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Published in: Health and Quality of Life Outcomes 1/2018

Open Access 01-12-2018 | Research

Comparison of patient and physician perspectives in the management of rheumatoid arthritis: results from global physician- and patient-based surveys

Authors: Allan Gibofsky, James Galloway, Joern Kekow, Cristiano Zerbini, Maria de la Vega, Gavin Lee, Eun Young Lee, Catalin Codreanu, Cheryl Koehn, Kathy Steinberg, Eustratios Bananis, Dario Ponce de Leon, Anna Maniccia, Ara Dikranian, for the RA NarRAtive global advisory panel

Published in: Health and Quality of Life Outcomes | Issue 1/2018

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Abstract

Background

In order to better understand the perspectives of patients and physicians regarding the treatment and management of rheumatoid arthritis (RA), we present and compare results from a patient-based and a physician-based survey developed by the RA NarRAtive advisory panel.

Methods

The RA NarRAtive initiative is directed by a global advisory panel of 39 healthcare providers and patient organization leaders from 17 countries. A survey of patients self-reporting a diagnosis of RA and a physician-based survey, designed by the advisory panel, were fielded online by Harris Poll from September 2014 to April 2016, and from August 2015 to October 2015, respectively.

Results

We present findings from 1805 patients whose RA was primarily managed by a rheumatologist, and 1736 physicians managing patients with RA. Results confirmed that RA carries a substantial disease burden; half of the patients surveyed reported stopping participation in certain activities as a result of their disease. While 90% of physicians were satisfied with their communications with their patients regarding RA treatment, 61% of patients felt uncomfortable raising concerns or fears with their physician. Of the patients providing responses, 52% felt that improved dialogue/discussion would optimize their RA management, and 68% of physicians wished that they and their patients talked more about their RA goals and treatment. Overall, 88% of physicians agreed that patients involved in making treatment decisions tend to be more satisfied with their treatment experience.

Conclusion

The results of these surveys highlight the impact of RA on patients, and a discrepancy between patient and physician views on communication. Further research, focused on improving patient–physician dialogue, shared goal-setting, and treatment planning, is needed.
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Metadata
Title
Comparison of patient and physician perspectives in the management of rheumatoid arthritis: results from global physician- and patient-based surveys
Authors
Allan Gibofsky
James Galloway
Joern Kekow
Cristiano Zerbini
Maria de la Vega
Gavin Lee
Eun Young Lee
Catalin Codreanu
Cheryl Koehn
Kathy Steinberg
Eustratios Bananis
Dario Ponce de Leon
Anna Maniccia
Ara Dikranian
for the RA NarRAtive global advisory panel
Publication date
01-12-2018
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2018
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/s12955-018-1035-3

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