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BMC Health Services Research
Published in: BMC Health Services Research 1/2017

Open Access 01-12-2017 | Study protocol

Transcultural adaptation and validation of the patient empowerment in long-term conditions questionnaire

Authors: Paloma Garcimartin, Josep Comin-Colet, Pilar Delgado-Hito, Neus Badosa-Marcé, Anna Linas-Alonso

Published in: BMC Health Services Research | Issue 1/2017

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Abstract

Background

Patient empowerment is a key element to improve the results in health, increase satisfaction amongst users and obtain higher treatment compliance. The main objective of this study is to validate the Spanish version of the questionnaire “Patient empowerment in long-term conditions” which evaluates the patients’ level of empowerment of chronic diseases. The secondary objective is to identify factors which predict basal empowerment and changes (improvement or deterioration) in patients with Heart Failure (HF).

Methods

An observational and prospective design of psychometric type to validate a questionnaire (aim 1) and a prospective study of cohorts (aim 2). The study will include 121 patients with confirmed diagnosis of HF. Three measurements (basal, at 15 days and at 3 months) will be carried out: quality of life, self-care and empowerment. Descriptive and inferential analyses will be used. For the first aim of the study (validation), the test-retest reproducibility will be assessed through intraclass correlation coefficient; internal consistency will be assessed through Cronbach’s alpha coefficient; construct validity through Pearson’s correlation coefficient; and sensibility to change through effect size coefficient.

