Skip to main content
Top
Published in: Health and Quality of Life Outcomes 1/2014

Open Access 01-12-2014 | Research

Health-Related Quality of Life (HRQoL) changes in South Australia: comparison of burden of disease morbidity and survey-based health utility estimates

Authors: David Banham, Graeme Hawthorne, Robert Goldney, Julie Ratcliffe

Published in: Health and Quality of Life Outcomes | Issue 1/2014

Login to get access

Abstract

Background

Global research shows a clear transition in health outcomes over the past two decades where improved survival was accompanied by lower health related quality of life (HRQoL) as measured by morbidity and disability. These trends suggest the need to better understand changes in population HRQoL. This paper compares two perspectives on population HRQoL change using burden of disease morbidity estimates from administrative data and self-reports from random and representative population surveys.

Methods

South Australian administrative data including inpatient hospital activity, cancer and communicable disease registrations were used within a Burden of Disease study framework to quantify morbidity as Prevalent Years of Life lived with Disease and injury related illness (PYLD) for 1999 to 2008. Self-reported HRQoL was measured using the Assessment of Quality of Life (AQoL) in face to face interviews with at least 3000 respondents in each of South Australia’s Health Omnibus Surveys (HOS) in 1998, 2004 and 2008.

Results

Age specific PYLD rates for those aged 75 or more increased by 5.1%. HRQoL dis-utility in this age group also increased significantly and beyond the minimally important difference threshold. Underlying increased dis-utility were greater difficulties in independent living (particularly requiring help with household tasks) and psychological well-being (as influenced by pain, discomfort and difficulty sleeping).

