Skip to main content
Top
Published in: BMC Health Services Research 1/2015

Open Access 01-12-2015 | Research article

Disability Grant: a precarious lifeline for HIV/AIDS patients in South Africa

Authors: Veloshnee Govender, Jana Fried, Stephen Birch, Natsayi Chimbindi, Susan Cleary

Published in: BMC Health Services Research | Issue 1/2015

Login to get access

Abstract

Background

In South Africa, HIV/AIDS remains a major public health problem. In a context of chronic unemployment and deepening poverty, social assistance through a Disability Grant (DG) is extended to adults with HIV/AIDS who are unable to work because of a mental or physical disability. Using a mixed methods approach, we consider 1) inequalities in access to the DG for patients on ART and 2) implications of DG access for on-going access to healthcare.

Methods

Data were collected in exit interviews with 1200 ART patients in two rural and two urban health sub-districts in four different South African provinces. Additionally, 17 and 18 in-depth interviews were completed with patients on ART treatment and ART providers, respectively, in three of the four sites included in the quantitative phase.

Results

Grant recipients were comparatively worse off than non-recipients in terms of employment (9.1 % vs. 29.9 %) and wealth (58.3 % in the poorest half vs. 45.8 %). After controlling for socioeconomic and demographic factors, site, treatment duration, adherence and concomitant TB treatment, the regression analyses showed that the employed were significantly less likely to receive the DG than the unemployed (p < 0.001). Also, patients who were longer on treatment and receiving concomitant treatment (i.e., ART and tuberculosis care) were more likely to receive the DG (significant at the 5 % level). The qualitative analyses indicated that the DG alleviated the burden of healthcare related costs for ART patients. Both patients and healthcare providers spoke of the complexity of the grants process and eligibility criteria as a barrier to accessing the grant. This impacted adversely on patient-provider relationships.

Conclusions

These findings highlight the appropriateness of the DG for people living with HIV/AIDS. However, improved collaboration between the Departments of Social Development and Health is essential for preparing healthcare providers who are at the interface between social security and potential recipients.
Appendix
Available only for authorised users
Footnotes
1
The Social Assistance Act (No. 13 of 2004) defines a disable person as an adult who is ‘owing to his or her physical or mental disability, unfit to obtain, by virtue of any service employment or profession, the means needed to enable him or her to provide for his or her maintenance’.
 
2
Overall, there are currently seven types of social grants including not only the Disability Grant but also Older Persons Grant, Child Support Grant, Care Dependency Grant, Foster Child Grant, War Veterans Grant and the Grant-in-Aid (Department of Social Development in South Africa 2010).
 
3
People living with HIV/AIDS qualify for and receive a temporary DG, based on an assessment of the disability by a state-doctor. The assessment of disability rests with the doctor who is usually guided by the person’s CD4 count (less than 200) and/or TB/pneumonia related illness. People with a CD4 count of below 200 will usually qualify for the DG. At the same time, some people with CD4 counts of less than 200 may still be assessed as fit enough to work. Equally some people with CD4 counts above 200 who are very sick with TB or may qualify for the grant.
 
4
If the person’s CD4 count increases above 200 with ART and he/she is judged as fit for work by the doctor, they will no longer qualify for the DG.
 
