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Published in: Critical Care 1/2013

Open Access 01-02-2013 | Research

Phenomenologic analysis of healthcare worker perceptions of intensive care unit diaries

Authors: Antoine Perier, Anne Revah-Levy, Cédric Bruel, Nathalie Cousin, Stéphanie Angeli, Sandie Brochon, François Philippart, Adeline Max, Charles Gregoire, Benoit Misset, Maité Garrouste-Orgeas

Published in: Critical Care | Issue 1/2013

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Abstract

Introduction

Studies have reported associations between diaries kept for intensive care unit (ICU) patients and long-term quality-of-life and psychological outcomes in patients and their relatives. Little was known about perceptions of healthcare workers reading and writing in the diaries. We investigated healthcare worker perceptions the better to understand their opinions and responses to reading and writing in the diaries.

Methods

We used a phenomenologic approach to conduct a qualitative study of 36 semistructured interviews in a medical-surgical ICU in a 460-bed tertiary hospital.

Results

Two domains of perception were assessed: reading and writing in the diaries. These two domains led to four main themes in the ICU workers' perceptions: suffering of the families; using the diary as a source of information for families but also as generating difficulties in writing bad news; determining the optimal interpersonal distance with the patient and relatives; and using the diary as a tool for constructing a narrative of the patient's ICU stay.