Conclusions

Consistent with increased quantity of life being accompanied by reduced HRQoL, the analysis indicates older people in South Australia experienced increased morbidity in the decade to 2008. The results warrant routine monitoring of health dis-utility at a population level and improvement to the supply and scope of administrative data.
Literature
1.
go back to reference Salomon JA, Wang H, Freeman MK, Vos T, Flaxman AD, Lopez AD, Murray CJL: Healthy life expectancy for 187 countries, 1990–2010: a systematic analysis for the Global Burden Disease Study 2010. Lancet 2012, 380: 2144–2162.CrossRefPubMed Salomon JA, Wang H, Freeman MK, Vos T, Flaxman AD, Lopez AD, Murray CJL: Healthy life expectancy for 187 countries, 1990–2010: a systematic analysis for the Global Burden Disease Study 2010. Lancet 2012, 380: 2144–2162.CrossRefPubMed
2.
go back to reference Audureau E, Rican S, Coste J: Worsening trends and increasing disparities in health-related quality of life: evidence from two French population-based cross-sectional surveys, 1995–2003. Qual Life Res 2013, 22: 13–26.CrossRefPubMed Audureau E, Rican S, Coste J: Worsening trends and increasing disparities in health-related quality of life: evidence from two French population-based cross-sectional surveys, 1995–2003. Qual Life Res 2013, 22: 13–26.CrossRefPubMed
3.
go back to reference Banham D, Woollacott T, Lynch J: Healthy life gains in South Australia 1999–2008: analysis of a local Burden of Disease series. Popul Health Metrics 2011, 9: 13.CrossRef Banham D, Woollacott T, Lynch J: Healthy life gains in South Australia 1999–2008: analysis of a local Burden of Disease series. Popul Health Metrics 2011, 9: 13.CrossRef
4.
go back to reference Buckley J, Tucker G, Hugo G, Wittert G, Adams RJ, Wilson DH: The Australian Baby Boomer Population—Factors Influencing Changes to Health-Related Quality of Life Over Time. J Aging Health 2013, 25: 29–55.CrossRefPubMed Buckley J, Tucker G, Hugo G, Wittert G, Adams RJ, Wilson DH: The Australian Baby Boomer Population—Factors Influencing Changes to Health-Related Quality of Life Over Time. J Aging Health 2013, 25: 29–55.CrossRefPubMed
5.
go back to reference Brock DW: Ethical issues in the use of cost effectiveness analysis for the prioritisation of health care resources. In Public Health, Ethics, and Equity. Edited by: Anand S, Peter F, Sen A. Oxford University Press, Oxford; 2004:201–223. 3 Brock DW: Ethical issues in the use of cost effectiveness analysis for the prioritisation of health care resources. In Public Health, Ethics, and Equity. Edited by: Anand S, Peter F, Sen A. Oxford University Press, Oxford; 2004:201–223. 3
6.
go back to reference Vos T, Flaxman AD, Naghavi M, Lozano R, Michaud C, Ezzati M, Shibuya K, Salomon JA, Abdalla S, Aboyans V, Abraham J, Ackerman I, Aggarwal R, Ahn SY, Ali MK, Alvarado M, Anderson HR, Anderson LM, Andrews KG, Atkinson C, Baddour LM, Bahalim AN, Barker-Collo S, Barrero LH, Bartels DH, Basáñez M-G, Baxter A, Bell ML, Benjamin EJ, Bennett D, et al.: Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990–2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet 2012, 380: 2163–2196.CrossRefPubMed Vos T, Flaxman AD, Naghavi M, Lozano R, Michaud C, Ezzati M, Shibuya K, Salomon JA, Abdalla S, Aboyans V, Abraham J, Ackerman I, Aggarwal R, Ahn SY, Ali MK, Alvarado M, Anderson HR, Anderson LM, Andrews KG, Atkinson C, Baddour LM, Bahalim AN, Barker-Collo S, Barrero LH, Bartels DH, Basáñez M-G, Baxter A, Bell ML, Benjamin EJ, Bennett D, et al.: Years lived with disability (YLDs) for 1160 sequelae of 289 diseases and injuries 1990–2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet 2012, 380: 2163–2196.CrossRefPubMed
8.
go back to reference Begg S, Vos T, Barker B, Stevenson C, Stanley L, Lopez AD: Burden of Disease and Injury in Australia, 2003. Canberra, AIHW; 2007. Begg S, Vos T, Barker B, Stevenson C, Stanley L, Lopez AD: Burden of Disease and Injury in Australia, 2003. Canberra, AIHW; 2007.
9.
go back to reference Polinder S, Haagsma J, Stein C, Havelaar A: Systematic review of general burden of disease studies using disability-adjusted life years. Popul Health Metrics 2012, 10: 21.CrossRef Polinder S, Haagsma J, Stein C, Havelaar A: Systematic review of general burden of disease studies using disability-adjusted life years. Popul Health Metrics 2012, 10: 21.CrossRef
10.
go back to reference Australian Institute of Health and Welfare: Assessment of Global Burden of Disease 2010 methods for the Australian context: Australian Burden of Disease Study Working paper No. 1. AIHW, Canberra; 2014. Australian Institute of Health and Welfare: Assessment of Global Burden of Disease 2010 methods for the Australian context: Australian Burden of Disease Study Working paper No. 1. AIHW, Canberra; 2014.
