Skip to main content
Top
Published in: BMC Health Services Research 1/2024

Open Access 01-12-2024 | Research

Navigation programs to support community-dwelling individuals with life-limiting illness: determinants of implementation

Authors: Sarah Scruton, Grace Warner, Cynthia Kendell, Kathryn Pfaff, Kelli Stajduhar, Linda Patrick, Carren Dujela, Faith Fauteux, Robin Urquhart

Published in: BMC Health Services Research | Issue 1/2024

Login to get access

Abstract

Background

As the Canadian population ages and the prevalence of chronic illnesses increases, delivering high-quality care to individuals with advanced life limiting illnesses becomes more challenging. Community-based navigation programs are a promising approach to address these challenges, but little is known about how these programs are successfully implemented to meet the needs of this population. This study sought to identify the key determinants that contribute to the successful implementation of these programs within Canada.

Methods

A qualitative study was undertaken to understand the implementation of eleven innovative, community-based navigation programs that aim to address the needs of individuals with life-limiting illnesses as they approach the end of life. The Consolidated Framework for Implementation Research (CFIR) guided the study design. Key informants (n = 23) within these programs took part in semi-structured interviews where they were asked to discuss how these programs are implemented. Data were analyzed using techniques employed in qualitative description.

Results

We identified key determinants of successful implementation within each CFIR domain. In the outer setting domain, participants emphasized the importance of filling gaps in care to meet client needs, developing strong relationships with clients and community-based organizations, and navigating relationships with healthcare providers. At the inner setting level, leadership support, staff compatibility, and available resources were identified as important factors. In terms of intervention characteristics, the ability to adapt was cited as a facilitator, whereas costs were identified as a barrier. For the characteristics of individuals, participants described the importance of having staff whose values align with the program, and who have the experience and skills necessary to work with complex clients. Finally, having strong champions and evaluation processes were highlighted as important process-oriented determinants of successful implementation.

