Published in:
Open Access
01-12-2008 | Research article
Palliative care for cancer patients in a primary health care setting: Bereaved relatives' experience, a qualitative group interview study
Authors:
Mette Asbjoern Neergaard, Frede Olesen, Anders Bonde Jensen, Jens Sondergaard
Published in:
BMC Palliative Care
|
Issue 1/2008
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Abstract
Background
Knowledge about the quality and organisation of care to terminally ill cancer patients with a relatives' view in a primary health care setting is limited.
The aim of the study is to analyse experiences and preferences of bereaved relatives to terminally ill cancer patients in a primary care setting to explore barriers and facilitators for delivery of good palliative home care.
Methods
Three focus group interviews with fourteen bereaved relatives in Aarhus County, Denmark.
Results
Three main categories of experience were identified: 1) The health professionals' management, where a need to optimize was found. 2) Shared care, which was lacking. 3) The relatives' role, which needs an extra focus.
Conclusion
Relatives experience insufficient palliative care mainly due to organizational and cultural problems among professionals. Palliative care in primary care in general needs improvement and attention should be drawn to the "professionalization" of the relatives and the need to strike a balance between their needs, wishes and resources in end-of-life care and bereavement.