Skip to main content
Top
Published in: International Journal for Equity in Health 1/2018

Open Access 01-12-2018 | Research

Using concept mapping to identify policy options and interventions towards people-centred health care services: a multi stakeholders perspective

Authors: Christine Cécile Leyns, Jan De Maeseneer, Sara Willems

Published in: International Journal for Equity in Health | Issue 1/2018

Login to get access

Abstract

Background

People-centred health care (PCC) services are identified by the WHO as important building blocks towards universal health coverage. In 2016 the WHO formulated a comprehensive framework on integrated PCC services based on an international expert consultation. Yet, expert opinions may fail to recognize the needs of all health system stakeholders. Therefore, a consultation method that includes the health workforce and laypersons, can be instrumental to elaborate this framework more in-depth. This research sought to identify participants’ perspectives on policy options and interventions to achieve people-centred health care services from a multi stakeholder perspective.

Methods

Study participants, both laypersons and health professionals, were recruited in Belgium. A total of 53 participants engaged in one of the seven concept mapping workshops. In this workshop the concept mapping methodology developed by Trochim, a highly structured qualitative group method for brainstorming and idea sharing, was used to generate and structure participants´ perspectives on what is needed to achieve PCC services. The method was validated using the WHO framework.

Results

The seven workshops together resulted in 452 different statements that were structured in a framework forming 35 clusters and four overarching domains. The four domains with their most prominent clusters were: (1) governance & policy with intersectoral health policies and affordable health for all; (2) health workforce with excellent communication skills, appreciation of health literacy challenges and respectful attitude based on cultural self-awareness; (3) integrated health services with a greater emphasis on prevention, health promotion and the availability of health education and (4) patient, person and community empowerment and participation with support for informal care, promotion of a healthy lifestyle and contextualised health education. Additionally, this study generated ideas that fitted into every single approach described in the WHO framework.

