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Published in: BMC Medical Informatics and Decision Making 1/2019

Open Access 01-12-2019 | Research article

Standards as applied in reality: a case study on the translation of standards in eHealth evaluation practice

Author: Monika Jurkeviciute

Published in: BMC Medical Informatics and Decision Making | Issue 1/2019

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Abstract

Background

Application of standards is a way to increase quality in an evaluation study. However, standards are used insufficiently in eHealth evaluation, affecting the generalization of the knowledge generated.
This study aimed to explore how standards are used in a practical setting of an eHealth evaluation, and to identify the factors that can hinder their use.

Methods

The data were collected in a multi-national and interdisciplinary eHealth evaluation study targeted at the elderly people suffering from mild cognitive impairment and mild dementia. The study was carried out in four countries and funded by the European Union. The collected data included meeting minutes (n = 8) and e-mail correspondence (n = 261) between partners. The chronological sequence of events related to the use of standards was established. Subsequently, the hindering factors related to the use of standards were identified from the sequence.

Results

The use of four standards was described, reflecting a variety of related processes or barriers that emerge during eHealth evaluation. The processes differed based on the type of the standard. Specifically, evaluation frameworks were found to be conceptual standards and they were easy to agree upon, while standardized metrics were more tangible and their use triggered negotiations. Further, the following factors hindered the use of standards in eHealth evaluations: (1) inadequacy of a standard to address a target population or a disease, (2) insufficient resources to use a standard, (3) lack of experience in using a standard, and (4) lack of validation of a standard in a particular location.

Conclusions

Standardization initiatives in eHealth evaluation provide a blueprint for evaluation, but their practical application is problematic. The practical circumstances of an evaluation study can cause deviations in the standards, thus producing heterogeneity in the evaluation methodologies.
Literature
12.
go back to reference Janssen R, Hettinga M, Visser S, Menko R, Prins H, Krediet I, Haaker T, Bodenstaff L. Innovation routes and evidence guidelines for eHealth small and medium-sized enterprises. Int J Adv Life Sc. 2013;5:188–203. Janssen R, Hettinga M, Visser S, Menko R, Prins H, Krediet I, Haaker T, Bodenstaff L. Innovation routes and evidence guidelines for eHealth small and medium-sized enterprises. Int J Adv Life Sc. 2013;5:188–203.
17.
go back to reference Doupi P. Evolving health IT systems evaluation: the convergence of health informatics and HTA. In: Ammenwerth E, Rigby M, editors. Evidence-based health informatics: promoting safety and efficiency through scientific methods and ethical policy. Amsterdam: IOS press BV; 2016. p. 220–36. Doupi P. Evolving health IT systems evaluation: the convergence of health informatics and HTA. In: Ammenwerth E, Rigby M, editors. Evidence-based health informatics: promoting safety and efficiency through scientific methods and ethical policy. Amsterdam: IOS press BV; 2016. p. 220–36.
23.
go back to reference EuroQol Group. EuroQol—A new facility for the measurement of health-related quality of life. Health Policy. 1990;16(3):199.CrossRef EuroQol Group. EuroQol—A new facility for the measurement of health-related quality of life. Health Policy. 1990;16(3):199.CrossRef
31.
go back to reference Latour B. Science in action: How to follow scientists and engineers through society. Cambridge: Harvard University Press; 1987. Latour B. Science in action: How to follow scientists and engineers through society. Cambridge: Harvard University Press; 1987.
34.
go back to reference Røvik KA. Trender og translasjoner: Ideer som former det 21. århundrets organisasjoner. Oslo: Universitetsforl; 2007. Røvik KA. Trender og translasjoner: Ideer som former det 21. århundrets organisasjoner. Oslo: Universitetsforl; 2007.
35.
go back to reference Marshall GN, Hays RD. The patient satisfaction questionnaire short-form (PSQ-18). Santa Monica: RAND; 1994. Marshall GN, Hays RD. The patient satisfaction questionnaire short-form (PSQ-18). Santa Monica: RAND; 1994.
37.
go back to reference Orrell M, Hancock G. CANE: Camberwell assessment of need for the elderly. London: Gaskell; 2004. Orrell M, Hancock G. CANE: Camberwell assessment of need for the elderly. London: Gaskell; 2004.
39.
go back to reference Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer’s disease: patient and caregiver reports. J Ment Health Aging. 1999;5:21–32. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer’s disease: patient and caregiver reports. J Ment Health Aging. 1999;5:21–32.
40.
go back to reference Mitseva A, Peterson C, Dafoulas G, Efthymiou A, Abildgaard A, Bellini S. ISISEMD evaluation framework for impact assessment of ICT pilot services for elderly with mild dementia, living in the community and their relatives. In: Proceedings of the Networking and Electronic Commerce Research Conference (NAEC); 2010. p. 123–48. Mitseva A, Peterson C, Dafoulas G, Efthymiou A, Abildgaard A, Bellini S. ISISEMD evaluation framework for impact assessment of ICT pilot services for elderly with mild dementia, living in the community and their relatives. In: Proceedings of the Networking and Electronic Commerce Research Conference (NAEC); 2010. p. 123–48.
Metadata
Title
Standards as applied in reality: a case study on the translation of standards in eHealth evaluation practice
Author
Monika Jurkeviciute
Publication date
01-12-2019
Publisher
BioMed Central
Published in
BMC Medical Informatics and Decision Making / Issue 1/2019
Electronic ISSN: 1472-6947
DOI
https://doi.org/10.1186/s12911-019-0975-9

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