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Published in: International Journal for Equity in Health 1/2016

Open Access 01-12-2016 | Research

Abuse and discrimination towards indigenous people in public health care facilities: experiences from rural Guatemala

Authors: Alejandro Cerón, Ana Lorena Ruano, Silvia Sánchez, Aiken S. Chew, Diego Díaz, Alison Hernández, Walter Flores

Published in: International Journal for Equity in Health | Issue 1/2016

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Abstract

Background

Health inequalities disproportionally affect indigenous people in Guatemala. Previous studies have noted that the disadvantageous situation of indigenous people is the result of complex and structural elements such as social exclusion, racism and discrimination. These elements need to be addressed in order to tackle the social determinants of health. This research was part of a larger participatory collaboration between Centro de Estudios para la Equidad y Gobernanza en los Servicios de Salud (CEGSS) and community based organizations aiming to implement social accountability in rural indigenous municipalities of Guatemala. Discrimination while seeking health care services in public facilities was ranked among the top three problems by communities and that should be addressed in the social accountability intervention. This study aimed to understand and categorize the episodes of discrimination as reported by indigenous communities.

Methods

A participatory approach was used, involving CEGSS’s researchers and field staff and community leaders. One focus group in one rural village of 13 different municipalities was implemented. Focus groups were aimed at identifying instances of mistreatment in health care services and documenting the account of those who were affected or who witnessed them. All of the 132 obtained episodes were transcribed and scrutinized using a thematic analysis.

Results

Episodes described by participants ranged from indifference to violence (psychological, symbolic, and physical), including coercion, mockery, deception and racism. Different expressions of discrimination and mistreatment associated to poverty, language barriers, gender, ethnicity and social class were narrated by participants.