5
The study was conducted between 2008 and 2010
 
6
In this study, expenditure is used as proxy for household income
 
Literature
1.
go back to reference Constitution of the Republic of South Africa. Bill of Rights of the Republic of South Africa. 1996. Constitution of the Republic of South Africa. Bill of Rights of the Republic of South Africa. 1996.
2.
go back to reference Government of South Africa. 2012 Global AIDS Report for South Africa. Pretoria: Government of South Africa; 2012. Government of South Africa. 2012 Global AIDS Report for South Africa. Pretoria: Government of South Africa; 2012.
3.
go back to reference Government of South Africa. Department of Social Development–Strategic Plan 2009–2012. Pretoria: Government of South Africa; 2008. Government of South Africa. Department of Social Development–Strategic Plan 2009–2012. Pretoria: Government of South Africa; 2008.
4.
go back to reference Brockerhoff S. Monitoring the Progressive Realisation of Socio–Economic Rights: A Review of Policy Development on Social Security in South. Johannesburg: Africa; 2011. Brockerhoff S. Monitoring the Progressive Realisation of Socio–Economic Rights: A Review of Policy Development on Social Security in South. Johannesburg: Africa; 2011.
5.
go back to reference South African Social Security Agency (SASSA). A Statistical Summary of Social Grants in South Africa. Fact Sheet: Issue No 1 of 2013–31 January 2013. Pretoria: Government of South Africa; 2013. South African Social Security Agency (SASSA). A Statistical Summary of Social Grants in South Africa. Fact Sheet: Issue No 1 of 2013–31 January 2013. Pretoria: Government of South Africa; 2013.
6.
go back to reference South African Social Security Agency. Types of Grants and Their Qualifying Requirements. 2012. South African Social Security Agency. Types of Grants and Their Qualifying Requirements. 2012.
7.
go back to reference Erstad I. The resurgence Of tuberculosis in South Africa: An investigation into socio-economic aspects of the disease in a context of structural violence in Grahamstown, Eastern Cape. Rhodes University; 2006(December):196. Erstad I. The resurgence Of tuberculosis in South Africa: An investigation into socio-economic aspects of the disease in a context of structural violence in Grahamstown, Eastern Cape. Rhodes University; 2006(December):196.
8.
go back to reference Treatment Action Campaign. Equal Treatment. 2009. p. 29. Treatment Action Campaign. Equal Treatment. 2009. p. 29.
9.
go back to reference Hardy C, Richter M. Disability grants or antiretrovirals? A quandary for people with HIV/AIDS in South Africa. African J AIDS Res. 2006;5:85–96.CrossRef Hardy C, Richter M. Disability grants or antiretrovirals? A quandary for people with HIV/AIDS in South Africa. African J AIDS Res. 2006;5:85–96.CrossRef
10.
go back to reference MacGregor H. The grant is what I eat: the politics of social security and disability in the post-apartheid South African state. J Biosoc Sci. 2006;38:43–55.CrossRefPubMed MacGregor H. The grant is what I eat: the politics of social security and disability in the post-apartheid South African state. J Biosoc Sci. 2006;38:43–55.CrossRefPubMed
11.
go back to reference Schneider M, Barrett S. “Because I am disabled I should get a grant”: Including disability in social protection programmes. 2011. Schneider M, Barrett S. “Because I am disabled I should get a grant”: Including disability in social protection programmes. 2011.
12.
go back to reference Knight L, Hosegood V, Timæus IM. The South African disability grant: Influence on HIV treatment outcomes and household well-being in KwaZulu-Natal. Dev South Afr. 2013;30:135–47.CrossRef Knight L, Hosegood V, Timæus IM. The South African disability grant: Influence on HIV treatment outcomes and household well-being in KwaZulu-Natal. Dev South Afr. 2013;30:135–47.CrossRef
13.
go back to reference McIntyre D, Thiede M, Birch S. Access as a policy-relevant concept in low–and middle-income countries. Health Econ Policy Law. 2009;4(Pt 2):179–93.CrossRefPubMed McIntyre D, Thiede M, Birch S. Access as a policy-relevant concept in low–and middle-income countries. Health Econ Policy Law. 2009;4(Pt 2):179–93.CrossRefPubMed
14.
go back to reference Cleary S, Birch S, Chimbindi N, Silal S, McIntyre D. Investigating the affordability of key health services in South Africa. Soc Sci Med. 2013;80:37–46.CrossRefPubMed Cleary S, Birch S, Chimbindi N, Silal S, McIntyre D. Investigating the affordability of key health services in South Africa. Soc Sci Med. 2013;80:37–46.CrossRefPubMed
15.
go back to reference Fried J, Harris B, Eyles J. Hopes interrupted: accessing and experiences of antiretroviral therapy in South Africa. Sex Transm Infect. 2012;88:147–51.CrossRefPubMed Fried J, Harris B, Eyles J. Hopes interrupted: accessing and experiences of antiretroviral therapy in South Africa. Sex Transm Infect. 2012;88:147–51.CrossRefPubMed
16.
go back to reference Bärnighausen T. Access to antiretroviral treatment in the developing world: a framework, review and health systems research agenda. Therapy. 2007;4:753–66. Bärnighausen T. Access to antiretroviral treatment in the developing world: a framework, review and health systems research agenda. Therapy. 2007;4:753–66.
