkins University Berman Bioethics Institute, [http://www.dnapolicy.org]

66.

Lin Z, Owen AB, Altman RB: Genomic research and human subject privacy. Science. 2004, Stanford, CA, Departments of Genetics and Statistics, Stanford University, 305: 186-10.1126/science.1095019.

67.

Low L, King S, Wilkie T: Genetic discrimination in life insurance: Empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom. BMJ. 1998, 317: 1632-1635.CrossRefPubMedPubMedCentral

68.

Rothstein MA: Genetics and life insurance: Medical underwriting and social policy. 2004, Cambridge, MA, The MIT Press

69.

Wadman M: US genetics bill blocked again. Nature. 2007, 448: 631-10.1038/448631a.CrossRefPubMed

70.

Pulling rank: why should US military personnel be singled out for genetic discrimination?. Nature. 2007, 448: 969-

71.

Robert Wood Johnson Foundation: University of Miami, Humana partner for medication safety research. Princeton, NJ. 2007, [http://www.rwjf.org]

72.

Robert Wood Johnson Foundation: Ohio health care company to award $1 million for care quality, patient safety improvement initiatives. Princeton, NJ. 2007, [http://www.rwjf.org]

73.

Public Health Data Standards Consortium Ad Hoc Task Force on Electronic Health Record – Public Health: White paper – Electronic health records: Public health perspectives. Baltimore, MD. 2004, [http://www.phdsc.org]

74.

Public Health Data Standards Consortium: Response to the request for information on the development and adoption of a National Health Information Network from the Office of the National Coordinator for Health Information Technology, Department of Health and Human Services. Baltimore, MD. 2005, [http://www.phdsc.org]

75.

Verhulst PF: Notice sur la loi que la population pursuit dans son accroissement. Correspondance mathématique et physique. 1838, 10: 113-121.

76.

Pearl R, Reed LJ: On the Rate of Growth of the Population of the United States Since 1790 and its Mathematical Representation. Proc Natl Acad Sci USA. 1920, 6: 275-288. 10.1073/pnas.6.6.275.CrossRefPubMedPubMedCentral

77.

Public Health Informatics Institute: Connections – The unique records portfolio: A guide to resolving duplicate records in health information systems. Decatur, GA. 2006

78.

Rosenbaum S, Borzi PC, Repasch L, Burke T, Benevelli JF: Charting the legal environment of health information. Proceedings of Legal Environment for Emerging Information Systems and Implications for Access to Quality and Disparities Data: 26 October 2004. 2005, Washington, DC, The George Washington University Medical Center

79.

Health Resources Services Administration: HRSA awards $31.4 million to expand use of health information technology at health centers. Washington, DC. 2007, [http://www.govtech.com/gt/articles/134025]

80.

Lium J-T, Lærum H, Schulz T, Faxvaag A: From the front line, report from a near paperless hospital: Mixed reception among health care professionals. J Am Med Inform Assoc. 2006, 13: 668-675. 10.1197/jamia.M2108.CrossRefPubMedPubMedCentral

81.

Schade CP, Sullivan FM, de Lusignan S, Madeley J: e-Prescribing, efficiency, quality: Lessons from the computerization of UK family practice. J Am Med Inform Assoc. 2006, 13: 470-475. 10.1197/jamia.M2041.CrossRefPubMedPubMedCentral

82.

Levy S, Sutton G, Ng PC, Feuk L, Halpern AL, Walenz BP, Axelrod N, Huang J, Kirkness EF, Denisov G, Lin Y, MacDonald JR, Pang AWC, Shago M, Stockwell TB, Tsiamouri A, Bafna V, Bansal V, Kravitz SA, Busam DA, Beeson KY, McIntosh TC, Remington KA, Abril JF, Gill J, Borman J, Rogers Y-H, Frazier ME, Scherer SW, Strausberg RL, Venter JC: The diploid sequence of an individual human. PLoS Biol. 2007, 5: e254-10.1371/journal.pbio.0050254.CrossRefPubMedPubMedCentral

83.

Safrin S: Hyperownership in a time of biotechnological promise: the international conflict to control the building blocks of life. Am J Int Law. 2004, 98: 641-685. 10.2307/3216691.CrossRef

Title: Progress along developmental tracks for electronic health records implementation in the United States
Author: David W Hollar
Publication date: 01-12-2009
Publisher: BioMed Central
Published in: Health Research Policy and Systems / Issue 1/2009
Electronic ISSN: 1478-4505
DOI: https://doi.org/10.1186/1478-4505-7-3

2024 ASCO Annual Meeting

Springer Medicine

Progress along developmental tracks for electronic health records implementation in the United States

Abstract

2024 ASCO Annual Meeting

Springer Medicine

Abstract

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