Discussion and conclusion

This study shows that in order to achieve PCC a participative approach involving all stakeholders at all levels is needed. The concept mapping process is one of these approaches that brings together diverse stakeholders and foments their egalitarian and respectful participation. The framework that resulted from this study can inform future debate regarding planning, implementation and monitoring of PCC.
Literature
1.
go back to reference WHO. World Health Report : Primary Health Care, now more than ever. Geneva: World Health Organization; 2008. WHO. World Health Report : Primary Health Care, now more than ever. Geneva: World Health Organization; 2008.
2.
go back to reference Mead N, Bower P. Patient-centeredness: a conceptual framework and review of the emperical literature. Soc Sci Med. 2000;51(7):1087–110.CrossRefPubMed Mead N, Bower P. Patient-centeredness: a conceptual framework and review of the emperical literature. Soc Sci Med. 2000;51(7):1087–110.CrossRefPubMed
3.
go back to reference Rogers CR. The foundations of the person-Centred approach. Education. 1979;100(2):98–107. Rogers CR. The foundations of the person-Centred approach. Education. 1979;100(2):98–107.
4.
go back to reference WHO. Closing the gap in a generation: health equity through action on the social determinants of health. Geneva: World Health Organization; 2008. WHO. Closing the gap in a generation: health equity through action on the social determinants of health. Geneva: World Health Organization; 2008.
5.
go back to reference WHO. Declaration of Alma Ata. Alma Ata: International Conference on Primary Health Care; 1978. WHO. Declaration of Alma Ata. Alma Ata: International Conference on Primary Health Care; 1978.
6.
go back to reference WHO. WHO global strategy on people-centred and integrated health services 2015 (interim report). Geneva: World Health Organization; 2015. WHO. WHO global strategy on people-centred and integrated health services 2015 (interim report). Geneva: World Health Organization; 2015.
8.
go back to reference Borgermans L, Marchal Y, Busetto L, et al. How to Improve Integrated Care for people with Chronic Conditions: Key findings from UE FP7 Project INTEGRATE and beyond. Int J Integr Care. 2017;17(4):7.CrossRefPubMedPubMedCentral Borgermans L, Marchal Y, Busetto L, et al. How to Improve Integrated Care for people with Chronic Conditions: Key findings from UE FP7 Project INTEGRATE and beyond. Int J Integr Care. 2017;17(4):7.CrossRefPubMedPubMedCentral
9.
go back to reference Montenegro H, Ramagem C, Kawar R, et al. Making progress in people-centered care: country experiences and lessons learnt. Int J Pers Cent Med. 2012;2(1):64–72. Montenegro H, Ramagem C, Kawar R, et al. Making progress in people-centered care: country experiences and lessons learnt. Int J Pers Cent Med. 2012;2(1):64–72.
10.
go back to reference WHO. People at the centre of health care: harmonizing mind and body, people and systems. Geneva: World Health Organization; 2007. WHO. People at the centre of health care: harmonizing mind and body, people and systems. Geneva: World Health Organization; 2007.
11.
go back to reference WHO. Framework on integrated, people-centred health services. Geneva: World Health Organization; 2016. p. A69/39. WHO. Framework on integrated, people-centred health services. Geneva: World Health Organization; 2016. p. A69/39.
12.
go back to reference Nasiru S, Aliyu GG, Gasasira A, et al. Breaking community barriers to polio vaccination in northern Nigeria: the impact of a grass roots mobilization campaign (Majigi). Pathog Glob Health. 2012;106(3):166–71.CrossRefPubMedPubMedCentral Nasiru S, Aliyu GG, Gasasira A, et al. Breaking community barriers to polio vaccination in northern Nigeria: the impact of a grass roots mobilization campaign (Majigi). Pathog Glob Health. 2012;106(3):166–71.CrossRefPubMedPubMedCentral
13.
