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Annals of Behavioral Medicine
Published in: Annals of Behavioral Medicine 2/2015

01-04-2015 | Original Article

Patient-Perceived Self-Management Tasks and Support Needs of People with Chronic Illness: Generic or Disease Specific?

Authors: Lieke van Houtum, MSc, Mieke Rijken, PhD, Monique Heijmans, PhD, Peter Groenewegen, PhD

Published in: Annals of Behavioral Medicine | Issue 2/2015

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Abstract

Background

Self-management is widely accepted as an essential component of chronic care. Nevertheless, little is known about patients’ perceptions of self-management.

Purpose

This study aims to explore which self-management tasks and support needs people with chronic illness perceive for themselves, and to establish whether these tasks and support needs are disease specific.

Methods

A nationwide representative sample of 2,064 people with chronic disease filled in the Patient Assessment of Self-management Tasks questionnaire.

Results

Many respondents perceive self-management tasks in the daily management of their condition, although few indicate a need for support. Respondents who feel a need for support in one aspect of self-management are likely to feel a need for support in other aspects as well. Type of disease has a small effect on self-management tasks and even smaller on support needs.

Conclusion

Although the self-management tasks patients perceive may be partly disease specific, self-management support does not necessarily need to be disease specific.
Appendix
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Literature
1.
Yach D, Hawkes C, Gould C, Hofman K. The global burden of chronic disease: overcoming impediments to prevention and control. JAMA. 2004; 291: 2616-2622.CrossRefPubMed
2.
WHO. Global Status Report on Global Non-communicable Disease 2010. Geneva: WHO Document Production Services; 2011.
3.
Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002; 48: 177-187.CrossRefPubMed
4.
Clark N, Becker M, Janz N, Lorig K, Rakowski W, Anderson L. Self-management of chronic disease by older adults. J Aging Health. 1991; 3: 3-27.CrossRef
5.
Glasgow R, David C, Funnell M, Beck A. Implementing practical interventions to support chronic illness self-management. Joint Comm J Qual Safety. 2003; 29: 563-574.
6.
Lorig K, Holman H. Self-management education: history, definition, outcomes and mechanisms. Ann Behav Med. 2003; 26: 1-7.CrossRefPubMed
7.
Redman B. The ethics of self-management preparation for chronic illness. Nursing Ethics. 2005; 12: 360-369.CrossRefPubMed
8.
Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet. 2004; 364: 1523-1537.CrossRefPubMed
9.
Jerant AF, Von Friederichs-Fitzwater MM, Moore M. Patients’ perceived barriers to active self-management of chronic conditions. Patient Educ Couns. 2005; 57: 300-307.CrossRefPubMed
10.
Jordan J, Osborn R. Chronic disease self-management education programs: challenges ahead. Med J Aust. 2007; 186: 84-87.PubMed
11.
Rijken M, Jones M, Heijmans M, Dixon A. Supporting self-management. In: Nolte E, McKee M, eds. Caring for People with Chronic Conditions. A Health System Perspective. Berkshire, UK: Open University Press; 2008: 116-142.
12.
Warsi A, Wang P, LaValley M, Avorn J, Solomon D. Self-management education programs in chronic disease: a systematic review and methodological critique of the literature. Arch Intern Med. 2004; 164: 1641-1649.CrossRefPubMed
13.
Foster G, Taylor SJ, Eldridge SE, Ramsay J, Griffiths CJ. Self-management education programmes by lay leaders for people with chronic conditions. Cochrane Database Syst Rev. 2007;CD005108.
14.
Deakin TA, McShane CE, Cade JE, Williams R. Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev. 2005;(2):CD003417.
15.
Gibson PG, Powell H, Wilson A, et al. Self-management education and regular practitioner review for adults with asthma. Cochrane Database Syst Rev. 2002;(2):CD001117.
16.
17.
