Skip to main content
Top
Published in: BMC Palliative Care 1/2018

Open Access 01-12-2018 | Research article

Social workers’ involvement in advance care planning: a systematic narrative review

Authors: Chong-Wen Wang, Cecilia L. W. Chan, Amy Y. M. Chow

Published in: BMC Palliative Care | Issue 1/2018

Login to get access

Abstract

Background

Advance care planning is a process of discussion that enables competent adults to express their wishes about end-of-life care through periods of decisional incapacity. Although a number of studies have documented social workers’ attitudes toward, knowledge about, and involvement in advance care planning, the information is fragmented. The purpose of this review was to provide a narrative synthesis of evidence on social workers’ perspectives and experiences regarding implementation of advance care planning.

Methods

Six databases were searched for peer-reviewed research papers from their respective inception through December 2016. All of the resulting studies relevant to both advance care planning and social worker were examined. The findings of relevant studies were synthesized thematically.

Results

Thirty-one articles met the eligibility criteria. Six research themes were identified: social workers’ attitudes toward advance care planning; social workers’ knowledge, education and training regarding advance care planning; social workers’ involvement in advance care planning; social workers’ perceptions of their roles; ethical issues relevant to advance care planning; and the effect of social work intervention on advance care planning engagement. The findings suggest that there is a consensus among social workers that advance care planning is their duty and responsibility and that social workers play an important role in promoting and implementing advance care planning through an array of activities.