go back to reference Larson H, Jarrett C, Eckersberger E, DMD S, Paterson P. Review: Understanding vaccine hesitancy around vaccines and vaccination from a global perspective: A systematic review of published literature, 2007–2012. Vaccine. 2014;32:2150–9.CrossRefPubMed Larson H, Jarrett C, Eckersberger E, DMD S, Paterson P. Review: Understanding vaccine hesitancy around vaccines and vaccination from a global perspective: A systematic review of published literature, 2007–2012. Vaccine. 2014;32:2150–9.CrossRefPubMed
14.
go back to reference APS F, AVM B, ACSL S, ACB N, Cerqueira ES, SJFE G. The effects of a people-centred model on longitudinality of care and utilization pattern of healthcare services—Brazilian evidence. Health Policy Plan. 2014;29(Suppl 2):107–13.CrossRef APS F, AVM B, ACSL S, ACB N, Cerqueira ES, SJFE G. The effects of a people-centred model on longitudinality of care and utilization pattern of healthcare services—Brazilian evidence. Health Policy Plan. 2014;29(Suppl 2):107–13.CrossRef
15.
go back to reference WHO. People Centred Care in Low- and Middle - Income Countries - meeting report. Geneva: World Health Organization; 2010. WHO. People Centred Care in Low- and Middle - Income Countries - meeting report. Geneva: World Health Organization; 2010.
16.
go back to reference MKS M. A people-centered approach to primary health care implementation in Mvumi, Tanzania. Soc Sci Med. 1989;28(10):1031–7.CrossRef MKS M. A people-centered approach to primary health care implementation in Mvumi, Tanzania. Soc Sci Med. 1989;28(10):1031–7.CrossRef
17.
go back to reference Srivastava A, Singh D, Montagu D, Bhattacharyya S. Putting women at the center: a review of Indian policy to address person-centered care in maternal and newborn health, family planning and abortion. BMC Public Health. 2017;18(1):20.CrossRefPubMedPubMedCentral Srivastava A, Singh D, Montagu D, Bhattacharyya S. Putting women at the center: a review of Indian policy to address person-centered care in maternal and newborn health, family planning and abortion. BMC Public Health. 2017;18(1):20.CrossRefPubMedPubMedCentral
19.
go back to reference WHO-Europe. Lessons from transforming health serrvice delivery: compendium of initiatives in the WHO European Region. Copenhagen: World Health Organization; 2016. WHO-Europe. Lessons from transforming health serrvice delivery: compendium of initiatives in the WHO European Region. Copenhagen: World Health Organization; 2016.
21.
go back to reference Namakula J, Witter S. Living through conflict and post-conflict: experiences of health workers in northern Uganda and lessons for people-centred health systems. Health Policy Plan. 2014;29:ii6–ii14.CrossRefPubMedPubMedCentral Namakula J, Witter S. Living through conflict and post-conflict: experiences of health workers in northern Uganda and lessons for people-centred health systems. Health Policy Plan. 2014;29:ii6–ii14.CrossRefPubMedPubMedCentral
22.
go back to reference Trochim W. An Introduction to Concept Mapping for Planning and Evaluation. Eval Program Plann. 1989;12:1–16.CrossRef Trochim W. An Introduction to Concept Mapping for Planning and Evaluation. Eval Program Plann. 1989;12:1–16.CrossRef
23.
go back to reference Rachlis B, Ahmad F, van Lettow M, Muula AS, Semba M, Cole DC. Using concept mapping to explore why patients become lost to follow up from an antiretroviral therapy program in the Zomba District of Malawi. BMC Health Serv Res. 2013;13(1):210.CrossRefPubMedPubMedCentral Rachlis B, Ahmad F, van Lettow M, Muula AS, Semba M, Cole DC. Using concept mapping to explore why patients become lost to follow up from an antiretroviral therapy program in the Zomba District of Malawi. BMC Health Serv Res. 2013;13(1):210.CrossRefPubMedPubMedCentral
24.
go back to reference Reis RS, Kelly CM, Parra DC, et al. Developing a research agenda for promoting physical activity in Brazil through environmental and policy change. Rev Panam Salud Publica. 2012;32(2):93–100.CrossRefPubMed Reis RS, Kelly CM, Parra DC, et al. Developing a research agenda for promoting physical activity in Brazil through environmental and policy change. Rev Panam Salud Publica. 2012;32(2):93–100.CrossRefPubMed