Conclusions

The ICU workers thought that the diary was beneficial in communicating the suffering of families while providing comfort and helping to build the patient's ICU narrative. They reported strong emotions related to the diaries and a perception of intruding into the patients' and families' privacy when reading the diaries. Fear of strong emotional investment may adversely affect the ability of ICU workers to perform their duties optimally. ICU workers are in favor of ICU diaries, but activation by the diaries of emotions among younger ICU workers may require specific support.
Literature
1.
go back to reference Garrouste-Orgeas M, Coquet I, Perier A, Timsit JF, Pochard F, Lancrin F, Philippart F, Vesin A, Bruel C, Blel Y, Angeli N, Cousin N, Carlet J, Misset B: Impact of an intensive care unit diary on psychological distress in patients and relatives. Crit Care Med 2012, 40: 2033-2040. 10.1097/CCM.0b013e31824e1b43CrossRefPubMed Garrouste-Orgeas M, Coquet I, Perier A, Timsit JF, Pochard F, Lancrin F, Philippart F, Vesin A, Bruel C, Blel Y, Angeli N, Cousin N, Carlet J, Misset B: Impact of an intensive care unit diary on psychological distress in patients and relatives. Crit Care Med 2012, 40: 2033-2040. 10.1097/CCM.0b013e31824e1b43CrossRefPubMed
2.
go back to reference Roulin MJ, Hurst S, Spirig R: Diaries written for ICU patients. Qual Health Res 2007, 17: 893-901. 10.1177/1049732307303304CrossRefPubMed Roulin MJ, Hurst S, Spirig R: Diaries written for ICU patients. Qual Health Res 2007, 17: 893-901. 10.1177/1049732307303304CrossRefPubMed
3.
go back to reference Egerod I, Christensen D, Schwartz-Nielsen KH, Agard AS: Constructing the illness narrative: a grounded theory exploring patients' and relatives' use of intensive care diaries. Crit Care Med 2011, 39: 1922-1928. 10.1097/CCM.0b013e31821e89c8CrossRefPubMed Egerod I, Christensen D, Schwartz-Nielsen KH, Agard AS: Constructing the illness narrative: a grounded theory exploring patients' and relatives' use of intensive care diaries. Crit Care Med 2011, 39: 1922-1928. 10.1097/CCM.0b013e31821e89c8CrossRefPubMed
4.
go back to reference Storli SL, Lind R: The meaning of follow-up in intensive care: patients' perspective. Scand J Caring Sci 2009, 23: 45-56. 10.1111/j.1471-6712.2007.00589.xCrossRefPubMed Storli SL, Lind R: The meaning of follow-up in intensive care: patients' perspective. Scand J Caring Sci 2009, 23: 45-56. 10.1111/j.1471-6712.2007.00589.xCrossRefPubMed
5.
go back to reference Backman CG, Walther SM: Critical periods at the intensive care units are documented in diaries. Lakartidningen 1999, 96: 468-470.PubMed Backman CG, Walther SM: Critical periods at the intensive care units are documented in diaries. Lakartidningen 1999, 96: 468-470.PubMed
6.
go back to reference Bergbom I, Svensson C, Berggren E, Kamsula M: Patients' and relatives' opinions and feelings about diaries kept by nurses in an intensive care unit: pilot study. Intensive Crit Care Nurs 1999, 15: 185-191. 10.1016/S0964-3397(99)80069-XCrossRefPubMed Bergbom I, Svensson C, Berggren E, Kamsula M: Patients' and relatives' opinions and feelings about diaries kept by nurses in an intensive care unit: pilot study. Intensive Crit Care Nurs 1999, 15: 185-191. 10.1016/S0964-3397(99)80069-XCrossRefPubMed
7.
go back to reference Combe D: The use of patient diaries in an intensive care unit. Nurs Crit Care 2005, 10: 31-34. 10.1111/j.1362-1017.2005.00093.xCrossRefPubMed Combe D: The use of patient diaries in an intensive care unit. Nurs Crit Care 2005, 10: 31-34. 10.1111/j.1362-1017.2005.00093.xCrossRefPubMed
8.
go back to reference Egerod I, Christensen D: Analysis of patient diaries in Danish ICUs: a narrative approach. Intensive Crit Care Nurs 2009, 25: 268-277. 10.1016/j.iccn.2009.06.005CrossRefPubMed Egerod I, Christensen D: Analysis of patient diaries in Danish ICUs: a narrative approach. Intensive Crit Care Nurs 2009, 25: 268-277. 10.1016/j.iccn.2009.06.005CrossRefPubMed
9.
go back to reference Akerman E, Granberg-Axell A, Ersson A, Fridlund B, Bergbom I: Use and practice of patient diaries in Swedish intensive care units: a national survey. Nurs Crit Care 2010, 15: 26-33. 10.1111/j.1478-5153.2009.00364.xCrossRefPubMed Akerman E, Granberg-Axell A, Ersson A, Fridlund B, Bergbom I: Use and practice of patient diaries in Swedish intensive care units: a national survey. Nurs Crit Care 2010, 15: 26-33. 10.1111/j.1478-5153.2009.00364.xCrossRefPubMed
10.
