Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

At a glance: The ONWARDS insulin icodec trials

A round-up of the ONWARDS phase 3 clinical trials evaluating the novel weekly insulin icodec in people with diabetes.
ADVANCED SEARCH
Log in
Top
BMC Palliative Care
Published in: BMC Palliative Care 1/2018

Open Access 01-12-2018 | Study protocol

The Japan hospice and palliative evaluation study 4: a cross-sectional questionnaire survey

Authors: Kento Masukawa, Maho Aoyama, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita

Published in: BMC Palliative Care | Issue 1/2018

Login to get access

Abstract

Background

Constant evaluation is important for maintaining and improving the quality of end-of-life care. We therefore conduct the fourth Japan Hospice and Palliative Evaluation Study (J-HOPE4) as a continuous evaluation study. In this present paper, we describe the design of J-HOPE4. The main purposes of J-HOPE4 are as follows:1) to evaluate the processes, structures, and outcomes of palliative care acute hospitals, palliative care units, and home hospice services; 2) to examine bereaved family members’ self-reported psychosocial conditions, such as grief and depression as bereavement outcomes;3) to provide data to ensure and improve the quality of care provided by participating institutions via feedback based on the results from each institution; and 4) provide clinical and academic information concerning the implications of various issues in palliative care by conducting additional studies.

Methods

We will conduct a cross-sectional, anonymous, self-reported questionnaire survey. In total, 190 institutions will participate in this study, meaning that 12,000 bereaved family members will be sent a questionnaire.

