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BMC Health Services Research
Published in: BMC Health Services Research 1/2014

Open Access 01-12-2014 | Research article

Work, family and social environment in patients with Fibromyalgia in Spain: an epidemiological study: EPIFFAC study

Published in: BMC Health Services Research | Issue 1/2014

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Abstract

Background

Fibromyalgia (FM) is a condition characterized by widespread pain, estimated to affect 2.4% of the Spanish population. Nowadays, there are no consistent epidemiological studies on the actual impact of the disease on work and family of these patients in a representative manner; therefore, the purpose of the study is to analyze the impact on family, employment and social environment in a representative sample of patients with FM attending Primary Public Care Centers in Spain.

Methods

We carried out an epidemiological study, with a probability sampling procedure, stratified, relative to the municipality size and the number of health centres, seeking territorial representation. The survey was conducted using a self-administered structured questionnaire.

Results

A sample of 325 patients with FM was studied in 35 Primary Health Care Centers (PHCCs). The sample is composed of 96.6% of women, 51.9 (8) years of mean (standard deviation- sd) age. Ninety-three percent of the patients have worked throughout their life. Mean (sd) age onset of symptoms was 37 (11) years and diagnosis of FM was established 6.6 (8) years later.
Family Environment: Fifty-nine percent of patients have difficulties with their partner. Forty-four percent of the patients report to be fairly or totally dependent on a family member in household chores. The household income decreased a mean (sd) of 708 (504) Euros/month in 65% of the patients. In 81% of the patients, there was an increase in extra expenses related to the disease with a mean (sd) of 230 (192) Euros/month.
Working environment: At the moment of the study, 45% of the patients had work activity (34% were working and 11% were at sick leave), 13% were unemployed seeking job and 42% were not in the labor force. Twenty-three percent of patients had some degree of permanent work disability pension.
Social Environment: The degree of satisfaction with health care professionals was low and twenty-six percent of the patients were members of specific patients associations.

