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Open Access 01-11-2012 | Meeting abstract

Patient perspective on CT Involvement: are they listening to my needs?

Author: Ulrike Pypops

Published in: Orphanet Journal of Rare Diseases | Special Issue 2/2012

Excerpt

Patient involvement is a key factor in the development of treatment, hence in (pre) clinical trial design, choice of primary and secondary endpoints, protocol set-up etc. Including patient representatives in drug and treatment development from A to Z as equal partners would lead to a better and longer life for the patient. …

Title: Patient perspective on CT Involvement: are they listening to my needs?
Author: Ulrike Pypops
Publication date: 01-11-2012
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 2/2012
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-7-S2-A39

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Patient perspective on CT Involvement: are they listening to my needs?

Excerpt

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Excerpt

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Developing a national plan for rare diseases in Germany through concerted action: the national action league for people with rare diseases

The political empowerment of rare disease patient advocates both at EU and national level

From rationing to rationality: an n-of-one trial service for off-label medicines for rare (neuromuscular) diseases