25.
go back to reference Mpofu E, Lawrence F, Ngoma MS, Siziya S, Malungo JR. Mapping an HIV/STD prevention curriculum for Zambian in-school settings. Int J Psychol. 2008;43(2):97–106.CrossRefPubMed Mpofu E, Lawrence F, Ngoma MS, Siziya S, Malungo JR. Mapping an HIV/STD prevention curriculum for Zambian in-school settings. Int J Psychol. 2008;43(2):97–106.CrossRefPubMed
26.
go back to reference Ruple JA, Frazer GH, Bake W. Commonalities of the EMS education workforce (2004) in the United States. Prehosp Emerg care. 2006;10(2):229–38.CrossRefPubMed Ruple JA, Frazer GH, Bake W. Commonalities of the EMS education workforce (2004) in the United States. Prehosp Emerg care. 2006;10(2):229–38.CrossRefPubMed
27.
go back to reference Kornet-van der Aa DA, van Randeraad-van der Zee CH, Mayer J, Borys JM, Chinapaw MJM. Recommendations for obesity prevention among adolescents from disadvantaged backgrounds: a concept mapping study among scientific and professional experts. Int J of pediatr obes. 2017;13(6):389–92.CrossRef Kornet-van der Aa DA, van Randeraad-van der Zee CH, Mayer J, Borys JM, Chinapaw MJM. Recommendations for obesity prevention among adolescents from disadvantaged backgrounds: a concept mapping study among scientific and professional experts. Int J of pediatr obes. 2017;13(6):389–92.CrossRef
28.
go back to reference Trezona A, Dodson S, Osborne RH. Development of the organisational health literacy responsiveness (Org-HLR) framework in collaboration with health and social services professionals. BMC health serv res. 2017;17(1):513.CrossRefPubMedPubMedCentral Trezona A, Dodson S, Osborne RH. Development of the organisational health literacy responsiveness (Org-HLR) framework in collaboration with health and social services professionals. BMC health serv res. 2017;17(1):513.CrossRefPubMedPubMedCentral
29.
go back to reference De Maeseneer J, Van Weel C, Daeren L, et al. From "patient" to "person" to "people": the need for integrated, people-centered healthcare. Int J Pers Cent Med. 2012;2(1):601–14. De Maeseneer J, Van Weel C, Daeren L, et al. From "patient" to "person" to "people": the need for integrated, people-centered healthcare. Int J Pers Cent Med. 2012;2(1):601–14.
30.
go back to reference Harvey N, Holmes C. Nominal group technique: an effective method for obtaining group consensus. Int J Nurs Pract. 2012;18:188–94.CrossRefPubMed Harvey N, Holmes C. Nominal group technique: an effective method for obtaining group consensus. Int J Nurs Pract. 2012;18:188–94.CrossRefPubMed
33.
go back to reference Jaworska N, Chupetlovska-Anastasova A. A review of multidimensional scaling (MDS) and its utility in various psychological domains. Tutor Quant Methods Psychol. 2009;5(1):1–10.CrossRef Jaworska N, Chupetlovska-Anastasova A. A review of multidimensional scaling (MDS) and its utility in various psychological domains. Tutor Quant Methods Psychol. 2009;5(1):1–10.CrossRef
34.
go back to reference Murtagh F, Legendre P. Ward’s hierarchical agglomerative clustering method: which algorithms implement Ward’s criterion? J Classif. 2014;31(3):274–95.CrossRef Murtagh F, Legendre P. Ward’s hierarchical agglomerative clustering method: which algorithms implement Ward’s criterion? J Classif. 2014;31(3):274–95.CrossRef
35.
go back to reference de Leeuw E. Engagement of Sectors Other than Health in Integrated Health Governance, Policy and Action. Annu Rev Public Health. 2017;38:329–49.CrossRefPubMed de Leeuw E. Engagement of Sectors Other than Health in Integrated Health Governance, Policy and Action. Annu Rev Public Health. 2017;38:329–49.CrossRefPubMed
36.
go back to reference Art B, De Roo L, De Maeseneer J. Towards unity for health utilising community-oriented primary care in education and practice. Educ Health. 2007;20(2):74. Art B, De Roo L, De Maeseneer J. Towards unity for health utilising community-oriented primary care in education and practice. Educ Health. 2007;20(2):74.
39.