Conclusion

This study provides valuable insights into the determinants of successful implementation of community-based navigation programs in Canada. Understanding these determinants can guide the future development and integration of navigation programs to successfully meet the needs of those with life-limiting illnesses.
Appendix
Available only for authorised users
Literature
7.
go back to reference Burge F, Lawson B, Johnston G, Asada Y, McIntyre PF, Flowerdew G. Preferred and actual location of death: what factors enable a preferred home death? J Palliat Med. 2015;18(12):1054–9.CrossRefPubMed Burge F, Lawson B, Johnston G, Asada Y, McIntyre PF, Flowerdew G. Preferred and actual location of death: what factors enable a preferred home death? J Palliat Med. 2015;18(12):1054–9.CrossRefPubMed
8.
go back to reference Higginson IJ, Sen-Gupta GJ. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med. 2000;3(3):287–300.CrossRefPubMed Higginson IJ, Sen-Gupta GJ. Place of care in advanced cancer: a qualitative systematic literature review of patient preferences. J Palliat Med. 2000;3(3):287–300.CrossRefPubMed
9.
go back to reference Gomes B, Calanzani N, Gysels M, Hall S, Higginson IJ. Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliat Care. 2013;12(1):7.CrossRefPubMedPubMedCentral Gomes B, Calanzani N, Gysels M, Hall S, Higginson IJ. Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliat Care. 2013;12(1):7.CrossRefPubMedPubMedCentral
10.
go back to reference Burge F, Lawson B, Johnston G, Asada Y, McIntyre PF, Grunfeld E, et al. Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter? BMC Palliat Care. 2014;13:25.CrossRefPubMedPubMedCentral Burge F, Lawson B, Johnston G, Asada Y, McIntyre PF, Grunfeld E, et al. Bereaved family member perceptions of patient-focused family-centred care during the last 30 days of life using a mortality follow-back survey: does location matter? BMC Palliat Care. 2014;13:25.CrossRefPubMedPubMedCentral
11.
13.
go back to reference Aubin M, Giguère A, Martin M, Verreault R, Fitch MI, Kazanjian A, et al. Interventions to improve continuity of care in the follow-up of patients with cancer. Cochrane Database Syst Rev. 2012;7:CD007672. Aubin M, Giguère A, Martin M, Verreault R, Fitch MI, Kazanjian A, et al. Interventions to improve continuity of care in the follow-up of patients with cancer. Cochrane Database Syst Rev. 2012;7:CD007672.
14.
go back to reference Marshall D, Howell D, Brazil K, Howard M, Taniguchi A. Enhancing family physician capacity to deliver quality palliative home care: an end-of-life, shared-care model. Can Fam Physician. 2008;54(12):1703-1703.e7.PubMedPubMedCentral Marshall D, Howell D, Brazil K, Howard M, Taniguchi A. Enhancing family physician capacity to deliver quality palliative home care: an end-of-life, shared-care model. Can Fam Physician. 2008;54(12):1703-1703.e7.PubMedPubMedCentral
15.
go back to reference Seow H, Brazil K, Sussman J, Pereira J, Marshall D, Austin PC, et al. Impact of community based, specialist palliative care teams on hospitalisations and emergency department visits late in life and hospital deaths: a pooled analysis. BMJ. 2014;6(348):g3496.CrossRef Seow H, Brazil K, Sussman J, Pereira J, Marshall D, Austin PC, et al. Impact of community based, specialist palliative care teams on hospitalisations and emergency department visits late in life and hospital deaths: a pooled analysis. BMJ. 2014;6(348):g3496.CrossRef
16.
go back to reference Katz A, Martens P, Chateau D, Bogdanovic B, Koseva I. Do primary care physicians coordinate ambulatory care for chronic disease patients in Canada? BMC Fam Pract. 2014;15(1):148.CrossRefPubMedPubMedCentral Katz A, Martens P, Chateau D, Bogdanovic B, Koseva I. Do primary care physicians coordinate ambulatory care for chronic disease patients in Canada? BMC Fam Pract. 2014;15(1):148.CrossRefPubMedPubMedCentral
17.
go back to reference Di Palo KE, Patel K, Assafin M, Piña IL. Implementation of a patient navigator program to reduce 30-day heart failure readmission rate. Prog Cardiovasc Dis. 2017;60(2):259–66.CrossRefPubMed Di Palo KE, Patel K, Assafin M, Piña IL. Implementation of a patient navigator program to reduce 30-day heart failure readmission rate. Prog Cardiovasc Dis. 2017;60(2):259–66.CrossRefPubMed
18.
go back to reference Percac-Lima S, Ashburner JM, Rigotti NA, Park ER, Chang Y, Kuchukhidze S, et al. Patient navigation for lung cancer screening among current smokers in community health centers a randomized controlled trial. Cancer Med. 2018;7(3):894–902.CrossRefPubMedPubMedCentral Percac-Lima S, Ashburner JM, Rigotti NA, Park ER, Chang Y, Kuchukhidze S, et al. Patient navigation for lung cancer screening among current smokers in community health centers a randomized controlled trial. Cancer Med. 2018;7(3):894–902.CrossRefPubMedPubMedCentral
19.
go back to reference Rodday AM, Parsons SK, Snyder F, Simon MA, Llanos AAM, Warren-Mears V, et al. Impact of patient navigation in eliminating economic disparities in cancer care. Cancer. 2015;121(22):4025–34.CrossRefPubMed Rodday AM, Parsons SK, Snyder F, Simon MA, Llanos AAM, Warren-Mears V, et al. Impact of patient navigation in eliminating economic disparities in cancer care. Cancer. 2015;121(22):4025–34.CrossRefPubMed
20.
