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Journal of Foot and Ankle Research
Published in: Journal of Foot and Ankle Research 1/2015

Open Access 01-12-2015 | Research

Patient perceptions of foot disability in Juvenile Idiopathic Arthritis: a comparison of the juvenile arthritis foot disability index and the Oxford ankle foot questionnaire for children

Author: Jill Ferrari

Published in: Journal of Foot and Ankle Research | Issue 1/2015

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Abstract

Background

The Juvenile Arthritis Foot Disability Index (JAFI) and the Oxford Ankle Foot Questionnaire for Children (OxAFQ-C) are two region-specific paediatric outcome tools that measure the impact on well-being in children with foot pathology. The aim of this study was to establish the level of agreement between the JAFI and the OxAFQ-C in a group of children diagnosed with Juvenile Idiopathic Arthritis (JIA).

Methods

Children with JIA accessed the questionnaire via a website. The OxAFQ-C questionnaire and the JAFI questionnaire were combined into one document consisting of 42 statements with Likert-scale responses. A further question regarding duration of disease was added. On completion, the web-linked questionnaire was returned by e-mail.

Results

Thirty five participants were included. Individual domain and composite score analysis was undertaken. The JAFI participation domain was compared to the OxAFQ-C school domain and showed no significant difference between the median scores of each participant (z = -1.33, p = 0.181). The JAFI activity and the OxAFQ-C physical domains were compared and showed that a significant difference between the median scores existed (z = -4.29, p < 0.001). Agreement between the two PROMs was tested using Bland Altman Levels of Agreement based upon the percentage summed composite scores. Levels of agreement between the scores were considered to be poor based on the Bland Altman plot, despite a low mean difference in scores (mean difference = -3.88, SD of difference = 9.93, p = 0.027). Pearson correlation was undertaken to measure the relationship between the summed composite score and disease duration. No relationship was found (JAFI: r = -0.08, p = 0.672; OxAFQ-C: r = 0.037, p = 0.871).

Conclusions

This study has shown that despite some agreement between the individual domains, overall there is poor agreement between the OxAFQ-C and the JAFI percentage summed composite scores. The study is not able to determine if one score is superior to the other but both scores could be of value when used in this population.
Literature
1.
McGann LJ, Wedderburn LR, Hasson N. Juvenile idiopathic arthritis. Arch Dis Child Educ Pract Ed. 2006;91(2):ep29–36.
2.
Hendry G, Gardner-Medwin J, Watt GF, Woodburn J. A survey of foot problems in juvenile idiopathic arthritis. Musculoskeletal Care. 2008;6(4):221–32.CrossRefPubMed
3.
Powell M, Seid M, Szer IS. Efficacy of custom foot orthotics in improving pain and functional status in children with juvenile idiopathic arthritis: a randomized trial. Rheumatol. 2005;32(5):943–50.
4.
André M, Hagelberg S, Stenström CH. The juvenile arthritis foot disability index: development and evaluation of measurement properties. J Rheumatol. 2004;31(12):2488–93.PubMed
5.
Morris C, Doll H, Wainwright A, Davies N, Theologis T, Fitzpatrick R. The Oxford ankle foot questionnaire for children: review of development and potential applications. Prosthet Orthot Int. 2010;34(3):238–44.CrossRefPubMed
6.
Morris C, Doll H, Davies N, Wainwright A, Theologis T, Willett K, et al. The Oxford Ankle Foot Questionnaire for children: responsiveness and longitudinal validity. Qual Life Res. 2009;18(10):1367–76.CrossRefPubMed
7.
Morley D, Jenkinson C, Doll H, Lavis G, Sharp R, Cooke P, et al. The Manchester-Oxford Foot Questionnaire (MOXFQ): development and validation of a summary index score. Bone Joint Res. 2013; 3;2(4):66-9.
8.
Hendry GJ, Watt GF, Brandon M, Friel L, Turner DE, Lorgelly PK, et al. The effectiveness of a multidisciplinary foot care program for children and adolescents with juvenile idiopathic arthritis: an exploratory trial. J Rehabil Med. 2013;45(5):467–76.CrossRefPubMed
9.
Bland JM, Altman DG. Statistical methods for assessing agreement between methods of clinical measurement. The Lancet. 1986; 327(8476):307–310.
10.
Evans AM, Rome K, Peet L. The foot posture index, ankle lunge test, Beighton scale and the lower limb assessment score in healthy children: a reliability study. J Foot Ankle Res. 2012; 9;5(1):1.
11.
Dekker M, Hoeksma AF, Dekker JHM, van Rossum MAJ, Dolman KM, Beckerman H, et al. Strong relationships between disease activity, foot-related impairments, activity limitations and participant restrictions in children with juvenile idiopathic arthritis. Clin Exp Rheumatol. 2010;28:905–11.PubMed
12.
Minden K, Niewert M, Listing J, Biedermann T, Bollow M, Schontube M, et al. Long-term outcome in patients with juvenile idiopathic arthritis. Arthritis Rheum. 2002;49(9):2392–401.CrossRef
13.
Packham JC, Hall MA. Long‐term follow‐up of 246 adults with juvenile idiopathic arthritis: functional outcome. Paediatr Rheumatol. 2002;41(12):1428–35.CrossRef
14.
Foster H, Rapley T, May C. Juvenile Idiopathic Arthritis: improved outcomes requires improved access to care. Rheumatology (Oxford). 2010;49:401–3.CrossRef
15.
Krosnick JA, Presser S. Question and Questionnaire design. In: Marsden PV, Wright JD editors. Handbook of Survey Research. 2nd edn. Emerald Publishing Company. West Yorkshire, England; 2010. p.263–313.
16.
Duffy CM, Arsenault L, Watanabe Duffy K. Level of agreement between parents and children in rating dysfunction in juvenile rheumatoid arthritis and juvenile spondyloarthropathy. J Rheum. 1992;19 Suppl 33:28–31.
Metadata
Title
Patient perceptions of foot disability in Juvenile Idiopathic Arthritis: a comparison of the juvenile arthritis foot disability index and the Oxford ankle foot questionnaire for children
Author
Jill Ferrari
Publication date
01-12-2015
Publisher
BioMed Central
Published in
Journal of Foot and Ankle Research / Issue 1/2015
Electronic ISSN: 1757-1146
DOI
https://doi.org/10.1186/s13047-015-0106-5

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