Conclusions

This study provides useful knowledge for implementing advance care planning through illustrating social workers’ perspectives and experiences. Further studies are warranted to understand the complexity inherent in social workers’ involvement in advance care planning for different life-limiting illnesses or within different socio-cultural contexts.
Literature
3.
go back to reference Morrissey MB. Role of social workers as central health care professionals in advance care and end of life planning, and end of life decision making. J Pastor Couns. 2005;40:28–48. Morrissey MB. Role of social workers as central health care professionals in advance care and end of life planning, and end of life decision making. J Pastor Couns. 2005;40:28–48.
4.
go back to reference Holloway M. Dying old in the 21st century a neglected issue for social work. Int Soc Work. 2009;52(6):713–25.CrossRef Holloway M. Dying old in the 21st century a neglected issue for social work. Int Soc Work. 2009;52(6):713–25.CrossRef
5.
go back to reference Murty SA, Sanders S, Stensland M. End-of-life care as a field of practice in the social work curriculum. J Soc Work End Life Palliat Care. 2015;11(1):11–26.PubMedCrossRef Murty SA, Sanders S, Stensland M. End-of-life care as a field of practice in the social work curriculum. J Soc Work End Life Palliat Care. 2015;11(1):11–26.PubMedCrossRef
6.
go back to reference Brandsen CK. Social work and end-of-life care: reviewing the past and moving forward. J Soc Work End Life Palliat Care. 2005;1(2):45–70.PubMedCrossRef Brandsen CK. Social work and end-of-life care: reviewing the past and moving forward. J Soc Work End Life Palliat Care. 2005;1(2):45–70.PubMedCrossRef
7.
go back to reference Payne M. Developments in end-of-life and palliative care social work international issues. Int Soc Work. 2009;52(4):513–24.CrossRef Payne M. Developments in end-of-life and palliative care social work international issues. Int Soc Work. 2009;52(4):513–24.CrossRef
8.
go back to reference Forrest C, Derrick C. Interdisciplinary education in end-of-life care: creating new opportunities for social work, nursing, and clinical pastoral education students. J Soc Work End Life Palliat Care. 2010;6(1–2):91–116.PubMedCrossRef Forrest C, Derrick C. Interdisciplinary education in end-of-life care: creating new opportunities for social work, nursing, and clinical pastoral education students. J Soc Work End Life Palliat Care. 2010;6(1–2):91–116.PubMedCrossRef
9.
go back to reference Berzoff J, Lucas G, Deluca D, Gerbino S, Browning D, Foster Z, Chatchkes E. Clinical social work education in palliative and end-of-life care: relational approaches for advanced practitioners. J Soc Work End Life Palliat Care. 2006;2(2):45–63.PubMedCrossRef Berzoff J, Lucas G, Deluca D, Gerbino S, Browning D, Foster Z, Chatchkes E. Clinical social work education in palliative and end-of-life care: relational approaches for advanced practitioners. J Soc Work End Life Palliat Care. 2006;2(2):45–63.PubMedCrossRef
10.
go back to reference Aitken PV. Incorporating advance care planning into family practice. Am Fam Physician. 1999;59(3):605–14.PubMed Aitken PV. Incorporating advance care planning into family practice. Am Fam Physician. 1999;59(3):605–14.PubMed
11.
go back to reference Kwon SA, Kolomer S, Alper J. The attitudes of social work students toward end-of-life care planning. J Soc Work End Life Palliat Care. 2014;10(3):240–56.PubMedCrossRef Kwon SA, Kolomer S, Alper J. The attitudes of social work students toward end-of-life care planning. J Soc Work End Life Palliat Care. 2014;10(3):240–56.PubMedCrossRef
12.
go back to reference Fried TR, Bullock K, Iannone L, O'Leary JR. Understanding advance care planning as a process of health behavior change. J Am Geriatr Soc. 2009;57(9):1547–55.PubMedPubMedCentralCrossRef Fried TR, Bullock K, Iannone L, O'Leary JR. Understanding advance care planning as a process of health behavior change. J Am Geriatr Soc. 2009;57(9):1547–55.PubMedPubMedCentralCrossRef
13.
go back to reference Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014;28(8):1000–25.PubMedCrossRef Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014;28(8):1000–25.PubMedCrossRef
14.
go back to reference Martin RS, Hayes B, Gregorevic K, Lim WK. The effects of advance care planning interventions on nursing home residents: a systematic review. J Am Med Dir Assoc. 2016;17(4):284–93.PubMedCrossRef Martin RS, Hayes B, Gregorevic K, Lim WK. The effects of advance care planning interventions on nursing home residents: a systematic review. J Am Med Dir Assoc. 2016;17(4):284–93.PubMedCrossRef
15.
go back to reference Houben CH, Spruit MA, Groenen MT, Wouters EF, Janssen DJ. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc. 2014;15(7):477–89.PubMedCrossRef Houben CH, Spruit MA, Groenen MT, Wouters EF, Janssen DJ. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc. 2014;15(7):477–89.PubMedCrossRef
16.