go back to reference Frenk J, Chen L, Bhutta ZA, et al. Health professionals for a new century: transforming education to strengthen health systems in an interdependent world. Lancet. 2010;376(9756):1923–58.CrossRefPubMed Frenk J, Chen L, Bhutta ZA, et al. Health professionals for a new century: transforming education to strengthen health systems in an interdependent world. Lancet. 2010;376(9756):1923–58.CrossRefPubMed
40.
go back to reference Sheridan NF, Kenealy TW, Kidd JD, Schmidt-Busby JI, Hand JE, Raphael DL. Patients’ engagement in primary care: powerlessness and compounding jeopardy. A qualitative study. Health Expect. 2015;18(1):32–43.CrossRefPubMed Sheridan NF, Kenealy TW, Kidd JD, Schmidt-Busby JI, Hand JE, Raphael DL. Patients’ engagement in primary care: powerlessness and compounding jeopardy. A qualitative study. Health Expect. 2015;18(1):32–43.CrossRefPubMed
41.
go back to reference Batterham RW, Hawkins M, Collins PA, Buchbinder R, Osborne RH. Health literacy: applying current concepts to improve health services and reduce health inequalities. Public Health. 2016;132:3–12.CrossRefPubMed Batterham RW, Hawkins M, Collins PA, Buchbinder R, Osborne RH. Health literacy: applying current concepts to improve health services and reduce health inequalities. Public Health. 2016;132:3–12.CrossRefPubMed
42.
go back to reference De Maeseneer J, Zurmati A. Populatiegerichte eerstelijnszorg als voorwaarde voor het terugdringen van (sociale) gezondheidsverschillen. Bijblijven. 2018;34:275–85.CrossRef De Maeseneer J, Zurmati A. Populatiegerichte eerstelijnszorg als voorwaarde voor het terugdringen van (sociale) gezondheidsverschillen. Bijblijven. 2018;34:275–85.CrossRef
43.
go back to reference Hamui-Sutton A, Varela-Ruiz M, Ortiz-Montalvo A, Torruco-García U. Educational model to develop trustworthy professional activities. Rev Med Inst Mex Seguro Soc. 2015;53(5):616–29.PubMed Hamui-Sutton A, Varela-Ruiz M, Ortiz-Montalvo A, Torruco-García U. Educational model to develop trustworthy professional activities. Rev Med Inst Mex Seguro Soc. 2015;53(5):616–29.PubMed
45.
go back to reference De Maeseneer J. Strengthening the model of primary health care in Estonia. Copenhagen: WHO regional office for Europe; 2016. De Maeseneer J. Strengthening the model of primary health care in Estonia. Copenhagen: WHO regional office for Europe; 2016.
46.
go back to reference Landon B, Grumbach K, Wallace P. Integrating public health and primary care systems: potential strategies from an IOM report. JAMA. 2012;308(5):461–2.CrossRefPubMed Landon B, Grumbach K, Wallace P. Integrating public health and primary care systems: potential strategies from an IOM report. JAMA. 2012;308(5):461–2.CrossRefPubMed
47.
go back to reference Martin-Misener R, Valaitis R, Wong ST, et al. A scoping literature review of collaboration between primary care and public health. Prim Health Care Res Dev. 2012;13:327–46.CrossRefPubMed Martin-Misener R, Valaitis R, Wong ST, et al. A scoping literature review of collaboration between primary care and public health. Prim Health Care Res Dev. 2012;13:327–46.CrossRefPubMed
48.
go back to reference IOM. Primary Care and Public Health: Exploring Integration to Improve Population Health. Washington: The National Academies Press; 2012. IOM. Primary Care and Public Health: Exploring Integration to Improve Population Health. Washington: The National Academies Press; 2012.
49.
go back to reference De Maeseneer J. Chapter 8: Policy Change: from Care for Individuals and Families towards Accountability for a Population. In: Family Medicine and Primary Care. At the Crossroads of Societal Change. 1st ed. Tielt, Belgium: Lannoo Campus; 2017. De Maeseneer J. Chapter 8: Policy Change: from Care for Individuals and Families towards Accountability for a Population. In: Family Medicine and Primary Care. At the Crossroads of Societal Change. 1st ed. Tielt, Belgium: Lannoo Campus; 2017.
51.
