Skip to main content
Top
Published in: BMC Health Services Research 1/2017

Open Access 01-12-2017 | Research article

Exploring the concurrent validity of the nationwide assessment of permanent nursing home residence in Denmark - A cross-sectional data analysis using two administrative registries

Authors: Anna Bebe, Anni Brit Sternhagen Nielsen, Tora Grauers Willadsen, Jens Søndergaard, Volkert Siersma, Dagný Rós Nicolaisdóttir, Jakob Kragstrup, Frans Boch Waldorff

Published in: BMC Health Services Research | Issue 1/2017

Login to get access

Abstract

Background

Many register studies make use of information about permanent nursing home residents. Statistics Denmark (StatD) identifies nursing home residents by two different indirect methods, one based on reports from the municipalities regarding home care in taken place in a nursing home, and the other based on an algorithm created by StatD.
The aim of the present study was to validate StatD’s nursing home register using dedicated administrative municipality records on individual nursing home residents as gold standard.

Methods

In total, ten Danish municipalities were selected. Within each Danish Region, we randomly selected one municipality reporting to Stat D (Method 1) and one not reporting where instead an algorithm created by StatD was used to discover nursing home residents (Method 2). Method 1 means that municipalities reported to Stat D whether home care has taken place in a nursing home or in a private home. Method 2 is based on an algorithm created by Stat D for the municipalities where Method 1 is not applicable. Our gold standard was the information from the local administrative system in all ten selected municipalities. Each municipality provided a list with all individuals > 65 years living in a nursing home on January 1st, 2013 as well as the central personal number. This was compared to the list of individuals >65 living in nursing home facilities in the same ten municipalities on January 1st, 2013 retrieved from StatD.

Results

According to the data received directly from the municipalities, which was used as our gold Standard 3821 individuals were identified as nursing home residents. The StatD register identified 6,141 individuals as residents. Additionally, 556 of the individuals identified by the municipalities were not identified in the StatD register.
Overall sensitivity for the ten municipalities in the StatD nursing home register was 0.85 (95% CI 0.84-0.87) and the PPV was 0.53 (95% CI 0.52-0.54). The municipalities for which nursing home status was based on the StatD algorithm (method 2) had a sensitivity of 0.84 (95% CI 0.82-0.86) and PPV of 0.48 (95% CI 0.46-0.50). Both slightly lower than the reporting municipalities (method 1) where the sensitivity was 0.87(95% CI 0.85-0.88) and the PPV was 0.57 (95% CI 0.56-0.59).
Additionally, the sensitivity and PPV of the Stat D register varied heavily among the ten municipalities from 0.51 (95% CI 0.43-0.59) to 0.96 (95% CI 0.95-0.98) and PPV correspondingly, from 0.14 (95% CI: 0.11-0.17) to 0.73 (95% CI 0.69-0.77).

