Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress
Clinical Collections
Advances in Alzheimer’s

At a glance: The ONWARDS insulin icodec trials

A round-up of the ONWARDS phase 3 clinical trials evaluating the novel weekly insulin icodec in people with diabetes.
ADVANCED SEARCH
Log in
Top
International Journal for Equity in Health
Published in: International Journal for Equity in Health 1/2019

Open Access 01-12-2019 | Research

Maternal and newborn health needs for women with walking disabilities; “the twists and turns”: a case study in Kibuku District Uganda

Authors: Rebecca R. Apolot, Elizabeth Ekirapa, Linda Waldman, Rosemary Morgan, Christine Aanyu, Aloysius Mutebi, Evelyne B. Nyachwo, Gloria Seruwagi, Suzanne N. Kiwanuka

Published in: International Journal for Equity in Health | Issue 1/2019

Login to get access

Abstract

Background

In Uganda 13% of persons have at least one form of disability. The United Nations’ Convention on the Rights of Persons with Disabilities guarantees persons with disabilities the same level of right to access quality and affordable healthcare as persons without disability. Understanding the needs of women with walking disabilities is key in formulating flexible, acceptable and responsive health systems to their needs and hence to improve their access to care. This study therefore explores the maternal and newborn health (MNH)-related needs of women with walking disabilities in Kibuku District Uganda.

Methods

We carried out a qualitative study in September 2017 in three sub-counties of Kibuku district. Four In-depth Interviews (IDIs) among purposively selected women who had walking disabilities and who had given birth within two years from the study date were conducted. Trained research assistants used a pretested IDI guide translated into the local language to collect data. All IDIs were audio recorded and transcribed verbatim before analysis. The thematic areas explored during analysis included psychosocial, mobility, health facility and personal needs of women with walking disabilities. Data was analyzed manually using framework analysis.

Results

We found that women with walking disabilities had psychosocial, mobility, special services and personal needs.
Psychosocial needs included; partners’, communities’, families’ and health workers’ acceptance. Mobility needs were associated with transport unsuitability, difficulty in finding transport and high cost of transport. Health facility needs included; infrastructure, and responsive health services needs while personal MNH needs were; personal protective wear, basic needs and birth preparedness items.