11.
go back to reference Ministry of Health (New Zealand): Ways and Means: A report on methodology from the New Zealand Burden of Diseases, Injuries and Risk Factors Study, 2006–2016. Ministry of Health, Wellington; 2012. Ministry of Health (New Zealand): Ways and Means: A report on methodology from the New Zealand Burden of Diseases, Injuries and Risk Factors Study, 2006–2016. Ministry of Health, Wellington; 2012.
12.
go back to reference Struijk EA, May AM, Beulens JWJ, de Wit GA, Boer JMA, Onland-Moret NC, van der Schouw YT, Bueno-de-Mesquita HB, Hoekstra J, Peeters PHM: Development of Methodology for Disability-Adjusted Life Years (DALYs) Calculation Based on Real-Life Data. PLoS One 2013, 8: e74294.PubMedCentralCrossRefPubMed Struijk EA, May AM, Beulens JWJ, de Wit GA, Boer JMA, Onland-Moret NC, van der Schouw YT, Bueno-de-Mesquita HB, Hoekstra J, Peeters PHM: Development of Methodology for Disability-Adjusted Life Years (DALYs) Calculation Based on Real-Life Data. PLoS One 2013, 8: e74294.PubMedCentralCrossRefPubMed
13.
go back to reference Banham D, Lynch J, Karnon J: An equity–effectiveness framework linking health programs and healthy life expectancy. Aust J Prim Health 2011, 17: 309–319.CrossRefPubMed Banham D, Lynch J, Karnon J: An equity–effectiveness framework linking health programs and healthy life expectancy. Aust J Prim Health 2011, 17: 309–319.CrossRefPubMed
14.
go back to reference Calvert M, Brundage M, Jacobsen P, Schunemann H, Efficace F: The CONSORT Patient-Reported Outcome (PRO) extension: implications for clinical trials and practice. Health Qual Life Outcomes 2013, 11: 184.PubMedCentralCrossRefPubMed Calvert M, Brundage M, Jacobsen P, Schunemann H, Efficace F: The CONSORT Patient-Reported Outcome (PRO) extension: implications for clinical trials and practice. Health Qual Life Outcomes 2013, 11: 184.PubMedCentralCrossRefPubMed
15.
go back to reference Brazier J, Ratcliffe J, Salomon JA, Tsuchiya A: Measuring and valuing health benefits for economic evaluation. Oxford University Press, Oxford; 2007. Brazier J, Ratcliffe J, Salomon JA, Tsuchiya A: Measuring and valuing health benefits for economic evaluation. Oxford University Press, Oxford; 2007.
16.
go back to reference Population Research and Outcome Studies: South Australian Monitoring and Surveillance System (SAMSS): Survey methodology In SAMSS Technical Paper Series. SA Health, SAMSS Technical Paper Series. Adelaide, SA; 2004. Population Research and Outcome Studies: South Australian Monitoring and Surveillance System (SAMSS): Survey methodology In SAMSS Technical Paper Series. SA Health, SAMSS Technical Paper Series. Adelaide, SA; 2004.
17.
go back to reference Taylor A, Dal Grande E, Wilson D: The South Australian Health Omnibus Survey 15 Years on: Has Public Health Benefited? Public Health Bull (S Aust) 2006, 3: 30–32. Taylor A, Dal Grande E, Wilson D: The South Australian Health Omnibus Survey 15 Years on: Has Public Health Benefited? Public Health Bull (S Aust) 2006, 3: 30–32.
18.
go back to reference Hawthorne G, Richardson J, Osborne R: The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health-related quality of life. Qual Life Res 1999, 8: 209–224.CrossRefPubMed Hawthorne G, Richardson J, Osborne R: The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health-related quality of life. Qual Life Res 1999, 8: 209–224.CrossRefPubMed
19.
go back to reference Hawthorne G, Richardson J, Day N: Using the Assessment of Quality of Life (AQoL) Instrument - Version 1.0. In The Centre for Health Program Evaluation. Centre for Health Program Evaluation, Monash University and University of Melbourne, Melbourne; 2000:1–69. Hawthorne G, Richardson J, Day N: Using the Assessment of Quality of Life (AQoL) Instrument - Version 1.0. In The Centre for Health Program Evaluation. Centre for Health Program Evaluation, Monash University and University of Melbourne, Melbourne; 2000:1–69.
20.
go back to reference Hawthorne G, Osborne R: Population norms and meaningful differences for the Assessment of Quality of Life (AQoL) measure. Aust N Z J Public Health 2005, 29: 136–142.CrossRefPubMed Hawthorne G, Osborne R: Population norms and meaningful differences for the Assessment of Quality of Life (AQoL) measure. Aust N Z J Public Health 2005, 29: 136–142.CrossRefPubMed
21.
go back to reference Walters SJ, Brazier JE: Comparison of the minimally important difference for two health state utility measures: EQ-5D and SF-6D. Qual Life Res 2005, 14: 1523–1532.CrossRefPubMed Walters SJ, Brazier JE: Comparison of the minimally important difference for two health state utility measures: EQ-5D and SF-6D. Qual Life Res 2005, 14: 1523–1532.CrossRefPubMed
