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13-09-2023 | Parkinson's Disease | ORIGINAL PAPER

Spirituality and Spiritual Distress in Parkinson’s Disease Caregivers: A Scoping Review

Authors: Sandhya Seshadri, Kei Sugiura, Miray Mirham, Whitley W. Aamodt, Benzi M. Kluger

Published in: Journal of Religion and Health | Issue 6/2023

Abstract

Despite recognition that spiritual concerns contribute to caregiver burden, little is known about spirituality, spiritual well-being, and spiritual distress in Parkinson’s disease caregivers. In this scoping review of the literature through October 2022, we searched PubMed, PsychINFO, Embase, and CINAHL. From an initial pool of 328 studies, 14 were included. Caregiver factors (e.g., depression, age) and patient factors (e.g., faith, motor function) affected caregiver spirituality and spiritual well-being. Caregivers experienced loss of meaning, existential guilt, and loneliness, and coped through acquiescence, cultural beliefs, prayer, and gratitude. Future research should focus on the specific spiritual needs of Parkinson’s disease caregivers and interventions to address them.

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Title: Spirituality and Spiritual Distress in Parkinson’s Disease Caregivers: A Scoping Review
Authors: Sandhya Seshadri
Kei Sugiura
Miray Mirham
Whitley W. Aamodt
Benzi M. Kluger
Publication date: 13-09-2023
Publisher: Springer US
Keyword: Parkinson's Disease
Published in: Journal of Religion and Health / Issue 6/2023
Print ISSN: 0022-4197
Electronic ISSN: 1573-6571
DOI: https://doi.org/10.1007/s10943-023-01913-5

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Spirituality and Spiritual Distress in Parkinson’s Disease Caregivers: A Scoping Review

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