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Published in: BMC Palliative Care 1/2018

Open Access 01-12-2018 | Research article

Feasibility, acceptability and adaption of dignity therapy: a mixed methods study achieving 360° feedback

Authors: Sandra Stephanie Mai, Swantje Goebel, Elisabeth Jentschke, Birgitt van Oorschot, Karl-Heinz Renner, Martin Weber

Published in: BMC Palliative Care | Issue 1/2018

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Abstract

Background

Dignity Therapy (DT) is a short-term intervention to reduce psychological suffering in end-of-life care. Its strength lies in evidenced-based development and investigation. The aim of the present study is to investigate the feasibility of DT at German palliative care units (PCU), as well as the acceptability and adaption of a German version of the DT question protocol (DTQP).

Method

A clinical multicentre mixed methods study, whereby patients and relatives provided quantitative (feedback questionnaires) and qualitative (cognitive interviews) data on the DT intervention. Before using the DTQP on patients, healthcare professionals (HCP) were invited to participate in cognitive interviews to provide input on DT. Therefore 360° feedback was achieved. Finally, the conducted DT interviews were examined.
The study took place at two German PCUs (Mainz and Würzburg). Participating HCPs were physicians, psychologists, nurses and chaplains. Patients admitted to the PCUs were eligible to participate if they had a terminal illness and a life expectancy ranging from 2 weeks to 12 months.
Results: Out of 410 admitted patients, 72 were eligible and 30 (7.3% of all patients and 41.7% of eligible patients) participated. On average, 9 questions from the DTQP were used per DT interview. Subsequent cognitive interviews with patients produced four main categories of feedback (on the title, the question protocol, wording, and the questions actually asked). Finally, of the 30 participants, 19 completed the feedback questionnaire, as did 26 relatives. Of those, 18 patients and 24 relatives evaluated DT as helpful.

Conclusions

DT is feasible for German PCUs. Our research yielded a validated German translation of the DTQP following EORTC guidelines and findings were reported according to the COREQ checklist for qualitative design.
Trial registration.
The study was registered retrospectively on the 22nd of December 2017 at the German Clinical Trials Register (DRKS00013627).
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Metadata
Title
Feasibility, acceptability and adaption of dignity therapy: a mixed methods study achieving 360° feedback
Authors
Sandra Stephanie Mai
Swantje Goebel
Elisabeth Jentschke
Birgitt van Oorschot
Karl-Heinz Renner
Martin Weber
Publication date
01-12-2018
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2018
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-018-0326-0

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