Conclusions

Addressing mistreatment in public health settings will involve tackling the prevalent forms of discrimination, including racism. This will likely require profound, complex and sustained interventions at the programmatic and policy levels beyond the strict realm of public health services. Future studies should assess the magnitude of the occurrence of episodes of maltreatment and racism within indigenous areas and also explore the providers’ perceptions about the problem.
Literature
1.
go back to reference Del Popolo F, Jaspers D. Guaranteeing indigenous people’s rights in Latin America. Progress in the past decade and remaining challenges. Summary. 2014 Del Popolo F, Jaspers D. Guaranteeing indigenous people’s rights in Latin America. Progress in the past decade and remaining challenges. Summary. 2014
2.
go back to reference Castro A, Savage V, Kaufman H. Assessing equitable care for indigenous and afrodescendant women in Latin America. Rev Panam Salud Publica. 2015;38(2):96–109.PubMed Castro A, Savage V, Kaufman H. Assessing equitable care for indigenous and afrodescendant women in Latin America. Rev Panam Salud Publica. 2015;38(2):96–109.PubMed
3.
go back to reference Ruano AL, Sánchez S, Jerez FJ, Flores W. Making the post-MDG global health goals relevant for highly inequitable societies: findings from a consultation with marginalized populations in Guatemala. Int J Equity Health. 2014;13:57.CrossRefPubMedPubMedCentral Ruano AL, Sánchez S, Jerez FJ, Flores W. Making the post-MDG global health goals relevant for highly inequitable societies: findings from a consultation with marginalized populations in Guatemala. Int J Equity Health. 2014;13:57.CrossRefPubMedPubMedCentral
4.
go back to reference CEH. Guatemala: memoria del silencio. Guatemala: Oficina de servicios para los proyectos de las Naciones Unidas. 1999. CEH. Guatemala: memoria del silencio. Guatemala: Oficina de servicios para los proyectos de las Naciones Unidas. 1999.
5.
go back to reference Flores W, Ruano AL, Phé-Funchal D. Social participation within a context of political violence: implications for the promotion and exercise of the right to health in Guatemala. Health Hum Rights. 2009;11(1):37–48.CrossRefPubMed Flores W, Ruano AL, Phé-Funchal D. Social participation within a context of political violence: implications for the promotion and exercise of the right to health in Guatemala. Health Hum Rights. 2009;11(1):37–48.CrossRefPubMed
6.
go back to reference INE. Mapas de pobreza en Guatemala: un auxiliar para entender el flagelo de la pobreza en el país. Guatemala: Instituto Nacional de Estadística. 2003. INE. Mapas de pobreza en Guatemala: un auxiliar para entender el flagelo de la pobreza en el país. Guatemala: Instituto Nacional de Estadística. 2003.
7.
go back to reference INE. ENCOVI. Guatemala: Institution Nacional de Estadística; 2011. INE. ENCOVI. Guatemala: Institution Nacional de Estadística; 2011.
8.
go back to reference MSPAS, SEGEPLAN. Encuesta nacional de mortalidad materna. Guatemala: SEGEPLAN & MSPAS; 2011. MSPAS, SEGEPLAN. Encuesta nacional de mortalidad materna. Guatemala: SEGEPLAN & MSPAS; 2011.
9.
go back to reference Etienne CF. Achieving universal health coverage is a moral imperative. Lancet. 2015;385(9975):1271–3.CrossRefPubMed Etienne CF. Achieving universal health coverage is a moral imperative. Lancet. 2015;385(9975):1271–3.CrossRefPubMed
10.
go back to reference Suárez Jiménez JM. Desafíos para alcanzar universalidad con equidad en salud en América Latina en el siglo XXI*. Revista Cubana de Salud Pública. 2010;36(3):248–54.CrossRef Suárez Jiménez JM. Desafíos para alcanzar universalidad con equidad en salud en América Latina en el siglo XXI*. Revista Cubana de Salud Pública. 2010;36(3):248–54.CrossRef
11.
go back to reference Estrada Galindo G, Slowing-Umaña K, Síntesis. El sistema de salud en Guatemala:¿ hacia dónde vamos. Guatemala: Informe Nacional de Desarrollo Humano, PNUD; 2008. Estrada Galindo G, Slowing-Umaña K, Síntesis. El sistema de salud en Guatemala:¿ hacia dónde vamos. Guatemala: Informe Nacional de Desarrollo Humano, PNUD; 2008.
12.
go back to reference Berry NS. Who’s judging the quality of care? Indigenous Maya and the problem of “not being attended”. Med Anthropol. 2008;27(2):164–89.CrossRefPubMed Berry NS. Who’s judging the quality of care? Indigenous Maya and the problem of “not being attended”. Med Anthropol. 2008;27(2):164–89.CrossRefPubMed
13.
go back to reference Otis KE, Brett JA. Barriers to hospital births: why do many Bolivian women give birth at home? Rev Panam Salud Publica. 2008;24(1):46–53.CrossRefPubMed Otis KE, Brett JA. Barriers to hospital births: why do many Bolivian women give birth at home? Rev Panam Salud Publica. 2008;24(1):46–53.CrossRefPubMed
14.
go back to reference Radoff KA, Levi A, Thompson LM. From home to hospital: mistreatment of childbearing women and barriers to facility-based birth in Nicaragua. International Journal of Childbirth. 2012;2(1):40–50.CrossRef Radoff KA, Levi A, Thompson LM. From home to hospital: mistreatment of childbearing women and barriers to facility-based birth in Nicaragua. International Journal of Childbirth. 2012;2(1):40–50.CrossRef