Ursum J, Rijken M, Heijmans M, Cardol M, Schellevis F. Zorg voor chronisch zieken: Organisatie van zorg, zelfmanagement, zelfredzaamheid en participatie. Utrecht: NIVEL; 2011.
18.
Trappenburg J, Jonkman N, Jaarsma T, et al. Self-management: one size does not fit all. Patient Educ Couns. 2013; 92: 134-137.CrossRefPubMed
19.
DiMatteo M, Haskard K, Williams S. Health beliefs, disease severity, and patient adherence. A meta-analysis. Med Care. 2007; 45: 521-528.CrossRefPubMed
20.
Jansen D, Grootendorst D, Rijken M, et al. Predialysis patients’ perceives autonomy, self-esteem and labour participation: associations with illness perceptions and treatment perceptions. A cross-sectional study. BMC Nephrol. 2010;11.
21.
Kaptein A, Hughes B, Scharloo M, et al. Illness perceptions about asthma are determinants of outcome. J Asthma. 2008; 45: 459-464.CrossRefPubMed
22.
Leventhal H, Diefenbach M. Illness cognition: using common sense to understand treatment adherence and affect cognition interactions. Cogn Ther Res. 1992; 16: 143-163.CrossRef
23.
Scharloo M, Kaptein A, Weinman J, et al. Illness perceptions, coping and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease and psoriasis. J Psychosom Res. 1998; 44: 573-585.CrossRefPubMed
24.
Lazarus R, Folkman S. Stress, Appraisal, and Coping. New York: Pergamon; 1984.
25.
Heijmans M, Rijken M, Foets M, De Ridder D, Schreurs K, Bensing J. The stress of being chronically ill: from disease-specific to task-specific aspects. J Behav Med. 2004; 27: 255-271.CrossRefPubMed
26.
Lorig KR, Ritter P, Stewart AL, et al. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care. 2001; 39: 1217-1223.CrossRefPubMed
27.
Rijken M, Bekkema N, Boeckxstaen P, Schellevis FG, Maeseneer JM de, Groenewegen PP. Chronic Disease Management Programmes: an adequate response to patients’ needs? Health Expectations. 2012.
28.
Rijken M, Bensing J. Het nationaal Patiëntenpanel Chronisch Zieken. Een onderzoeksinfrastructuur voor patiëntengericht onderzoek. Utrecht: NIVEL; 2000.
29.
Rijken M, Groenewegen P. Money does not bring well-being, but it does help! The relationship between financial resources and life satisfaction of chronically ill mediated by social deprivation and loneliness. J Commun Appl Soc Psychol. 2008; 18: 39-53.CrossRef
30.
Bayliss E, Steiner J, Fernald D, Crane L, Main D. Descriptions of barriers to self-care by persons with comorbid chronic diseases. Ann Fam Med. 2003; 1: 15-21.CrossRefPubMedCentralPubMed
31.
Lamberts H, Wood M. ICPD. International Classification of Primary Care. Oxford: Oxford University Press; 1987.
32.
Hooper D, Coughlan J, Mullen M. Structural equation modelling: guidelines for determining model fit. Electron J Bus Res Methods. 2008; 6: 53-60.
33.
Jörskog K, Sörbom D. LISREL 8: Structural Equation Modelling with the SIMPLIS Command Language. Chicago: Scientific Software International Inc.; 1993.
34.
Hu L, Bentler P. Cutoff criteria for fit indexes in covariance structure analysis: conventional criteria versus new alternatives. Struct Equ Model. 1999; 6: 1-55.CrossRef
35.
Dekker J, Rijken M, van Poppels M, de Bruin A. The possession of technical aids among persons with somatic chronic disease. Disabil Rehabil. 2003; 26: 393-398.
36.
Elissen A, Nolte E, Knai C, et al. Is Europe putting theory into practice? A qualitative study of level of self-management support in chronic care approaches. BMC Health Serv Res. 2013; 13: 117-126.CrossRefPubMedCentralPubMed
37.
Rabiau M, Knauper B, Miquelon P. The external quest for optimal balance between maximizing pleasure and minimizing harm: the compensatory health beliefs model. Br J Health Psychol. 2006; 11: 139-153.CrossRef
Metadata
Title
Patient-Perceived Self-Management Tasks and Support Needs of People with Chronic Illness: Generic or Disease Specific?
Authors
Lieke van Houtum, MSc
Mieke Rijken, PhD
Monique Heijmans, PhD
Peter Groenewegen, PhD
Publication date
01-04-2015
Publisher
Springer US
Published in
Annals of Behavioral Medicine / Issue 2/2015
Print ISSN: 0883-6612
Electronic ISSN: 1532-4796
DOI
https://doi.org/10.1007/s12160-014-9649-0

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