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BMC Health Services Research
Published in: BMC Health Services Research 1/2016

Open Access 01-12-2016 | Research article

Using a complex adaptive system lens to understand family caregiving experiences navigating the stroke rehabilitation system

Authors: Andrea Ghazzawi, Craig Kuziemsky, Tracey O’Sullivan

Published in: BMC Health Services Research | Issue 1/2016

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Abstract

Background

Family caregivers provide the stroke survivor with social support and continuity during the transition home from a rehabilitation facility. In this exploratory study we examined family caregivers’ perceptions and experiences navigating the stroke rehabilitation system. The theories of continuity of care and complex adaptive systems were integrated to examine the transition from a stroke rehabilitation facility to the patient’s home. This study provides an understanding of the interacting complexities at the macro and micro levels.

Methods

A convenient sample of family caregivers (n = 14) who provide care for a stroke survivor were recruited 4–12 weeks following the patient’s discharge from a stroke rehabilitation facility in Ontario, Canada. Interviews were conducted with family caregivers to examine their perceptions and experiences navigating the stroke rehabilitation system. Directed and inductive content analysis and the theory of Complex Adaptive Systems were used to interpret the perceptions of family caregivers.

Results

Health system policies and procedures at the macro-level determined the types and timing of information being provided to caregivers, and impacted continuity of care and access to supports and services at the micro-level. Supports and services in the community, such as outpatient physiotherapy services, were limited or did not meet the specific needs of the stroke survivors or family caregivers.

Conclusion

Relationships with health providers, informational support, and continuity in case management all influence the family caregiving experience and ultimately the quality of care for the stroke survivor, during the transition home from a rehabilitation facility.
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Metadata
Title
Using a complex adaptive system lens to understand family caregiving experiences navigating the stroke rehabilitation system
Authors
Andrea Ghazzawi
Craig Kuziemsky
Tracey O’Sullivan
Publication date
01-12-2016
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2016
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-016-1795-6

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