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BMC Medical Informatics and Decision Making
Published in: BMC Medical Informatics and Decision Making 1/2020

01-12-2020 | Basalioma | Research article

Development of a patient decision aid for the management of superficial basal cell carcinoma (BCC) in adults with a limited life expectancy

Authors: Alexandra Junn, Neha R Shukla, Lily Morrison, Meghan Halley, Mary-Margaret Chren, Louise C. Walter, Dominick L. Frosch, Dan Matlock, Jeanette S. Torres, Eleni Linos

Published in: BMC Medical Informatics and Decision Making | Issue 1/2020

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Abstract

Background

Basal cell carcinoma (BCC) is a slow-growing, rarely lethal skin cancer that affects people 65 years or older. A range of treatment options exist for BCC, but there is little evidence available to guide patients and providers in selecting the best treatment options.

Objectives

This study outlines the development of a patient decision aid (PDA) for low-risk BCC that can be used by patients and providers to assist in shared decision-making.

Methods

In accordance with the International Patient Decision Aids Standards (IPDAS) Collaboration framework, feedback from focus groups and semi-structured interviews with patients and providers, an initial prototype of the PDA was developed. This was tested using cognitive interviews and iteratively updated.

Results

We created eighteen different iterations using feedback from 24 patients and 34 providers. The key issues identified included: 1) Addressing fear of cancer; 2) Communicating risk and uncertainty; 3) Values clarification; and 4) Time lag to benefit.

Limitations

The PDA does not include all possible treatment options and is currently paper based.

Conclusions

Our PDA has been specifically adapted and designed to support patients with a limited life expectancy in making decisions about their low risk BCC together with their doctors.
Appendix
Available only for authorised users
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Metadata
Title
Development of a patient decision aid for the management of superficial basal cell carcinoma (BCC) in adults with a limited life expectancy
Authors
Alexandra Junn
Neha R Shukla
Lily Morrison
Meghan Halley
Mary-Margaret Chren
Louise C. Walter
Dominick L. Frosch
Dan Matlock
Jeanette S. Torres
Eleni Linos
Publication date
01-12-2020
Publisher
BioMed Central
Published in
BMC Medical Informatics and Decision Making / Issue 1/2020
Electronic ISSN: 1472-6947
DOI
https://doi.org/10.1186/s12911-020-1081-8

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