17.
go back to reference Thiede M, McIntyre D. Information, communication and equitable access to health care: a conceptual note. Cad Saude Publica. 2008;24:1168–73.CrossRefPubMed Thiede M, McIntyre D. Information, communication and equitable access to health care: a conceptual note. Cad Saude Publica. 2008;24:1168–73.CrossRefPubMed
18.
go back to reference Morse J. Approaches to qualitative-quantitative methodological triangulation. Nurs Res. 1991;40:120–3.CrossRefPubMed Morse J. Approaches to qualitative-quantitative methodological triangulation. Nurs Res. 1991;40:120–3.CrossRefPubMed
19.
go back to reference Greene JC, Caracelli VJ, Graham WF. Toward a Conceptual Framework for Mixed-Method Evaluation Designs. Educ Eval Policy Anal. 1989;11:255–74.CrossRef Greene JC, Caracelli VJ, Graham WF. Toward a Conceptual Framework for Mixed-Method Evaluation Designs. Educ Eval Policy Anal. 1989;11:255–74.CrossRef
20.
go back to reference Bury M. Illness narratives: fact or fiction? Sociology of Health & Illness. 2001;23(3):263–285. Bury M. Illness narratives: fact or fiction? Sociology of Health & Illness. 2001;23(3):263–285.
21.
go back to reference Elloker S, Olckers P, Gilson L, Lehmann U. Crises, Routines and Innovations: The complexities and possibilities of sub-district management. In: Padarath A, English R, editors. South African Heal Rev 2012/13. Durban: Health Systems Trust; 2013. p. 161–73. Elloker S, Olckers P, Gilson L, Lehmann U. Crises, Routines and Innovations: The complexities and possibilities of sub-district management. In: Padarath A, English R, editors. South African Heal Rev 2012/13. Durban: Health Systems Trust; 2013. p. 161–73.
22.
go back to reference Black Sash. Submission to the Western Cape Provincial Legislature Re: Social Assistance Amendment Bill B 5B - 2010. Cape Town: Black Sash; 2010. Black Sash. Submission to the Western Cape Provincial Legislature Re: Social Assistance Amendment Bill B 5B - 2010. Cape Town: Black Sash; 2010.
23.
go back to reference Simchowitz B. Social security and HIV/AIDS: assessing "disability" in the context of ARV treatment. CSSR Working Paper No.99. Cape Town, Centre for Social Science Research, Cape Town: University of Cape Town; 2004. Simchowitz B. Social security and HIV/AIDS: assessing "disability" in the context of ARV treatment. CSSR Working Paper No.99. Cape Town, Centre for Social Science Research, Cape Town: University of Cape Town; 2004.
24.
go back to reference Nattrass N. Trading off Income and Health: AIDS and the Disability Grant in South Africa. J Soc Policy. 2006;35:3–19.CrossRef Nattrass N. Trading off Income and Health: AIDS and the Disability Grant in South Africa. J Soc Policy. 2006;35:3–19.CrossRef
25.
go back to reference Woolgar HL, Mayers PM. The Perceived Benefit of the Disability Grant for Persons Living With HIV in an Informal Settlement Community in the Western Cape, South Africa. J Assoc Nurses AIDS Care. 2014;25:589–602.CrossRefPubMed Woolgar HL, Mayers PM. The Perceived Benefit of the Disability Grant for Persons Living With HIV in an Informal Settlement Community in the Western Cape, South Africa. J Assoc Nurses AIDS Care. 2014;25:589–602.CrossRefPubMed
26.
go back to reference Sabaté E: Adherence to Long-Term Therapies: Evidence for Action, World Health Organization, Geneva, Switzerland, 2003 Sabaté E: Adherence to Long-Term Therapies: Evidence for Action, World Health Organization, Geneva, Switzerland, 2003
27.
go back to reference Noyes J, Popay J. Directly observed therapy and tuberculosis: how can a systematic review of qualitative research contribute to improving services? A qualitative meta-synthesis. J Adv Nurs. 2007;57:227–43.CrossRefPubMed Noyes J, Popay J. Directly observed therapy and tuberculosis: how can a systematic review of qualitative research contribute to improving services? A qualitative meta-synthesis. J Adv Nurs. 2007;57:227–43.CrossRefPubMed
28.
go back to reference Phaswana-Mafuya N, Peltzer K, Petros G. Disability grant for people living with HIV/AIDS in the Eastern Cape of South Africa. Soc Work Health Care. 2009;48:533–50.CrossRefPubMed Phaswana-Mafuya N, Peltzer K, Petros G. Disability grant for people living with HIV/AIDS in the Eastern Cape of South Africa. Soc Work Health Care. 2009;48:533–50.CrossRefPubMed
29.
go back to reference Government of South Africa. National HIV & AIDS and STI Strategic Plan for South Africa, 2007–2011. Pretoria: Government of South Africa; 2006. Government of South Africa. National HIV & AIDS and STI Strategic Plan for South Africa, 2007–2011. Pretoria: Government of South Africa; 2006.
30.
go back to reference AIDS Law Project. Submission on the Social Assistance Amendment Bill, 2010. 2010. p. 13. AIDS Law Project. Submission on the Social Assistance Amendment Bill, 2010. 2010. p. 13.
Metadata
Title
Disability Grant: a precarious lifeline for HIV/AIDS patients in South Africa
Authors
Veloshnee Govender
Jana Fried
Stephen Birch
Natsayi Chimbindi
Susan Cleary
Publication date
01-12-2015
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2015
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-015-0870-8

Other articles of this Issue 1/2015

BMC Health Services Research 1/2015 Go to the issue