go back to reference Stenberg U, Haaland-Øverby M, Fredriksen K, Westermann KF, Kvisvik T. A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness. Patient Educ Couns. 2016;99(11):1759–71.CrossRefPubMed Stenberg U, Haaland-Øverby M, Fredriksen K, Westermann KF, Kvisvik T. A scoping review of the literature on benefits and challenges of participating in patient education programs aimed at promoting self-management for people living with chronic illness. Patient Educ Couns. 2016;99(11):1759–71.CrossRefPubMed
52.
go back to reference Mold J, Blake G, Becker L. Goal-oriented medical care. Fam Med. 1991;23(1):46–51.PubMed Mold J, Blake G, Becker L. Goal-oriented medical care. Fam Med. 1991;23(1):46–51.PubMed
54.
go back to reference Ters A, Yima T. Power imbalance prevents shared decision making. BMJ. 2014;348:17.CrossRef Ters A, Yima T. Power imbalance prevents shared decision making. BMJ. 2014;348:17.CrossRef
55.
go back to reference McCormack L, Thomas V, Lewis MA, Rudd R. Improving low health literacy and patient engagement: a social ecological approach. Patient Educ Couns. 2017;100(1):8–13.CrossRefPubMed McCormack L, Thomas V, Lewis MA, Rudd R. Improving low health literacy and patient engagement: a social ecological approach. Patient Educ Couns. 2017;100(1):8–13.CrossRefPubMed
56.
go back to reference De Vos P, Malaise G, De Ceukelaire W, Perez D, Lefèvre P, Van der Stuyft P. Participation and empowerment in primary health care: from Alma Ata to the era of globalization. Soc Med. 2009;4(2):121–7. De Vos P, Malaise G, De Ceukelaire W, Perez D, Lefèvre P, Van der Stuyft P. Participation and empowerment in primary health care: from Alma Ata to the era of globalization. Soc Med. 2009;4(2):121–7.
57.
go back to reference Wallerstein N. Empowerment to reduce health disparities. Scand J Public Health. 2002;30:72–7.CrossRef Wallerstein N. Empowerment to reduce health disparities. Scand J Public Health. 2002;30:72–7.CrossRef
59.
go back to reference Rifkin S. Examining the links between community participation and health outcomes: a review of the literature. Health Policy Plan. 2014;29:ii98–ii106.CrossRefPubMedPubMedCentral Rifkin S. Examining the links between community participation and health outcomes: a review of the literature. Health Policy Plan. 2014;29:ii98–ii106.CrossRefPubMedPubMedCentral
61.
go back to reference Browne A, Varcoe C, Wong S, et al. Closing the health equity gap: evidence-based strategies for primary health care organizations. Int J Equity Health. 2012;11(1):59.CrossRefPubMedPubMedCentral Browne A, Varcoe C, Wong S, et al. Closing the health equity gap: evidence-based strategies for primary health care organizations. Int J Equity Health. 2012;11(1):59.CrossRefPubMedPubMedCentral
62.
go back to reference Marmot M, Allen J, Goldblatt P, et al. Fair Society, Healthy Lives: The Marmot Review. England: The Marmot Review; 2010. Marmot M, Allen J, Goldblatt P, et al. Fair Society, Healthy Lives: The Marmot Review. England: The Marmot Review; 2010.
63.
go back to reference Starfield B. Primary Care - Balancing Health Needs, Services and Technology. New York: Oxford University Press; 1998. Starfield B. Primary Care - Balancing Health Needs, Services and Technology. New York: Oxford University Press; 1998.
64.
go back to reference Tange H, Nagykaldi Z, De Maeseneer J. Towards an overarching model for electronic medical-record systems, including problem-oriented, goal-oriented, and other approaches. Eur J Gen Pract. 2017;23(1):257–60.CrossRefPubMedPubMedCentral Tange H, Nagykaldi Z, De Maeseneer J. Towards an overarching model for electronic medical-record systems, including problem-oriented, goal-oriented, and other approaches. Eur J Gen Pract. 2017;23(1):257–60.CrossRefPubMedPubMedCentral
Metadata
Title
Using concept mapping to identify policy options and interventions towards people-centred health care services: a multi stakeholders perspective
Authors
Christine Cécile Leyns
Jan De Maeseneer
Sara Willems
Publication date
01-12-2018
Publisher
BioMed Central
Published in
International Journal for Equity in Health / Issue 1/2018
Electronic ISSN: 1475-9276
DOI
https://doi.org/10.1186/s12939-018-0895-9

Other articles of this Issue 1/2018

International Journal for Equity in Health 1/2018 Go to the issue