go back to reference Egerod I, Schwartz-Nielsen KH, Hansen GM, Laerkner E: The extent and application of patient diaries in Danish ICUs in 2006. Nurs Crit Care 2007, 12: 159-167. 10.1111/j.1478-5153.2007.00219.xCrossRefPubMed Egerod I, Schwartz-Nielsen KH, Hansen GM, Laerkner E: The extent and application of patient diaries in Danish ICUs in 2006. Nurs Crit Care 2007, 12: 159-167. 10.1111/j.1478-5153.2007.00219.xCrossRefPubMed
11.
go back to reference Giorgi A, Giorgi B: Interpretative phenomenological analysis. In Qualitative Psychology: A Practical Guide to Research Methods. 2nd edition. London Sage Publications Ltd; 2008:26-59. Giorgi A, Giorgi B: Interpretative phenomenological analysis. In Qualitative Psychology: A Practical Guide to Research Methods. 2nd edition. London Sage Publications Ltd; 2008:26-59.
12.
go back to reference Taieb O, Revah-Levy A, Moro MR, Baubet T: Is Ricoeur's notion of narrative identity useful in understanding recovery in drug addicts? Qual Health Res 2008, 18: 990-1000. 10.1177/1049732308318041CrossRefPubMed Taieb O, Revah-Levy A, Moro MR, Baubet T: Is Ricoeur's notion of narrative identity useful in understanding recovery in drug addicts? Qual Health Res 2008, 18: 990-1000. 10.1177/1049732308318041CrossRefPubMed
13.
go back to reference Pochard F, Azoulay E, Chevret S, Lemaire F, Hubert P, Canoui P, Grassin M, Zittoun R, Le Gall JR, Dhainaut JF, Schlemmer B: Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med 2001, 29: 1893-1897. 10.1097/00003246-200110000-00007CrossRefPubMed Pochard F, Azoulay E, Chevret S, Lemaire F, Hubert P, Canoui P, Grassin M, Zittoun R, Le Gall JR, Dhainaut JF, Schlemmer B: Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med 2001, 29: 1893-1897. 10.1097/00003246-200110000-00007CrossRefPubMed
14.
go back to reference Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, Annane D, Bleichner G, Bollaert PE, Darmon M, Fassier T, Galliot R, Garrouste-Orgeas M, Goulenok C, Golgran-Toledano D, Hayon J, Jourdain M, Kaidomar M, Laplace C, Larche J, Liotier J, Papazian L, Poisson C, Reignier J, Saidi F, Schlemmer B: Risk of posttraumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 2005, 171: 287-291.CrossRef Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, Annane D, Bleichner G, Bollaert PE, Darmon M, Fassier T, Galliot R, Garrouste-Orgeas M, Goulenok C, Golgran-Toledano D, Hayon J, Jourdain M, Kaidomar M, Laplace C, Larche J, Liotier J, Papazian L, Poisson C, Reignier J, Saidi F, Schlemmer B: Risk of posttraumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 2005, 171: 287-291.CrossRef
15.
go back to reference Molter NC: Needs of relatives of critically ill patients: a descriptive study. Heart Lung 1979, 8: 332-339.PubMed Molter NC: Needs of relatives of critically ill patients: a descriptive study. Heart Lung 1979, 8: 332-339.PubMed
16.
go back to reference Azoulay E, Chevret S, Leleu G, Pochard F, Barboteu M, Adrie C, Canoui P, Le Gall JR, Schlemmer B: Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 2000, 28: 3044-3049. 10.1097/00003246-200008000-00061CrossRefPubMed Azoulay E, Chevret S, Leleu G, Pochard F, Barboteu M, Adrie C, Canoui P, Le Gall JR, Schlemmer B: Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med 2000, 28: 3044-3049. 10.1097/00003246-200008000-00061CrossRefPubMed
17.
go back to reference Fassier T, Darmon M, Laplace C, Chevret S, Schlemmer B, Pochard F, Azoulay E: One-day quantitative cross-sectional study of family information time in 90 intensive care units in France. Crit Care Med 2007, 35: 177-183. 10.1097/01.CCM.0000249834.26847.BECrossRefPubMed Fassier T, Darmon M, Laplace C, Chevret S, Schlemmer B, Pochard F, Azoulay E: One-day quantitative cross-sectional study of family information time in 90 intensive care units in France. Crit Care Med 2007, 35: 177-183. 10.1097/01.CCM.0000249834.26847.BECrossRefPubMed
18.
go back to reference Azoulay E, Pochard F, Chevret S, Jourdain M, Bornstain C, Wernet A, Cattaneo I, Annane D, Brun F, Bollaert PE, Zahar JR, Golgran-Toledano D, Adrie C, Joly LM, Tayoro J, Desmettre T, Pigne E, Parrot A, Sanchez O, Poisson C, Le Gall JR, Schlemmer B, Lemaire F: Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients: a multicenter, prospective, randomized, controlled trial. Am J Respir Crit Care Med 2002, 165: 438-442.CrossRefPubMed Azoulay E, Pochard F, Chevret S, Jourdain M, Bornstain C, Wernet A, Cattaneo I, Annane D, Brun F, Bollaert PE, Zahar JR, Golgran-Toledano D, Adrie C, Joly LM, Tayoro J, Desmettre T, Pigne E, Parrot A, Sanchez O, Poisson C, Le Gall JR, Schlemmer B, Lemaire F: Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients: a multicenter, prospective, randomized, controlled trial. Am J Respir Crit Care Med 2002, 165: 438-442.CrossRefPubMed