Conclusions

The overall PPV of StatD nursing home register was low and differences between municipalities existed. Even in countries with extensive nation-wide registers, validating studies should be conducted for outcomes based on these registers.
Literature
1.
go back to reference Saga S, Vinsnes AG, Morkved S, Norton C, Seim A. What characteristics predispose to continence in nursing home residents?: A population-based cross-sectional study. Neurourology and urodynamics. 2014; Saga S, Vinsnes AG, Morkved S, Norton C, Seim A. What characteristics predispose to continence in nursing home residents?: A population-based cross-sectional study. Neurourology and urodynamics. 2014;
2.
go back to reference Zuckerman IH, Sato M, Hsu VD, Hernandez JJ. Validation of a method for identifying nursing home admissions using administrative claims. Bmc Health Serv Res. 2007;7 Zuckerman IH, Sato M, Hsu VD, Hernandez JJ. Validation of a method for identifying nursing home admissions using administrative claims. Bmc Health Serv Res. 2007;7
3.
4.
go back to reference Aabom B, Kragstrup J, Vondeling H, Bakketeig LS, Stovring H. Population-based study of place of death of patients with cancer: implications for GPs. The British journal of general practice : the journal of the Royal College of General Practitioners. 2005;55(518):684–9. Aabom B, Kragstrup J, Vondeling H, Bakketeig LS, Stovring H. Population-based study of place of death of patients with cancer: implications for GPs. The British journal of general practice : the journal of the Royal College of General Practitioners. 2005;55(518):684–9.
5.
go back to reference Waldorff FB, Siersma V, Waldemar G. Association between subjective memory complaints and nursing home placement: a four-year follow-up. International journal of geriatric psychiatry. 2009;24(6):602–9.CrossRefPubMed Waldorff FB, Siersma V, Waldemar G. Association between subjective memory complaints and nursing home placement: a four-year follow-up. International journal of geriatric psychiatry. 2009;24(6):602–9.CrossRefPubMed
6.
go back to reference Mulders AJ, Zuidema SU, Verhey FR, Koopmans RT. Characteristics of institutionalized young onset dementia patients--the BEYOnD study. International psychogeriatrics / IPA. 2014;26(12):1973–81.CrossRef Mulders AJ, Zuidema SU, Verhey FR, Koopmans RT. Characteristics of institutionalized young onset dementia patients--the BEYOnD study. International psychogeriatrics / IPA. 2014;26(12):1973–81.CrossRef
7.
go back to reference Navarro-Gil P, Gonzalez-Velez AE, Ayala A, Martin-Garcia S, Martinez-Martin P, Forjaz MJ. Which factors are associated with mortality in institutionalized older adults with dementia? Archives of gerontology and geriatrics. 2014;59(3):522–7.CrossRefPubMed Navarro-Gil P, Gonzalez-Velez AE, Ayala A, Martin-Garcia S, Martinez-Martin P, Forjaz MJ. Which factors are associated with mortality in institutionalized older adults with dementia? Archives of gerontology and geriatrics. 2014;59(3):522–7.CrossRefPubMed
8.
go back to reference Gaugler JE, Duval S, Anderson KA, Kane RL. Predicting nursing home admission in the U.S: a meta-analysis. BMC geriatrics. 2007;7:13. Gaugler JE, Duval S, Anderson KA, Kane RL. Predicting nursing home admission in the U.S: a meta-analysis. BMC geriatrics. 2007;7:13.
9.
go back to reference Gonzalez-Colaco Harmand M, Meillon C, Rullier L, Avila-Funes JA, Bergua V, Dartigues JF, et al. Cognitive decline after entering a nursing home: a 22-year follow-up study of institutionalized and noninstitutionalized elderly people. Journal of the American Medical Directors Association. 2014;15(7):504–8.CrossRefPubMed Gonzalez-Colaco Harmand M, Meillon C, Rullier L, Avila-Funes JA, Bergua V, Dartigues JF, et al. Cognitive decline after entering a nursing home: a 22-year follow-up study of institutionalized and noninstitutionalized elderly people. Journal of the American Medical Directors Association. 2014;15(7):504–8.CrossRefPubMed
10.
go back to reference Muller C, Lautenschlager S, Meyer G, Stephan A. Interventions to support people with dementia and their caregivers during the transition from home care to nursing home care: A systematic review. International journal of nursing studies. 2017;71:139–52.CrossRefPubMed Muller C, Lautenschlager S, Meyer G, Stephan A. Interventions to support people with dementia and their caregivers during the transition from home care to nursing home care: A systematic review. International journal of nursing studies. 2017;71:139–52.CrossRefPubMed
11.
go back to reference Baumgarten M, Battista RN, Infante-Rivard C, Hanley JA, Becker R, Bilker WB, et al. Use of physician services among family caregivers of elderly persons with dementia. Journal of clinical epidemiology. 1997;50(11):1265–72.CrossRefPubMed Baumgarten M, Battista RN, Infante-Rivard C, Hanley JA, Becker R, Bilker WB, et al. Use of physician services among family caregivers of elderly persons with dementia. Journal of clinical epidemiology. 1997;50(11):1265–72.CrossRefPubMed
12.
go back to reference Pedersen CB. The Danish Civil Registration System. Scandinavian journal of public health. 2011;39(7 Suppl):22–5.CrossRefPubMed Pedersen CB. The Danish Civil Registration System. Scandinavian journal of public health. 2011;39(7 Suppl):22–5.CrossRefPubMed