Discussion

This is one of the largest cross-sectional surveys involving hospice and palliative care, both in Japan and worldwide. Because this study will have a large sample size, the findings are expected to be generalizable to other settings.
Literature
1.
Rosenfeld K, Wenger NS. Measuring quality in end-of-life care. Clin Geriatr Med. 2000;16(2):387–400.CrossRefPubMed
2.
Tilden VP, Tolle S, Drach L, Hickman S. Measurement of quality of care and quality of life at the end of life. Gerontologist. 2002;42(3):71–80.CrossRefPubMed
3.
Lorenz KA, Lynn J, Dy S, Wilkinson A, Mularski RA, Shugarman LR, et al. Quality measures for symptoms and advance care planning in cancer: a systematic review. J Clin Oncol. 2006;24(30):4933–8.CrossRefPubMed
4.
Addington-Hall J, McPherson C. After-death interviews with surrogates/bereaved family members: some issues of validity. J Pain Symptom Manage. 2001;22:784–90.CrossRefPubMed
5.
Steinhauser KE, Clipp EC, Tulsky JA. Evolution in measuring the quality of dying. J Palliat Med. 2002;5:407–14.CrossRefPubMed
6.
Curtis JR, Engelberg RA. Measuring success of interventions to improve the quality of end-of-life care in the intensive care unit. Crit Care Med. 2006;34(suppl):S341–7.CrossRefPubMed
7.
Morita T, Chihara S, Kashiwagi T. Quality audit Committee of the Japanese Association of hospice and palliative care units. Family satisfaction with inpatient palliative care in Japan. Palliat Med. 2002;16(3):185–93.CrossRefPubMed
8.
Shiozaki M, Morita T, Hirai K, Sakaguchi Y, Tsuneto S, Shima Y. Why are bereaved family members dissatisfied with specialized inpatient palliative care service? A nationwide qualitative study. Palliat Med. 2005;19(4):319–27.CrossRefPubMed
9.
Mularski RA, Heine CE, Osborne ML, Ganzini L, Curtis JR. Quality of dying in the ICU: ratings by family members. Chest. 2005;128(1):280–7.CrossRefPubMed
10.
Levy CR, Ely EW, Payne K, Engelberg RA, Patrick DL, Curtis JR. Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest. 2005;127(5):1775–83.CrossRefPubMed
11.
JR C, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I. A measure of the quality of dying and death. Initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002;24(1):17–31.CrossRef
12.
13.
Morita T, Hirai K, Sakaguchi Y, Maeyama E, Tsuneto S, Shima Y. Measuring the quality of structure and process in end-of-life care from the bereaved family perspective. J Pain Symptom Manag. 2004;27:492–501.CrossRef
14.
Miyashita M, Morita T, Sato K, Hirai K, Shima Y, Uchitomi Y. Good death inventory: a measure for evaluating good death from the bereaved family member's perspective. J Pain Symptom Manag. 2008;35(5):486–98.CrossRef
15.
Morita T, Chihara S, Kashiwagi T. A scale to measure satisfaction of bereaved family receiving inpatient palliative care. Palliat Med. 2002;16:141–50.CrossRefPubMed
16.
Aoyama M, Morita T, Kizawa Y, Tsuneto S, Shima Y, Miyashita M. The Japan HOspice and palliative care evaluation study 3: study design, characteristics of participants and participating institutions, and response rates. Am J Hosp Palliat Care. 2017;34(7):654–64.CrossRefPubMed
17.
Miyashita M, Morita T, Sato K, Tsuneto S, Shima Y. A Nationwide survey of quality of end-of-life Cancer Care in Designated Cancer Centers, inpatient palliative care units and home hospices in Japan: the J-HOPE study. J Pain Symptom Manag. 2015;50(1):38–47.CrossRef
18.
Miyashita M, Aoyama M, Nakahata M, Yamada Y, Abe M, Yanagihara K, et al. Development the care evaluation scale version 2.0: a modified version of a measure for bereaved family members to evaluate the structure and process of palliative care for cancer patient. BMC Palliat Care. 2017;16:8.CrossRefPubMedPubMedCentral
19.
Ito M, Nakajima S, Fujisawa D, et al. Brief measure for screening complicated grief: reliability and discriminant validity. PLoS One. 2012;7(2):e31209.CrossRefPubMedPubMedCentral
20.
21.
Lowe B, Kroenke K, Herzog W, Grafe K. Measuring depression outcome with a brief self-report instrument: sensitivity to change of the patient health questionnaire (PHQ-9). J Affect Disord. 2004;81(1):61–6.CrossRefPubMed
22.
Spitzer RL, Kroenke K, Williams JB. Validation and Utility of a self-report version of PRIME-MD: the PHQ primary care study. Primary care evaluation of mental disorders. Patient health questionnaire. JAMA. 1999;282(18):1737–44.CrossRefPubMed
23.
Wright AA, Keating NL, Balboni TA, Matulonis UA, Block SD, Prigerson HG. Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers’ mental health. J Clin Oncol. 2010;28(29):4457–64.CrossRefPubMedPubMedCentral
24.
Costantini M, Beccaro M, Merlo F. The last three months of life of Italian cancer patients. Methods, sample characteristics and response rate of the Italian survey of the dying of Cancer (ISDOC). Palliat Med. 2005;19(8):628–38.CrossRefPubMed
25.
Breen LJ, Aoun SM, O'Connor M. The effect of caregiving on bereavement outcome: study protocol for a longitudinal, prospective study. BMC Palliat Care. 2015;(14):6.CrossRefPubMedPubMedCentral
26.
Maciejewski PK, Zhang B, Block SD, Prigerson HG. An empirical examination of the stage theory of grief. JAMA. 2007;297(7):716–23.CrossRefPubMed
Metadata
Title
The Japan hospice and palliative evaluation study 4: a cross-sectional questionnaire survey
Authors
Kento Masukawa
Maho Aoyama
Tatsuya Morita
Yoshiyuki Kizawa
Satoru Tsuneto
Yasuo Shima
Mitsunori Miyashita
Publication date
01-12-2018
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2018
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-018-0319-z

Other articles of this Issue 1/2018

BMC Palliative Care 1/2018 Go to the issue

Research article

Quality of life in men with metastatic prostate cancer in their final years before death – a retrospective analysis of prospective data

Research article

Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014

Research article

Intranasal fentanyl for respiratory distress in children and adolescents with life-limiting conditions

Research article

Place of death in patients with dementia and the association with comorbidities: a retrospective population-based observational study in Germany

Research article

Developing and testing a nursing home end -of -life care chart audit tool

Research article

Patient’s and health care provider’s perspectives on music therapy in palliative care – an integrative review