go back to reference Freund KM, Battaglia TA, Calhoun E, Darnell JS, Dudley DJ, Fiscella K, et al. Impact of patient navigation on timely cancer care: the patient navigation research program. J Natl Cancer Inst. 2014;106(6):dju115.CrossRefPubMedPubMedCentral Freund KM, Battaglia TA, Calhoun E, Darnell JS, Dudley DJ, Fiscella K, et al. Impact of patient navigation on timely cancer care: the patient navigation research program. J Natl Cancer Inst. 2014;106(6):dju115.CrossRefPubMedPubMedCentral
21.
go back to reference Ko NY, Darnell JS, Calhoun E, Freund KM, Wells KJ, Shapiro CL, et al. Can patient navigation improve receipt of recommended breast cancer care? Evidence from the National patient navigation research program. J Clin Oncol. 2014;32(25):2758–64.CrossRefPubMedPubMedCentral Ko NY, Darnell JS, Calhoun E, Freund KM, Wells KJ, Shapiro CL, et al. Can patient navigation improve receipt of recommended breast cancer care? Evidence from the National patient navigation research program. J Clin Oncol. 2014;32(25):2758–64.CrossRefPubMedPubMedCentral
22.
go back to reference Balaban RB, Galbraith AA, Burns ME, Vialle-Valentin CE, Larochelle MR, Ross-Degnan D. A patient navigator intervention to reduce hospital readmissions among high-risk safety-net patients: a randomized controlled trial. J Gen Intern Med. 2015;30(7):907–15.CrossRefPubMedPubMedCentral Balaban RB, Galbraith AA, Burns ME, Vialle-Valentin CE, Larochelle MR, Ross-Degnan D. A patient navigator intervention to reduce hospital readmissions among high-risk safety-net patients: a randomized controlled trial. J Gen Intern Med. 2015;30(7):907–15.CrossRefPubMedPubMedCentral
23.
go back to reference Chan RJ, Milch VE, Crawford-Williams F, Agbejule OA, Joseph R, Johal J, et al. Patient navigation across the cancer care continuum: an overview of systematic reviews and emerging literature. CA. 2023;73(6):565–89.PubMed Chan RJ, Milch VE, Crawford-Williams F, Agbejule OA, Joseph R, Johal J, et al. Patient navigation across the cancer care continuum: an overview of systematic reviews and emerging literature. CA. 2023;73(6):565–89.PubMed
24.
go back to reference Pesut B, Hooper B, Jacobsen M, Nielsen B, Falk M, ‘Connor B. Nurse-led navigation to provide early palliative care in rural areas: a pilot study. BMC Palliative Care. 2017 Jun 5;16. Pesut B, Hooper B, Jacobsen M, Nielsen B, Falk M, ‘Connor B. Nurse-led navigation to provide early palliative care in rural areas: a pilot study. BMC Palliative Care. 2017 Jun 5;16.
25.
go back to reference Bainbridge D, Seow H, Sussman J. Common components of efficacious in-home end-of-life care programs: a review of systematic reviews. J Am Geriatr Soc. 2016;64(3):632–9.CrossRefPubMed Bainbridge D, Seow H, Sussman J. Common components of efficacious in-home end-of-life care programs: a review of systematic reviews. J Am Geriatr Soc. 2016;64(3):632–9.CrossRefPubMed
26.
go back to reference Brumley RD, Enguidanos S, Cherin DA. Effectiveness of a home-based palliative care program for end-of-life. J Palliat Med. 2003;6(5):715–24.CrossRefPubMed Brumley RD, Enguidanos S, Cherin DA. Effectiveness of a home-based palliative care program for end-of-life. J Palliat Med. 2003;6(5):715–24.CrossRefPubMed
27.
go back to reference Pesut B, Duggleby W, Warner G, Fassbender K, Antifeau E, Hooper B, et al. Volunteer navigation partnerships: piloting a compassionate community approach to early palliative care. BMC Palliat Care. 2017;17(1):2.CrossRefPubMedPubMedCentral Pesut B, Duggleby W, Warner G, Fassbender K, Antifeau E, Hooper B, et al. Volunteer navigation partnerships: piloting a compassionate community approach to early palliative care. BMC Palliat Care. 2017;17(1):2.CrossRefPubMedPubMedCentral
28.
go back to reference Dolovich L, Oliver D, Lamarche L, Agarwal G, Carr T, Chan D, et al. A protocol for a pragmatic randomized controlled trial using the health teams advancing patient experience: strengthening quality (Health TAPESTRY) platform approach to promote person-focused primary healthcare for older adults. Implement Sci. 2016;5(11):49. Dolovich L, Oliver D, Lamarche L, Agarwal G, Carr T, Chan D, et al. A protocol for a pragmatic randomized controlled trial using the health teams advancing patient experience: strengthening quality (Health TAPESTRY) platform approach to promote person-focused primary healthcare for older adults. Implement Sci. 2016;5(11):49.
29.
go back to reference Anthonisen G, Luke A, MacNeill L, MacNeill AL, Goudreau A, Doucet S. Patient navigation programs for people with dementia, their caregivers, and members of the care team: a scoping review. JBI Evid Synth. 2023;21(2):281–325.CrossRefPubMed Anthonisen G, Luke A, MacNeill L, MacNeill AL, Goudreau A, Doucet S. Patient navigation programs for people with dementia, their caregivers, and members of the care team: a scoping review. JBI Evid Synth. 2023;21(2):281–325.CrossRefPubMed
30.
go back to reference Pratt-Chapman ML, Silber R, Tang J, Le PTD. Implementation factors for patient navigation program success: a qualitative study. Implement Sci Commun. 2021;2(1):141.CrossRefPubMedPubMedCentral Pratt-Chapman ML, Silber R, Tang J, Le PTD. Implementation factors for patient navigation program success: a qualitative study. Implement Sci Commun. 2021;2(1):141.CrossRefPubMedPubMedCentral
31.
