Skip to main content
Top
Published in: Dysphagia 1/2009

01-03-2009 | Letter

People with a Learning Disability and Dysphagia: A Cinderella Population?

Authors: Paula Leslie, Hannah Crawford, Heather Wilkinson

Published in: Dysphagia | Issue 1/2009

Login to get access

Excerpt

Dysphagia has been linked to many medical conditions but most studies are performed on mainstream populations, i.e., not those with dementia or other conditions with intellectual disability (U.S.) or learning disability (UK). Why this is so is perhaps rooted in arcane attitudes about participation in research and informed consent of so-called vulnerable populations, in addition to the usual research challenges that beset us all. This lack of knowledge undermines service planning and health-care provision for a considerable group of people who make up an increasing part of our caseloads. …
Literature
1.
go back to reference Rogers B, Stratton P, Msall M, Andres M, Champlain M, Koerner P, Piazza J. Long-term morbidity and management strategies of tracheal aspiration in adults with severe developmental disabilities. Am J Ment Retard 1994;98:490–498PubMed Rogers B, Stratton P, Msall M, Andres M, Champlain M, Koerner P, Piazza J. Long-term morbidity and management strategies of tracheal aspiration in adults with severe developmental disabilities. Am J Ment Retard 1994;98:490–498PubMed
2.
go back to reference Aziz SJ, Cambell-Taylor. Neglect and abuse associated with undernutrition in long-term care in North America: Causes and solutions. J Elder Abuse Neglect 1999;10:91–117 Aziz SJ, Cambell-Taylor. Neglect and abuse associated with undernutrition in long-term care in North America: Causes and solutions. J Elder Abuse Neglect 1999;10:91–117
3.
go back to reference Eyman R, Grossman H, Chaney R, Call T. The life expectancy of profoundly handicapped people with mental retardation. New Engl J Med 1990;323:584–589PubMed Eyman R, Grossman H, Chaney R, Call T. The life expectancy of profoundly handicapped people with mental retardation. New Engl J Med 1990;323:584–589PubMed
4.
go back to reference Cook IJ, Kahrilas PJ. AGA technical review on management of oropharyngeal dysphagia. Gastroenterology 1999;116:455–478PubMedCrossRef Cook IJ, Kahrilas PJ. AGA technical review on management of oropharyngeal dysphagia. Gastroenterology 1999;116:455–478PubMedCrossRef
5.
go back to reference Hollins S, Attard MT, von Fraunhofer N, McGuigan S, Sedgwick P. Mortality in people with learning disability: risks, causes and death certification findings in London. Dev Med Child Neurol 1998;40:50–56PubMed Hollins S, Attard MT, von Fraunhofer N, McGuigan S, Sedgwick P. Mortality in people with learning disability: risks, causes and death certification findings in London. Dev Med Child Neurol 1998;40:50–56PubMed
6.
go back to reference Hickman J. ALD and dysphagia: issues and practice. Speech Lang Ther Pract 1997;Autumn:8–11 Hickman J. ALD and dysphagia: issues and practice. Speech Lang Ther Pract 1997;Autumn:8–11
7.
go back to reference National Patient Safety Agency. Understanding the patient safety issues for people with learning disabilities. London: NPSA, 2004 National Patient Safety Agency. Understanding the patient safety issues for people with learning disabilities. London: NPSA, 2004
8.
go back to reference Chadwick D, Jolliffe J, Goldbart J. Carer knowledge of dysphagia management strategies. Int J Lang Commun Disord 2002;72:345–357CrossRef Chadwick D, Jolliffe J, Goldbart J. Carer knowledge of dysphagia management strategies. Int J Lang Commun Disord 2002;72:345–357CrossRef
Metadata
Title
People with a Learning Disability and Dysphagia: A Cinderella Population?
Authors
Paula Leslie
Hannah Crawford
Heather Wilkinson
Publication date
01-03-2009
Publisher
Springer-Verlag
Published in
Dysphagia / Issue 1/2009
Print ISSN: 0179-051X
Electronic ISSN: 1432-0460
DOI
https://doi.org/10.1007/s00455-008-9153-4

Other articles of this Issue 1/2009

Dysphagia 1/2009 Go to the issue