15.
go back to reference Reyes E, Valdivia N. Avanzando en la comprensión de las inequidades étnico/raciales en salud:¿ Existen prácticas de discriminación hacia la población indígena en los servicios del Estado? Sistema. 2010;2:1. Reyes E, Valdivia N. Avanzando en la comprensión de las inequidades étnico/raciales en salud:¿ Existen prácticas de discriminación hacia la población indígena en los servicios del Estado? Sistema. 2010;2:1.
16.
go back to reference Gamlin JB. Shame as a barrier to health seeking among indigenous Huichol migrant labourers: An interpretive approach of the “violence continuum” and “authoritative knowledge”. Soc Sci Med. 2013;97:75–81.CrossRefPubMed Gamlin JB. Shame as a barrier to health seeking among indigenous Huichol migrant labourers: An interpretive approach of the “violence continuum” and “authoritative knowledge”. Soc Sci Med. 2013;97:75–81.CrossRefPubMed
17.
go back to reference Hautecoeur M, Zunzunegui MV, Vissandjee B. Las barreras de acceso a los servicios de salud en la población indígena de Rabinal en Guatemala. Salud Publica Mex. 2007;49(2):86–93.CrossRefPubMed Hautecoeur M, Zunzunegui MV, Vissandjee B. Las barreras de acceso a los servicios de salud en la población indígena de Rabinal en Guatemala. Salud Publica Mex. 2007;49(2):86–93.CrossRefPubMed
18.
go back to reference Montero Mendoza E. Percepción de los habitantes indígenas de áreas rurales respecto al primer nivel de atención médica: el caso del sureste de Veracruz, México. Salud colectiva. 2011;7(1):73–86. Montero Mendoza E. Percepción de los habitantes indígenas de áreas rurales respecto al primer nivel de atención médica: el caso del sureste de Veracruz, México. Salud colectiva. 2011;7(1):73–86.
19.
go back to reference Bhatt S. Health care issues facing the Maya people of the Guatemalan Highlands: the current state of care and recommendations for improvement. J Global Health Perspect. 2012. [last modified: 2012 Aug 1]. Edition 1. Bhatt S. Health care issues facing the Maya people of the Guatemalan Highlands: the current state of care and recommendations for improvement. J Global Health Perspect. 2012. [last modified: 2012 Aug 1]. Edition 1.
20.
go back to reference Maupin J. Divergent models of community health workers in highland Guatemala. Hum Organization. 2011;70(1):44–53.CrossRef Maupin J. Divergent models of community health workers in highland Guatemala. Hum Organization. 2011;70(1):44–53.CrossRef
21.
go back to reference Ruano AL, Hernández A, Dahlblom K, Hurtig AK, SanSebastián M. ‘It’s the sense of responsibility that keeps you going’: stories and experiences of participation from rural community health workers in Guatemala. Archives of Public Health. 2012;70(1):18.CrossRefPubMedPubMedCentral Ruano AL, Hernández A, Dahlblom K, Hurtig AK, SanSebastián M. ‘It’s the sense of responsibility that keeps you going’: stories and experiences of participation from rural community health workers in Guatemala. Archives of Public Health. 2012;70(1):18.CrossRefPubMedPubMedCentral
22.
go back to reference Robson C. Real world research. New York: John Wiley and Sons; 2002. Robson C. Real world research. New York: John Wiley and Sons; 2002.
23.
go back to reference Cresswell JW. Qualitative inquiry and research design: choosing among five perspectives. London: Sage; 2007. Cresswell JW. Qualitative inquiry and research design: choosing among five perspectives. London: Sage; 2007.
24.
go back to reference Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods. 2006;5(1):1–11. Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods. 2006;5(1):1–11.
25.
go back to reference Okafor II, Ugwu EO, Obi SN. Disrespect and abuse during facility-based childbirth in a low-income country. Int J Gynecol Obstet. 2015;128(2):110–3.CrossRef Okafor II, Ugwu EO, Obi SN. Disrespect and abuse during facility-based childbirth in a low-income country. Int J Gynecol Obstet. 2015;128(2):110–3.CrossRef
26.
go back to reference Asefa A, Bekele D. Status of respectful and non-abusive care during facility-based childbirth in a hospital and health centers in Addis Ababa. Ethiopia Reproductive health. 2015;12(1):33.CrossRefPubMed Asefa A, Bekele D. Status of respectful and non-abusive care during facility-based childbirth in a hospital and health centers in Addis Ababa. Ethiopia Reproductive health. 2015;12(1):33.CrossRefPubMed
27.
go back to reference Phiri SN, Fylkesnes K, Ruano AL, Moland KM. ‘Born before arrival’: user and provider perspectives on health facility childbirths in Kapiri Mposhi district, Zambia. BMC Pregnancy Childbirth. 2014;14(1):1.CrossRef Phiri SN, Fylkesnes K, Ruano AL, Moland KM. ‘Born before arrival’: user and provider perspectives on health facility childbirths in Kapiri Mposhi district, Zambia. BMC Pregnancy Childbirth. 2014;14(1):1.CrossRef
28.
go back to reference d’Ambruoso L, Abbey M, Hussein J. Please understand when I cry out in pain: women’s accounts of maternity services during labour and delivery in Ghana. BMC Public Health. 2005;5(1):140.CrossRefPubMedPubMedCentral d’Ambruoso L, Abbey M, Hussein J. Please understand when I cry out in pain: women’s accounts of maternity services during labour and delivery in Ghana. BMC Public Health. 2005;5(1):140.CrossRefPubMedPubMedCentral