go back to reference Urquhart R, Kendell C, Pfaff K, Stajduhar K, Patrick L, Dujela C, et al. How do navigation programs address the needs of those living in the community with advanced, life-limiting Illness? A realist evaluation of programs in Canada. BMC Palliat Care. 2023;15(22):179.CrossRef Urquhart R, Kendell C, Pfaff K, Stajduhar K, Patrick L, Dujela C, et al. How do navigation programs address the needs of those living in the community with advanced, life-limiting Illness? A realist evaluation of programs in Canada. BMC Palliat Care. 2023;15(22):179.CrossRef
33.
go back to reference Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4(1):50.CrossRefPubMedPubMedCentral Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4(1):50.CrossRefPubMedPubMedCentral
34.
go back to reference DeLurio J, Erinoff E, Hulshizer R, Robertson D, Wilkinson B, Schoelles K. Horizon Scanning Protocol and Operations Manual September 2015 Revision. Rockville, MD: Agency for Healthcare Research and Quality; 2015. DeLurio J, Erinoff E, Hulshizer R, Robertson D, Wilkinson B, Schoelles K. Horizon Scanning Protocol and Operations Manual September 2015 Revision. Rockville, MD: Agency for Healthcare Research and Quality; 2015.
35.
go back to reference Touzel M, Shadd J. Content validity of a conceptual model of a palliative approach. J Palliat Med. 2018;21(11):1627–35.CrossRefPubMed Touzel M, Shadd J. Content validity of a conceptual model of a palliative approach. J Palliat Med. 2018;21(11):1627–35.CrossRefPubMed
36.
go back to reference Valaitis RK, Carter N, Lam A, Nicholl J, Feather J, Cleghorn L. Implementation and maintenance of patient navigation programs linking primary care with community-based health and social services: a scoping literature review. BMC Health Serv Res. 2017;17(1):116.CrossRefPubMedPubMedCentral Valaitis RK, Carter N, Lam A, Nicholl J, Feather J, Cleghorn L. Implementation and maintenance of patient navigation programs linking primary care with community-based health and social services: a scoping literature review. BMC Health Serv Res. 2017;17(1):116.CrossRefPubMedPubMedCentral
37.
38.
go back to reference Kiran T, Rodrigues J, Aratangy T, Devotta K, Sava N, O’Campo P. Awareness and use of community services among primary care physicians. Healthcare policy = Politiques de sante. 2020;16:58–77.CrossRefPubMedPubMedCentral Kiran T, Rodrigues J, Aratangy T, Devotta K, Sava N, O’Campo P. Awareness and use of community services among primary care physicians. Healthcare policy = Politiques de sante. 2020;16:58–77.CrossRefPubMedPubMedCentral
40.
go back to reference Cent MA, Shivers K. Physician collaboration & quality improvement outcomes: through the establishment of disease-site teams. Oncology Issues. 2010;25(1):30–7.CrossRef Cent MA, Shivers K. Physician collaboration & quality improvement outcomes: through the establishment of disease-site teams. Oncology Issues. 2010;25(1):30–7.CrossRef
41.
go back to reference Whitley E, Valverde P, Wells K, Williams L, Teschner T, Shih YCT. Establishing common cost measures to evaluate the economic value of patient navigation programs. Cancer. 2011;117(S15):3616–23.CrossRef Whitley E, Valverde P, Wells K, Williams L, Teschner T, Shih YCT. Establishing common cost measures to evaluate the economic value of patient navigation programs. Cancer. 2011;117(S15):3616–23.CrossRef
42.
go back to reference Kokorelias KM, Shiers-Hanley JE, Rios J, Knoepfli A, Hitzig SL. Factors Influencing the implementation of patient navigation programs for adults with complex needs: a scoping review of the literature. Health Serv Insights. 2021;17(14):11786329211033268. Kokorelias KM, Shiers-Hanley JE, Rios J, Knoepfli A, Hitzig SL. Factors Influencing the implementation of patient navigation programs for adults with complex needs: a scoping review of the literature. Health Serv Insights. 2021;17(14):11786329211033268.
43.
go back to reference Rocque GB, Dionne-Odom JN, Sylvia Huang CH, Niranjan SJ, Williams CP, Jackson BE, et al. Implementation and impact of patient lay navigator-led advance care planning conversations. J Pain Symptom Manage. 2017;53(4):682–92.CrossRefPubMedPubMedCentral Rocque GB, Dionne-Odom JN, Sylvia Huang CH, Niranjan SJ, Williams CP, Jackson BE, et al. Implementation and impact of patient lay navigator-led advance care planning conversations. J Pain Symptom Manage. 2017;53(4):682–92.CrossRefPubMedPubMedCentral
44.
go back to reference Damschroder LJ, Reardon CM, Widerquist MAO, Lowery J. The updated consolidated framework for implementation research based on user feedback. Implement Sci. 2022;17(1):75.CrossRefPubMedPubMedCentral Damschroder LJ, Reardon CM, Widerquist MAO, Lowery J. The updated consolidated framework for implementation research based on user feedback. Implement Sci. 2022;17(1):75.CrossRefPubMedPubMedCentral
Metadata
Title
Navigation programs to support community-dwelling individuals with life-limiting illness: determinants of implementation
Authors
Sarah Scruton
Grace Warner
Cynthia Kendell
Kathryn Pfaff
Kelli Stajduhar
Linda Patrick
Carren Dujela
Faith Fauteux
Robin Urquhart
Publication date
01-12-2024
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2024
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-024-10541-y

Other articles of this Issue 1/2024

BMC Health Services Research 1/2024 Go to the issue