Discussion

Set a valid questionnaire to measure the level of empowerment of patients with chronic diseases could be an effective tool to assess the results from the provision of the health care services. It will also allow us to identify at an early stage, those groups of patients with a low level of empowerment. Hence, they could become a risk group due to poor management of the disease, with a high rate of decompensation and a higher use rate of the health system resources.
Literature
1.
2.
3.
4.
5.
Freire P. Pedagogy of the Oppressed. New York: Continuum; 2000.
6.
7.
Cattaneo LB, Chapman AR. The process of empowerment: a model for use in research and practice. Am Psychol. 2010;65(7):646–59.CrossRefPubMed
8.
Holmström I, Röing M. The relation between patient-centeredness and patient empowerment: A discussion on concepts. Patient Educ Couns. 2010;79(2):167–72.CrossRefPubMed
9.
Bulsara C, Styles I, Ward AM, Bulsara M. The psychometrics of developing the patient empowerment scale. J Psychosoc Oncol. 2006;24(2):1–16.CrossRefPubMed
10.
11.
Aujoulat I, D’Hoore W, Deccache A. Patient empowerment in theory and practice: polysemy or cacophony? Patient Educ Couns. 2007;66(1):13–20.CrossRefPubMed
12.
Varekamp I, Heutink A, Landman S, Koning CEM, De Vries G, Van Dijk FJH. Facilitating empowerment in employees with chronic disease: qualitative analysis of the process of change. J Occu Rehabil. 2009;19(4):398–408.CrossRef
13.
Small N, Bower P, Chew-Graham C, Whalley D, Protheroe J. Patient empowerment in long-term conditions: development and preliminary testing of a new measure. BMC Heal Serv Res. 2013;13(1):263–78.CrossRef
14.
Anderson RM, Fitzgerald JT, Gruppen LD, Funnell MM, Oh M. The Diabetes Empowerment Scale-Short Form (DES_SF). Diabetes Care. 2003;26(5):1641–2.CrossRefPubMed
15.
Pan S-C, Tien K-L, Hung I-C, Lin Y-J, Yang Y-L, Yang M-C, et al. Patient empowerment in a hand hygiene program: Differing points of view between patients/family members and health care workers in Asian culture. Am J Infect Control. 2013;41(11):979–83.CrossRefPubMed
16.
Huizing E, Molino JL, Rigol A, Padilla L, Betolaza E, Serna L, López J PA. Opinión de las enfermeras de salud mental de España sobre la prestación de cuidados a pacientes con trastorno mental basada en el enfoque de recuperación. [Internet]. Biblioteca Lascasas. 2013. [cited 2014 Mar 30] Available from: http://​www.​index-f.​com/​lascasas/​documentos/​lc0688.​pdf
17.
Nygårdh A, Malm D, Wikby K, Ahlström G. The experience of empowerment in the patient–staff encounter: the patient’s perspective. J Clin Nurs. 2012;21(5–6):897–904.CrossRefPubMed
18.
McCarley P. Patient empowerment and motivational interviewing: engaging patients to self-manage their own care. Nephrol Nurs J. 2009;36(4):409–13.PubMed
19.
Anderson RM, Funnell MM. Patient Empowerment: Myths and Misconceptions. Patient Educ Couns. 2010;79(3):277–82.CrossRefPubMed
20.
Suter P, Suter Newton W, Johnston D. Theory-Based Telehealth and Patient Empowerment. Popul Heal Manag. 2011;14(2):87–92.CrossRef
21.
Sánchez-Martín CI. Cronicidad y complejidad: nuevos roles en Enfermería. Enfermeras de Práctica Avanzada y paciente crónico. Enferm Clin. 2014;24(1):79–89.CrossRefPubMed
22.
Rico-Blázquez M, Sánchez Gómez S, Fuentelsaz GC. El cuidado como elemento transversal en la atención a pacientes crónicos complejos. Enferm Clin. 2014;24(1):44–50.CrossRefPubMed
23.
Appleby C, Camacho-Bejarano R. Retos y oportunidades: aportaciones de la Enfermera de Práctica Avanzada en la cronicidad. Aprendiendo de las experiencias. Enferm Clin. 2014;24(1):90–8.CrossRefPubMed
24.
25.
Howie J, Heaney D, Maxwell M, Walker J. A comparison of a Patient Enablement Instrument (PEI) against two established satisfaction scales as an outcome measure of primary care consultations. Fam Pr. 1998;15(2):165–71.CrossRef
26.
Rogers ES, Chamberlin J, Ellison ML, Crean T. A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatr Serv. 1997;48(8):1042–7.CrossRefPubMed
27.
Rogers ES, Ralph RO, Salzer MS. Validating the empowerment scale with a multisite sample of consumers of mental health services. Psychiatr Serv. 2010;61(9):933–6.CrossRefPubMed
28.
Suen S. A model of empowerment for Hong Kong Chinese cancer patients and the role of self-help groups in the empowering process. [Thesis]. The Hong Kong Polytechnic University; 1998.
29.
Anderson RM, Funnell MM, Fitzgerald JT, Marrero DG. The Diabetes Empowerment Scale: a measure of psychosocial self-efficacy. Diabetes Care. 2000;23(6):739–43.CrossRefPubMed