Conclusions

This study finds that people with FM who visit PHCCs of Spain experience a high impact on families and employment with heavy loss of ability to work.
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Literature
1.
Mas AJ, Carmona L, Valverde M, Ribas B: Prevalence and impact of fibromyalgia on function and quality of life in individuals from the general population: results from a nationwide study in Spain. Clin Exp Rheumatol. 2008, 26 (4): 519-526.PubMed
2.
Branco JC, Bannwarth B, Failde I, AbelloCarbonell J, Blotman F, Spaeth M, Saraiva F, Nacci F, Thomas E, Caubère JP, Le Lay K, Taieb C, Matucci-Cerinic M: Prevalence of fibromyalgia: a survey in five European countries. Semin Arthritis Rheum. 2010, 39 (6): 448-453. 10.1016/j.semarthrit.2008.12.003.CrossRefPubMed
3.
Hoffman DL, Dukes EM: The health status burden of people with fibromyalgia: a review of studies that assessed health status with the SF-36 or the SF-12. Int J Clin Pract. 2008, 62 (1): 115-126. 10.1111/j.1742-1241.2007.01638.x.CrossRefPubMedPubMedCentral
4.
Wolfe F, Anderson J, Harkness D, Bennett RM, Caro XJ, Goldenberg DL, Russell IJ, Yunus MB: Work and disability status of persons with fibromyalgia. J Rheumatol. 1997, 24 (6): 1171-1178.PubMed
5.
Palstam A, Bjersing JL, Mannerkorpi K: Which aspects of health differ between working and nonworking women with fibromyalgia? A cross-sectional study of work status and health. BMC Public Health. 2012, 12: 1076-10.1186/1471-2458-12-1076. doi:10.1186/1471-2458-12-1076CrossRefPubMedPubMedCentral
6.
White KP, Speechley M, Harth M, Ostbye T: Comparing self- reported function and work disability in 100 community cases of fibromyalgia syndrome versus controls in London, Ontario: the London Fibromyalgia Epidemiology Study. Arthritis Rheum. 1999, 42 (1): 76-83. 10.1002/1529-0131(199901)42:1<76::AID-ANR10>3.0.CO;2-G.CrossRefPubMed
7.
Henriksson CM, Liedberg GM, Gerdle B: Women with fibromyalgia: work and rehabilitation. Disabil Rehabil. 2005, 27 (12): 685-694. 10.1080/09638280400009089.CrossRefPubMed
8.
Marcus DA, Richards KL, Chambers JF, Bhowmick A: Fibromyalgia family and relationship impact exploratory survey. Musculoskeletal Care. 2012, 11 (3): 125-134. 10.1002/msc.1039.CrossRefPubMed
9.
Albornoz J, Povedano J, Quijada J, De La Iglesia JL, Fernández A, Pérez-Vílchez D, García-López A: Características clínicas y sociolaborales de la fibromialgia en España: descripción de 193 pacientes. Rev Esp Reumatol. 1997, 24: 38-44.
10.
Ubago Linares MC, Ruiz Pérez I, Bermejo Pérez MJ, Olry de Labry Lima A, Plazaola Castaño J: Características clínicas y psicosociales de personas con Fibromialgia. Repercusión del diagnóstico sobre sus actividades. Rev Esp Salud Publ. 2005, 79 (6): 683-695.
11.
Rivera J, Rejas J, Esteve-Vives J, Vallejo MA, Groupo ICAF: Resource utilisation and health care costs in patients diagnosed with fibromyalgia in Spain. Clin Exp Rheumatol. 2009, 27 (5 Suppl 56): S39-S45.PubMed
12.
Sicras-Mainar A, Rejas J, Navarro R, Blanca M, Morcillo A, Larios R, Velasco S, Villaroya C: Treating patients with fibromyalgia in primary care settings under routine medical practice: a claim database cost and burden of illness study. Arthritis Res Ther. 2009, 11 (2): R54-10.1186/ar2673.CrossRefPubMedPubMedCentral
13.
Salido M, Navarro P, Judez E, Hortal R: Factores relacionados con la incapacidad temporal en pacientes con Fibromialgia. Reumatol Clin. 2007, 3 (2): 67-72. 10.1016/S1699-258X(07)73604-5.CrossRefPubMed
14.
World Health Organization: ICF: International Classification of Functioning, Disability and Health. Geneva: WHO; 2001.
15.
Prodinger B, Cieza A, Williams DA, Mease P, Boonen A, Kerschan-Schindl K, Fialka-Moser V, Smolen J, Stucki G, Machold K, Stamm T: Measuring health in patients with fibromyalgia: content comparison of questionnaires based on the International Classification of Functioning, Disability and Health. Arthritis Rheum. 2008, 59 (5): 650-658. 10.1002/art.23559.CrossRefPubMed
16.