19.
go back to reference Bailey C, Murphy R, Porock D: Professional tears: developing emotional intelligence around death and dying in emergency work. J Clin Nurs 2011, 20: 3364-3372. 10.1111/j.1365-2702.2011.03860.xCrossRefPubMed Bailey C, Murphy R, Porock D: Professional tears: developing emotional intelligence around death and dying in emergency work. J Clin Nurs 2011, 20: 3364-3372. 10.1111/j.1365-2702.2011.03860.xCrossRefPubMed
20.
go back to reference Halpern J: Practicing medicine in the real world: challenges to empathy and respect for patients. J Clin Ethics 2003, 14: 298-307.PubMed Halpern J: Practicing medicine in the real world: challenges to empathy and respect for patients. J Clin Ethics 2003, 14: 298-307.PubMed
22.
go back to reference Luthy C, Perrier A, Perrin E, Cedraschi C, Allaz AF: Exploring the major difficulties perceived by residents in training: a pilot study. Swiss Med Wkly 2004, 134: 612-617.PubMed Luthy C, Perrier A, Perrin E, Cedraschi C, Allaz AF: Exploring the major difficulties perceived by residents in training: a pilot study. Swiss Med Wkly 2004, 134: 612-617.PubMed
23.
go back to reference Chahraoui K, Bioy A, Cras E, Gilles F, Laurent A, Valache B, Quenot JP: Psychological experience of health care professionals in intensive care unit: a qualitative and exploratory study. Ann Fr Anesth Reanim 2011, 30: 342-348. 10.1016/j.annfar.2011.01.020CrossRefPubMed Chahraoui K, Bioy A, Cras E, Gilles F, Laurent A, Valache B, Quenot JP: Psychological experience of health care professionals in intensive care unit: a qualitative and exploratory study. Ann Fr Anesth Reanim 2011, 30: 342-348. 10.1016/j.annfar.2011.01.020CrossRefPubMed
24.
go back to reference Meier DE, Back AL, Morrison RS: The inner life of physicians and care of the seriously ill. JAMA 2001, 286: 3007-3014. 10.1001/jama.286.23.3007CrossRefPubMed Meier DE, Back AL, Morrison RS: The inner life of physicians and care of the seriously ill. JAMA 2001, 286: 3007-3014. 10.1001/jama.286.23.3007CrossRefPubMed
25.
go back to reference Taylor C, Farver C, Stoller JK: Perspective: can emotional intelligence training serve as an alternative approach to teaching professionalism to residents? Acad Med 2011, 86: 1551-1554. 10.1097/ACM.0b013e318235aa76CrossRefPubMed Taylor C, Farver C, Stoller JK: Perspective: can emotional intelligence training serve as an alternative approach to teaching professionalism to residents? Acad Med 2011, 86: 1551-1554. 10.1097/ACM.0b013e318235aa76CrossRefPubMed
26.
go back to reference Griffiths RD, Jones C: Filling the intensive care memory gap? Intensive Care Med 2001, 27: 344-346. 10.1007/s001340000752CrossRefPubMed Griffiths RD, Jones C: Filling the intensive care memory gap? Intensive Care Med 2001, 27: 344-346. 10.1007/s001340000752CrossRefPubMed
27.
go back to reference Grosclaude M: Réanimation et Coma: Soin Psychique et Vécu du Patient. Paris: Elsevier Masson; 2009. Grosclaude M: Réanimation et Coma: Soin Psychique et Vécu du Patient. Paris: Elsevier Masson; 2009.
28.
go back to reference Girard TD, Jackson JC, Pandharipande PP, Pun BT, Thompson JL, Shintani AK, Gordon SM, Canonico AE, Dittus RS, Bernard GR, Ely EW: Delirium as a predictor of long-term cognitive impairment in survivors of critical illness. Crit Care Med 2010, 38: 1513-1520. 10.1097/CCM.0b013e3181e47be1PubMedCentralCrossRefPubMed Girard TD, Jackson JC, Pandharipande PP, Pun BT, Thompson JL, Shintani AK, Gordon SM, Canonico AE, Dittus RS, Bernard GR, Ely EW: Delirium as a predictor of long-term cognitive impairment in survivors of critical illness. Crit Care Med 2010, 38: 1513-1520. 10.1097/CCM.0b013e3181e47be1PubMedCentralCrossRefPubMed
29.
go back to reference Myhren H, Toien K, Ekeberg O, Karlsson S, Sandvik L, Stokland O: Patients' memory and psychological distress after ICU stay compared with expectations of the relatives. Intensive Care Med 2009, 35: 2078-2086. 10.1007/s00134-009-1614-1CrossRefPubMed Myhren H, Toien K, Ekeberg O, Karlsson S, Sandvik L, Stokland O: Patients' memory and psychological distress after ICU stay compared with expectations of the relatives. Intensive Care Med 2009, 35: 2078-2086. 10.1007/s00134-009-1614-1CrossRefPubMed
30.