13.
go back to reference Andersen JS, Olivarius Nde F, Krasnik A. The Danish National Health Service Register. Scandinavian journal of public health. 2011;39(7 Suppl):34–7.CrossRefPubMed Andersen JS, Olivarius Nde F, Krasnik A. The Danish National Health Service Register. Scandinavian journal of public health. 2011;39(7 Suppl):34–7.CrossRefPubMed
14.
go back to reference Guldberg R, Brostrom S, Hansen JK, Kaerlev L, Gradel KO, Norgard BM, et al. The Danish Urogynaecological Database: establishment, completeness and validity. International urogynecology journal. 2013;24(6):983–90.CrossRefPubMed Guldberg R, Brostrom S, Hansen JK, Kaerlev L, Gradel KO, Norgard BM, et al. The Danish Urogynaecological Database: establishment, completeness and validity. International urogynecology journal. 2013;24(6):983–90.CrossRefPubMed
17.
go back to reference Schmidt M, Schmidt SA, Sandegaard JL, Ehrenstein V, Pedersen L, Sorensen HT. The Danish National Patient Registry: a review of content, data quality, and research potential. Clinical epidemiology. 2015;7:449–90.CrossRefPubMedPubMedCentral Schmidt M, Schmidt SA, Sandegaard JL, Ehrenstein V, Pedersen L, Sorensen HT. The Danish National Patient Registry: a review of content, data quality, and research potential. Clinical epidemiology. 2015;7:449–90.CrossRefPubMedPubMedCentral
18.
go back to reference Mason K, Thygesen LC, Stenager E, Bronnum-Hansen H, Koch-Henriksen N. Evaluating the use and limitations of the Danish National Patient Register in register-based research using an example of multiple sclerosis. Acta neurologica Scandinavica. 2012;125(3):213–7.CrossRefPubMed Mason K, Thygesen LC, Stenager E, Bronnum-Hansen H, Koch-Henriksen N. Evaluating the use and limitations of the Danish National Patient Register in register-based research using an example of multiple sclerosis. Acta neurologica Scandinavica. 2012;125(3):213–7.CrossRefPubMed
19.
go back to reference Uggerby P, Ostergaard SD, Roge R, Correll CU, Nielsen J. The validity of the schizophrenia diagnosis in the Danish Psychiatric Central Research Register is good. Danish medical journal. 2013;60(2):A4578.PubMed Uggerby P, Ostergaard SD, Roge R, Correll CU, Nielsen J. The validity of the schizophrenia diagnosis in the Danish Psychiatric Central Research Register is good. Danish medical journal. 2013;60(2):A4578.PubMed
20.
go back to reference Petri AL, Kjaer SK, Christensen IJ, Blaakaer J, Hogdall E, Jeppesen U, et al. Validation of epithelial ovarian cancer and fallopian tube cancer and ovarian borderline tumor data in the Danish Gynecological Cancer Database. Acta obstetricia et gynecologica Scandinavica. 2009;88(5):536–42.CrossRefPubMed Petri AL, Kjaer SK, Christensen IJ, Blaakaer J, Hogdall E, Jeppesen U, et al. Validation of epithelial ovarian cancer and fallopian tube cancer and ovarian borderline tumor data in the Danish Gynecological Cancer Database. Acta obstetricia et gynecologica Scandinavica. 2009;88(5):536–42.CrossRefPubMed
21.
go back to reference Londero SC, Mathiesen JS, Krogdahl A, Bastholt L, Overgaard J, Bentsen J, et al. Completeness and validity in a national clinical thyroid cancer database: DATHYRCA. Cancer epidemiology. 2014;38(5):633–7.CrossRefPubMed Londero SC, Mathiesen JS, Krogdahl A, Bastholt L, Overgaard J, Bentsen J, et al. Completeness and validity in a national clinical thyroid cancer database: DATHYRCA. Cancer epidemiology. 2014;38(5):633–7.CrossRefPubMed
22.
go back to reference Lynge E, Sandegaard JL, Rebolj M. The Danish National Patient Register. Scandinavian journal of public health. 2011;39(7 Suppl):30–3.CrossRefPubMed Lynge E, Sandegaard JL, Rebolj M. The Danish National Patient Register. Scandinavian journal of public health. 2011;39(7 Suppl):30–3.CrossRefPubMed
23.
go back to reference Helweg-Larsen K. The Danish Register of Causes of Death. Scandinavian journal of public health. 2011;39(7 Suppl):26–9.CrossRefPubMed Helweg-Larsen K. The Danish Register of Causes of Death. Scandinavian journal of public health. 2011;39(7 Suppl):26–9.CrossRefPubMed
24.
go back to reference Yun H, Kilgore M, Curtis J, Delzell E, Gary L, Saag K, et al. Identifying types of nursing facility stays using medicare claims data: an algorithm and validation. Health Serv Outcomes Res Method. 2010;10(1-2):100–10.CrossRef Yun H, Kilgore M, Curtis J, Delzell E, Gary L, Saag K, et al. Identifying types of nursing facility stays using medicare claims data: an algorithm and validation. Health Serv Outcomes Res Method. 2010;10(1-2):100–10.CrossRef
Metadata
Title
Exploring the concurrent validity of the nationwide assessment of permanent nursing home residence in Denmark - A cross-sectional data analysis using two administrative registries
Authors
Anna Bebe
Anni Brit Sternhagen Nielsen
Tora Grauers Willadsen
Jens Søndergaard
Volkert Siersma
Dagný Rós Nicolaisdóttir
Jakob Kragstrup
Frans Boch Waldorff
Publication date
01-12-2017
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2017
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-017-2535-2

Other articles of this Issue 1/2017

BMC Health Services Research 1/2017 Go to the issue