Wolfe F, Smythe HA, Yunus MB, Bennett RM, Bombardier C, Goldenberg DL, Tugwell P, Campbell SM, Abeles M, Clark P, Fam AG, Farber SJ, Fiechtner JJ, Franklin CM, Gatter RA, Hamaty D, Lessard J, Lichtbroun AS, Masi AT, McCain GA, Reynolds WJ, Romano TJ, Russell IJ, Sheon RP: The American College of Rheumatology 1990 criteria for the classification of fibromyalgia. Report of the multicenter criteria committee. Arthritis Rheum. 1990, 33 (2): 160-172. 10.1002/art.1780330203.CrossRefPubMed
17.
Rivera J, González T: The Fibromyalgia Impact Questionnaire: a validated Spanish version to assess the health status in women with fibromyalgia. Clin Exp Rheumatol. 2004, 22 (5): 554-560.PubMed
18.
Alonso J, Prieto L, Antó JM: La versión española del SF-36 Health Survey (Cuestionario de Salud SF-36): un instrumento para la medida de los resultados clínicos. Med Clin (Barc). 1995, 104 (20): 771-776.
19.
Bellón Saameño JA, Delgado Sánchez A, del Castillo JD L, Lardelli Claret P: Validez y fiabilidad del cuestionario de función familiar Apgar-familiar. Aten Primaria. 1996, 18 (6): 289-296.PubMed
20.
Söderberg S, Strand M, Haapala M, Lundman B: Living with a woman with fibromyalgia from the perspective of the husband. J Adv Nurs. 2003, 42 (2): 143-150. 10.1046/j.1365-2648.2003.02597.x.CrossRefPubMed
21.
Paulson M, Norberg A, Söderberg S: Living in the shadow of fibromyalgic pain: the meaning of female partners’ experiences. J Clin Nurs. 2003, 12 (2): 235-243. 10.1046/j.1365-2702.2003.00733.x.CrossRefPubMed
22.
Reich JW, Olmsted ME, van Puymbroeck CM: Illness uncertainty, partner caregiver burden and support, and relationship satisfaction in fibromyalgia and osteoarthritis patients. Arthritis Rheum. 2006, 55 (1): 86-93. 10.1002/art.21700.CrossRefPubMed
23.
Hendrick SS, Dicke A, Hendrick C: The relationship assessment scale. J Soc Pers Relat. 1998, 15 (1): 137-142. 10.1177/0265407598151009.CrossRef
24.
Nicassio PM, Radojevic V: Models of family functioning and their contribution to patient outcomes in chronic pain. Motiv Emot. 1993, 17: 295-316. 10.1007/BF00992224.CrossRef
25.
Bigatti SM, Cronan TA: An examination of the physical health, health care, and psychological well-being of spouses of people with fibromyalgia syndrome. Health Psychol. 2002, 21 (2): 157-166. 10.1037/0278-6133.21.2.157.CrossRefPubMed
26.
Neumann L, Buskila D: Quality of life and physical functioning of relatives of fibromyalgia patients. Semin Arthritis Rheum. 1997, 26 (6): 834-839. 10.1016/S0049-0172(97)80027-3.CrossRefPubMed
27.
Dogan SK, Aytur YK, Atbasoglu C: Assessment of the relatives or spouses cohabiting with the fibromyalgia patients: is there a link regarding fibromyalgia symptoms, quality of life, general health and psychologic status?. Rheumatol Int. 2011, 31 (9): 1137-1142. 10.1007/s00296-010-1422-5.CrossRefPubMed
28.
Kool MB, Woertman L, Prins MA, Van Middendorp H, Geenen R: Low relationship satisfaction and high partner involvement predict sexual problems of women with fibromyalgia. J Sex Marital Ther. 2006, 32 (5): 409-423. 10.1080/00926230600835403.CrossRefPubMed
29.
Rivera J, Rejas-Gutiérrez J, Vallejo MA, Esteve-Vives J, De Salas-Cansado M: Prospective study of the use of healthcare resources and economic costs in patients with fibromyalgia after treatment in routine medical practice. Clin Exp Rheumatol. 2012, 30 (6 Suppl 74): 31-38.PubMed
30.
Sicras-Mainar A, Blanca-Tamayo M, Navarro-Artieda R, Rejas-Gutiérrez J: Perfil de uso de recursos y costes en pacientes que demandan atención por fibromialgia o trastorno de ansiedad generalizada en el ámbito de atención primaria de salud. Aten Primaria. 2009, 41 (2): 77-84. 10.1016/j.aprim.2008.09.008.CrossRefPubMed
31.
Penrod JR, Bernatsky S, Adam V, Baron M, Dayan N, Dobkin PL: Health services costs and their determinants in women with fibromyalgia. J Rheumatol. 2004, 31 (7): 1391-1398.PubMed
Metadata
Title
Work, family and social environment in patients with Fibromyalgia in Spain: an epidemiological study: EPIFFAC study
Publication date
01-12-2014
Published in
BMC Health Services Research / Issue 1/2014
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-014-0513-5

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