30.
Faulkner M. A measure of patient empowerment in hospital environments catering for older people. J Adv Nurs. 2001;34(5):676–86.CrossRefPubMed
31.
Vigil B. Development and validation of a measure of empowerment for individuals suffering from eating problems. Diss Abstr Intern. 2006;66:4531.
32.
Mikky I. Development of the Client Empowerment Scale (CES). [Thesis]. University of Connecticut; 2006.
33.
Klima C. Measuring empowerment in pregnancy: The pregnancy-related empowerment scale. J Midwifery Womens Heal. 2007;52(5):531.CrossRef
34.
Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A, et al. Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Heal. 2005;8(2):94–104.CrossRef
35.
Carvajal A, Centeno C, Watson R, Martínez M, Sanz Rubiales Á. ¿Cómo validar un instrumento de medida de la salud? An Sist Sanit Navar. 2011;34(1):63–72.CrossRefPubMed
36.
Arias-Rivera S, Sánchez-Sánchez MM, Fraile-Gamo MP, Patiño-Freire S, Pinto-Rodríguez V, Conde-Alonso MP, et al. Transcultural adaptation into Spanish of the nursing activities score. Enferm Intensiva. 2013;24(1):12–22.CrossRefPubMed
37.
Marsicano EDO, Fernandes NDS, Colugnati F, Grincenkov FRDS, Fernandes NMDS, De Geest S, et al. Transcultural adaptation and initial validation of Brazilian-Portuguese version of the Basel assessment of adherence to immunosuppressive medications scale (BAASIS) in kidney transplants. BMC Nephrol. 2013;14:108.CrossRefPubMedCentral
38.
39.
Valderas J, Ferrer M, Alonso J. Instrumentos de medida de calidad de vida relacionada con la salud y de otros resultados percibidos por los pacientes. Med Clin. 2005;125(1):56–60.CrossRef
40.
Comín-Colet J, Verdú-Rotellar JM, Vela E, Clèries M, Bustins M, Mendoza L, et al. Efficacy of an Integrated Hospital-primary Care Program for Heart Failure: A Population-based Analysis of 56 742 Patients. Rev Esp Cardiol. 2014;67(4):283–93.CrossRefPubMed
41.
Comín-Colet J, Enjuanes C, Lupón J, Cainzos-Achirica M, Badosa N, Verdú JM. Transitions of Care between Acute and Chronic Heart Failure: Critical Steps in the Design of a Multidisciplinary Care Model for the Prevention of Rehospitalization. Rev Esp Cardiol. 2016;69(10):951–61.CrossRefPubMed
42.
Ponikowski P, Voors AA, Anker SD, Bueno H, Cleland JGF, Coats AJS, et al. 2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure. Eur J Hear Fail. 2016;18(8):891–975.CrossRef
43.
Argimon Pallás J, Jiménez Villa J. Métodos de investigación clínica y epidemiológica. 3ath ed. Madrid: Elsevier España, SA; 2004.
44.
Charlson M, Szatrowski TP, Peterson J, Gold J. Validation of a combined comorbidity index. J Clin Epidemiol. 1994;47(11):1245–51.CrossRefPubMed
45.
Herrero MJ, Blanch J, Peri JM, De Pablo J, Pintor L, Bulbena A. A validation study of the hospital anxiety and depression scale (HADS) in a Spanish population. Gen Hosp Psychiatry. 2003;25(4):277–83.CrossRefPubMed
46.
Garin O, Soriano N, Ribera A, Ferrer M, Pont A, Alonso J, et al. Validation of the Spanish version of the Minnesota Living with Heart Failure Questionnaire. Rev Esp Cardiol. 2008;61(3):251–9.CrossRefPubMed
47.
Jaarsma T, Strömberg A, Mårtensson J, Dracup K. Development and testing of the European Heart Failure Self-Care Behaviour Scale. Eur J Hear Fail. 2003;5(3):363.CrossRef
48.
Sanjuán Suárez P, Pérez García AM, Bermúdez Moreno J. Escala de autoeficacia general: datos psicométricos de la adaptación para población española. Psicothema. 2010;12(2):509–13.
49.
Comín-Colet J, Garin O, Lupón J, Manito N, Crespo-Leiro MG, Gómez-Bueno M, et al. Validation of the Spanish version of the Kansas city cardiomyopathy questionnaire. Rev Esp Cardiol. 2011;64(1):51–8.CrossRefPubMed
50.
Lee CS, Gelow JM, Mudd JO, Green JK, Hiatt SO, Chien C, et al. Profiles of self-care management versus consulting behaviors in adults with heart failure. Eur J Cardiovasc Nurs. 2015;14(1):63–72.CrossRefPubMed
51.
Lee CS. Trajectories of heart failure self-care management and changes in quality of life. Eur J Cardiovasc Nurs. 2015;14(6):486–94.CrossRefPubMed
Metadata
Title
Transcultural adaptation and validation of the patient empowerment in long-term conditions questionnaire
Authors
Paloma Garcimartin
Josep Comin-Colet
Pilar Delgado-Hito
Neus Badosa-Marcé
Anna Linas-Alonso
Publication date
01-12-2017
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2017
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-017-2271-7

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