Conclusions

Women with walking disabilities have needs addressable by their communities and the health system. Communities, and health workers need to be sensitized on these needs and policies to meet and implement health system-related needs of women with disability.
Literature
1.
WHO, world bank. World Report on Disability. 2011.
2.
Uganda Bureau of Statistics. National Population and Housing Census 2014. Kampala; 2014.
3.
IRMA- Information Resources Management Association. Autism Spectrum Disorders: Breakthroughs in Research and Practice. Association IRM, editor. IGI GLOBAL DISSEMINATOR OF KNOWLEDGE. USA; 2017. 280 p.
4.
Faried A, Bachani AM, Sendjaja AN, Hung YW, Arifin MZ. Characteristics of Moderate and Severe Traumatic Brain Injury of Motorcycle Crashes in Bandung, Indonesia. World Neurosurg. 2017;
5.
United Nations. Convention on the rights of persons with disabilities and optional protocol. 2006.
6.
7.
The Lancet. Championing good health for people with disabilities. Lancet. 2011.
8.
Devkota HR, Murray E, Kett M, Groce N. Healthcare provider’s attitude towards disability and experience of women with disabilities in the use of maternal healthcare service in rural Nepal. Reprod Health. 2017;
9.
Ganle JK, Otupiri E, Obeng B, Edusie AK, Ankomah A, Adanu R. Challenges women with disability face in accessing and using maternal healthcare services in Ghana: A qualitative study. PLoS One. 2016;11(6).
10.
WHO. Trends in maternal mortality: 1990 to 2015: estimates by WHO, UNICEF, UNFPA, World Bank group and the United Nations Population Division. Organization. 2015.
11.
Alkema L, Chou D, Hogan D, Zhang S, Moller AB, Gemmill A, et al. Global, regional, and national levels and trends in maternal mortality between 1990 and 2015, with scenario-based projections to 2030: A systematic analysis by the un maternal mortality estimation inter-agency group. Lancet. 2016.
12.
Group OW, Goals SD, Group OW, Goals SD, Goals D, Goals SD. Sustainable Development Goals and targets. United Nations. 2015;
13.
Uganda Bureau of Statistics. Uganda Demographic and Health Survey 2016. Kampala; 2016.
14.
Ediau M, Wanyenze RK, Machingaidze S, Otim G, Olwedo A, Iriso R, et al. Trends in antenatal care attendance and health facility delivery following community and health facility systems strengthening interventions in Northern Uganda. BMC Pregnancy Childbirth. 2013.
15.
Child EWE. The global strategy for women’s, children’s and adolescents health. United Nations. 2016.
16.
Aniyamuzaala JR. Raising our voices for an inclusive society: challenges and opportunities for the disability rights movement in Uganda. J Hum Rights Pract. 2012.
17.
Ahumuza SE, Matovu JKB, Ddamulira JB, Muhanguzi FK. Challenges in accessing sexual and reproductive health services by people with physical disabilities in Kampala, Uganda. Reprod Health. 2014;
18.
John Mushomi Atwebembeire. Access to and Utilization of Reproductive Health Services by Women with Disabilities in Rural Uganda. In: Int Statistical Inst: Proc 58th World Statistical Congress. Dublin; 2011.
19.
Uganda Bureau of Statistics: National Population and Housing Census 2014 Area Specific Profiles. Kampala; 2017.
20.
Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: Ritchie J, Lewis J, editors. QUALITATIVE RESEARCH PRACTICE A Guide for Social Science Students and Researchers. 1st ed: SAGE Publications; 2003. p. 173–94.
21.
Gale NK, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013.
22.
Wołowicz-Ruszkowska A. How polish women with disabilities challenge the meaning of motherhood. Psychol Women Q. 2016.
23.
UNICEF. Children and Young People with Disabilities Fact Sheet. UNICEF. 2013;
24.
Bloom TL, Mosher W, Alhusen J, Lantos H, Hughes RB. Fertility Desires and Intentions Among U.S. Women by Disability Status: Findings from the 2011–2013 National Survey of family growth. Matern Child Health J. 2017.
25.
Smith E, Murray S, Yousafzai A, Kasonka L. Barriers to accessing safe motherhood and reproductive health services: the situation of women with disabilities in Lusaka. Disabil Rehabil: Zambia; 2004.
26.
Zitzelsberger H. (In)visibility: Accounts of embodiment of women with physical disabilities and differences. Disability and Society. 2005.
27.
Pousada Garc??a T, Madrid Mart??nez P, Pereira Loureiro J, Groba Gonz??lez B, D??az Mart??nez E. Influence of Disability on Maternal Care. Sex Disabil. 2015;
28.
Stöckl H, Gardner F. Women’s perceptions of how pregnancy influences the context of intimate partner violence in Germany. Cult Heal Sex. 2013.
29.
Lassi ZS, Mansoor T, Salam RA, Das JK, Bhutta ZA. Essential pre-pregnancy and pregnancy interventions for improved maternal, newborn and child health. Reproductive Health. 2014.
30.
Tanabe M, Nagujjah Y, Rimal N, Bukania F, Krause S. Intersecting sexual and reproductive health and disability in humanitarian settings: risks, needs, and capacities of refugees with disabilities in Kenya, Nepal, and Uganda. Sex Disabil. 2015.
31.