go back to reference Black K. Advance care planning throughout the end-of-life: focusing the lens for social work practice. J Soc Work End Life Palliat Care. 2007;3(2):39–58.PubMedCrossRef Black K. Advance care planning throughout the end-of-life: focusing the lens for social work practice. J Soc Work End Life Palliat Care. 2007;3(2):39–58.PubMedCrossRef
17.
go back to reference Chaddock R. Integrating early multi-disciplinary advance care planning into Core social work practice: social Workers’bread and butter. J Soc Work Pract. 2016;30(2):129–38.CrossRef Chaddock R. Integrating early multi-disciplinary advance care planning into Core social work practice: social Workers’bread and butter. J Soc Work Pract. 2016;30(2):129–38.CrossRef
18.
go back to reference Harding R, Higginson IJ. Inclusion of end-of-life care in the global health agenda. Lancet Glob Health. 2014;2(7):e375–6.PubMedCrossRef Harding R, Higginson IJ. Inclusion of end-of-life care in the global health agenda. Lancet Glob Health. 2014;2(7):e375–6.PubMedCrossRef
19.
go back to reference Kwon SA, Kolomer S. Advance care planning in South Korea: social work perspective. Soc Work Health Care. 2016;55(7):545–58.PubMedCrossRef Kwon SA, Kolomer S. Advance care planning in South Korea: social work perspective. Soc Work Health Care. 2016;55(7):545–58.PubMedCrossRef
20.
go back to reference Han S. The effects of South Korean social Workers’professional resources on their understanding of a Patient's right to end-of-life care decisions in long-term care facilities. Asian Soc Work Policy Rev. 2016;10(2):200–9.CrossRef Han S. The effects of South Korean social Workers’professional resources on their understanding of a Patient's right to end-of-life care decisions in long-term care facilities. Asian Soc Work Policy Rev. 2016;10(2):200–9.CrossRef
21.
go back to reference Yee A, Seow YY, Tan SH, Goh C, Qu LM, Lee G. What do renal health-care professionals in Singapore think of advance care planning for patients with end-stage renal disease? Nephrology. 2011;16(2):232–8.PubMedCrossRef Yee A, Seow YY, Tan SH, Goh C, Qu LM, Lee G. What do renal health-care professionals in Singapore think of advance care planning for patients with end-stage renal disease? Nephrology. 2011;16(2):232–8.PubMedCrossRef
22.
go back to reference Werner P, Carmel S. End-of-life decision making: practices, beliefs and knowledge of social workers in health care settings. Educ Gerontol. 2001;27(5):387–98.CrossRef Werner P, Carmel S. End-of-life decision making: practices, beliefs and knowledge of social workers in health care settings. Educ Gerontol. 2001;27(5):387–98.CrossRef
23.
go back to reference Werner P, Carmel S, Ziedenberg H. Nurses’and social workers’attitudes and beliefs about and involvement in life-sustaining treatment decisions. Health & Social Work. 2004;29(1):27–35.CrossRef Werner P, Carmel S, Ziedenberg H. Nurses’and social workers’attitudes and beliefs about and involvement in life-sustaining treatment decisions. Health & Social Work. 2004;29(1):27–35.CrossRef
24.
go back to reference Sherwood J. The preparation of advance directives in skilled nursing facilities: social service workers’knowledge and attitudes. Long Beach: California State University; 2012. Sherwood J. The preparation of advance directives in skilled nursing facilities: social service workers’knowledge and attitudes. Long Beach: California State University; 2012.
25.
go back to reference Csikai EL, Roth S, Moore C. Ethical problems in end-of-life care decision making faced by oncology social workers and the need for practice guidelines. J Psychosoc Oncol. 2004;22(1):1–18.CrossRef Csikai EL, Roth S, Moore C. Ethical problems in end-of-life care decision making faced by oncology social workers and the need for practice guidelines. J Psychosoc Oncol. 2004;22(1):1–18.CrossRef
26.
go back to reference Black K. Advance directive communication: nurses’and social workers’perceptions of roles. Am J Hosp Palliat Care. 2006;23(3):175–84.PubMedCrossRef Black K. Advance directive communication: nurses’and social workers’perceptions of roles. Am J Hosp Palliat Care. 2006;23(3):175–84.PubMedCrossRef
27.
go back to reference Johnson YM. Completion of advance directives: do social work preadmission interviews make a difference? Res Soc Work Pract. 2007;17(6):686–96.CrossRef Johnson YM. Completion of advance directives: do social work preadmission interviews make a difference? Res Soc Work Pract. 2007;17(6):686–96.CrossRef
28.
go back to reference Pearlman RA, Starks H, Cain KC, Cole WG. Improvements in advance care planning in the veterans affairs system - results of a multifaceted intervention. Arch Intern Med. 2005;165(6):667–74.PubMedCrossRef Pearlman RA, Starks H, Cain KC, Cole WG. Improvements in advance care planning in the veterans affairs system - results of a multifaceted intervention. Arch Intern Med. 2005;165(6):667–74.PubMedCrossRef
29.
go back to reference Morrison RS, Chichin E, Carter J, Burack O, Lantz M, Meier DE. The effect of a social work intervention to enhance advance care planning documentation in the nursing home. J Am Geriatr Soc. 2005;53(2):290–4.PubMedCrossRef Morrison RS, Chichin E, Carter J, Burack O, Lantz M, Meier DE. The effect of a social work intervention to enhance advance care planning documentation in the nursing home. J Am Geriatr Soc. 2005;53(2):290–4.PubMedCrossRef
