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Open Access 01-12-2014 | Oral presentation

Patient innovation under rare diseases and chronic needs

Authors: Pedro Oliveira, Leid Zejnilovic, Helena Canhão, Eric von Hippel

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

The patients afflicted by more than 7000 rare diseases are in “orphan” markets. They can expect little help from producers in the form of specialized products, and they have strong incentives to develop, or adopt solutions developed by peers, to help them cope with the diseases. We don’t know the extent to which patients and caregivers respond to these incentives and innovate, how they perceive impact of their solutions, and how they share their solutions with others. …

Title: Patient innovation under rare diseases and chronic needs
Authors: Pedro Oliveira
Leid Zejnilovic
Helena Canhão
Eric von Hippel
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O33

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Patient innovation under rare diseases and chronic needs

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