29.
go back to reference Moyer CA, Adongo PB, Aborigo RA, Hodgson A, Engmann CM. ‘They treat you like you are not a human being’: Maltreatment during labour and delivery in rural northern Ghana. Midwifery. 2014;30(2):262–8.CrossRefPubMed Moyer CA, Adongo PB, Aborigo RA, Hodgson A, Engmann CM. ‘They treat you like you are not a human being’: Maltreatment during labour and delivery in rural northern Ghana. Midwifery. 2014;30(2):262–8.CrossRefPubMed
30.
go back to reference Ooms G, Latif L, Brolan C, Hammonds R, Friedman E, Mulumba M, et al. Is universal health coverage the practical expression of the right to health care? BMC International Health and Human Rights. 2014;14(3). Ooms G, Latif L, Brolan C, Hammonds R, Friedman E, Mulumba M, et al. Is universal health coverage the practical expression of the right to health care? BMC International Health and Human Rights. 2014;14(3).
31.
go back to reference Kenny C, Glassman A. What will follow the millennium development goals? the high level panel’s ambitious recommendations on health deserve support. Br Med J. 2013;347. Kenny C, Glassman A. What will follow the millennium development goals? the high level panel’s ambitious recommendations on health deserve support. Br Med J. 2013;347.
32.
go back to reference Langford M, Summer A, Yamín AE. The millennium development goals and human rights. New York: Cambridge; 2013.CrossRef Langford M, Summer A, Yamín AE. The millennium development goals and human rights. New York: Cambridge; 2013.CrossRef
33.
go back to reference Hussain S, Ruano AL, Rahman A, Rashid SF, Hill PS. From knowing our needs to enacting change: findings from community consultations with indigenous communities in Bangladesh. Int J Equity Health. 2015;14(1):1–9.CrossRef Hussain S, Ruano AL, Rahman A, Rashid SF, Hill PS. From knowing our needs to enacting change: findings from community consultations with indigenous communities in Bangladesh. Int J Equity Health. 2015;14(1):1–9.CrossRef
34.
go back to reference Mannava P, Durrant K, Fisher J, Chersich M, Luchters S. Attitudes and behaviours of maternal health care providers in interactions with clients: a systematic review. Glob Health. 2015;11(1):36.CrossRef Mannava P, Durrant K, Fisher J, Chersich M, Luchters S. Attitudes and behaviours of maternal health care providers in interactions with clients: a systematic review. Glob Health. 2015;11(1):36.CrossRef
36.
go back to reference Gilson L. Trust and the development of health care as a social institution. Soc Sci Med. 2003;56(2003):1453–68.CrossRefPubMed Gilson L. Trust and the development of health care as a social institution. Soc Sci Med. 2003;56(2003):1453–68.CrossRefPubMed
37.
go back to reference McMahon SA, George AS, Chebet JJ, Mosha IH, Mpembeni RN, Winch PJ. Experiences of and responses to disrespectful maternity care and abuse during childbirth; a qualitative study with women and men in Morogoro Region, Tanzania. BMC Pregnancy Childbirth. 2014;14(1):268.CrossRefPubMedPubMedCentral McMahon SA, George AS, Chebet JJ, Mosha IH, Mpembeni RN, Winch PJ. Experiences of and responses to disrespectful maternity care and abuse during childbirth; a qualitative study with women and men in Morogoro Region, Tanzania. BMC Pregnancy Childbirth. 2014;14(1):268.CrossRefPubMedPubMedCentral
38.
go back to reference UN. Promotion and protection of all human rights, civil, political, ecnomic, social and cultural rights: report of the special rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. New York: United Nations; 2005. UN. Promotion and protection of all human rights, civil, political, ecnomic, social and cultural rights: report of the special rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health. New York: United Nations; 2005.
39.
go back to reference Maguinn PJ. Towards more effective community participation in urban regeneration: the potential of collaborative planning and applied ethnography. Qual Res. 2007;7:25–43.CrossRef Maguinn PJ. Towards more effective community participation in urban regeneration: the potential of collaborative planning and applied ethnography. Qual Res. 2007;7:25–43.CrossRef
40.
go back to reference LeCompte MD, Goetz JP. Problems of reliability and validity in ethnographic research. Rev Educ Res. 1982;52(1):31–60.CrossRef LeCompte MD, Goetz JP. Problems of reliability and validity in ethnographic research. Rev Educ Res. 1982;52(1):31–60.CrossRef
Metadata
Title
Abuse and discrimination towards indigenous people in public health care facilities: experiences from rural Guatemala
Authors
Alejandro Cerón
Ana Lorena Ruano
Silvia Sánchez
Aiken S. Chew
Diego Díaz
Alison Hernández
Walter Flores
Publication date
01-12-2016
Publisher
BioMed Central
Published in
International Journal for Equity in Health / Issue 1/2016
Electronic ISSN: 1475-9276
DOI
https://doi.org/10.1186/s12939-016-0367-z

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