30.
go back to reference Gockel J, Morrow-Howell N, Thompson E, Pousson M, Johnson M. Advance directives: a social work initiative to increase participation. Res Soc Work Pract. 1998;8(5):520–8.CrossRef Gockel J, Morrow-Howell N, Thompson E, Pousson M, Johnson M. Advance directives: a social work initiative to increase participation. Res Soc Work Pract. 1998;8(5):520–8.CrossRef
31.
go back to reference Song J, Ratner ER, Wall MM, Bartels DM, Ulvestad N, Petroskas D, West M, Weber-Main AM, Grengs L, Gelberg L. Effect of an end-of-life planning intervention on the completion of advance directives in homeless persons a randomized trial. Ann Intern Med. 2010;153(2):76–W30.PubMedCrossRef Song J, Ratner ER, Wall MM, Bartels DM, Ulvestad N, Petroskas D, West M, Weber-Main AM, Grengs L, Gelberg L. Effect of an end-of-life planning intervention on the completion of advance directives in homeless persons a randomized trial. Ann Intern Med. 2010;153(2):76–W30.PubMedCrossRef
32.
go back to reference Dipko LR, Xavier K, Kohlwes RJ. Advance directive group education in a VA outpatient clinic. Soc Work Health Care. 2003;38(2):93–106.PubMedCrossRef Dipko LR, Xavier K, Kohlwes RJ. Advance directive group education in a VA outpatient clinic. Soc Work Health Care. 2003;38(2):93–106.PubMedCrossRef
33.
go back to reference Bailly DJ, Depoy E. Older peoples responses to education about advance directives. Health & Social Work. 1995;20(3):223–8.CrossRef Bailly DJ, Depoy E. Older peoples responses to education about advance directives. Health & Social Work. 1995;20(3):223–8.CrossRef
34.
go back to reference Luptak MK, Boult C. A method for increasing elders use of advance directives. Gerontologist. 1994;34(3):409–12.PubMedCrossRef Luptak MK, Boult C. A method for increasing elders use of advance directives. Gerontologist. 1994;34(3):409–12.PubMedCrossRef
35.
go back to reference Gutheil IA, Heyman JC. A social work perspective: attitudes toward end-of-life planning. Soc Work Health Care. 2011;50(10):763–74.PubMedCrossRef Gutheil IA, Heyman JC. A social work perspective: attitudes toward end-of-life planning. Soc Work Health Care. 2011;50(10):763–74.PubMedCrossRef
36.
go back to reference Heyman JC, Gutheil IA. Attitudes of social work students toward end-of-life planning. Educ Gerontol. 2003;29(4):313–26.CrossRef Heyman JC, Gutheil IA. Attitudes of social work students toward end-of-life planning. Educ Gerontol. 2003;29(4):313–26.CrossRef
37.
go back to reference Baker ME. Knowledge and attitudes of health care social workers regarding advance directives. Soc Work Health Care. 2000;32(2):61–74.PubMedCrossRef Baker ME. Knowledge and attitudes of health care social workers regarding advance directives. Soc Work Health Care. 2000;32(2):61–74.PubMedCrossRef
38.
go back to reference Peck MR. Personal death anxiety and communication about advance directives among oncology social workers. J Soc Work End-Life. 2009;5(1–2):49–60. Peck MR. Personal death anxiety and communication about advance directives among oncology social workers. J Soc Work End-Life. 2009;5(1–2):49–60.
39.
go back to reference Heyman JC, Gutheil IA. Social work involvement in end of life planning. J Gerontol Soc Work. 2006;47(3–4):47–61.PubMedCrossRef Heyman JC, Gutheil IA. Social work involvement in end of life planning. J Gerontol Soc Work. 2006;47(3–4):47–61.PubMedCrossRef
40.
go back to reference Black K. Social workers’personal death attitudes, experiences, and advance directive communication behavior. J Soc Work End Life Palliat Care. 2005;1(3):21–35.PubMedCrossRef Black K. Social workers’personal death attitudes, experiences, and advance directive communication behavior. J Soc Work End Life Palliat Care. 2005;1(3):21–35.PubMedCrossRef
41.
go back to reference Black K. Advance directive communication with hospitalized elderly patients: social workers’roles and practices. J Gerontol Soc Work. 2004;43(2–3):131–45.CrossRef Black K. Advance directive communication with hospitalized elderly patients: social workers’roles and practices. J Gerontol Soc Work. 2004;43(2–3):131–45.CrossRef
42.
go back to reference Lacey D. End-of-life decision making for nursing home residents with dementia: a survey of nursing home social services staff. Health Soc Work. 2006;31(3):189–99.PubMedCrossRef Lacey D. End-of-life decision making for nursing home residents with dementia: a survey of nursing home social services staff. Health Soc Work. 2006;31(3):189–99.PubMedCrossRef
43.
go back to reference Lacey D. Nursing home social worker skills and end-of-life planning. Soc Work Health Care. 2005;40(4):19–40.PubMedCrossRef Lacey D. Nursing home social worker skills and end-of-life planning. Soc Work Health Care. 2005;40(4):19–40.PubMedCrossRef
44.
go back to reference Stein GL, Cagle JG, Christ GH. Social work involvement in advance care planning: findings from a large survey of social Workers in Hospice and Palliative Care Settings. J Palliat Med. 2017;20(3):253–9.PubMedCrossRef Stein GL, Cagle JG, Christ GH. Social work involvement in advance care planning: findings from a large survey of social Workers in Hospice and Palliative Care Settings. J Palliat Med. 2017;20(3):253–9.PubMedCrossRef