go back to reference Boogaard M, Pickkers P, Slooter AJ, Kuiper MA, Spronk PE, Voort PH, Hoeven JG, Donders R, Achterberg T, Schoonhoven L: Development and validation of PRE-DELIRIC (PREdiction of DELIRium in ICu patients) delirium prediction model for intensive care patients: observational multicentre study. BMJ 2012, 344: e420. 10.1136/bmj.e420PubMedCentralCrossRefPubMed Boogaard M, Pickkers P, Slooter AJ, Kuiper MA, Spronk PE, Voort PH, Hoeven JG, Donders R, Achterberg T, Schoonhoven L: Development and validation of PRE-DELIRIC (PREdiction of DELIRium in ICu patients) delirium prediction model for intensive care patients: observational multicentre study. BMJ 2012, 344: e420. 10.1136/bmj.e420PubMedCentralCrossRefPubMed
31.
go back to reference Shehabi Y, Riker RR, Bokesch PM, Wisemandle W, Shintani A, Ely EW: Delirium duration and mortality in lightly sedated, mechanically ventilated intensive care patients. Crit Care Med 2010, 38: 2311-2318. 10.1097/CCM.0b013e3181f85759CrossRefPubMed Shehabi Y, Riker RR, Bokesch PM, Wisemandle W, Shintani A, Ely EW: Delirium duration and mortality in lightly sedated, mechanically ventilated intensive care patients. Crit Care Med 2010, 38: 2311-2318. 10.1097/CCM.0b013e3181f85759CrossRefPubMed
32.
go back to reference Adhikari NK, McAndrews MP, Tansey CM, Matte A, Pinto R, Cheung AM, Diaz-Granados N, Barr A, Herridge MS: Self-reported symptoms of depression and memory dysfunction in survivors of ARDS. Chest 2009, 135: 678-687. 10.1378/chest.08-0974CrossRefPubMed Adhikari NK, McAndrews MP, Tansey CM, Matte A, Pinto R, Cheung AM, Diaz-Granados N, Barr A, Herridge MS: Self-reported symptoms of depression and memory dysfunction in survivors of ARDS. Chest 2009, 135: 678-687. 10.1378/chest.08-0974CrossRefPubMed
33.
go back to reference De Miranda S, Pochard F, Chaize M, Megarbane B, Cuvelier A, Bele N, Gonzalez-Bermejo J, Aboab J, Lautrette A, Lemiale V, Roche N, Thirion M, Chevret S, Schlemmer B, Similowski T, Azoulay E: Postintensive care unit psychological burden in patients with chronic obstructive pulmonary disease and informal caregivers: a multicenter study. Crit Care Med 2011, 39: 112-118. 10.1097/CCM.0b013e3181feb824CrossRefPubMed De Miranda S, Pochard F, Chaize M, Megarbane B, Cuvelier A, Bele N, Gonzalez-Bermejo J, Aboab J, Lautrette A, Lemiale V, Roche N, Thirion M, Chevret S, Schlemmer B, Similowski T, Azoulay E: Postintensive care unit psychological burden in patients with chronic obstructive pulmonary disease and informal caregivers: a multicenter study. Crit Care Med 2011, 39: 112-118. 10.1097/CCM.0b013e3181feb824CrossRefPubMed
34.
go back to reference Jones C, Backman C, Capuzzo M, Flaatten H, Rylander C, Griffiths RD: Precipitants of post-traumatic stress disorder following intensive care: a hypothesis generating study of diversity in care. Intensive Care Med 2007, 33: 978-985. 10.1007/s00134-007-0600-8CrossRefPubMed Jones C, Backman C, Capuzzo M, Flaatten H, Rylander C, Griffiths RD: Precipitants of post-traumatic stress disorder following intensive care: a hypothesis generating study of diversity in care. Intensive Care Med 2007, 33: 978-985. 10.1007/s00134-007-0600-8CrossRefPubMed
35.
go back to reference Jones C, Griffiths RD, Humphris G, Skirrow PM: Memory, delusions, and the development of acute posttraumatic stress disorder-related symptoms after intensive care. Crit Care Med 2001, 29: 573-580. 10.1097/00003246-200103000-00019CrossRefPubMed Jones C, Griffiths RD, Humphris G, Skirrow PM: Memory, delusions, and the development of acute posttraumatic stress disorder-related symptoms after intensive care. Crit Care Med 2001, 29: 573-580. 10.1097/00003246-200103000-00019CrossRefPubMed
36.
go back to reference Jones C, Backman C, Capuzzo M, Egerod I, Flaatten H, Granja C, Rylander C, Griffiths RD: Intensive care diaries reduce new onset post traumatic stress disorder following critical illness: a randomised, controlled trial. Crit Care 2010, 14: R168. 10.1186/cc9260PubMedCentralCrossRefPubMed Jones C, Backman C, Capuzzo M, Egerod I, Flaatten H, Granja C, Rylander C, Griffiths RD: Intensive care diaries reduce new onset post traumatic stress disorder following critical illness: a randomised, controlled trial. Crit Care 2010, 14: R168. 10.1186/cc9260PubMedCentralCrossRefPubMed
Metadata
Title
Phenomenologic analysis of healthcare worker perceptions of intensive care unit diaries
Authors
Antoine Perier
Anne Revah-Levy
Cédric Bruel
Nathalie Cousin
Stéphanie Angeli
Sandie Brochon
François Philippart
Adeline Max
Charles Gregoire
Benoit Misset
Maité Garrouste-Orgeas
Publication date
01-02-2013
Publisher
BioMed Central
Published in
Critical Care / Issue 1/2013
Electronic ISSN: 1364-8535
DOI
https://doi.org/10.1186/cc11938

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