Agunbiade OM, Ogunleye OV. Constraints to exclusive breastfeeding practice among breastfeeding mothers in Southwest Nigeria: implications for scaling up. Int Breastfeed J. 2012.
32.
Bhutta ZA. Lassi ZS. Lancet: Empowering communities for maternal and newborn health; 2010.
33.
Blackford KA. Prenatal education for mothers with disabilities. J Adv Nurs. 2000.
34.
Khan F, Amatya B, Sayed TM, Butt AW, Jamil K, Iqbal W, et al. Challenges and perspectives for physical medicine and rehabilitation in Pakistan. J Rehabil Med. 2014-2021;2017.
35.
Homeyard C, Montgomery E, Chinn D, Patelarou E. Current evidence on antenatal care provision for women with intellectual disabilities: a systematic review. Midwifery. 2016.
36.
Roosmalen L Van. The BusBuddy - An Independent Wheelchair Securement System for Use in Fixed Route Transportation. Transp Res Board, 92nd Annu Meet. 2013;
37.
Naami A, Hayashi R, Liese H. The unemployment of women with physical disabilities in Ghana: issues and recommendations. Disabil Soc. 2012.
38.
Kambala C, Morse T, Masangwi S, Mitunda P. Barriers to maternal health service use in Chikhwawa. Southern Malawi Malawi Med J. 2011.
39.
Who. Health in the green economy. Health co-benefits of climate change mitigation. Med J Aust. 2011;
40.
Hartley M, Tomlinson M, Greco E, Comulada WS, Stewart J, le Roux I, et al. Depressed mood in pregnancy: prevalence and correlates in two Cape Town peri-urban settlements. Reprod Health. 2011.
41.
Sietchiping R, Permezel MJ, Ngomsi C. Transport and mobility in sub-Saharan African cities: an overview of practices, lessons and options for improvements. Cities. 2012.
42.
Lancioni GE, Oliva D, MF O”R. Ambulation, object manipulation, and multiple disabilities: Extending the applicability of a robot. J Vis Impair Blind. 1997.
43.
Joslyn-Scherer MS. Living in the state of stuck: How technologies affect the lives of people with disabilities Living in the state of stuck: how technologies affect the lives of people with disabilities. 1993.
44.
Lindsay S. Enablers and barriers affecting motor vehicle transportation among children and youth with physical disabilities: A scoping review. In: Physical Disabilities: Perspectives, Risk Factors and Quality of Life. 2017.
45.
Lassi ZS, B a H, Z a B. Community-based intervention packages for reducing maternal and neonatal morbidity and mortality and improving neonatal outcomes. Cochrane Database Syst Rev. 2010.
46.
Byamugisha R, Strøm AN, Ndeezi G, Karamagi CAS, Tylleskär T, Tumwine JK. Male partner antenatal attendance and HIV testing in eastern Uganda: a randomized facility-based intervention trial. J Int AIDS Soc. 2011.
47.
Groce NE, Kerac M, Farkas A, Schultink W, Bieler RB. Inclusive nutrition for children and adults with disabilities. The Lancet Global Health. 2013.
48.
Mohlala BKF, Boily MC, Gregson S. The forgotten half of the equation: randomized controlled trial of a male invitation to attend couple voluntary counselling and testing. AIDS. 2011.
49.
Blum LS, Sharmin T, Ronsmans C. Attending Home vs. Clinic-Based Deliveries: Perspectives of Skilled Birth Attendants in Matlab, Bangladesh. Reprod Health Matters. 2006;
50.
Mitra M, Long-Bellil LM, Iezzoni LI, Smeltzer SC, Smith LD. Pregnancy among women with physical disabilities: unmet needs and recommendations on navigating pregnancy. Disabil Health J. 2016.
51.
Anthony HK, Dufresne M. Potty parity in perspective: gender and family issues in planning and designing public restrooms. J Plan Lit. 2007.
52.
Greed C. Taking women’s bodily functions into account in urban planning and policy: public toilets and menstruation. Town Plan Rev. 2016.
Metadata
Title
Maternal and newborn health needs for women with walking disabilities; “the twists and turns”: a case study in Kibuku District Uganda
Authors
Rebecca R. Apolot
Elizabeth Ekirapa
Linda Waldman
Rosemary Morgan
Christine Aanyu
Aloysius Mutebi
Evelyne B. Nyachwo
Gloria Seruwagi
Suzanne N. Kiwanuka
Publication date
01-12-2019
Publisher
BioMed Central
Published in
International Journal for Equity in Health / Issue 1/2019
Electronic ISSN: 1475-9276
DOI
https://doi.org/10.1186/s12939-019-0947-9

Other articles of this Issue 1/2019

International Journal for Equity in Health 1/2019 Go to the issue

Research

Salutogenic health promotion program for migrant women at risk of social exclusion

Review

What constitutes patient-centred care for women: a theoretical rapid review

Research

Nutrition among children of migrant construction workers in Ahmedabad, India

Systematic review

Beyond enrolments: a systematic review exploring the factors affecting the retention of Aboriginal and Torres Strait Islander health students in the tertiary education system

Review

Barriers and facilitators to the implementation of brief interventions targeting smoking, nutrition, and physical activity for indigenous populations: a narrative review

Research

Caesarean sections in the in the context of the Chiranjeevi Yojana public private partnership program to promote institutional birth in Gujarat, India; does the embedded disincentive for caesarean section work?