45.
go back to reference Heyman JC. Social workers’and nurses’attitudes toward the health care proxy. J Soc Work End Life Palliat Care. 2008;4(1):57–74.PubMedCrossRef Heyman JC. Social workers’and nurses’attitudes toward the health care proxy. J Soc Work End Life Palliat Care. 2008;4(1):57–74.PubMedCrossRef
46.
go back to reference Black K. Advance directive communication practices: social workers’contributions to the interdisciplinary health care team. Soc Work Health Care. 2005;40(3):39–55.PubMedCrossRef Black K. Advance directive communication practices: social workers’contributions to the interdisciplinary health care team. Soc Work Health Care. 2005;40(3):39–55.PubMedCrossRef
47.
go back to reference Neuman K, Wade L. Advance directives: the experience of health care professionals across the continuum of care. Soc Work Health Care. 1999;28(3):39–54.PubMedCrossRef Neuman K, Wade L. Advance directives: the experience of health care professionals across the continuum of care. Soc Work Health Care. 1999;28(3):39–54.PubMedCrossRef
48.
go back to reference Laje RP, Wilks GB, Marx M, Cohen-Mansfield J. The Maryland patient plan of care form: perceptions of physicians and social workers. J Am Med Dir Assoc. 2007;8(9):575–81.PubMedCrossRef Laje RP, Wilks GB, Marx M, Cohen-Mansfield J. The Maryland patient plan of care form: perceptions of physicians and social workers. J Am Med Dir Assoc. 2007;8(9):575–81.PubMedCrossRef
49.
go back to reference Broad JB, Gott M, Kim H, Boyd M, Chen H, Connolly MJ. Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics. Int J Public Health. 2013;58(2):257–67.PubMedCrossRef Broad JB, Gott M, Kim H, Boyd M, Chen H, Connolly MJ. Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics. Int J Public Health. 2013;58(2):257–67.PubMedCrossRef
50.
go back to reference Munn JC, Adorno G. By invitation only: social work involvement at the end of life in long-term care. J Soc Work End-Life. 2008;4(4):333–57. Munn JC, Adorno G. By invitation only: social work involvement at the end of life in long-term care. J Soc Work End-Life. 2008;4(4):333–57.
52.
go back to reference Miljkovic MD, Jones BL, Miller K. From the euthanasia society to physician orders for life-sustaining treatment: end-of-life care in the United States. The Cancer Journal. 2013;19(5):438–43.PubMedCrossRef Miljkovic MD, Jones BL, Miller K. From the euthanasia society to physician orders for life-sustaining treatment: end-of-life care in the United States. The Cancer Journal. 2013;19(5):438–43.PubMedCrossRef
53.
go back to reference Christ GH, Sormanti M. Advancing social work practice in end-of-life care. Soc Work Health Care. 1999;30(2):81–99.PubMedCrossRef Christ GH, Sormanti M. Advancing social work practice in end-of-life care. Soc Work Health Care. 1999;30(2):81–99.PubMedCrossRef
54.
go back to reference Stein GL, Fineberg IC. Advance care planning in the USA and UK: a comparative analysis of policy, implementation and the social work role. Br J Soc Work. 2013;43(2):233–48.CrossRef Stein GL, Fineberg IC. Advance care planning in the USA and UK: a comparative analysis of policy, implementation and the social work role. Br J Soc Work. 2013;43(2):233–48.CrossRef
55.
go back to reference Emanuel LL, Danis M, Pearlman RA, Singer PA. Advance care planning as a process - structuring the discussions in practice. J Am Geriatr Soc. 1995;43(4):440–6.PubMedCrossRef Emanuel LL, Danis M, Pearlman RA, Singer PA. Advance care planning as a process - structuring the discussions in practice. J Am Geriatr Soc. 1995;43(4):440–6.PubMedCrossRef
56.
go back to reference Bern-Klug M, Gessert C, Forbes S. The need to revise assumptions about the end of life: implications for social work practice. Health & Social Work. 2001;26(1):38–48.CrossRef Bern-Klug M, Gessert C, Forbes S. The need to revise assumptions about the end of life: implications for social work practice. Health & Social Work. 2001;26(1):38–48.CrossRef
57.
go back to reference Kass-Bartelmes BL, Hughes R. Advance care planning: preferences for care at the end of life. Journal of pain & palliative care pharmacotherapy. 2004;18(1):87–109. Kass-Bartelmes BL, Hughes R. Advance care planning: preferences for care at the end of life. Journal of pain & palliative care pharmacotherapy. 2004;18(1):87–109.
59.
go back to reference Bullock K. The influence of culture on end-of-life decision making. J Soc Work End Life Palliat Care. 2011;7(1):83–98.PubMedCrossRef Bullock K. The influence of culture on end-of-life decision making. J Soc Work End Life Palliat Care. 2011;7(1):83–98.PubMedCrossRef
Metadata
Title
Social workers’ involvement in advance care planning: a systematic narrative review
Authors
Chong-Wen Wang
Cecilia L. W. Chan
Amy Y. M. Chow
Publication date
01-12-2018
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2018
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-017-0218-8

Other articles of this Issue 1/2018

BMC Palliative Care 1/2018 Go to the issue