22.
go back to reference Australian Bureau of Statistics: Australian Demographic Statistics. ABS, Canberra; 2013. Australian Bureau of Statistics: Australian Demographic Statistics. ABS, Canberra; 2013.
23.
go back to reference Tabachnick BG, Fedele LS: Using Multivariate Statistics. HarperCollins, New York; 1996. Tabachnick BG, Fedele LS: Using Multivariate Statistics. HarperCollins, New York; 1996.
24.
go back to reference Kutner MH, Nachtsheim CJ, Neter J, Li W: Applied Linear Statistical Models. McGraw-Hill, Boston; 2005. Kutner MH, Nachtsheim CJ, Neter J, Li W: Applied Linear Statistical Models. McGraw-Hill, Boston; 2005.
25.
go back to reference Angrist JD, Pischke J-S: Mostly harmless econometrics: An Empiricist’s Companion. Princeton University Press, Princeton; 2008. Angrist JD, Pischke J-S: Mostly harmless econometrics: An Empiricist’s Companion. Princeton University Press, Princeton; 2008.
26.
go back to reference StataCorp: Stata Statistical Software: Release 12. StataCorp LP, College Station, TX; 2012. StataCorp: Stata Statistical Software: Release 12. StataCorp LP, College Station, TX; 2012.
27.
go back to reference Goldney RD, Dunn KI, Dal Grande E, Crabb S, Taylor A: Tracking depression-related mental health literacy across South Australia: a decade of change. Aust N Z J Psychiatry 2009, 43: 476–483.CrossRefPubMed Goldney RD, Dunn KI, Dal Grande E, Crabb S, Taylor A: Tracking depression-related mental health literacy across South Australia: a decade of change. Aust N Z J Psychiatry 2009, 43: 476–483.CrossRefPubMed
28.
go back to reference Australian Bureau of Statistics: Yearbook Australia 2012. Australian Bureau of Statistics, Australia; 2012. Australian Bureau of Statistics: Yearbook Australia 2012. Australian Bureau of Statistics, Australia; 2012.
29.
go back to reference Gilbert AL, Caughey GE, Vitry AI, Clark A, Ryan P, McDermott RA, Shakib S, Luszcz MA, Esterman A, Roughead EE: Ageing well: Improving the management of patients with multiple chronic health problems. Australas J Ageing 2011, 30: 32–37.CrossRefPubMed Gilbert AL, Caughey GE, Vitry AI, Clark A, Ryan P, McDermott RA, Shakib S, Luszcz MA, Esterman A, Roughead EE: Ageing well: Improving the management of patients with multiple chronic health problems. Australas J Ageing 2011, 30: 32–37.CrossRefPubMed
30.
go back to reference Reidpath DD, Allotey PA, Kouame A, Cummins RA: Measuring health in a vacuum: examining the disability weight of the DALY. Health Policy Plan 2003, 18: 351–356.CrossRefPubMed Reidpath DD, Allotey PA, Kouame A, Cummins RA: Measuring health in a vacuum: examining the disability weight of the DALY. Health Policy Plan 2003, 18: 351–356.CrossRefPubMed
31.
go back to reference King MT: A point of minimal important difference (MID): a critique of terminology and methods. Expert Rev Pharmacoecon Outcomes Res 2011, 11: 171–184.CrossRefPubMed King MT: A point of minimal important difference (MID): a critique of terminology and methods. Expert Rev Pharmacoecon Outcomes Res 2011, 11: 171–184.CrossRefPubMed
32.
go back to reference Ratcliffe J, Laver K, Couzner L, Crotty M: Health economics and geriatrics: challenges and opportunities. In Geriatrics. Edited by: Atwood PC. Intech Open Science, Rijeka; 2012:209–234. Ratcliffe J, Laver K, Couzner L, Crotty M: Health economics and geriatrics: challenges and opportunities. In Geriatrics. Edited by: Atwood PC. Intech Open Science, Rijeka; 2012:209–234.
33.
go back to reference McGrail K, Bryan S, Davis J: Let’s All Go to the PROM: The Case for Routine Patient-Reported Outcome Measurement in Canadian Healthcare. Healthc Pap 2012, 11: 8–18.CrossRef McGrail K, Bryan S, Davis J: Let’s All Go to the PROM: The Case for Routine Patient-Reported Outcome Measurement in Canadian Healthcare. Healthc Pap 2012, 11: 8–18.CrossRef
34.
go back to reference Gutacker N, Bojke C, Daidone S, Devlin N, Street A: Hospital Variation in Patient-Reported Outcomes at the Level of EQ-5D Dimensions: Evidence from England. Med Decis Making 2013, 33: 804–818.CrossRefPubMed Gutacker N, Bojke C, Daidone S, Devlin N, Street A: Hospital Variation in Patient-Reported Outcomes at the Level of EQ-5D Dimensions: Evidence from England. Med Decis Making 2013, 33: 804–818.CrossRefPubMed
Metadata
Title
Health-Related Quality of Life (HRQoL) changes in South Australia: comparison of burden of disease morbidity and survey-based health utility estimates
Authors
David Banham
Graeme Hawthorne
Robert Goldney
Julie Ratcliffe
Publication date
01-12-2014
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2014
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/s12955-014-0113-4

Other articles of this Issue 1/2014

Health and Quality of Life Outcomes 1/2014 Go to the issue